Starting Chemo in April 2014

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  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited June 2014

    Just found out that my CA 125 tumor marker is up to 67.  Three weeks ago it was 50 and three weeks before about 35.  I'm trying not to panic.

  • linda505
    linda505 Member Posts: 847
    edited June 2014

    Timbuktu - keeping you in my thoughts and prayers.  My MO only ran those once and will not run them again on me.  I had two active cancers - one in each breast - this is before my BMX and/or any treatment.  My tests were normal.  He said that they are not very dependable and that inflammation anywhere in your body can cause them to rise.   Are you have any symptoms of anything?

  • merg
    merg Member Posts: 61
    edited June 2014

    Good wishes, Linda!

    Quick question, Anyone's blood sugar count go high? And does steroids make that happen? Thanx Ya'll.

    Here's to easy SE's for everyone.

  • linda505
    linda505 Member Posts: 847
    edited June 2014

    Hey Merg - yes the steroids will mess with your sugar big time.  I am type II diabetic and mine goes high for the steroids days.   I have cut my steroid intake way down - with my MO's approval.   

  • EverForward
    EverForward Member Posts: 242
    edited June 2014

    Merg, my blood suger has also been high. The tech said it can be because I'm not fasting before the blood draw.

  • linda505
    linda505 Member Posts: 847
    edited June 2014

    High blood sugar is relative.  If the test is done and not a fasting test - then normal for a none diabetic could be anywhere between 80 and 120 ish depending on how long it was before the test that you ate.  A non diabetic rarely will get above 120 and will quickly return to normal, no matter what they have eaten and when - unless you are taking steroids - then you can throw that out the window.   In my case, I am a diet controlled diabetic, I don't take any meds - my normal fasting sugar - first thing in the morning is 90 ish.  On my none steroids days if they test my sugar, whether I am fasting or not, I am usually still under 100 as I eat low carb, use no sugar and therefore rarely allow my sugar to get above 120.  On steroid days - even if I am fasting - it has been as high as 200.  I can feel it when I am that high - but I return back to my normal levels a day or two after I am done with the steroids.   Chemo can cause temporary diabetes and can also cause permanent diabetes in those who may have been pre-diabetic prior to chemo.   If you are interested in testing your sugar, - Walmart has an inexpensive tester and inexpensive strips that work quite well - It is there Relion brand.  But in general, unless you are going really high I wouldn't worry about this during chemo but I would monitor it after chemo to make sure that you return to normal.  

  • SharonDe
    SharonDe Member Posts: 222
    edited June 2014

    More on sugar.  My levels were high after the steroid use - more than 200.  After more testing, GP and MO conferred and I am now taking metformin ( a drug for type 2 diabetes). The plan is to take it through chemo and for 2 months after, then see if I can get off of it. 

    Prior to chemo, I was controlling sugar with diet.  Things did get out of whack after my DX, when I ate a little too much comfort food.  So, I did not help myself.

    Sending good vibes for your results, Linda,  and hoping all is well Timbuktu.

  • linda505
    linda505 Member Posts: 847
    edited June 2014

    Thanks Sharon for the well wishes.  I considered going on metformin during treatment but decided I wanted to see how out of control it got and for how long - I really was trying to avoid going on diabetes meds prior to BC - but I may end up on them anyway - there are some studies that metformin MAY be beneficial in preventing a recurrence- but last I read on it wasn't that hopeful that it was actually helping.  I am going to try to see my endo next week and have her run an A1C and a few other blood tests and talk to her about the met and see what she thinks.

  • Footballnut
    Footballnut Member Posts: 742
    edited June 2014

    good morning all!

    I'm soooooo tired this morning!  This is the most fatigue that I have felt since these cocktails have started. Ugh!

    Last night I awoke to major hip and lower back pain. Cuddling with the hubby for heat helped. This morning it's not too bad

    I've noticed that my eyes were crusty this morning. Oh the fun of it!!  Lol

    The bump in my right ear love persists but seems to be improving. Polysporen here I come!!

    Now to brekkie, walking and weights!  Then guitar practice!

    Wishing all a great day!!!

  • SharonDe
    SharonDe Member Posts: 222
    edited June 2014

    Have some energy this morning, so thought we could use a little pick-me-up going into the weekend. Note - still waiting for some pics of our lovely MameMe and Brigadoon :)

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  • Footballnut
    Footballnut Member Posts: 742
    edited June 2014

    sharonDe love it!  Our journey in photos!  Look how far we have come!  Thanks for the laff - I love the " hockey nut"!   On a day when I have no energy I  needed this and will now push my butt out the door for a walk!

    Many thanks!!!!!

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited June 2014

    football nut I hope you got out the door. :)

    I actually got out and had lunch with a fellow breast cancer survivor. It was wonderful. The best company and I just LOVE hanging out with my friend. :). I am still a little drained today but better than yesterday. I did find out that my big toe is infected already :(. So soaking it is now a must. Chemo the gift that keeps on giving. :(

  • Footballnut
    Footballnut Member Posts: 742
    edited June 2014

    well I walked 2 miles in 45 minutes. Felt good. Doing arm weights now. Man I'm soooo tired but it feels great to work out!

    Chemo sure does keep giving doesn't it!!

    Lol

  • LovieLovie
    LovieLovie Member Posts: 68
    edited June 2014

    Happy Friday the 13th ladies!

    I wanted to do a quick scan and see how all of you beauties are doing.  I should confess that I thought I would be doing chemo again with all of you (starting in April) but I decided to do a clinical trial instead (no placebo) and am doing well on it. 

    I noticed some low RBC comments and hope everyone is eating as much protein in your diets that you can stand.  I would say I just about doubled my protein intake during chemo.  Adding greek yogurt, protein bars and nuts helped a lot.  It was the one thing I felt I had control over in my life. 

    Timbuktu- 67 isn't extremely high, but its the trend they should be looking at.  What does your MO say about it?  I would be asking for a scan about right now.  Be a squeaky wheel.  If you need to be changing treatment wouldn't you want to make that change now?  Does anyone else get cancer antigen drawn? I get CA 27-29 and CA 125 and I find them to be very accurate for me (based on scan evidence).  One exception is during radiation, most RO's wouldn't do them during radiation as it is blasting those up and will show a very high number of those proteins in your system and it will not be an accurate.

    You guys are an amazing team!!!

     


     

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited June 2014

    Thanks Lovie.  I called my onco today and she said that she wasn't worried at all.  I have had a clear scan and she said that others have had much higher scores with no cancer.  so, I relaxed.

    My hemoglobin is doing well, 11.8.  I try to eat red meat and I cook it in a cast iron pan so some iron will leach out into the meat.  Then I take a vitamin C pill to help me absorb it.  they told me tc isn't as hard on the bone marrow as some other chemos.

    I'm also going to have another opinion with the onco from Sloan.  I'm trying not to be too nervous but when opinions differ it's hard.

    Have a good weekend all of you wonderful women!

  • Mompv
    Mompv Member Posts: 110
    edited June 2014

    Went to work today only made 1/2 day. I had to work so slow so I posted properly!!! I am a bookkeeper, and the office manager! I am trying to drink 64 oz of fluid, wondering if a banana smoothie counts since I am sick of waster and the sparkling. Oh well. 

    Did eat a hamburger patty for dinner and and added Greek yogurt to my instant breakfast smoothie and a banana. Should be good protein. 

    I plan on taking claritan tonight since I have my first neulasta shot tomorrow morning. 

    I hope everyone is resting and doing what they are supposed to. 

    My youngest dd, who is 21 just did a complete Lysol spray of the house...,she is so paranoid I am going to get an infection. Well it shows she cares!!!!

    Good night all. 

  • Golfingirl
    Golfingirl Member Posts: 40
    edited June 2014

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    Hello everyone,

    I hope you're all hanging in there and have had a good week. I'm just checking in. I was in the chair today. #4 of 6. Long day. Fatigued and nauseated. The usual. I have my heart monitor on. I'm so short of breath, I was surprised I wasn't anemic. Makes me think the ticker is suffering though. Sigh. One day at a time. 

    The silver lining is my other sister is here from Canada. She's very upbeat. That sure helps.

    Have a great restful weekend. 

    Love the pictures SharonDe. Keep em coming!

    Cheers,

    Laura

  • merg
    merg Member Posts: 61
    edited June 2014

    Hey Ya'll. Thank You Chemo for all the bad pain in the last 2 days. I feel so much better. Owww, it really has been hurting. I'm just having a pity party & anyone can come. Sorry for the whining. Shoulders, neck, arms are also whining.

    And I forgot to mention that my chemo tongue says thanx. yuk. sorry.

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited June 2014
  • EverForward
    EverForward Member Posts: 242
    edited June 2014

    Merg, you never have to apologize here. In fact, I'm declaring this board an apology-free zone. This is the place to whine, complain, throw a tantrum, and cry without guilt or apology. Pity parties welcome!

  • Longislandl8y
    Longislandl8y Member Posts: 145
    edited June 2014

    Good morning ladies.  Thank you so much for all your kind words and prayers regarding the untimely passing of my niece.  The funeral was beautiful with many of her young friends in attendance and lots of good memories being shared.  My sister and bro-in-law exhibited remarkable poise and strength, and I'm not sure who was comforting who as they received guests.  It was truly beautiful.  We are home now.  My SEs were very tolerable, except for the C which I'm still battling.  I did not want to transition into the horrible D I experienced after round 3 (especially knowing I had a 5 hour road trip ahead) so I cut the Senokot dosage in half and now I'm just trying to get regulated.  We are home now.  Today they are having a party to celebrate her life - a request she asked of her dad in a vision he had the morning after her death...

    ANYWAY...

    Linda I am praying for you and hope you get your good results sooner rather than later.  The waiting can consume you, so just try to keep distracting yourself with good things.

    I woke up at 3am today and am waiting for DH to wake so I can go take a walk.  I think that might help get things moving... ugh.  I thought if they start moving too quickly I can call him to pick me up, lol.  Plus my two puppies would be very upset if I go for a walk without them since nobody else is awake here yet to keep them company.

    Football - sorry about your NYR.  They had a great run, that's for sure.  I love your recent picture.  When I was at the funeral on Thur, I had to get up and use the bathroom and my right food was acting up.  I don't know if it was from standing for 4 hours during the wake before sitting down.  But it was turning in with every step I took.  It corrected itself soon after.  Hopefully not neuropathy rearing it's head. 

    Today is my 50th bday and all I want to do is kick back, take a dump (hahaha), and putt putt around in my garden.  I have had no nausea as of yet after last Tuesday's round 4 which is a beautiful thing. 

    Thank you again girls, your words about our angel meant a lot.  Here is a picture of her.

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  • mmtagirl
    mmtagirl Member Posts: 509
    edited June 2014

    What a beautiful angel, indeed, LongIsland.

    I hope you can find a way to celebrate your birthday today and find a silver lining. I remember not turning 50 with grace.  It was more saying the age out loud than being 50 that bothered me  I didn't feel, don't feel, middle-aged.  I got over that quick and turn 52 in August and now I say bring it on!

    Wishing you the ability to have the taste buds to enjoy some cake and ice cream or a nice glass of something to celebrate this great age.  

    So far so good for me.  Not nearly as nauseous with this final round of AC.  However, had DH bring me home from the grad party circuit because I was just too tired and didn't have it in me for idle chit chat for party #3 Went to bed at 9:30 and have been tossing since 3am with no dog to walk like LongIsland.

    I could smell the chemo from Tuesday lall night through the pores in my skin.  Wasn't wxactly night sweats, or maybe it was...but, yuck! Couldn't stand that odor all night! I seem to get it every time but this round was worse.  Glad to be done with AC.  Bringing on the taxol in July.  What a fun summer!

    Wishing those of you waiting on tests, not feeling well or generally in need a pick me up a weekend of sunshine and distractions to get you through.

  • merg
    merg Member Posts: 61
    edited June 2014

    Happy Birthday LongIsland. Wishing you a great easy happy day.

    Your niece is a beautiful Angel.

  • brigadoonbenson
    brigadoonbenson Member Posts: 412
    edited June 2014

    LongIsland - I am glad you were able to make your trip without too many SE's.  Twenty-two is so young and she was a lovely girl.  It makes me feel lucky to have had a full life even with the BC. 

    You will soar at 50.  I find the older I get the more honest I am with myself and the less I care about superficial things and other peoples opinions.

    Happy Birthday from VT.

  • Swissmiss
    Swissmiss Member Posts: 111
    edited June 2014

    Happy Birthday, Longisland!  Wishing you 50 more :)  And your niece is such a lovely angel.

    Mmtagirl...I remember telling my old MO that I could smell the AC for a week after infusion, and he said he'd never heard of that.  Man, I'd love to give him just one AC infusion so he'd grow some empathy :) Hope it passes soon.  Although Taxol has other SE's, there is virtually no toxic smell.  Much easier on the tummy!

    Wishing everyone a great weekend!

  • mikishelley
    mikishelley Member Posts: 83
    edited June 2014

    LongIsland - Happy Birthday! And Yes what a beautiful Angel!

    Good morning ladies- My post chemo report- I am now week and four days past my last chemo. The Neuropathy is still hanging around. It has moved into my lower calves. The MO put me on Gabapentin 300mg three times a day, so far it is helping with the pain a little. The fatigue is sticking around. I can still only do so much each day before I am exhausted. Other than that I have no other changes. Oh and the I can't taste or that tastes like poo poo mouth has not gone away. I am dying to have a Sushi feast!

  • SharonDe
    SharonDe Member Posts: 222
    edited June 2014

    Your niece is a beautiful angel, longisland.  Glad you did ok with the travel, and Happy Birthday.

    Sorry about the Stanley Cup, Footballnut.  I'm not a hockey fan, but our 14 yr old granddaughter is obsessed with the Kings.  She's very happy today:

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    Wishing everyone a nice weekend.

  • MameMe
    MameMe Member Posts: 425
    edited June 2014

    LongIsland, I am so sorry to hear of the loss of your niece, and appreciated your sharing of the family event in her honor. What a picture. Beautiful.  

    As far as your 50th goes, the best of wishes for a year that gives you more of what you want. Hope you can celebrate in some good way, not necessarily moderately, either!

  • MameMe
    MameMe Member Posts: 425
    edited June 2014

    OK, here is a current pic, hot off the press. The pixie cut I had 5 or 6 weeks ago is getting longer but also thinning drastically. I had a wig styling yesterday, will gussie up in one of those soon to compare. Had chemo Wed., and am beat today. Very strong taste of chemicals in my mouth, which happens well after the actual infusion. Why is that? Its a huge reminder of being in treatment, esp. when you want to forget that for a day or two.

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  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited June 2014

    well since we are allowed to whine here I come. I soaked my toes yesterday like the PA at my oncology said and now both big toes are infected. :(. So I have earned the oncologist office a call tomorrow on a Sunday because of my stinky toes. :(. Grrrr. 

    Great thing is I made it shooting an 8 hour wedding today with only one back cramp and one Charlie horse in my hand.   :). This was a huge boost to the ego and three people who have meet me before told me how great my hair style is. 

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