Need continued reassurance-- can you help?
OK
driving myself nuts. had thyroid biopsy on Thursday. Radiologist tells me 95% of these are benign. I read one thing that says that sometimes if you are hoarse, that could be thyroid cancer. I go off the rails because, of course, I am hoarse-- and even though I have have fever, sneezing, post nasal drip and had a biopsy, I still cannot calm myself. I know, stop reading. I did. Assigned that task to a friend.
This fear is different than the bc fear- which was so overwhelming I could not breathe most days. This is periodically terrifying. I am so busy with work, kids, etc. that I don't have that much time to ruminate the way I seemed to 5.5. years ago.... but I am scared and I am bringing it here. I know thyroid cancer is treatable and curable.... and I will do what I have to do. And I know I am "going there" before I get there... but my mind is crazy.
I have found that writing and talking about it soothes me, so I hope you don't mind. I would so appreciate any encouraging words--you have already done that, so you can see how nuts it is that I need it again..... My daughter's graduation was lovely and I was so glad to be there. I know I am going to live a good long life--I feel great-- but I am just making myself crazy-- or driving on the crazy train as my best friend says....
thanks so much-you are all the best...
Comments
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Hey momandtwo! I am a mom and two as well. I don't want to negate your feelings of worry. I know it is possible that it could be 'something.' I do not want to sound crass at all, I want to cheer you up! I want to say, 'momandtwo, you have a summer cold! Pop an Ativan and have some hot soup and watch a movie!'
I have summer virus right now. Fever, hoarse voice, drip, sneezing. did you catch it from me? I have not stayed home from work..
Sending you hugs!!! {{{{{hugs}}}}}
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Oh mom: I know what it is like. You spend most of the day trying to convince yourself you are fine, have a hour or two of relief and then bam, back into panic mode. Cycle repeats itself. I have so been there. It is completely normal. I did not want to share with my family how I was doing as I hate to put them through stuff after all they have been through with me. So coming here is so much better. Ask for as much reassurance as you want. We will provide! I had been dx with bc only 10 days before I had to see my endocrinologist for the nodules. I was in a sheer state of panic and my blood pressure was 160 over something. It is usually low. I told my dear dr. that if he had bad news for me, it would become his problem as he would have to pick me up off the floor. He spent more time worrying about my pending surgery and my blood pressure. He REALLY minimized the thyroid risk and assured me that if we ever found cancer, he would take care of it. He said, quote, "This is way down on your things to worry about right now." Then he sent me off for three more months as he just wanted me to focus on the bc. Compared to what you have already been through, this is so less serious. But I get it!! As I then had to have radiation, he is monitoring those pesky nodules very closely.
I just dread ever having to wait for results again. Once you have experienced the big C, I think test results will always be a big fear. I am already dreading my mammogram in Sept.
But please chat away here with us and we will wait with you.
ps Once I read about the hoarseness I also became hoarse!
(((hugs)))
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mom
I feel like we are so similar with our anxiety. We have had similar scares with both the thyroid and lung nodules. All I can think about is the hell I put myself through waiting for test results. I am also very psychosomatic when I feel like something could be wrong. Once I get good test results, all the symptoms go away. In the end , it was such a waste of my energy. I can remember waiting the six months in between scans for the lung nodule while I was going through chemo. Waking up in the middle of the night and obsessively googling lung nodules to get some glimmer if hope that it might be nothing! Then I got the news that there was no change and I was so relieved. Of course then I found out about the thyroid nodule! Yikes!!
I won't lie, I still have many very weak days worrying about my next scan in September but I try to remind myself that I need to live in the present. I think that is one of the most difficult things about having BC is that you always feel like you cannot plan too far in the future "just in case ". Time is something that non BC people take for granted.
The biggest fear that I had about possibly having Thyroid cancer is just having to go through all the treatments, surgery and appointments again. It is so difficult.
Like you already know, Thyroid nodules are so common, so many people have them.
I am thinking of you and hope you can enjoy your weekend and receive benign results early next week.
Hugs!!
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Shoppy: We were posting at the same time but ditto here too. Symptoms disappear as soon as the situation is resolved!
I think that we are all pretty normal. So nice to be among other normal women
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You are all the best.... I do feel better. What I learned from bc was that I am a person that needs alot of reassurance along the way... I learned to ask for it. This morning I reviewed my journal from the bc time... gosh-I had to will myself out of bed every morning. On every page there is panic, then soothing (someone said something good, etc), then panic again. It goes up and down.
I was thinking last night at graduation about the kids who lost a parent. One of my daughter's classmates lost a dad in 9/11, another lost her mom a couple of years ago. I was so glad to be there and I stayed present. And I want to be there when the next one graduates and when this one graduates from college, and so on and so on...
At soccer today, one of the moms asked me if I wanted to do a triathlon with her--- was a runner/swimmer for a long time-- but I have simply not be able to exercise since Christmas when I had shingles, these nasty colds and now this....
Anyway, I told her I had some medical issues I was dealing with and another mom I know popped up with "they found 13 nodules on my thyroid last year. I was completely freaked out for weeks while they biopsied, etc--all benign" I am amazed how people will share--I found it so helpful to hear that-I only have 2-3 nodules, but 13?? She has also had several breast biopsies as well, so knows the anxiety.
I did decide this time to talk about it whenever possible as opposed to the bc experience where I really kept it close to the vest. I figure if things turn out fine, everyone will be happy. If they do not, they will want to help
When I was in the middle of the bc thing, I went to bed one night thinking of a colleague who's wife had had breast cancer. My last thought before I fell asleep was "I have to call him".... I then had a dream where I went to his office, he was not there, but everything was bathed in white light and someone said "Everything will be all right".... I bolted awake. I am not a particularly religious person, but this dream was incredibly real.
This morning, just before I woke up, I heard "it's benign"...I don't know whether it is true or not, but it made me feel so much better.
Took a swim to check out my lung function--I would say it is pretty darn good and I did not cough alot --although the site where they did the biopsy is still pretty tender and black and blue.
thanks again-- I will post again because I am sure the anxiety will get the better of me again.... think good thoughts! You are all the best!
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mom - Doesn't hoarseness go hand in hand with allergies, viruses, sinus issues, etc? I wouldn't think hoarseness by itself would lead to thyroid cancer. I echo all the anxiety and fear. I still do esp right before my mammogram. I can't fathom that we will ever totally lose the fear factor. I told my ONC that once you are branded with the C word you will always be looking over your shoulder. At least I will. It will get easier the more years we are out but I am only 3 1/2 years out so haven't reached the 5 year mark yet. Hope test turns out negative.
Diane
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Edwards
Of course you are right.. I am just making myself crazy. It is funny, although I feel some anxiety at my mammogram, MRI-- it is not that overwhelming. I have gotten used to it, and the further out I go, the less likely there will be anything there. Because I know so much about bc, I feel like I could handle it it something happened (I hope). But now, a whole new thing???? Plus I am refraining from doing any research on this. My friend Mary took over that job- and has continued to reassure me that 95% of these things are benign- and she is using very reputable websites to find that out..
I am sleeping, but I am still tired. I could be another week waiting for these results and it is a busy week in which I have to be focused on presentations, etc. There are moments when I just think "it is what it is... let it go and let someone else (pcp, onc) take the lead--then I get frantic, trying to control things- looking up endocrinologists--making myself crazy. I am exhausting myself (and probably everyone around me). I cannot understand how I can take an excellent statistical probability and turn it into a bad thing..... makes absolutely no sense and if one of you were doing it I would be trying to make you see all the bright side.
Even if my thyroid has to come out, everyone I know who has had that done has said it is far simpler than having bc.
Some moments there is peace, then not so much just like TB mentioned above. And in no way is this anxiety like it was with BC. Like Shoppy, I just don't want to have to go through the process and treatments. I see myself as so healthy and these things really chip away at that.
Thanks so much for the reassurance. I will be back often for it.... There is so much happening this week-- my offices are moving, I have some big meetings/presentations, my h's birthday and my oldest's college orientation.... These are all joyful things, with people I love and I want so much to be present for them.
thanks
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all
I am back. Again thanks for the kind words. I know I am wearing myself out over this. Am about to start an extremely busy week which will hopefully keep me distracted.
Slightly less manic about this. I know there is nothing I can do. I remember waiting for my surgical pathology which took almost 3 weeks. I thought I would go out of my mind. Not feeling quite so crazy now. Just the periodic "what if?" Which stops me cold.
I keep reviewing the biopsy. Did the dr say anything that would be a clue ? Did he spend extra time on one thing or another? You know what I am talking about.
I am getting out, being social as opposed to pulling the covers over my head. It is good to be with people. Hoping to ward off any negative things.
Thanks again. Off to work
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