Starting Chemo in December 2013
Comments
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Here's me 9 weeks PFC . . .
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Holli - happy birthday!!! Hope that you are doing something fun to celebrate!
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holli, happy birthday!
Oranje, you look beautiful, funny how you can really see faces, eyes, smiles when there is no hair(or minimal hair). You have beautiful blue eyes and lovely dark hair coming in. Do you go out topless now? I forget who in our group does and who doesn't even though I think you all look great just the way you are now. I'm still wearing scarves, hats and my new buffs. Now that I'm outside more I have to wear something so I don't burn my head and I'm more comfortable with something on my head still. Wear my wig when I go out ie dinner etc. I go without at home inside.
Have a god weekend ladies!
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RHGSR- Happy Birthday!! I'm about 3 1/2 months behind you.
I have 5 sons, youngest is 17 months and I was breast feeding him when I found the lump. I had a feeling it wasn't from breast feeding though, due to its location. I did get pushed out 2 months, though, because they thought it was a breast abscess.
Jbokland- thank you.
Robin- thank you! I'm glad that he actually listens to me because I think some of my treatment has come from my questions. He just doesn't seem as concerned as I think he should be. One problem is that my tumor is metaplastic and he doesn't know much about that. BTW, I have major chemo brain!
Oranje- you look great!
I rarely wear anything on my head now. A hat every once in a while.
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robin and those of you that like to doodle, look into zen doodling or zentangles. It is a way to turn your doodles into beautiful works of art. I had a patient that was very artistic, she had a stroke affecting her vision and perception and she used to zen doodle. One of the first things she tried again was this doodling. I tried it and it is relaxing. Sort of like the designs that are in the coloring books you do Robin.
http://creative-crafting-magazine.blogspot.com/201...
Had my 3rd radiation today. Of course no problem and I hope it stays that way but I know it is way too early for skin issues yet. I'll have 5 days next week then the doc said I could have 3 days off to go on our trip to cape cod. We usually go for whole week but I will come back on thurs for rad appt on thurs afternoon. Of course it extends my treatment 3 days at the end. We will all also have 3 day vacation from rads due to July 4th as it's on a fri
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Oranje- you look awesome with that dark hair with your blue eyes!
One of the (many) things I learned through this ordeal is to love myself...even bald! I am now very forgiving of the imperfections, the extra pounds, the signs of aging.
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jb, nicely said. We should all feel that way. You are so right and I am more accepting "of my perfect imperfections" as john legend says in his song
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This is after rad 14, there is a rash along with the burn. I won't make it through without a break. Using fresh aloe I scraped from the inside of the leaves and put through the blender and Radiaplex prescribed by the RO.
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oranje, nice photo!
Happy belated b'day Holli!
chico, has your RO ,mentioned Calendula cream at all? Miaderm? I used it and had some redness towards the end, maybe the last week and a half and some minor rash. I know we're all different. I hope you find something that works!
cenri, good luck with your treatments. You could always get a second opinion if you are concerned.
The past few days I have found myself "forgetting" that I have an almost bald head! I guess that's a good thing...but, then when I come back to reality, it still annoys me sometimes. I am calculating that by Christmas, I may be able to have a real hair-do!
My fingernails have almost grown out past the chemo stage with the ridges and yellowing. Luckily, so far, I haven't lost any. No SE's yet on Tamoxifen, except insomnia...which is not unusual for me anyway.
Have a nice week-end, ladies! Keep those SE's at bay!
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chicopeach - looks nasty for only 14 Rxs. I noticed my medial collarbone area was slightly pink on Friday after #6. Seems less pink today but the soft tissue above the bone is puffy. I tuck the end of my head scarf over that area and into the neck of my shirt when I walk to cover that area.
Jbokland. Wonderful to be done with chemo and such a great group of friends. Enjoy your vacation.
Kimie- hope you are having a great time with family visiting.
DJJ. The end of my axillary incision is getting tender and the area fells puffy below it.
Cenri76. So sorry about the path report.. Hope the new chemo is well tolerated and the PET scan comes back clean. Great picture of your and your son.
Holli. Happy belated BDay.
Robin- I figure I can use chemo brain as an excuse for at least the next 6 months, 😄
Oranje. Why could you not start on a Friday, I started mine on a Friday. Wish my hair were coming in darker, you look great. I think silver gray/ white is what I will end up with. Still conflicted on color or not when I start to go "topless". Still no eyebrows yet, few nubbins of lower lashes.
Lisa. Nice you will get away to Cape Cod even if the trip is shorter then usual.
Tolerating Aromasin OK so far. Occ hot flushes and legs a bit achy but walking helps. Thank God for weekends off of RT. My RO really believes in nothing on the skin until there is a problem so hope I do not need anything. Half way through rads on Friday the computer had a glitch. I had to wait 5 extra minutes with my arms immobile while it was reinitialized. Talk about anxiety producing, now I worry was the dose delivered right. Have a restful weekend ladies
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Well, I made it through a crazy busy week and now this momma is exhausted! My baby graduated High School today....last night was her Open House here at my house. Had about 75 people here and as much as I love to entertain, it was probably a little more than I should have taken on but did have a lot of wonderful help from my friends and Aunts and Cousins. Tonight I find myself barely able to get off my butt!
Hope everybody is having a great weekend!
Michelle
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What a week. Last Saturday was when my dad passed. I packed and load the fam as fast I as I could and we drive 4 hrs there. Nothing was planned or discussed for my dad's arrangements. So, that took all day Monday in my dad's hometown which was another hour drive. Tuesday had to go to Houston for port removal and rads set up another 4 hour drive. Wednesday was port removal and that hurt! Still does a bit. Thursday finish meeting with RO and head 5 hours back immediately for the wake. Friday was funeral a long day but held up like a champ. And we drove 4 hours back home on Saturday. Washing and packing for the big move in the apartment in Houston with the entire family on Tuesday (6 hours!). I am ready to get there and just stay there. Tired of being in a car. Thank you for all the thoughts and prayers. My DD is doing better now that it is over.
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wow Jodi, you have had a hectic week. Sad that you had to travel extra with the funeral prep. Hope you and your family can rest and do some personal remembering in the next weeks. Enjoy exploring Houston, you will have lots of time, I am in and out of rads in 30 minutes.
Michelle. You and your daughter look great, Congratulate her for graduations with honors (I assume from the gold cords) Where did you find the energy for entertaining 75 people?
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Holli, Happy belated Birthday!
Chicopeach, OWW!! I've had five so far and my I have a tan, but no burning so far. I keep telling myself. Whatever side effects I get it will still be better than chemo.
Jodi, Hang in there. You got this!
Cenri76, You look great. I hope your next rounds of chemo have minimal SEs.
Ornje_mama, Not the fingernails!!! That's how my toenails are coming off, with half a nail underneath. I showed my MO on Friday, I said "Look and half a toenail was hiding underneath." We both erupted into peals of giggles. She apologized for laughing at my toenails. I love her! Today I shop for sandals with covered toes!
I got really tired of the peach fuzz and bought "Fuzz Off" made by Bliss at Ulta. It's like Nair for the face. In three minutes no more peach fuzz! Then yesterday hiked 7 miles with friends. My feet didn't hurt until the very end. My breath was coming easier. And best of all my joints hardly ached. I no longer feel 90!!! WOOHOOO!!!!
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DJJ, thanks for the tip on the hair fuzz! Nice that you are able to get out and hike!
Michelle, beautiful photo. I see the resemblance of you, in your daughter! Congrats!
It's amazing what we can do when we have to!
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DJJ, seven miles I am indeed impressed.
I am celebrating tonight by going to see Ringo Starr. I got my ticket (they sold out in 1.5 hours) back in Feb in the mist of the terrible AC time. I though today would never come. some friends are celebrating beforehand a belated "end of chemo" in the patrons lounge. Just wish it could be the end of Rads celebration also. Excited as this is his only show in all of PA.
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DJJ - I am jealous! Too hot, out here, for hiking this time of year. Missed the best season. Luckily it comes back around again!
Michelle - that is a wonderful pic! What accomplishment...the graduation and honor cords along with the open house!
Barbara - have fun! What a great event!!
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No more wigs... 12 weeks PFC.
Chicopeach - Ouch, I am thinking that because my chest and underarm is still somewhat numb from the mx, it kept me from a lot of the discomfort when my skin turned red from the rads.
Jodi - I hope you, your DH, and kids have a fun filled and blessed time while you are in Houston.
DJJ - I am so happy to hear that you are back hiking and able to enjoy it.
Barbara - Hoping you have a fun time at the concert.
Michelle - Great pic of you and your daughter. Congratulations, job well done.
Kim
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CRAP..... Just got called. Rads machine broken so my 9:30 treatment is canceled until tomorrow. I like a three day weekend as much as the next person but not for this esp considering that there is another 3 day weekend for 4 th of July. . I want to get it done.!! Now everything is just extended a day longer.
Kim, you at looking good with your pixi hairdo. I can not wait for eyebrows to grow back, yours look great.
I made the mistake of wearing a wig to the concert last night, it was so stinking hot I almost whipped it off but vanity kept it on. I have stitches and a small shaved area on the back where I had a scalp cyst removed last week. If not for that I would have gone "topless"
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Kim you look fantastic! Barbara, hope you had fun at the concert!! Everybody else, hope you had a wonderful weekend!
Question........after about how many rads until you started to get any change in your skin? I am on #9 today and so far have had no change whatsoever, although i do feel a little bit swollen on my left side. I am extremely fair skinned so figured I would have something by now....
I am using the Califlora (Calendula Gel) and then corn starch when it dries under the boob and under my arm. I also was told i had to stop wearing any sort of bra and i'm not liking this part one bit. I wear a cotton tank top and then a couple of other "layers" on top of that. Its getting to hot to do this but oh well!
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I don't agree with the bra advice. Wear a comfortable bra if you want. I wore an underwire bra the entire time, as my right boob is way too big and saggy. I had no issues with the bra, as I put a soft cloth between my skin and the bra. It was towards the end that I had redness, peeling, etc. I would say, the last 10 tx I was gradually getting redder. My main area was the chest where I used to get sun burned and under my arm. Keep that cream on....
Barbara - Frustrating.... sorry for the delay in tx.
Kim
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I like the idea of a soft cloth.....never thought of that. I have big boobs so i'm just not comfortable going out in public without one on! Thank you for that advice!
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Saw the RO today, we are continuing with the tax but have a new gel. It is silver med. she ordered something else first then saw the allergy to sulfa, aspirin, naproxen sodium and ibuprofen and had to change it. I am also putting cold saline soaked rags on it, then the hydrocortisone cream. We will see how it does.
Michelle, your daughter looks so much like you, beautiful!
Michelle and Kim, I am with you, cannot go out bra less, don't even like going out with a sports bra on. My ex once told me my boobs looked like hound dog ears, not showing those puppies! And the sports bras give a squashed uniboob look.
I started seeing skin changes after just a few rads, too fair, too sun damaged, too sensitive. My nipple is sunburned!
Barbara, hope Ringo didn't disappoint! I would hate to not stay on schedule, got that end date in sight and just want to get to it.
I go topless all the time. It is just more comfortable. I forget I'm bald. It has opened up so many wonderful conversations - the kid in his 20's with lymphoma, the man just starting chemo for lung cancer and his wife was so worried, the survivors that give me encouragement and the chance to tell women to stay on top of their mammograms, tell them to find out if they have dense breasts, if they have a lump to get it checked out, if they think there is a problem to get a doctor to listen to them. We all look beautiful bald, it is nothing to be ashamed of or embarrassed by.
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Chicopeach, thank you for the nice compliment about my Kelli! I am so proud of her....she graduated with Highest Honors and is just and all around great kid! She is heading off to college in the fall to North Dakota State University and majoring in English and Creative Writing. My son is a Senior there and majoring in Architecture and for a little bragging rights, has been on the Deans list every semester!
I have gone topless the entire time i've been bald, except for our brutal winter when i wore a hat outside. I am totally ok with it....i feel more beautiful without hair than when i had it! maybe its because i feel like a stronger woman now....like a warrior defeating the beast!
I am waiting for the redness to start....i don't have a nipple to burn and hear that is what usually happens first. My skin is so fair that usually just touching it turns it red, or God forbid give me some alcohol and i'm all red and blotchy, so i figured i would start to burn fairly soon. I guess each day without any is a good day cause i'm sure its coming!
I'd better get back to work.........
Michelle
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BC Sisters,
I know many of us are past this, but I wanted to share and look for your input:
When I was bald, I started 'bedazzling' my head. I just couldn't be comfortable in a wig and I preferred to go topless, but was a bit shy about it. It was SO wonderful to decorate my head and have people stop me to chat instead of give me that sympathetic half-smile and a nod. I could not get through a shopping area or public place without being stopped or complimented . More importantly, I was having wonderful conversations with people about their stories, their cancer experience. It made me proud and confident.
Anyway, through lots of encouragement, I launched my own product and I call it Sassy Head. I only have one design now, but I REALLY need some people to give it a test spin for me. It works wonderfully on my skin ( I could sleep in mine and get 2-3 days use) but everyone is different.
I have a very simple website (not pretty, but it works) if you would like to try one out. I am selling these for $8.00, but if you use the dropdown next to word Standard and select BCO, it will give you a price of just $2.00 (plus 3.00 for shipping).
Below are some pics. The first group was my head when I was bedazzling, and the second is my available design. I plan to do additional designs, including a pink ribbon and designs for children. Your suggestions are welcome!
www.sassyhead.com
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Missy, congrats - you do have bragging rights!
I finally had my first rads today. I am wearing a cotton bra from Bali. I so love the advice "do not wear a tight fitting bra." um, hello? is not the purpose of a bra that it be tight-fitting? what the heck is a loose-fitting bra? it's an oxymoron. Like Missy & others, I'm too big to walk around all day without support!
As part of moving up into my boss' job (she is moving up to be the big boss), we need to hire someone to do my old job. We have the backing to do that now, and so on top of my increased workload I need to network like crazy to find a good candidate, because when you have the budget & go-ahead you have to act right away. We're a teeny department and this would be my only report so I feel like it's critical to find the right person. So, I've scheduled seemingly a million coffees and lunches for the next two weeks to get this search going . . . meeting with many former colleagues (not closest friends) who I have not seen live in many months. So, another round of telling people about BC. Fortunately, it is soooooooooooooooooo much easier to tell people now. It rolls right off me. At the beginning, I just could not face people's reactions. We can get used to anything. Here's to hoping that I find the right person without gaining 20 lbs . . .
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yeah, I finally got my #7 treatment I today, I was feeling really paranoid about skipping 3 days and called to see if they could take me later in the afternoon. I said I could get out of my office and there by 4:30 and they said to come on it. I got there at 4:10 and was done by 4:30. So I am still on schedule. I may regret 5 days in a row by Friday but for now just do not want to skip days. So far not redness but I do have some disco pomfret along the edge of my sternum. The nipple area is a but dusky looking but not red yet.
I kept worrying that the machine was broken this morning and hoping it would not breakdown again while I was there.
The bedazzling looks cute, I think I have too much hair for that now. Boy that sounded good, "too much hair". Good luck with the endeavor.
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Barb, I know, too much hair! Nice! I also probably have too much hair and I was a late bloomer.
Jb, you probably have to be smooth for it to stick right?
Now, as I said I was a late comer to the hair regrowth woes (7 weeks PFC today!), but I'm here now and have to do my part...so my eyelashes are coming in, stubby and some are pointing downward. I assume they will go the right way eventually. Eyebrows are also,coming in but are pale/white, sticking out and there is soft facial,hair above and below the faux eyebrows so I can't tell where the real eyebrows are. And the facial hair..ugh, mostly chin hair. It was so nice to be rid of this for 4 months. Can I go back to my electrolysist? Do I want to go back? Getting nose hair too..that's good. The head hair is so soft, fine and white or colorless and I'm still pretty bald looking. There are a few long scragglers that I will sometimes snip to even up with the others. Did anyone shave off this soft stuff? I dont think I would as I am so happy to have something but just wondering. (There is a dark patch that looks dirty right on the top center of my head though.) So to those late bloomers (leealice I think you are one of them, anyone else?), it really does come back, even in places you don't want it to.
I enjoy "checking up" on everyone everyday. You all are a wonderful group and I love everyone's insight, opinions, ideas, suggestions, stories, jokes, rants and raves. I've laughed and cried with all of you. We are all in this together even though we have never met and I feel I can go to all of you with any questions or thoughts. Here's to us!
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Lisa,
Smooth is desirable! I wore my Sassy Head last when I had a '5"oclock" shadow. It stuck but pulled on my hair on removal!
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jb, no I wouldn't want to pull on this baby fine hair I waited 4 months to start growing but it's a great idea and looks cool. I think the young (or young at heart) fashionistas would love it. Has anyone read the book "Does this outfit make me look bald? How a fashionista fought breast cancer with style". Saw it in a mag article and also on amazon. It might be just the right attitude for your business!
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