Q re what to do IF I have a problem after long flight

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GemStateGirl
GemStateGirl Member Posts: 168
edited June 2014 in Lymphedema

I've had mild, easily controlled lymphedema for several years but have never flown more than 3 hours.  I'm about to fly overseas on a non stop overnight flight for 11 hours.  I've read up on what to do to prevent problems but am wondering what to do IF I have one.  I will be in Paris for a week and don't speak French.  

I guess my main question is, if despite preventative measures, my arm swells, what should I do?  Do you continue to wear your sleeve if you have a flare up?  I'm used to wearing my sleeves all the time.

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  • Leah_S
    Leah_S Member Posts: 8,458
    edited June 2014

    GemStateGirl, do you know how to wrap? If you do and have bandages, it would probably be a good idea to bring them with you so if there's a problem you can do MLD and wrap your arm.

    Enjoy your trip!

    Leah

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2014

    Hi, GSG,

    I wonder if you've learned to wrap your own arm? Best way to be sure you can enjoy your destination is to pack along your wrapping supplies. If you don't know how, second best is to have a night sleeve along (and the overjacket to go with it). The problem with just wearing your usual daytime garments during a flare is that they may not fit well, and that could cause more problems. Self MLD is also important for self care wherever you might be.

    Packing along LE supplies in a separate carry-on allows you (on US airlines, anyway) to carry that bag as an extra carry-on free of charge. Don't know about other airlines, so check it out before you go. Don't forget to pack along your supply of antiseptic wipes, topical antibiotic and bandaids to promptly treat any nicks or scratches, and your oral antibiotics if your doctor has given you some to keep with you (good idea for travel, since getting a prescription when you're away from home can be tricky).

    There are excellent LE therapists in France, as in most of Europe, so in a pinch you should be able to get good help.

    Happy travels!
    Binney

  • carol57
    carol57 Member Posts: 3,567
    edited June 2014

    GemStateGirl, in a total pinch, ask someone to help you contact this lymphedema clinic:

    Fondation Cognacq-Jay - Hôpital
    15, rue Eugène Millon
    75015 Paris

    Consultations de LymphologieTel. : 01 45 30 80 80

    This is the premier LE clinic in France, and it would be unusual not to find some English speakers on staff. Their website (http://www.hopital.cognacq-jay.fr/contact/contact.php ) says that someone answers phones 24/7. There's sure not a walk-in clinic there, but I'll bet someone would steer you in the proper direction if you need a few therapy sessions.

    And...I'm pretty sure that delicious French food, especially petits pains au chocolat, is therapeutic, so don't forget to do your part by eating well during your visit!  And exercise...I sure wish I were the one who's about to be walking around in Paris!

    Have a wonderful trip!

  • glennie19
    glennie19 Member Posts: 6,398
    edited June 2014


    Carol,, what an awesome resource you are!!  And you are defnitely right about French food!  YUM!  Very therapeutic!

     

    Regarding wrapping:  I've never been instructed in this. Should I ask my CLT about it the next time I see her?

  • GemStateGirl
    GemStateGirl Member Posts: 168
    edited June 2014

    Thank you for all the helpful responses.  

    Leah and Binney, I've never needed to wrap my arm so unfortunately know nothing about that.  I do have a night sleeve with the oversleeve and I know how to do MLD.

    Binney, thanks for your comment about the antiseptic wipes.  I hadn't thought of bringing those.  I've never had cellulitis but know it's nothing to fool around with.  I usually travel with neosporin and bandaids but will add the wipes.

    Carol, thank you so much for the link to the LE Clinic.  I hope not to need it but it's always reassuring to know where to turn if there's a problem.  And, I will be doing tons of walking and sampling many delicious chocolate pastries!

    I'm so looking forward to this trip.  I was recently diagnosed with metastatic breast cancer and the preparations for this vacation have been a wonderful distraction.  A good friend went to Paris last June with her granddaughter and loved it so much she rented an apartment there for the whole month of June this year.  I will be there for 8 days with her and 2 other good friends having the time of my life.

    I plan to drink lots of water on the plane, eat a low salt meal, move around as much as I can, and wear my day sleeve, glove and Wearease Slimmer camisole.  I'm pretty confident these things will keep me out of trouble but I appreciate your help in knowing what to do if for some reason they don't.  I'll report back after my return!

  • glennie19
    glennie19 Member Posts: 6,398
    edited June 2014

    Have a wonderful time !

  • GemStateGirl
    GemStateGirl Member Posts: 168
    edited June 2014

    Thank you, Glennie!  I will. 

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2014

    GSG, have a ball! Being prepared (and you really are!) takes so much of the hassle out of traveling. You're all set for a fantastic trip. Take some pictures for us, yes?

    Glennie, being able to wrap your own arm lets you take back control of your life. Flares are disheartening and anxiety-producing, so knowing what to do to get back to normal quickly really puts the power in your own hands. It's also especially helpful if you ever have to deal with cellulitis, as you can adjust the compression yourself, making it possible to go slow and easy when you're ready to start back to using compression. Also useful when you've got one procedure or another (colonoscopy, for instance) where you'll be unconscious, or when you're sick in bed, as there's no danger of twisting and creating a tourniquet effect. It's a steep learning curve, but well worth it. 

    Hugs,
    Binney

  • glennie19
    glennie19 Member Posts: 6,398
    edited June 2014

    thanks, Binney.  I'll ask my therapist next time I see her.  I get the feeling that she thinks mine is so mild that I don't need to worry about it so much.  But I want to be sure it doesn't get worse.  An ounce of prevention,,,,

    I won't be flying again for a few months and it will be a short one then.  But I still like to be prepared! 

  • vlnrph
    vlnrph Member Posts: 1,632
    edited June 2014

    GemState, I sure wish the stage 4 bone mets were not in your diagnosis but know of several gals who go for lots of years with that condition. A Paris trip will be wonderful for you. 

    We went to Europe last summer and my LE was not a problem (I brought all the supplies listed by others above but didn't need them). You are very wise to plan ahead and should have a great time!

  • Daninayd
    Daninayd Member Posts: 58
    edited June 2014

    Jemstate, I recently did two long trips to Europe. No problems during and after flight. I wore my compression sleave. I remember that I was worried sick that I will get a flare up that would ruin my vacation but I instead I felt great. Try not to stress about the trip like I did.

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