Starting Chemo in March 2014

Options
1424345474850

Comments

  • JoTro
    JoTro Member Posts: 57
    edited June 2014

    Hi ladies, I finished chemo on the 22nd May.  Yay Yay and a big fat Yay.  It's day 14 and i'm still feeling very tired/sore, can't seem to achieve a whole lot even if I have tons of motivation just no stamina!

    Starting Rads in a couple of weeks, it will be a 4 hour drive so I will stay at the Cancer Society accommodation. Then I will have to be a tourist for a month whilst I get my 20 treatments......then I'm done. 

    You know when I knew I was facing a cancer dx back in December 2013, I just thought a surgery would fix it and in a few weeks I would be running free from that nightmare!  HA! 2014 has been a doosey of a year so far.

    Jo

  • Sinsin
    Sinsin Member Posts: 358
    edited June 2014

    Congrats Jotro!! Awesome news! Good luck on the rads! I'm sorry you will have to stay there but maybe you can trick yourself into thinking it's a sort of getaway. LOL 

    As to the fatigue and such, I hear it can be worse in rads! Yikes! I hope not! I have 55 rad treatments I'm suppose to do. 

    Hang in there and just take it day by day. Your poor body has been through a lot and it will take time to get back to "normal". I wish you much luck on rads and in the meantime, enjoy this break! Keep in touch!

  • jmg58
    jmg58 Member Posts: 185
    edited June 2014

    JoTro, I hope it goes well for you...good luck.  And I have to say your posting hit a nerve...I feel EXACTLY the same way as you, especially the last part.  I'm three weeks done now with chemo and still exhausted to the point I can't do much either; can't walk far; breathe well, look like crap, legs heavy and week and I'm totally exhausted.  Supposed to go to work Monday; don't know how!

  • Sinsin
    Sinsin Member Posts: 358
    edited June 2014

    Jmg and Johodro, hope you're both feeling better and that work went well for you Jmg!

  • princessrn
    princessrn Member Posts: 370
    edited June 2014

    I am 6 weeks postfc. I finally feel good. Almost all edema in legs gone. Eyes stopped watering continuously.  I'm exercising. I did a cleanse.  I am almost regular me. 

  • Longislandl8y
    Longislandl8y Member Posts: 145
    edited June 2014

    Hi girls.  I'm visiting from the April thread.  Having #4 of 6 today and wondering if I should brace myself for a big increase in SEs like I got between #2 and #3.  Number 3 knocked me on my ass and I was hoping to get some feedback from some of you March girls about how #4 compared...

  • Lorbgoo
    Lorbgoo Member Posts: 213
    edited June 2014

    hi longisland my SE were not as bad for my number 4. I had only 4 treatments. I know everyone is different but good luck to you. 

  • Sinsin
    Sinsin Member Posts: 358
    edited June 2014

    Longisland, what regiment are you on now and what were you on before? I was on Epirubicin and Cytoxan for 3 rounds first and the 3rd round knocked me out for 5 days in bed unable to move. I have now done 7 rounds of Taxol and am doing much better on it though the fatigue is certainly accumulative. Still I have yet to be bedridden, thank God. Others are doing better than me and I really think it just varies between person. Good luck!

  • maryland
    maryland Member Posts: 1,298
    edited June 2014

    Hi Longisland, # 3 was hard for me as well, no nausea and very little bone pain but the fatigue gets worse every tx, but other than that nothing new. I had #5 last Friday and have no SE except the fatigue, I have 1 to go, can't wait to be done.

    Princess, so glad to hear you're getting back to your old self, it gives me hope. Thanks for sharing.

  • jmg58
    jmg58 Member Posts: 185
    edited June 2014

    Thank you, Sinsin.  I made it great yesterday--the whole day!  Today I was so tired I could barely get up to call in!  Stayed in bed until 10:00.  Will go in again tomorrow; lung scan on Thursday.

    Princessrn, great news!  Glad to hear it.  I did not have edema in legs until now, three weeks after last chemo.  Hoping it leaves soon!

    Longisland, I only had 4 treatments also.  #3 kicked my $*@().  I was really sick. #4 was oddly a piece of cake...the best of all of them.  Good luck and best wishes that this is also the case for you...that #4 is relatively smooth and easy for you!

  • jmg58
    jmg58 Member Posts: 185
    edited June 2014

    Hey, ladies, I just wanted to share some good news!  My lung CT today came back clean!  I'm SO relieved. 

  • Sinsin
    Sinsin Member Posts: 358
    edited June 2014

    Woohoo!! Doing the happy dance for you Jmg!! Hope you're celebrating!!! Pour some champagne!

  • jmg58
    jmg58 Member Posts: 185
    edited June 2014

    Thanks, Sinsin...I went for a first nice long walk under the honey moon....no sound but my own footsteps in the clear night air.  It was lovely.  

  • cmp106
    cmp106 Member Posts: 48
    edited June 2014

    jmg58..congrats! Excellent news!! 

  • Longislandl8y
    Longislandl8y Member Posts: 145
    edited June 2014

    Thank you all for the feeback on #4.  So far no nausea here - just constipation and fatigue.  Hopeful now about 5 and 6!

  • Sinsin
    Sinsin Member Posts: 358
    edited June 2014

    Glad to hear it Longisland! Today was infusion day (#8) so I'm wide awake tonight thanks to my steroid. La la la la laaa! Time to watch Fallon!

  • lgoldie
    lgoldie Member Posts: 120
    edited June 2014

    Hello everyone.  Facing big decision.  Fingertips and toes numb and tingly.  MO is thinking about NOT doing last Taxol so no permanent damage.  She said that 4ACs and 3 Taxols is enough for a Type A early detection person.....I might be done.  OMG

  • Sinsin
    Sinsin Member Posts: 358
    edited June 2014

    igoldie, that sounds great that you're done! I would follow your MO's advice or if you're uncomfortable with stopping, then see if you she can lower the final dose.

  • Sinsin
    Sinsin Member Posts: 358
    edited June 2014

    hope everyone is doing well! I have steroid induced insomnia since today was infusion day but I can't complain. One night of staying late is an even trade off to me for help with the fatigue. 

    Hope everyone is faring well and having a minimally side effect week!

  • Nurselaura
    Nurselaura Member Posts: 68
    edited June 2014

    hi Sinsin, this is nurse Laura I have not been posting much but keeping up with the groups, glad to see we are on the home stretch. I have had #4/12 taxol so far. It seems everyone deserted this posting. I assume they are on Facebook page. Could you give me the pass to get into Facebook page. My Facebook is Laura Mayo Oka. Thanks!

  • megomendy
    megomendy Member Posts: 141
    edited June 2014

    Laura, I tried to add you, but had trouble. When you left the group, did you check not to let yourself be added back? Send me your email address and I'll try to add you that way? Meg

  • Xrayalli
    Xrayalli Member Posts: 237
    edited June 2014

    Hi everyone, everyone is probably getting sick of this chemo thing, I know I am. I have my second AC on Thursday. I am not looking forward to it as the first one was not easy. Hope you all are fairing well. 

  • maryland
    maryland Member Posts: 1,298
    edited June 2014

    Hi all, haven't been here in a long time. My last chemo is this Friday..Whoop! Whoop! All in all I think I've faired better than some, my worse SE was/is the fatigue. I'm scheduled for BMX and recon on July 31, getting nervous about that. They don't think I can keep my nipples which I was a bit disappointed about but certainly not the end of the world. After that 6 1/2 wks of rads. They want to start it 3 weeks after surgery but I think I'm going to wait at least 6 weeks because I'm afraid it will interfere with the healing.

     Anyway, I'm glad that we are all nearing the end of this chemo business, I hope none of you have any permanent SE and next year will be much brighter for all of us.

  • Sinsin
    Sinsin Member Posts: 358
    edited June 2014

    Hi Nurse Laura! Sorry, but I am not on the FB page and I don't even know the name of it or how to join. Perhaps I should join if everyone abandoned this thread. LOL

    Xrayalli, I'm sorry AC is tough on you. Hang in there! How many are you doing?

    Genny, I had a left mastectomy and they had to take my nipple too. I personally find that I really don't care about it. I may come reconstruction but right now, nope. I'm slated to have my last chemo on July 14th and then its rads for me. 55 treatments, to be exact. (Groan) I hear the fatigue can be worse on rads too. Blech!! I'm going to see about having my ovaries removed before I start rads so I'll be having surgery too before rads. LOL

  • AKJ
    AKJ Member Posts: 190
    edited June 2014

    Sinsin,  I'm almost done with rads and for me the fatigue is NOTHING compared to chemo fatigue.  I know everyone is different though.  But please try not to be afraid.  If you want to join the facebook group just pm me.

  • Nurselaura
    Nurselaura Member Posts: 68
    edited June 2014

    Thanks megomendy, I am in again, I did not mean to assume that all of us have abandoned this post, it just seems that we have all gone in different directions. So much support and information here and other venues. 

    Laura

  • cmp106
    cmp106 Member Posts: 48
    edited June 2014

    xrayalli- hang in there. AC was tough for me, too! How many are you doing? 

    I noticed that this thread didn't seem to be as active. Didn't realize there was a FB page. Is that where everyone who started chemo in March 2014 is posting? I thought most everyone had finished their chemo and I was lagging behind. 

    Sinsin- good look with your rads treatments...55. Wow. I have my initial Rads consult on 8/4, so I'll find out how many then. I've heard mixed things about Rads fatigue. Some say its better than chemo fatigue and some fare worse. I think it just depends on the individual.  Just like chemo SE's! Can't wait for all of this to just be over and done! 

  • Xrayalli
    Xrayalli Member Posts: 237
    edited June 2014

    You are more than welcome to the FB group, we found it a little easier to discuss back and forth, share pictures, etc. I haven't been real active on either one lately, just so tired and busy. let me know if you want to join!

    I have #2 of 4 AC tomorrow. Gonna try a few different things this time now that I know what to expect. I already had my 12 Taxol, I am so ready to be done! 

    I'm sad today, my son left this morning, probably won't see him until the holidays. I miss him so much, he's 18. 

  • Sinsin
    Sinsin Member Posts: 358
    edited June 2014

    Alli, sorry to hear about your son but we'll keep you company until he can come home again. 😊

    As to rads, I'll deal with that bridge when I get there. I hope the fatigue isn't worse but no point fretting over it I guess. One day at a time, that's me! LOL

  • JoTro
    JoTro Member Posts: 57
    edited June 2014

    Hi ladies, I'm still checking up here regularly but also on the FB page and now the summer rads page. I'm also on the NZ support page here which is super quiet like no one in New Zealand has BC! Well there's a few there... Currently getting rads, staying at the cancer society accomodation as my hometown doesn't have the lineal accelerator. All the patients here are elderly so hoping I might get a young person here in the upcoming weeks.

Categories