how to treat an ulcerated (breast) tumor

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Comments

  • NattyOnFrostyLake
    NattyOnFrostyLake Member Posts: 377
    edited June 2014

    Hello Abigail,
    Please know that many of us respect your choices and will always embrace you as a kind and loving spirit. You are certainly old enough to make your own decisions. I apologize for those who have come here to ridicule you. I don't get why anyone would gang up on a person unless they are so profoundly insecure about their own choices that ridicule is their only defense mechanism. 

    You notice conventional pushers spend more time here enforcing the status quo than on the conventional groups. That's sad.

    Meanwhile, Abigail, pay attention only to those who respect you. I'm so glad there are so many of us who circle you with our protection. xoxoxox 

  • DiveCat
    DiveCat Member Posts: 968
    edited June 2014

    Yes, because being concerned about other women - or about abigail having a fungating tumour - is an insecurity. What? I am not sure what to say about the practice of criticizing others for personally attacking abigail...by personally attacking those others.

    I have nothing to "defend" about myself or my choices to even trigger a defensive mechanism, I feel empowered by my own choices (noting I have not had to have treatment for breast cancer, but I have certainly had conventional treatments for other issues, and my mother certainly has had conventional treatments for her own cancer). I hope anyone will also be empowered by their decisions, whether they choose conventional or alternative treatments. I also spend far more time in the conventional areas than the alternative forums!

    I didn't see anyone "ridiculing" abigail, but rather expressing concerns that she is self-diagnosing herself and treating based on that self-diagnosis. Self-diagnosing is not an "alternative medicine" as far as I am aware. That is like me feeling a little under the weather, declaring I have malaria, joining a malaria board, and going on about the treatments I have decided to give myself (be they alternative or conventional).

    Sometimes it is like the Twilight Zone in here. Any discourse, questioning, constructive input, is treated as a personal attack which is so far removed from my experiences in daily life with my own peers and where engaged discourse is welcome, even if opinions are different.

  • lightandwind
    lightandwind Member Posts: 754
    edited June 2014

    There is no self diagnosis on abigals part. This is the alternative forum. 

  • lightandwind
    lightandwind Member Posts: 754
    edited June 2014

    Please explain how steve jobs pancreatic cancer was curable but swayze was not

  • Beesie
    Beesie Member Posts: 12,240
    edited June 2014

    wrenn, you hit upon what is confusing me about this situation and some other discussions currently on-going in other forums on the board. 

    I just looked at breastcancer.org's "About Us" page.  It states:

    Breastcancer.org is a nonprofit organization dedicated to providing
    the most reliable, complete, and up-to-date information about breast
    cancer.

    Our mission is to help women and their loved ones make
    sense of the complex medical and personal information about breast
    cancer, so they can make the best decisions for their lives.

    I find the Moderator's comment that "Our community is an inclusive breast cancer/breast issues community" to be at odds with breastcancer.org's stated mission.  But maybe breastcancer.org is changing so that they can broaden their scope and include all women.  After all, pretty much every woman at some point in her life will have some breast issue or another.  Breast cancer is just another breast issue. 

  • abigail48
    abigail48 Member Posts: 1,699
    edited June 2014

    there was a forum here when I first came on fall of 2011 which was for those of us undiagnosed.  it was soon deleted, but not before many left for being taxed with fraud & what else, I forget.  I was called a liar there many times

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited June 2014

    "There is no self diagnosis on abigals part. This is the alternative forum."

    I thought I understood what alternative meant, in terms of treating disease. What I failed to understand is that it included DIY diagnosis. Most people would call that self dx.

  • abigail48
    abigail48 Member Posts: 1,699
    edited June 2014

    I was invited to various other sites said to be more congenial for me:  the addresses were on the deleted forum so I can no longer access them.  however I don't like change, & this site is extremely well designed

  • LilacBlue
    LilacBlue Member Posts: 1,636
    edited June 2014

    Abigail, do you have any problems keeping any unpleasant odour that might be emanating to a minimum?

  • Tomboy
    Tomboy Member Posts: 3,945
    edited June 2014

    what Divecat said: Any discourse, questioning, constructive input, is treated as a personal attack".

    beesie

  • NattyOnFrostyLake
    NattyOnFrostyLake Member Posts: 377
    edited June 2014

    Very interesting euphemisms for bullying! The committee on bullying in our school system has found that bullies always say they were offering constructive criticism.

  • pipers_dream
    pipers_dream Member Posts: 618
    edited June 2014

    I suspect that a lot of the reason Abigail is not dx'ed is due to lack of health insurance, which she has mentioned on here several times.  While it is certainly possible to get a free or low cost mammogram, I'm not so sure about the rest of it.  I know that for the uninsured, the cost of a biopsy is about  $1000-5000, and you also have to go to a primary care physician to get a referral for this test, which will cost many more dollars.  So, let's say Abigail somehow collects the $1000-5000 plus whatever she needs to pay the primary care doc and I'm not sure if the U/S is included, what will she do with that information exactly?  Probably whatever she's already doing, so I don't see the point either.  FWIW, there are many many people in this country (USA) and in the rest of the world that are in the same boat.  My heart goes out to them--at least I had options and a choice to make.    

  • wrenn
    wrenn Member Posts: 2,707
    edited June 2014

    being in canada it seems so barbaric to not be able to afford health care. I hope that Abigail is not forgoing treatment for that reason.  I hope it is philosophical on her part because the other is too sad. 

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited June 2014

    Piper, although it is not my place to speak for Abigail, she refuses to see doctors, for the most part, due to childhood traumas inflicted on her by doctors.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited June 2014

    Steve Jobs cancer was operable and he refused surgery - no way anyone is going to survive cancer without surgery no matter whether you go alternative or conventional.

  • lightandwind
    lightandwind Member Posts: 754
    edited June 2014

    She has also stated that she hasn't wanted a diagnosis because there is nothing in conventional medicine that she is willing to do.. She also stated that she is now 77 which is another reason. 

    Natty, True about the bullying. I wonder how constructive my input would seem if there were many more like us who went to the conventional threads telling people why their choice is not acceptable, telling them that their doctors are quacks, insulting their intelligence, telling them they are not caring about themselves enough, and ganging up and trying to pressure them out of making their own choice, telling them how wrong they are for polluting their body w/ chemo  and post research about how it could cause the cancer to grow. Is that what the conventional forum is for? the "constructive input" from alternatively minded folks? Wonder if anyone would want to engage in a constructive discussion about alternatives on the chemo thread? I'm sure they would not like it if the shoe were on the other foot.

    what are the rules and the guidelines of the alternative forum for?  Is there is no place, no space to express our views without having to defend them? Is this how it is going to remain here?

    I had thought that the mods had reminded everyone that this is the alternative forum where alternative choices are to be respected. However many of you are refusing to do that. Aside from disrespecting Abigal and her choices, many of you are disrespecting the mods, and the rules and guidelines of the forum.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited June 2014

    Is self dx really part of the alternative tx world?

  • lightandwind
    lightandwind Member Posts: 754
    edited June 2014

    suzieQ60- the whipple procedure is the surgery that had been recommended for SteveJobs. There is a 20% chance that he would have been alive in 5 years following that surgery and serious complications and death that could have resulted from the surgery alone. Steve Jobs lived 8 years with pancreatic cancer. He must have made some smart choices to live that long w/ that diagnosis. Patrick Swayze went downhill  following chemotherapy and died of pancreatic cancer w/n 2 years. 

  • lightandwind
    lightandwind Member Posts: 754
    edited June 2014

    Caryn, people who live by different philosophies than you make different decisions. She has a breast tumor. She's 77.  Are you here to insist that she leave the alternative forum or that she go get a diagnosis? what would make it okay for you to simply allow Abigal to post here in peace?

  • lekker
    lekker Member Posts: 594
    edited June 2014

    I have no dog in this fight, but lightandwind, you're comparing apples and oranges with Jobs and Swayze.  I can't even say that it's like comparing my ER+, HER2-, grade 1 breast cancer to a grade 3 triple neg or HER2+ as they had totally different kinds of cancer arising from totally different cells that just both happened to manifest in the pancreas.  Please stop using it as a good example of the advantages of alternative vs. conventional treatments.  Here is a good description of pancreatic cancer...

    There are two types of pancreatic cancer: exocrine tumors and endocrine tumors.

    Exocrine tumors are the majority of pancreatic cancers, and the most common form is called adenocarcinoma, which begin in gland cells, usually in the ducts of the pancreas. Swayze died from this kind of pancreatic cancer. These tumors tend to be more aggressive than neuroendocrine tumors, the kind that Jobs had, but if caught early enough they can be treated effectively with surgery.

    Pancreatic neuroendocrine tumors constitute only 1% of all pancreatic cancers. They can be benign or malignant, but the distinction is often unclear and sometimes apparent only when the cancer has spread beyond the pancreas.

    The five-year survival rate for neuroendocrine tumors can range from 50% to 80%, compared with less than 5% for adenocarcinoma.

    More advanced tumors have a higher risk of recurrence, and can spread to the liver, said Dr. Steven Libutti, pancreatic cancer expert and director of the Montefiore-Einstein Center for Cancer Care in the Bronx.

  • lightandwind
    lightandwind Member Posts: 754
    edited June 2014

    Thanks Lekker, but  he did have surgery and he lived for 8 years following diagnosis.  I wonder how long Patrick Swayze might have survived without chemo?

    Jobs recalled having a scan one morning in 2003 that showed a tumor in
    his pancreas and doctors telling him "this was almost certainly a type
    of cancer that is incurable and that I should expect to live no longer
    than three to six months
    ." 

    http://www.cnn.com/2011/HEALTH/08/25/steve.jobs.ca...

    Conventional medicine does not accept new alternatively minded scientifically supported research involving the enhancement  of natural killer cell activity that could help save the lives of pancreatic cancer patients---all due to politics and red tape.

    http://www.lef.org/magazine/mag2014/jul2014_Intole...

  • juneping
    juneping Member Posts: 1,594
    edited June 2014

    OMG...can we just get along...live and let live.

  • lightandwind
    lightandwind Member Posts: 754
    edited June 2014

    You are right Juneping. Always feel protective of this space. Time to let it be now. Thanks!

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited June 2014

    Abigail doesn't have to do anything as far as I'm concerned to post wherever she wants. My only objection is to her claiming she has bc, when she has never been dx'ed with it. Different philosophies? Yes, I am way too grounded in reality to subscribe to the "because I believe it, it's true " philosophy. Most of all, my heart lies with all the women who really do have breast cancer.

  • pipers_dream
    pipers_dream Member Posts: 618
    edited June 2014

    No Caryn, not necessarily, but alternative does mean "not conventional." When I went to get dx'ed I was so scared that I almost thought I'd go the entire conventional route but calmed down as the weeks went by and the conventional docs screwed up several things that left me rolling my eyes in disgust, and I'd about had it with them by the time I walked into the soothing atmosphere of my holistic doc's office.  As with Abigail, I've have bad experiences with C. medicine at several points in my life and was reluctant to let them have their way with me.  I've also seen several in my family hurt badly by Conv. Medicine and one cousin who went the entire holistic route with a brain tumor and is now thriving and getting ready to travel overseas.  We all can only react according to our experience and if Abigail is all alone in this world, she may not desire to do everything she can to fix this and we may be her only support system.  (Sorry to talk about you like you're not here Abigail--it's necessary to make a point though.)

    wrenn, I can't say for sure and I'm sure Abigail will let us know, but yes, it is very sad and hard to believe that so many are fighting against the plan that Obama is trying to put in place.  It's not perfect by any stretch--what national health care plan can be?  But, we have got to have something and once in place we can tweak it.  There are just too many people falling thru the cracks over here. Those who have health insurance are better off--but fewer in this crazy economy do have it and it's very sad.  Even with health insurance I owed a good deal of money just for my dx--I'd say I paid around $3000 out of pocket after insurance.  That included GP referral, mammogram, U/S, biopsy, blood tests, bone scan, and CT.  There was supposed to be an MRI, but they screwed up ordering it and it never got done.  And yes, I have a terrible insurance plan and this was my first year on the job.  If I'd seen the rippling on my breast just 2 mo earlier, I'd have been out of luck, as I went for about 2 mo w/o health insurance between jobs.  

  • lightandwind
    lightandwind Member Posts: 754
    edited June 2014

    I would not like to be so grounded in my own reality to not see clearly that there are other realities and know that they are as valid as my own.

  • lightandwind
    lightandwind Member Posts: 754
    edited June 2014

    A cancer diagnosis does not give someone cancer. Cancer gives them cancer.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited June 2014

    No, a cancer dx does not give you cancer ( and I don't think that anyone has suggested it does). I totally agree but what it does do is confirm that that's what you actually have. Armed with that knowledge, you can then choose to treat it any way you want.

  • lightandwind
    lightandwind Member Posts: 754
    edited June 2014

    "My only objection is to her claiming she has bc, when she has never been
    dx'ed with it. Different philosophies? Yes, I am way too grounded in
    reality to subscribe to the "because I believe it, it's true "
    philosophy. 

    This comment suggested that because of lack of reality orientation, Abigal is fantasizing that she has  cancer when she doesn't and that she is claiming to have cancer when she doesn't. But that's not really reality is it? 

    Most of all, my heart lies with all the women who really do
    have breast cancer.
    "

    This implies that you feel that only the women who are diagnosed w/ cancer (not those undiagnosed that may actually have cancer) are the one's who deserve empathy.

  • Mardibra
    Mardibra Member Posts: 1,111
    edited June 2014

    empathy for breast cancer, yes!  I will bet you dollars to donuts Abagail has nothing more than a nasty boil. And by the way, she has Medicare....very much insured. 

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