Chemo in May 2014

Sorry you are having these bad SE's lespring.  I have three at home, and home school so I can understand a little but it's not 5 and not high needs. I can only imagine. I also understand not wanting to change protocols and just wanting to get it done.

I wonder if my SE will stay the same or worsen.  I'm sitting behind the shotgun again today waiting for more severe SE. I'm on my way to get the Nuelasta shot (an hour away) as I type (DH is driving). On a good note, I think the next two shots will be shipped to my house so we can avoid the  hour drive 2 days in a row.

Peace, hugs, prayers, light and healing being sent your way, lespring.

Hi! Got rehydrated today (and will again in Friday to hold me for the weekend.) I'm already feeling a bit better. Not really any energy but I'm thinking clearly! Amazing what some fluids will do. My counts were great today. Last time my liver was really messed up but this time is much better. Keeps me out of the ER. ;-)
I did talk to my MO today about changing protocols, reducing drugs, etc. I didn't realize they already DID reduce the Taxotere for this round. (they probably told me that but my brain is mush!) Most of my bad side effects are coming from the Taxotere. We will meet again next week when I'm feeling better to decide if I'm changing or not. I keep thinking "But I'm half way done, only two rounds left!" It is 10 days of hell, and then 10 days of feeling close to 100%. I'd have to get used to all new side effects by changing. As much as I hate this, I will probably just stay on this protocol. Its predictable to me now. I may just need my husband to take some time off work so I'm not worried about my kids. Maybe relieving that stress will make a big difference for me. 

And I hate sounding like a whiner. A couple more days and I'll be back to myself. 

Lespring - love the pic!! Hope you have an easier time for the weekend!! 

Lespring  - Awesome pic! LOL

T minus 3 hours for my second round. I put together my infused water but forgot the mint leaves. I've been hydrating since yesterday morning. My son is going with me this time. Last time I picked up a sandwich at the hospital sandwich shop (my fav) and I could only eat half. The thought of that sandwich made me queasy and I had to throw it out. Just knowing it was in the fridge bothered me. I don't want to hate my fav anything today, so what do you guys eat right after treatment?

I am on my 3rd day after 2nd infusion.  My sense of taste has disappeared. Lack of that sense seems to increases the texture sense. Lots of texture with no taste ugh, cardboard you say?  So annoying.

So I am thinking if I eat things with little texture it might help bring out flavor. I had a smoothie last night and it tasted great! Also those little applesauce packets that you can suck on, are pretty good during this time.

Today I want mashed potatoes and mac & cheese.  I know this probably isn't best for any C or D problems that seem to come around this time though. Hopefully DH, can hook me up with something that will provide the comfort I'm craving and some flavor. 

You all inspire me!  Day 5 of round two.  Again I have been blessed.  No side effects from chemo and so far so good on Nuelasta. Last time my pain came on day 6-8. So this time she had me start Ativan and pain meds today. Hoping that will help manage it better this time. I am much more tired this time. I know that is expected but I still dont have to like it. 

Wishing everyone a peaceful weekend!

Joy

I need prayers for my dog Chancee. She's a 4 year old pitbull and a wonderful dog. She was being treated for inflamatory bowel, it seemed like she was improving then suddenly took a turn for the worse. She was hospitalized last night, she's stable and eating today, but they are still not sure if she'll be ok. Going to visit her now.

Finally got to celebrate with my daughter for her 18th birthday. I've noticed recently there are very few pictures of my mom and I together, and unfortunately the same can be said about me with my kids. Trying to make a point of taking more pics with my kids!

linda - I washed it again to make sure - I even washed the tomato. I am getting the neulasta shot and my wbc was pretty high on Friday before my treatment. Higher then what is considered normal range I guess.

Should I shave my head?? I'm seeing hair everywhere. ugh. My scalp feels coated or something. so gross.

A lot of people mention their hair hurting. I shaved mine before starting treatment so my hair never hurt. The woman at the hair/wig place I went to said the hair hurts because the weight of your hair is putting stress on already irritated follicles. When you shave it you remove the weight and stress from the follicle. I'm on day 11 of round two and now smooth as a cue ball. The only thing I have left is eyebrows and about 1/2 my lashes. Arm, leg, nasal, pubic and armpit hair is long gone. 

First round my hair hurt like crazy so I shaved it. About 50% fell out round one, but what didn't fall out started growing during round two. Round three is coming up this week, can't wait to see what that will bring, lol.Still have eyelashes and eyebrows.

Homemom...I, too, was VERY resistant to shaving my head. BUT...when it started to feel the way you are describing, it was actually a HUGE relief!!!  Trust me, I was one of those saying I didn't t think I had the guts to do it!!!  So glad I did. It feels SO much better!!!  I couldn't stand cleaning out the drain every time I showered.  I am very picky about my hair!!  I knew I couldn't go on with it looking and feeling really yucky. 

Prayers to you for strength as you take this on...

Question...Has anyone else developed a twitchy eye???  It is SO annoying. Anything to do for it????

Great, a twitch and a cough!!!  Seriously?!?!

YES my eye is twitching for about 2 weeks now. Like, A LOT! Drives me crazy!