Uterine/cervical polyps (chronic)

voraciousreader
voraciousreader Member Posts: 7,496
edited July 2014 in Just Diagnosed

I thought after Tamoxifen and switching to AI, my polyps would slow down.  Initially diagnosed prior to BC diagnosis.  Seems to be I'm growing them every few months and I'm symptomatic with bloody discharge... I've lost track of the number if D &C's I've had in the last 6 years.  I wanna hold on to my uterus... but when is enough is enough?  I keep wondering....

Comments

  • NancyHB
    NancyHB Member Posts: 1,512
    edited June 2014

    VR, I'm so sorry you're going through this - sometimes it seems like stuff just continues to pile up on us, doesn't it?  

    Would a uterine ablation make a positive difference?  I had uterine fibroids and heavy bleeding, and had one in October (of course I was dx'd a month later...has always made me wonder if there was a connection, but that's another story...)  That was 2.5 years ago, no period since.  Last US just last month indicates fibroids are virtually gone - that was the added bonus!  I do not take Tamoxifen, however - awful QOL issues - so I don't necessarily have to worry about uterine cancer because of that (once you have an ablation a uterine biopsy becomes more difficult).  Hope you're feeling better soon!

    Nancy

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited June 2014

    nancy... Glad to hear you are doing well.  I recall discussing ablation with the doctor a few procedures ago... I don't recall why we chose not to do it.  I'm going to talk with him again.  I also have a hydrosalpinx.  Yeah, I know.... What the heck is that??!!! More nonsense that keeps adding up!  I went for my "well" checkup in March and got the first "all clear" and was told I could resume annual check ups unless I became symptomatic..  Ha!

  • NancyHB
    NancyHB Member Posts: 1,512
    edited June 2014

    One day you're asymptomatic - the next day there's "something" - so goes our story, eh?  I swear stuff just seems to pop up overnight.  You caught me - I had to look up hydrosalpinx (I had an idea in my mind and I was kinda-sorta on target).  Oh, the joys of being a woman.  :-)  I hope you're able to find a resolution to this ongoing concern.  Can polyps become something else, or become worrisome (like colon polyps) or are they more just annoying (like fibroids)?  I don't know much about them, but am always interested in learning more.  Thanks for sharing your story - and for all the wonderful information you always share!

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited June 2014

    endo/ cervical polyps are not like colon polyps to my knowledge.  The way it was explained to me... if you have a D&C that confirms them, and you get them again, you don't have to treat them unless you are symptomatic OR, in our case, you have previously had a cancer diagnosis.  In my situation, I always become symptomatic and I was diagnosed with cancer, so out they come!  If you are asymptomatic and NOT a cancer patient you can do watchful waiting because it is rare for them to be malignant.  Now, colon polyps are a different ball game.  Incidentally, I'm having a colonoscopy next week following my D&C ... So I should start the summer clean as a whisle!  Now colon polyps that go untreated are more likely to develop into cancer.  Removing a colon polyp will reduce one's chance of dying from colon cancer by 50%.  Unlike screening mammography, colon screening is truly preventative!  Take a colon polyp out and you are likely to avoid a cancer diagnosis down the road.  With screening mammography, no one knows with certainty when you remove a precancerous legion if it would have become cancerous.  That's why population based mammography is more controversial than colonoscopy screening.  We are great at finding anomalies when we screen asymptomatic populations...the question is how proactive do we truly need to be once we find them... Hmmmm

  • NancyHB
    NancyHB Member Posts: 1,512
    edited June 2014

    You made me laugh outloud - yes, pretty and shiny and clean to start the summer off right!  I hope your D&C goes well, as does your colonoscopy, and that nothing exciting is found.

    Thanks for the continuing education, VR - you are truly a wealth of
    knowledge and so incredibly helpful in understanding not only our
    disease but our medical community.  You're so right that we can't yet know what will - and won't - become cancerous. We can remove a benign colon polyp in the hopes we prevent future cancer; when it comes to DCIS it is so disturbing (but completely understandable from a patient POV) that our option is often to remove a breast in hopes we prevent future invasive cancer.  We would rather overtreat that take chances, and I can fully appreciate that fear and concern - but I wish we had more options.  I know that mamms are important screening tools but they are not fail-safe; while colonoscopies are fairly invasive (but great drugs!) but not surgically, and the potential to catch cancer early as polyps is fantastic.  Why can't we find that same type of reliable screening for BC?

    And once we ARE cancer patients - everything becomes suspect, even those things that might otherwise be considered benign nuisances.  I mentioned a "pain in my pelvis" which lead to a CT two weeks ago; a "small bump" near my original surgery site is now waiting an US.  I wait every day to be normal again - well, maybe not "normal" but perhaps not Cancer Girl.

    *hugs* to you VR!

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited June 2014

    nancy... Hopefully we can both begin summer on a "normal" note! group hug for all of us who are constantly waiting...

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited June 2014

    I asked about ablation again....I recalled we had discussed it a few D&C's ago...while I was still premenopausal and taking Tamoxifen.  Now that I'm postmenopausal, and taking an AI, it is no longer an option.  The doctor had hoped once I was off of Tamoxifen and postmenopausal, my chronic polyp issue would improve.... Hmmmm....

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited July 2014

    So I had my D&C for my bleeding polyp and follow up appointment two weeks ago. Gyn said I could bleed up to a month.  It is officially a month and I'm bleeding even more than I did when I had my follow up exam.  Guess I'll have to see him again.  This is not getting any easier.....

  • NancyHB
    NancyHB Member Posts: 1,512
    edited July 2014

    VR -So sorry to hear this procedure isn't "going as planned."  Has the doctor given you a possible reason as to why this is still happening?  Keeping my fingers crossed for you that more surgery is not the solution.

    I will keep you in my thoughts and hope that a return visit to the doctor yields some good news (and a quick and painless solution) so that you can get on with the business of enjoying your summer!

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited July 2014

    nancy...thanks for keeping me in your thoughts....I'm very private in person and usually don't talk about the DHs and my issues...so this is a great place to, shall I say...unload. 

    At my two week check up, the gyn told me you can bleed up to 4 weeks.  However, I've tread you can bleed longer.  Yesterday, I passed quarter size clots. I'm heading over to him to let him have a peek. Whatever it is, and I won't speculate, can't be good or bad. I also have a hydrosalpinx that gives me tenderness, so it would be difficult to distinguish the pain from that area.

    hmmmm.....

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited July 2014

    Just back from the doctor.  I'm an "outlier." Normal people can bleed 2-4 weeks. My uterus is very angry at me.  Giving it 2 more weeks to heal and if my uterus decides its still angry at me, I'm just going to have to part with it.😣

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