April 2014 Surgery Sisters

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  • Frostecat
    Frostecat Member Posts: 447
    edited June 2014

    Thanks Scuba - very well thought out and said.  My feelings echo yours.  Now - to keep moving forward - UNI's United!

  • DiveCat
    DiveCat Member Posts: 968
    edited June 2014

    Frostetcat,

    I think I saw you in the picture forum admiring the results of a uni, it sounds like you feel much more comfortable with your decision now. Hang in there, you can have excellent results (as you saw). 

    Well, I am now 7 weeks out of surgery, hard to believe! Been back at work now for 3 weeks (the first week half-days) and back into swing of my routine for most part. I still sleep on my back as it is more comfortable, and side sleeping is not for me, but look forward to returning to my stomach in due time. My implants are still settling into place, the left is starting to catch up to the right a bit more after being the stubborn one for quite a while. There are some little things that I hope work out cosmetically in next couple months, but if not I don't think I would worry until next February or so about revisions, to make it fit into my schedule a bit better and because they are very minor little things at this point. Honestly, they don't really bother me and I actually feel very accepting of my new breasts, but I also am interested in what can be done. I see PS again in two weeks so I will ask him what he thinks then.

    I am back to most of my routine. I did start back to running this week, doing a run/walk. Or more like a run/shuffle at this point! None of my old sports bras fit (my old Shock Absorber Runs, which I loved, now feel suffocating and much too tight) and I don't want to buy new ones yet, so I am wearing a Genie underneath my Marena on its tightest hooks. That seems to work to minimize bounce. I am hoping to maybe try doing some diving next week (in my drysuit) but will be taking it easy (not doing the course that my husband is doing and I have to wait until fall to do and believe me I am a bit bummed about it!), and am planning a hike this weekend with my husband.

    I really want a good (padded) underwire, as my IMF incisions are feeling quite good right now and want the shaping and support (and better neckline under clothing) that my Genies/wireless aren't giving me. I could not even bear the thought of underwire a few days ago, now I have done a 180! I went to the only bra fitting place here in town a couple days ago and a lady who is NOT one of the regular ladies/owners was there and I think she kept thinking I had had an augmentation by her comments and the bras she was trying to put me in. I got frustrated with her and left. I guess I could go back and hope one of the other ladies is there, but to be honest I am kind of turned off going back there now. Though I "look" a bit smaller than I was, I think I still need about a 32DD due to width and firmness of the implants....and I don't want to get into the order/return/exchange thing yet as it costs so much with shipping to and from Canada, and dealing with duties and all that. I really want to try the Wacoal Awareness everyone talks about but I have heard sizing on it is tricky; I might hunt more for a Canadian store that sells online though those are harder to find. That, or I might go to the local department store and try on some 34D's (I know they carry Bali, at least) and then just do some modifications on them for now. 

  • Frostecat
    Frostecat Member Posts: 447
    edited June 2014

    Thanks Divecat.  I am definitely having my moments right now.  Especially last night when I put on a T-shirt (no bra) with one hanging to my waist the the other perky.  I was only in front of my husband, but I think it almost looks worse in a t-shirt that naked!  Again another evening of why oh why didn't I do it!  I think with it being summer time makes it definitely worse, no big sweaters to hide under.

    Glad to hear all is well with you, it sounds like you are moving right along, and like most of us, in search of the perfect bra!

  • Renee51
    Renee51 Member Posts: 96
    edited June 2014

    I had to see a second surgeon per my PS request. My PS is moving his practice, 8 hours away. I knew this when I first had BMX with reconstruction. I wanted the cancer OUT and would have had to wait longer for surgery if I chose a different plastic surgeon. No regrets there! 

    However, as you may recall, I had infection about two weeks ago, due to necrosis at the incision site (poor blood supply because of where my cancer was located). Looks like almost 7 weeks out, I am going to lose the nipple after all. The second opinion Doc. suggests I have surgery to remove tissue and then suture incision closed again. I have had to have fluid removed twice from expanders due to these issues. (I had 300 at surgery). Now, one breast has 400 ml and problem breast is back down to 300ml. If it is decided I should go back to surgery my PS will remove more fluid from expanders. Who knows when I will get to have expanders replaced with implants. I don't even ask those kinds of questions any more. 

    Oh well, it is what it is. I just so look forward to the day when I look and feel "normal" again. I do have one question, does anyone know how much fluid is needed in expanders to obtain a C cup? I need a goal I can look forward to, lol.

    And one more question, comment. I am still struggling with the people who are asking "how are you doing" and keep staring at my very flat chest. Today, when I was asked that question and I could see she was curious and uncomfortable, I said, other than being "flat as a fritter," I am ok. This allowed her to stare openingly and get it over with. People are curious, I guess. 

  • DiveCat
    DiveCat Member Posts: 968
    edited June 2014

    Renee....I look fairly similar in size to what I was as I was direct to implant (maybe look like a 32 C/D now in clothes, I was a 32 DD). I catch people looking at my chest all the time too. I am sure some wonder what's up with my chest but I don't really care to be honest. I think you handled things well with the one woman today, but you don't owe them any explanation either. 

    Sorry about the continued issues...I hope things get sorted out soon for you. Sounds like you are in good hands!

    You can't really go by cup size in reconstruction. The right size implants for you depend on your body measurements, skin flaps, and TEs, and a 500cc implant on one woman will be different in cup size than another. My 435ccs that look like a 32 C/D on me would look to be a 36 A/B on someone else. Implants also measure bigger than they look...because your implants will be wider you may look like a C but need to wear a D or DD cup size. I still need a 32DD in most bras though I look smaller than that!

    Oh, and implants come in various widths, projections, etc.  You should go to the Breast Implant Sizing 101 thread though, read the header, and give whippetmom the required info for some recommendations.

  • happyteacher
    happyteacher Member Posts: 118
    edited June 2014

    Renee,

    Fill amounts I believe can vary greatly.  My goal is a full C or smallish D.  But, I am 6'2'' tall so the doc said it would take more fluid for me to reach that.  I had 240 cc's in at surgery, 100 cc's on the first  fill, and 50 on the second.  So, a bit under 400 ccs and I would esitmate myself at a very full A cup, small B cup at the moment.  The fill of 100 seemed to do very little, but the fill of 50 seemed to make a significant difference... so no telling where I will end. My PS probably has an idea, but I never asked him other than seeing if he could speed the process up :) 

     Keep in mind, from what I read at least, the TEs will be filled to a larger size than the implants.

  • Radical2Squared
    Radical2Squared Member Posts: 460
    edited June 2014

    Renee,

    You are a better woman than I! I was so fed up with the "how are you doing stare" that the camels back was broken last week. I was at the mechanic shop where I work in the summer and one of the mechanics gave me a hug, asked me how I was doing and proceeded to stare. I lifted my shirt in the middle of the shop and showed him my scarred and scanned bumps! He turned bright red and started apologizing. Thank God mechanic shops don't believe in sexual harassment charges b/c I probably would've been in trouble!

    After the red left his face, I felt bad that I'd lost it. He was only trying to be polite. I'm pretty sure I satisfied his curiosity and grossed him out! You defiantly handled it better than I did! 

    I start chemo in 2 days...kinda hoping that gives people something else to be curious about so I don't need to worry about it. Star at my bald head, not my flat chest! Lol

  • Sodie1017
    Sodie1017 Member Posts: 38
    edited June 2014

    radical, I'm laughing! You are one gutsy woman! I had an older woman tell me I was looking great and her eyes kept shifting down. I'm sure some people are just trying to figure out what a BMX and reconstructive surgery are!

  • Renee51
    Renee51 Member Posts: 96
    edited June 2014

    Radical, so funny and brave!! I love it! Sodie, you are right. I remember when my friend had a mastectomy 5 years ago, I literally forced myself NOT to look. We talked just the other day about that. she says to this day, she has people who ask her how are you and stare at her absent breasts (she wears prosthetics though). She said, one day after 4 years (she was patient), she had had enough from one man and she finally said, "hey fellow, eyes up here. Theres nothing there you need to see." He has never stared at her breast since! Everyone has a breaking point! 

  • Radical2Squared
    Radical2Squared Member Posts: 460
    edited June 2014

    I thought that might make a few of you laugh! I think next time I should try, "eyes up here fellow!" 

    I really am a conservative person at heart. He just caught me at the wrong time! Lol

  • Zeeba
    Zeeba Member Posts: 145
    edited June 2014

    Hi--For those of you w/ expanders...do they wiggle around? I can move them to the middle....to the right...to the left....up....down....my bra (the coobie...best purchase ever) keeps them in one spot, but the wiggling around is just weird feeling. Actually, the whole expander thing is weird feeling but I'm getting used to it as long as I have a bra on.   I'm not supposed to see the PS for another month and I don't think anything is wrong....They are hard as rocks and I can also wiggle them when I move the muscle...that's a good party trick.

    Hope everyone is doing well!

  • Janett2014
    Janett2014 Member Posts: 3,833
    edited June 2014

    Zeeba,

    I have expanders, but they do not wiggle around. Mine are not hard either; they kind of feel like firm breast tissue when I touch them. I freaked myself out a bit when I recently figured out that I can wiggle them by flexing my chest muscles. Except for the little "poochie" thing under one arm, I'm pretty happy with them. With a Genie bra on (with inserts), I am very pleased with how I look. 

    The expanders were SO tight and uncomfortable for the first 5-6 weeks. It was such a relief when that finally let up. All that being said though, I am looking forward to getting implants one month from today, and the PS assures me that at that time he can fix the extra little boob under my arm!  

    Janett

  • Renee51
    Renee51 Member Posts: 96
    edited June 2014

    Zeeba, my TE also seem to move around. It is such a weird feeling. Sometimes, it feels like it tries to flip over, other times I don't really feel anything. Good to know someone else has these issues. I sometimes can feel what seems like fluid is sloshing back and forth.

    Mine are also pretty hard. Don't know if this is to e expected or not. PS says, I am improving each day, however, I look forward to having this journey behind me. God is good!

  • DiveCat
    DiveCat Member Posts: 968
    edited June 2014

    TEs are supposed to be a bit hard...their purpose is to expand the tissues. Your muscle is strong and will try to contract over a foreign object and your skin needs pressure to stretch and expand...the TEs need to be hard enough to resist this and to expand the skin. They will be softer when they are underfilled, but will get very hard as they get filled or overfilled. 

    It is not unusual for them to move around either. Some TEs have places to stitch them into place, but it seems most of the time they aren't stitched into place. Them moving is okay too. You are just trying to create a large enough pocket for the implants and your implants won't move around like the TEs do (sometimes the PS will also do some extra pocket work at exchange as well).

    I see my PS this coming Friday for my...9 week postop! Hard to believe it was both that long ago and that short of a time ago! I intend to talk to him about a potential revision in a few months or next year. Not sure if it will be needed or not at this point but I do have a bit of loose extra skin on right side just above and to side of IMF scar I am not confident is going to shrink away any more.  It is not a dog ear, more like a chicken skin roll :p  This was my larger breast before surgery so I just think the flap was more looser and more relaxed to begin with and so I had more loose skin on that side that shrank slowly (implant certainly dropped a lot faster on that side and is fluffing out faster on that side than the left!). I will ask if it is anything to be concerned about internally or if it is just a cosmetic thing at this point. I am hoping it can be addressed in a scar revision or by extending the IMF incision/scar up a bit rather than having to do anything major with internal sutures but I will ask. It is still rather early though and I know revisions aren't considered until at least 6 months after surgery (I would not want to do anything until November or alternatively February anyway) :)

  • Zeeba
    Zeeba Member Posts: 145
    edited June 2014

    Yup...my doc said it was perfectly normal...but a VERY strange feeling! I see him again in 3 weeks to decide next steps....I still can't decide if they are big enough....hope everyone is doing well!

  • DiveCat
    DiveCat Member Posts: 968
    edited June 2014

    Zeeba, 

    Well some will say if you aren't sure if they are big enough they aren't big enough  

    I am not really one of those people, ha ha. I guess it all depends on where someone is coming from. I wanted to be smaller than I was. I think now that the swelling has gone down I do look a bit smaller but it turns out I still need my old bra size because they ARE firmer and shaped differently. I kind of had to take a chance as I was direct to implant and did not get to "test out" sizes beforehand and had to trust my PS (and with nipple sparing was a bit more limited too). But, I am happy with the size and think they suit me :)

    If you aren't sure, you can always put on a tight fitting t-shirt (white is generally best) to see how they look, and you can even make "rice sizers". You will need pantyhose and rice, and a larger cupped bra or a very stretchy bra. Then you can pour some rice into the feet of pantyhose, cut/tie off and stuff them into the bra cups (leave the pantyhose a little underfilled so they are soft/malleable and you can form them around TE/bra cup). One cup of rice is about an increase in one cup size, so you can use less rice if you feel close to the cut off and see how it looks. It's not an exact thing, but it might at least give you an idea as to whether you think going a bit bigger is preferable or you are happy with where you are at.

  • Zeeba
    Zeeba Member Posts: 145
    edited June 2014

    Great idea....I also wanted to be smaller....but they are such a different shape and so odd that I really can't tell....I tried on an old bra, it was a little big but since these don't sag or anything, I can't really tell. The last thing I need are giant boobs again. But this jiggling around is just BIZARRE!! I can feel it "slosh"...Only one does it...and not all the time. Sometimes it feels a little "stabby" but otherwise, they really aren't all that bad.

    Ah...I try a previous swim suit....THAT will tell me for sure.

  • Renee51
    Renee51 Member Posts: 96
    edited June 2014

    Ugh, my TE's slosh too. Such a weird feeling. 

  • Radical2Squared
    Radical2Squared Member Posts: 460
    edited June 2014

    It's been so long since I've been able to fill that "sloshing" isn't even the word! On the upside, they're so lose now that I can tap on them and make them jiggle like real boobs! Lol real....little....flat boobs, but boobs!


  • Radical2Squared
    Radical2Squared Member Posts: 460
    edited June 2014

    Hey, quick question...when I wear a tank top or lower cut top, all I see are ribs and collarbone. I've always been skinny, but this makes me look anorexic! Any idea how I can put a little muscle back I to my upper chest or something?

  • Sodie1017
    Sodie1017 Member Posts: 38
    edited June 2014

    radical, are you going to physical therapy? I would think that a PT could give you some advice. I started going to PT last week. I've been doing stretches at home and have pretty good range of motion in my arms, but I'm so tight. The first PT really got in there and worked on my pecs, shoulder blades, and arm pits. It hurt, but it was one of those good hurts. I asked about lifting weights and swimming to rebuild my strength, but she wants to get better range of motion before building strength. I went again today and everything hurt to the point of me being on the verge of tears. In addition, I have plantar fasciitis so they're working on my foot as well. I just want to get on with my life as I'm sure all of you do as well!

    Oh another thing the PT is having me do is massage my incisions to break down the scar tissue. Why didn't the PS tell me to do that? Did any of you receive advice like this? Who else is doing PT?

  • Radical2Squared
    Radical2Squared Member Posts: 460
    edited June 2014

    I did a year of pt, omt, chiro, and acupuncture BEFORE surgery! Lol ( I have 2 herniated disks in my neck with nerve damage) I'll be going back, but not until I'm done with chemo. I'm not a germ phobe at all, but there are just so many people in and out of that place, using the machines and sweating on the tables that I just can't! Lol

  • DiveCat
    DiveCat Member Posts: 968
    edited June 2014

    I had a follow up with PS on Friday, 9 weeks out from surgery. He is pleased, and just told me to keep doing what I am doing.  Which is nothing much except massaging them 1-2x a day. They are still in the process of softening up and fluffing into place. I don't go back to see him until the fall. He said while most things will be settled by 6 months, changes can continue for up to a year or so to really know what you are going to get. But things look like they are progressing nicely.

    I also went bra shopping while in Calgary. I do have some underwire Wacoal Halo's that work but they are pretty full coverage and I wanted something a bit less coverage for lower cut tops and that was a bit prettier. Found a Panache that worked great, in a pretty colour, and it even gives me some nice uplift. My husband was incredibly patient as I tried on about 50 bras at 2 different stores....definitely a bit more of my challenge to find bras that work with reconstructed breasts than it was with my natural ones. :)

    More importantly...I got back into the water for some scuba diving yesterday! Cold water diving in water that is only 4-5 degrees Celsius above freezing, so it is a bit of a slog with all the equipment, layers, and weight, and my husband/dive buddy had to give me a bit of extra help on land, but it felt great to be back in the water again and I had no issues with my chest, etc.  Did two dives and it went very well underwater. Even though it was cold and miserable outside I had a great time; diving was what I was most anxious about being able to get back to out of all my activities and so I am thrilled to be back at it.

  • Renee51
    Renee51 Member Posts: 96
    edited July 2014

    Divecat, it is awesome you are getting your life back!! So proud of you, keep pushing forward!!

  • scubalady
    scubalady Member Posts: 109
    edited July 2014

    Just a general update.  

    Well, I'm done with all my fills and should be having my exchange in September.  Yay!!  My TE is reasonably comfortable, but too high to match my other breast at this point.  I told my husband that if we were flying anywhere, I wouldn't need my inflatable travel pillow, I could just rest my chin on my TE.

    Being back to work is going ok, but after being off as long as I was with the surgery, I'm really looking forward to retirement (600 days from now, not that I'm counting).

    Life is starting to return to normal for me, and of course I'm always saying a prayer for all my BC sisters too.

    It's summer!!  Let's all do something fun!!

  • Sodie1017
    Sodie1017 Member Posts: 38
    edited July 2014

    Hey girls, I hope everyone is doing well. I decided to go bra shopping tonight. I'm glad some of you mentioned how different the sizing would be due to implants sitting wider. The bra fitter at Dillard's was a gem. She has fitted other women like me.  In the dressing room there's a pic of her and some co-workers at a race for breast cancer! Anyway, I am now the proud owner of a 34DD bra! Holy cow! I was a 36B before my surgery. I really didn't want an underwire, but the fitter explained it offsets the width of the implants. I paid way too much for it, but in the long run, I think it will be worth it. 

  • Radical2Squared
    Radical2Squared Member Posts: 460
    edited July 2014

    Sodie,

    You're scaring me! Lol I was a 34A before surgery. I very rarely even wore a bra. As these TE's keep getting bigger, I'm wondering how long I can go without having to keep them contained! Right now, I'm bigger than I was before surgery (probably a wide B cup?) But I don't where a bra because these things are like softballs glued to my chest!

    I know nothing about bras except to put one on under a t-shirt occasionally if I was chilly! Lol

  • vfay49
    vfay49 Member Posts: 101
    edited July 2014

    Just checking in . . . It seems that most of the April surgery sisters have stopped posting.  I had a BMX with TEs on April 7.  My PS says two more fills, and I should be done.  That will put me at my TE capacity of 700 cc.   There is then a two month waiting period.   This has been a much longer process than what I had anticipated.   My exchange surgery will be sometime in October.  I have had general discomfort throughout this process, but I am functioning normally for the most part.  I just pray that the implants are more comfortable!

  • Radical2Squared
    Radical2Squared Member Posts: 460
    edited July 2014

    Vfay,

    You're timing is shorter than mine! Lol

    Surgery was April 8. I am doing chemo now. I only started fills June 14 and I just get 40cc at a time because my skin has been very uncooperative! I don't think I'll even have all my fills by October! Lol

  • RamblingRose
    RamblingRose Member Posts: 50
    edited July 2014

    My surgery was April 9, and when it turned out I had to have chemo, I asked for a reprieve til after our daughter's wedding. The wedding was fabulous, relaxing, easy, full of family and laughter and memories. 

    Chemo started Thursday, July 24, after an echocardiogram and port placement. So far, feeling OK, not great, but not awful. Still have a decent appetite, but certain things don't appeal any longer, like beer and coffee. But it has only been two days. We shall see.

    I am not having reconstruction. 

    The women on this board have been a source of knowledge, inspiration and encouragement. I am so grateful to you.

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