February 2014 Starting Chemo Club

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  • Rosiesride
    Rosiesride Member Posts: 513
    edited June 2014

    so awesome jbokland!  Great celebration!!  Rosie

  • 3doglady
    3doglady Member Posts: 50
    edited June 2014

    Good for you, JB! Awesome!  

  • Jules_NY
    Jules_NY Member Posts: 276
    edited June 2014

    Jbokland. That is awesome!!!' Getting my infusion now and the nure had to ask if I was ok because it made me cry

  • gatorgal89
    gatorgal89 Member Posts: 56
    edited June 2014

    Congratulations, JB! Woohooo!

    Hang in there, Jules!

  • jbokland
    jbokland Member Posts: 890
    edited June 2014

    Aww Jules--hope she recognized happy tears!

    I cried so much through the ordeal, my friends video taped me as I rang the bell.  I couldn't read the plaque because I was so overwhelmed!

    Thank you everyone for your support!!!  I am here for you too!

    Rads starts early July....right after my wedding!

  • MomMom
    MomMom Member Posts: 523
    edited June 2014

    Jobok - Congrats on ringing that bell!!  I'm very interested in port removal as well.  I'm already looking forward to it even though I have six more Taxols to go.  My BS installed it in a hospital with twilight sleep, but she takes them out in her office in a 10 minute procedure with nothing more than Novacaine.  Sounds kinda barbaric to me.  I'm thinking I'd rather go to the hospital and have an Interventional Radiologist remove it under twilight sleep, so I'm totally oblivious.  I'm in a hurry to get it out because it still wakes me up at night with a pulling sensation if I turn the wrong way in my sleep.  I'm told because I'm thin and small, there isn't a lot of room there and this sometimes happens in women with similar builds.

  • lago
    lago Member Posts: 17,186
    edited June 2014

    Deportation was easy for me. They did put me under twilight (which pretty much knocks me out). I was told afterwards to eat lightly… We left the hospital and hit the Italian place right around the corner for lunch. I had a huge piece of spinach lasagna. Ate every bite including the bread. I was starved. So much for eating lightly.

  • Holeinone
    Holeinone Member Posts: 2,478
    edited June 2014

    MomMom, 

    I had mine removed yesterday, in the hospital. My surgeon does not do it in his office. A little sore, I have been icing the chest. 

    I have paid my huge deductible so I wanted out this calendar year. It was a reminder of the nightmare of the last 11 months. Happy to get it yanked. 

  • princessrn
    princessrn Member Posts: 370
    edited June 2014

    jbok... Excellent!  So great to ring the bell and to give that gift to others. Brava!

  • jbokland
    jbokland Member Posts: 890
    edited June 2014

    I actually watched a youtube video on an office procedure.  It did not look bad and I am up for it!

    I am not that thin and the port drives me nuts!  It pinches when I roll over and it is treaded through my jugular and that pulls when I turn my head...I am always reminded its there

    http://www.youtube.com/watch?v=Ykc5nKF5Zhc

  • DiabloMom
    DiabloMom Member Posts: 19
    edited June 2014

    Hi girls. It's great to see so many of us coming closer to the end.  I had my final [#6] chemo treatment today.  I'm so happy.  Now I'm waiting on the SA to start and I wonder if there will be any new ones.

    I lost my eyelashes and most of my eyebrows in the last couple of weeks.  I've also had increased pain and discoloration in the nail beds of my fingernails.  I haven't seen any lifting yet.  I'm experiencing mild neuropathy in my hands and feet as well as darkening of the skin.  The center's nutritionalist recommended I supplement with medical grade glutamine to combat the neuropathy.  I've noticed that the neuropathy only lasts for a week in my fingerprints and is only intermittent in my feet. 

    It's been very difficult to get any type of cardio done since I'm very anemic.  The doctor told me I won't need a transfusion "yet".  She said I would be experiencing even more shortness of breath and fatigue with this last treatment.

    I've been doing a 30 day full body [arms/core/legs&booty] challenge only using my bodyweight to help build back some of my muscle tone. It's at my own pace and I can did it at home.  I find that it is raising my morale as I am making my body stronger.

    I have to keep my port in for the rest of the year as I will still be receiving Herceptin every three weeks until I finish out the year.  

    *I'm most looking forward to having some of my hair grow back so I can look more like my old self.  I've appreciated the ride and learned many things but I'm ready for it to be over..... for now.*

  • lago
    lago Member Posts: 17,186
    edited June 2014

    DiabloMom so glad your done. My fingernails actually continued to get a worse after chemo before they started to resolve. I think you might have dodged the bullet regarding them falling off. My fingernails never did. I just lost toenails. Do they smell and ooze yet?

  • princessrn
    princessrn Member Posts: 370
    edited June 2014

    I have 6 fingernails lifting. No odor or drainage. No pain. Toes ok so far though last pedi I looked closely and had no discoloration. My hands were terrible. Dark purple to middle ring and pinkie and those are the lifted nails. 

  • Rosiesride
    Rosiesride Member Posts: 513
    edited June 2014

    Diablomom...I had my last treatment Monday!   I feel the same as you with side effects...hoping my nails don't fall off...2 look yuck!  Also mild neuropathy ...very tired and weak feeling...so ready to start getting out and about...swimming...mild water aerobics to strengthen legs at least...I hope that will happen in a couple of weeks before rads which start June 23! Good luck to us!

    I didn't want to think about port removal but it is starting to bother me...maybe I will call Monday to get it out June 20th before rads...just didn't want to deal with it yet!!  Enjoy the days ahead and wishing is all few side effects!! Rosie

  • gatorgal89
    gatorgal89 Member Posts: 56
    edited June 2014

    I want my port out ASAP! Trying to go the week of 6/23. It bothers me when I try to sleep on my left side...which is my chosen side for sleeping...plus I see it. As others have said, it's a reminder of the whole ordeal and I want it gone! My surgeon will do it outpatient just as when he "installed" it. LOL. Someone actually asked me what my rush to remove the port was. Really?

  • Rosiesride
    Rosiesride Member Posts: 513
    edited June 2014

    gatorgal89...the first thing my husband said when I finished chemo on Monday was when are you getting the port out?  I just need to  gather the courage to face the surgeons office again...the place where this all started back in January...guess it will just stir up the memories I tried to push away while dealing with chemo....seems like forever ago...guess I will JUST DO IT!! Ugggg!  But I know once it's out I will be happy!!  Rosie

    image

  • jbokland
    jbokland Member Posts: 890
    edited June 2014

    I've noticed as the last of the lashes have dropped, I cannot wear eyeliner. It seems to slide onto my contact lenses!  Ugh!!  Must I attempt false lashes??

  • lago
    lago Member Posts: 17,186
    edited June 2014

    jbokland it can be tricky to put on eyeliner without lashes.

    BTW I kept my port in for 2 years since my onc said most recurrences happen in the first 2 years. Had it flushed every 3 months. Granted it was was still my choice. I could have  had it out earlier but given my large HER2+ tumor status I figured it wouldn't hurt.

  • tangandchris
    tangandchris Member Posts: 1,855
    edited June 2014


    Has this been talked about before...body odor? I've noticed since it is hotter than heck already, that my sweat just seems to smell so much worse. Of course it could be that I'm sweating more than normal, but in general does chemo cause changes to body odor?

  • Rosiesride
    Rosiesride Member Posts: 513
    edited June 2014

    I don't know tang, but I keep asking my girls and hubby if I smell like chemo!  And that they better tell me if I start to stink! Lol...hoping you get your stuff resolved and can get your last chemo! Hang in there...Rosie 

    I have a question about the sun...how long after you end treatment are you sensitive to the sun?  

  • lago
    lago Member Posts: 17,186
    edited June 2014

    tangandchris I know there were other women that complained about smelly sweat. I think it has to do more with your lymph node removal. Fluid might be sticking around in there a bit longer than it used to with few nodes. I don't seem to have the problem but I do believe I did read that on one of the threads.

    Rosiesride As far as sun I can't tell you. I don't sit out in the sun. Also not sure if hormone therapy meds will also have sun issues. Best to wear a sun screen. The sun will age you a lot fast than chemo ever will.

  • jujubee83
    jujubee83 Member Posts: 30
    edited June 2014

    2 questions...If needed, can a port be put back in or is it like a once a lifetime thing? And what is this talk about oozing and smelly nails? I have several nails lifting and I don't want oozing or stinking.

  • lago
    lago Member Posts: 17,186
    edited June 2014

    Jujubee where I get treated they won't put the port in the same place if you need it again because the risk of blood clots is higher. There are other places including your arm, neck, side, etc.

    As far as nails oozing and stinking. I had the lifting really really bad so mine did that. Not every bodies does. I mean my dermatologist said to me that the lifting isn't super common and I got a really bad case of it. You may be OK. Remember I had every finger and toenail lift.

  • jbokland
    jbokland Member Posts: 890
    edited June 2014

    I had too much sun this weekend.  My Pfc celebration of a weekend on the beach left me a little too pink and very brown. It must be the chemo cause I never brown this quickly! 

  • gatorgal89
    gatorgal89 Member Posts: 56
    edited June 2014

    No one ever told me you can't get the port in the same place twice, but it could be because I didn't ask. Maybe I shouldn't be in such a rush to get it out...but I feel like it is a constant reminder! The medical bills are enough of a reminder! LOL!

  • lago
    lago Member Posts: 17,186
    edited June 2014

    gatorgal some places might but that's what I was told… and they don't tell you this unless you say something like "I can always get it put back in." They don't tell us everything. 

  • 3doglady
    3doglady Member Posts: 50
    edited June 2014

     Ladies, my clinic doesnt have a bell to ring, but today turned out to be my  last chemo.  after talking with the doctor she decided that it wouldnt be necessary to continue to allow the delayed side effects from the taxols to compound.  So, we did 11.  Out of this whole experience I have only had 3 bad weeks.  Last week included.  the bloat in my belly has been increasing.  I can't wear any of my clothes, and have resorted to maternity pants - they feel good! - and I bought some more draw string/elastic pants.  I have some numbness in my feet and on Thursday, the delayed side effects kick in and I will take benedryl to keep it at a minimum.  

    I have an appointment with the surgeon early July to discuss the pending bmx and possible hysterectomy. (BRCA1 positive).  Now, the fight REALLY begins! Love to you all!

  • jbokland
    jbokland Member Posts: 890
    edited June 2014

    3 dog.  I'm ringing your bell ! Congrats!

    I never had any numbness or tingling until my last treatment. Hope it's temporary!

  • lago
    lago Member Posts: 17,186
    edited June 2014

    Yay 3doglady! My numbness started  (on taxotere) after m y 2nd treatment in my heel. I still have a little permanent numbness but it's not that bad at all. In the winter it can be a little more annoying depending on the weather but still not a huge deal. But I hadmy taxotere every 4 weeks with carboplatin. This can cause more damage. You may not have any permanent damage. It can take  5 weeks to start noticing a change but up to 2 years for neuropathy to go away.

    I also had the belly bloat (and legs too) but it does go away. I did need to go on a small amount of diuretic.

  • 3doglady
    3doglady Member Posts: 50
    edited June 2014

    Yes, because of the bloat, my onc scheduled an ultrasound of my ovaries just to make sure everything is o.k.  She said she's had one other client who gained all the weight in the belly.  I've had some other gain, and in all about 14 lbs.  Not terrible, but most noticible in my belly.  Yes, I attribute it to the steroids, too. The edges of my heels are numb, parts of my balls under my toes are numb and my toes are partially....about 70%.  My hands are doing good.  But the numbness didn't show up until weekly #7 and it hit all in the weekend.  The other side effects have been noticible the whole time, but was being shluffed off as anxiety until I kept track of the timing.  Anxiety does not start on Thursdays, two days post treatment.  Knowing this was my last, a week early, will help me tollerate the pending start of the side effects.  Alleluia!

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