INSOMNIACS place to talk in the wee hours

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  • susan3
    susan3 Member Posts: 3,728
    edited June 2014

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    smaarty..great news be proud ..your doing great...awesome :)

    And yes I have been up till 3 the last few nights. Night feeling good at all, restless leg on top of that not happy...but today I think I figured it out. Kinda stuck in the bathroom. Not sure if it's the flu or just a real bad stomach. Have had bad acid reflux these days also. Not eating much cause I have no appetite. Something's up..not sure what. But today I have a totally free day. Do I think I will be hanging around the bathroom and my bedroom, and trying to catch up on some sleep.

    Nettie, hope your back is a bit better today

    2nd...hope you get a 2nd wind soon :)

     pawprint...sorry you r so tired. When do you get your blood counts back to know what they are...what were they on the last draw?.

    For ants .we put something around our house at the foundation. It's a white powder. I can ask my hubby when he gets home if you want. Keeps all ants away. Starts with a d I think. Don't think it is safe for animals, but since it is at the foundation, my dog is never over there, so she is safe.

    Mostlymom,.cute video. I have a pic of my when I was about that age holding one of my uncles ducks..one of my favpictures 

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  • Nettie1964
    Nettie1964 Member Posts: 759
    edited June 2014

    Good Friday Morning!!

    Love the chicken video!

    Smarty, congrats on the weight loss – I need to find some
    program to hold me accountable because I have no will power on my own!

    Susan, sorry for the tummy issues, hoping the weekend finds
    you better!

    Pawprint, hope your counts are up, sorry about iron
    taste!  I have no suggestions!  And about those ants, we have the same thing
    happen at our house, but usually it follows a big rain and we can never find a “trail”  just like you, they are just there!

    Wow 2nd, you are a busy camper!

    Now just a little something to get your morning started!  Hope the link works!


    https://v.cdn.vine.co/r/videos/60EEA38B851087512714601005056_2a44232e2c2.0.3.2824450817824802833.mp4?versionId=17YmIUUdPshtPAN5qOIAzXup0GelYbFZ

     


     

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  • Nettie1964
    Nettie1964 Member Posts: 759
    edited June 2014


    <div id="fb-root"></div> <script>(function(d, s, id) { var js, fjs = d.getElementsByTagName(s)[0]; if (d.getElementById(id)) return; js = d.createElement(s); js.id = id; js.src = "//connect.facebook.net/en_US/all.js#xfbml=1"; fjs.parentNode.insertBefore(js, fjs); }(document, 'script', 'facebook-jssdk'));</script>
    <div class="fb-post" data-href="https://www.facebook.com/photo.php?v=10202297623545541" data-width="466"><div class="fb-xfbml-parse-ignore"><a href="[a href="https://www.facebook.com/gary.pruitt.9">Gary[/a] Pruitt</a>.</div></div>

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  • susan3
    susan3 Member Posts: 3,728
    edited June 2014

    funny video 

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  • Nettie1964
    Nettie1964 Member Posts: 759
    edited June 2014

     



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  • Nettie1964
    Nettie1964 Member Posts: 759
    edited June 2014

    ">

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  • Nettie1964
    Nettie1964 Member Posts: 759
    edited June 2014


    Well, nevermind, nothing is posting for me this morning!

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited June 2014

    image

    Since we're doing birds this morning. (I wouldn't drink this!)

    The program is by Opifast. No food until end of July. All liquids except for a bar. I didn't think I had it in me to do something like this, but it's working so I'm not quilting now. 

    Paws, try the original blue Dawn liquid soap, I just read a long list of stuff it's good for and it's safe for animals. If you want I can try and find it again from Facebook.

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited June 2014

    image

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited June 2014

    I recently saw that putting coffee grounds down will stop ants. Smells good anyway. Or borax powder. That's the white stuff. 

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  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited June 2014

    Chevy - I think the weekly show  I was talking about is Chasing Life. Anybody seen it and loved it ? 

    2nd  wow you are busy.  I miss you in the games rooms :-( 

    Nettie. Hope you are having a pain free day.  

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2014

    quickly stopping by, waiting for DD to return from errands. Have been missing everyone!

    Please call me 2nd or 2TA just not late for meals and hugs.

    Pawprint, our area used to orange groves so ants for several years. Not after food, but would come up water pipes, especially in bathrooms for water and to escape the heat. Baby powder (corn starch?) works great, safe around pets but messy. Also heard chalk line around house perimeter, ants won't cross over (like sidewalk chalk, also safe for pets). Hope you feel better

    Hugs all around!

    Have a great weekend!

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  • camillegal
    camillegal Member Posts: 16,882
    edited June 2014

    Hi everyone--Oh chickens again--it's like a nitemare continuing all the time.

    I've read peppermint oi; on a cottom ball does the trick for a few critters luking around, they don't like the smell, yet it smells good to us.

    And now u guys have upped the pics to moving ones--showoffs.

    Smaarty Congrats for the weight loss-that is wonderful.

    I never understood those numbers for blood stuff but I think they figure more normal when u'r getting things done or rads or chemo--they know they'll be off so it's normal to them. And when they say don't worry about something remember they are talking about cancer not anything else--that's where all the other Drs. come in to maybe help--but once things start crumbling (as I put it) it 's hard to fix they always give u pt to strengthen the muscles around u'r discs to hold them together, even tho they are disintergrating along with your vertebrae, extreme arthritis usually get involved and scoliosis and osteoporosis all at the same time and it's not from age when it comes that fast (I think again) it's part of the crap we get to fight off cancer and that's exactly what the Onc is interested in. Tht's why I see 5 more Drs. for all the SE's and they try to help but don't all the time. It's unending but as long as they can keep the cancer in remission and away the Onc is doing their job. And I'm always on pain meds, it just part of my life and the vitamins to build u'r bones is very important cuz most of us have had the estrogen sucked right out of us for our bones especially if u are her+. But I love to here when u gals say u'r feeling good and when it's over no awful SE's lasting--and it happens all the time so don't think all of this will happen but maybe u don't have to fear it either.

    OMG I'm serious to long it really affects my brain cells, the few I have left that actually work. BTW this is all my thinking there are no studies or fact to anything I say so don't read it like an actual study, I'm just giving u my opinion of what I've been thru----

    That is the name of that show I haven't watched it either, but if I had money I would do much more too. LOL

    OK my eyes are blurring, I need new glasses me thinks. I hope everyone starts the weekend off doing well. 

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  • camillegal
    camillegal Member Posts: 16,882
    edited June 2014

    image

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited June 2014

    image

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  • Nettie1964
    Nettie1964 Member Posts: 759
    edited June 2014

    Chevy, that Piano pic is pretty but sad at the same time!  Sad to think that the old Grand had seen it's better days!

    And for whoever asked or commented, I'm feeling a little better today, still have back pain, and didn't sleep last night from the hip into leg pain, but the back pain seems a little less intense today!

    I have a busy weekend, crawfish boil, VBS commencement, Fish Fry, church on Sunday and somewhere in between, hopefully all of my "house guest"/boarders will be going home so that I can get my house back into somewhat order!

    Ok, just to add to the blood work details, I received my labs from my MO appt in February, the details of the "off" things were almost the same except that now the WBC & RBC were even a little bit lower, so now I'm wondering if I should call the MO because I would think that he would expect the counts to be coming up not going down!  Haven't had chemo since August or Rads since October!


     

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  • Nettie1964
    Nettie1964 Member Posts: 759
    edited June 2014


    Well, I got a laugh out of the following, maybe some of you will also:

    A RETIREE'S  LAST TRIP TO COSTCO

        Yesterday  I was at Costco buying a large bag of Purina dog chow for my  loyal pet, Necco, the Wonder Dog, which weighs 191 lbs. I  was in the check-out line when a woman behind me asked if I  had a dog. What did she think I had, an elephant?

    ...

        So  because I'm retired and have little to do, on impulse I told  her that no, I didn't have a dog, I was starting the Purina  Diet again. I added that I probably shouldn’t, because I  ended up in the hospital last time, but that I'd lost 50  pounds before I awakened in an intensive care ward with  tubes coming out of most of my orifices, and IVs in both  arms.

        I  told her that it was essentially a Perfect Diet and that the  way that it works is, to load your jacket pockets with  Purina Nuggets and simply eat one or two every time you feel  hungry. The food is nutritionally complete so it works well  and I was going to try it again. (I have to mention here  that practically everyone in line was now enthralled with my  story.)

        Horrified,  she asked if I ended up in intensive care, because the dog  food poisoned me. I told her no,
    I stopped to pee on a Fire  Hydrant and a car hit me.

        I  thought the guy behind her was going to have a heart attack  he was laughing so hard.

        Costco  won't let me shop there anymore.

    Better watch what you ask  retired people. They have all the time in the World to think  of crazy things to say. Forward this (especially) to all  your retired friends...it will be their laugh for the  day

     

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited June 2014

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    hello to all....

    Friday the 13th, a full moon & summer solstice soon. It stays light here until 9:45 in the evening right now, crazy huh? We love it. 

    Nettie, I had a CBC a month ago. 

    WBC 2.4

    RBC 3.86

    A couple others low, a few high. I, like you do not understand how my WBC can be so low, 6 months post fu€kin¥ chemo. My MO says don't worry. I wish I trusted her more. But, it was low before I started chemo, so.....I need to ask for my CBC records from 3 years ago when I had my gut problems. 

    I am told it takes at least a year for our bodies to start be normal after all that poison. 

    Smaarty, I do not know how you do it, but a big Congrats ! I have lost a lot of weight in the last few years, but all health related. I do eat a much better diet now.

    Hope all has a great weekend, BBL

    image

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  • tangandchris
    tangandchris Member Posts: 1,855
    edited June 2014


    Hi everyone :)

    My last chemo is scheduled for Monday. I also meet with the RO that morning for the first time. I'll be up there all day it looks like, but it is what it is. I saw MO Thursday and her nurse hugged me and told me how strong I was, I broke down right there. It's been a terrible ride, I'm not gonna sugar coat it. I'm dreading this last chemo, I truly am. I'm just grateful that it is the last one. My almost 5 year old and I were looking at photos on Facebook this morning. We came across some of me with hair and she told me that she missed the "old days". It broke my heart a little, my baby talking like that. She told me she didn't want me to do chemo anymore and she wished that I didn't have to rest all the time :(

    So, anyone have any tips for me with radiation? I truly have no idea what I'm going to be getting myself into with this. What should I ask RO?

    ((hugs))

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  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited June 2014

    hey  2nd hoping you are having a food visit with your father tonite.  Enjoy him while you can.  Both my father and mother and their spouses are all deceased :-(.  So how did you like dd new place ?  Hoping the move went well.  Gotta let them spread their wings , right? That is what we are supposed to do as parents is raise them to be healthy, independent adults right?  ( course my dss  are young still do easier to say I'm sure.)  

    Nettie - absolutely LOVE the retiree story. People ask the weirdest questions don't they.   Wow it's sounds you are incredibly busy. Do you think some of that makes your back pain worse ?  Maybe you'll get a little break when house guest are gone. Love having family and friends over for a couple nights then they gotta go.  Just not up to entertaining like that anymore :-(. The one exception is my sis who is actually a huge help while she is here.  

    Can't remember who was meeting with some bco sisters but I am so jealous. Hope you have a blast and please post pics.  I have been unsuccessful finding anyone else from bco in my area or even a fellow stage 4 person ( plenty of them out there just don't know where ).  

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited June 2014

    Tang, glad you posted.

    I hated chemo & thought it was torture....You have had a lot more problems than I. 

    Radiation was a piece of cake. Obviously getting there everyday for 6 weeks is a pain, but physically you will be feeling better. 

    Emotionally, I had a hard time during rads. Just could not be tough any longer. I never had any meds before ( except pain meds ). Went to PCP & got on helper meds. She said, short term through the summer. 

    You will want to ask what your RO wants you to use for lotion on the radiated site. They are all different. 

    Hope all can see the moon this evening...

    image

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  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited June 2014

    Tang - I didn't have chemo but I can sure address rads. I did it early 7:40 then went on to work an 8 hour+ day of hospice nursing. Find the cream the doc wants you to use. I used Aquaphor (any drugstore or WallyWorld) and a RX cream called Xclair. As I finished up I used California Baby Calendula cream from Target but know that Sprouts and Whole Foods have a bunch. That stuff smells wonderful and I use it for winter dry skin itch. You will get a diff. rad. pattern than I did because of your + nodes. But it is true that undressing/dressing takes more time than the actual tx. It will be at least 2 longer sessions for planning the exact placement of the beams. Do think about the time of day you want; it will be 6 weeks out of your life so plan what's best for you. You may have to settle for a bit for a diff. time but you should eventually get the time you want as others finish up. I put on creams after rads and after showering at night. No way could I put it on 4 times a day like she wanted. I was lucky if I could find a BR to pee in much less undress in. So I got by with my 2x/day. I did get some nip weeping which some Domeboro soaks cleared up - again the RO recommendation. I think some use pure aloe (no alcohol) but I only used the 2 they recommended. You will quickly learn to count through the process so you will know when it's over. I had one followup with RO after finishing maybe 1 or 2 weeks later and she dismissed me. She did see me weekly and I was free to see her nurse at any time. Techs were OK, competent, not overly friendly. More "git er done" attitude. Maybe because I was so early in the morning. I went to a Texas Oncology office.

    http://www.breastcancer.org/treatment/radiation/ty...

    Best diagram I've seen for the angles used. It made no sense to me until I found this. Read through BCO rads section. I did join a thread for my time period. See that there is a Summer Rads thread. Not that we want to chase you off, NOT. But it does help to commiserate with those going thru this together and help each other out.

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited June 2014

    I had 28 regular treatments, 5 boosts. My usual time was 1:15.  I used as directed whatever my RO wanted, and my skin still broke down. That got me a week off, then the boosts, then the last of regular rads. I did NOT want to finish. It took every smidge of energy I could find to drag myself in. I was OVER the whole treatment thing. TIRED!! He sat me down in his office and firmly explained why I HAD to finish. At the time I sure wasn't happy. But now I'm glad I did it all. Because I can tell myself I did it. I wasn't a quitter. It was worse than chemo, and that was pretty damn bad. We are all different, and I hope it's easier for you. 

    I think that's why we're called survivors. We survived the treatment!

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  • mostlymom
    mostlymom Member Posts: 466
    edited June 2014

    ok - this was just plain astonishing....

    http://www.viralnova.com/stuck-on-bridge/

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  • Nettie1964
    Nettie1964 Member Posts: 759
    edited June 2014

    Just stopping by, having a bad night. Seems I'm out here by myself tonight.

    Anyway, just wanted to say that I breezed thru rads. My RO had me use nothing but cornstarch during treatment. I never had any problems, and after, he said to use the Aquafor just to make sure things didn't flare. And they didn't.

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited June 2014

    Hellllo.....is anyone home ? 

    No coffee, or our sarcastic old lady chirping at us.....

    Cami, working the phones, hanging up on folks & screwing up calls ?

    I am needing to find someone in this one horse town that will blow up, ( helium ) balloons that say Happy  Fu*€in¥ Birthday. Wish me luck...

    image

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  • susan3
    susan3 Member Posts: 3,728
    edited June 2014

    is it your birthday holeinone? Happy birthday...if it is..I am still in bed sick..so no sarcasm here..just intestinal purging...uhhhhhh

    And no coffee till tummy is better...so no pics of them from me :(

    Hope everyone else is well :)

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  • camillegal
    camillegal Member Posts: 16,882
    edited June 2014

    Nettie I'm sorry u had such a bad nite, I hope u can rest today---but it does take a long time for our bodies to get back in to sync--I didn't pay much attention to my reports when they said OK, I just let it go. but If it bothers u make sure u talk to them, they ease u'r mind.

    And I agree about rads, I was glad I got mine early in the day so u'r whole day isn't wrapped around it and it just made me tired after a couple yrs of chemo it was a breeze and I used whatever they gave me, but u can still see all the discoloration, but since I'm not entering any beauty contests I'll just except my scarred and different color chest where my boobs used to be. I don't even care. I know everyone is different but I think the biggest thing in rads maybe tiredness, I guess to different degrees. The only thing they got upset with me was I was singing with the music and wanted me completely still so that was hard to sing and not move.

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited June 2014

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    sorry, got up late. And happy birthday!! La Lalalalalalal (happy birthday song). To you.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2014

    Just stopping by to say Good morning peeps! Sending gentle hugs for those not getting a good night's sleep or feeling well.

    For once, in a very long time, got a good night's sleep. Maybe because I was exhausted after helping move DD's stuff to her new place (will answer questions later as I'm waiting for my turn to use the bathroom to shower at Mom and Dad's, then off to meet some local BCO ladies for lunch), then assembled the new patio furniture set for my parents (the assembly was part of my Father's Day present for my dad) with crappy instructions, then went thru boxes in storage. Because I was dusty, dirty and sweating, a nice calming shower before bed.

    Wishing everyone a great relaxing Saturday!

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