DIEP 2013

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  • hrf
    hrf Member Posts: 3,225
    edited May 2014

    RHGSR, I don't blame you for being concerned. I had a lot of necrotic tissue that had to be debrided with a second surgery but I don't think the spot looked like what you describe. Hopefully your PS can shed some light on it.

    I found an easy way to get my PS to look at things during that first difficult healing process. Whenever I had a concern, instead of going in, I took a picture and emailed it to her. That way she kept an eye on things. A couple of times, she had me come in. And the other times she was reassuring about the healing. Anyway, was easier than always going for appointments.

    This revision went well. There is still swelling and bruising of course but not too bad. And I feel no pain at all.

    The nipples look quite large so I hope they do go down. It is very strange to see nipples after all this time. Overall I am pleased with the results but I have to admit no one will ever see it so I'm not looking for my idea of perfection. Just want to look better in clothes and feel better about myself.

    BosumBlues, yes my DIEP was just 1 week after yours. I did have a lot of healing problems so had to go back to surgery after 9 weeks. But since then it healed well. But certainly 3 surgeries has been difficult. I'm so sorry that your progress has been challenging. What is your next step?

  • jlbloom
    jlbloom Member Posts: 228
    edited May 2014

    RHG, good to hear from you!  I didn't experience anything like that.  If you haven't already, you probably want to post on DIEP 2014.  A lot of activity over there and maybe someone will know more about it.  Take care. ...Julie

  • Morningsun1
    Morningsun1 Member Posts: 649
    edited May 2014

    RHG, hrf has a great idea, email a picture of the small hole to your ps. To me, puss might be infection, so you want that checked out. I had something like that on my belly button about 3 and half month post-op. I actually contacted my ps when it was still red. It turned out to be a small infection and I was put on an antibiotic.  When the culture came back, ps had to switch me to a different antibiotic because the original one was not very effective to kill the bacteria that was present. Hope you have it sorted out soon.

  • heavenschild
    heavenschild Member Posts: 212
    edited May 2014

    Hello ladies!  It is a blast from the past.  Am doing well, although an entirely numb torso is interesting, to say the least!

    I went to the doctor for tummy pain, I have never been the same since the DIEP.  They did a sonogram and now want me to come in and discuss the results.  It is funny how quickly you can spiral downwards in the thinking.  One chiropractor said that I had a hernia, in my mind I was already terminal and giving away my clothes - LOL!  My mind is a dangerous place, don't go in there alone!  

    For those contemplating DIEP, the results are amazing.  I now have a Hollywood body, but have to eat small meals or my stomach complains.  

    MartyJ - so glad you are still posting!  You were such a comfort to me.

    Gentle cyber hugs to all.

  • MartyJ
    MartyJ Member Posts: 1,859
    edited May 2014

    Heavens Child - look at you - happy boobiversary!  Wow.  And thanks for your kind words.  I still have sections of my torso that are numb, but my brain lets me forget then reminds me at the most odd moments.  Just remember to switch that brain to good thoughts.  No dwelling on the bad stuff.  If I contort in the wrong way I get the most amazing muscle cramps in the lower abdomen.  Mind blowing cramps.  My physical therapist has me laying over a stability ball backwards to stretch things back out.  So I lay over the ball with my iPad and read for 5 minutes.  I think that we all have some lower ab issues and will never be the same, but neither will our boobs.  

  • Morningsun1
    Morningsun1 Member Posts: 649
    edited May 2014

    I like the sound of that, heavenschild Hollywood body! Has the tummy pain been there for a while or just started? If it just started, with your torso still numb, it might be nerves trying to regenerate. Glad you found us on the other thread!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2014

    So glad you said something about your tummies Heavenschild and Marty. I have exactly what Marty described. I know I need to stretch and strengthen but missing the key ingredient.....motivation!  

  • MartyJ
    MartyJ Member Posts: 1,859
    edited May 2014

    Bailey when you find that motivation, send a cup my way!

  • heavenschild
    heavenschild Member Posts: 212
    edited May 2014

    Bosom - Unfortunately, I can relate to the not feeling good.  Fatigue has been a monkey on my back, but after I won the battle with cancer, I developed allergies, which have been making life miserable for me.  Rest, rest, rest and be good to yourself! 

    Let the doctors work their magic.  Stage 1 was disappointment, Stage 2 was amazing!  I have complete strangers tell me how good I look and that is definitely a first for me!  I am so a fan of plastic SX that when I win the lottery I am going to have a facelift done.

  • kad22
    kad22 Member Posts: 191
    edited June 2014

    Hello all so it has been a year since my Diep surgery. I have not had had any other revisions because insurance will not cover it?anyone else go through this? On top of it ihave a huge bulge in my stomach onone side not a hernia had it checked out- Dr. Thinks it may be svar tissue but would liketo look at it and of course insurance isn't allowing it. Any advice would be great just so depressed lately

  • MartyJ
    MartyJ Member Posts: 1,859
    edited June 2014

    Revision (Stage 2) is a medical necessity.  Your PS's insurance staff are the ones who should know the system well enough to code properly to get it approved.  Get the PS as your ally and have him/her push.  

  • SheChirple
    SheChirple Member Posts: 954
    edited June 2014

    kad22: I had my Stage I DIEP May 24 (I think) last year.  I am finally having Stage II June 9th.  I too have a large bulge, which I thought was lymphedema, then water retention, all kinds of things.  PS says it's "tissue", which I take to mean "fat".  Anyway, he's going to address it in Stage II.

    heaven:  you inspire me.  I'm so disappointed in Stage I, I'm counting on Stage II to make the difference.  Scar revision, lift, dog ear removal.  Hmmmph.  Here's hoping.  I, too, have the abdominal issues.  Mainly It just feels swollen all the time, pressure an sometimes like a muscle cramp starting.  It has been a year!

     

    I was going to post photos, but not sure anyone wants to see that here, especially since I'm not done.  I took photos this morning, one year post Stage I, pending Stage II next week.  Hope to post before and after story in a few months.

     

  • kad22
    kad22 Member Posts: 191
    edited June 2014

    My PS has been a great ally for me but I changed insurances and they denied it twice now - they call it cosmetic! I now have to go to an outside review panel. Talked with a lawyer and they'd charge a $2,000 retainer fee plus more depending on how much they have to do, yikes I don't have that money barely making house payments! I am so discouraged! Sorry just don

  • jlbloom
    jlbloom Member Posts: 228
    edited June 2014

    Hello ladies,

    You need to reserve judgement until after stage II and possibly II-b.  Stage II was minor fat grafting and some adjusting the flaps in November 2013.  I was much happier after that.  On May 23, 2014, a year following my BMX on May 23, 2013, I had some significant lipo, fat grafting, skin graft areolas and nipples.  They really look much more like breasts than before.  I definitely had the hamburger buns look going on.  Hoping the fat grafting stays around as much as possible.  I'm going to post some pics on the picture forum one of these days just so others know you can be happy with your DIEP even when everything isn't perfect.  My first set wasn't perfect.  Please give yourself some more time!

    kad22, there must be someone that can help you with this.  Maybe you should post on the 2014 DIEP or look for another thread regarding insurance.  The cosmetic excuse could apply to breast reconstruction as a whole and they don't get away with denying that.  You need a more active thread than this one.  We have to find someone that can point you in the right direction.  ...Julie

  • Morningsun1
    Morningsun1 Member Posts: 649
    edited June 2014

    kad22, send a pm to Bailey6760. She knows a lot about insurances.

  • GwennyMD
    GwennyMD Member Posts: 147
    edited June 2014

    I am glad to find that you guys are still hanging out on this thread.  the 2014 is full of newbies.

    It has been 7 1.2 months since DIEP and I still cannot sit straight up in bed without pulling with my airms.  I also feel sudden itching or pains in middle of breast or stomach which makes no sense because these areas are numb.  

    Is this normal?

  • lahela
    lahela Member Posts: 515
    edited June 2014

    Gwenny, have you had any PT? My ab muscles were a mess for months but I have been seeing a physiotherapist recently and I already have much more ab strength and can use those muscles more. Might be worth investigating - and it should be covered by insurance because it's recovery from the surgery.

    The abdominal itches are the weirdest thing - I can never find them to scratch! Guess the nerves still don't know where they are!

  • GwennyMD
    GwennyMD Member Posts: 147
    edited June 2014

    Lahela

    Thanks for the suggestion.  I will have to add a PT to my list of docs to see during the next few weeks.  Prior to dx, I was extremely healthy and tried to remember to get physical once a year.  Now in addition or OCF, I have a MO, BS, PS, Cardiologist, and need to see a Dermatologist for hands and feet and now a PT.  This is getting exhausting. 

  • jenjenl
    jenjenl Member Posts: 948
    edited June 2014

    I'm coming over from the 2014 DIEP board.  I had my surgery January 2014 with wonderful results.  I had stage 2 in May and stage 3 scheduled for July.  My doctor put some disolvable mesh in my tummy vs wearing a binder.  about 6 weeks ago I started having pain on the right side above my insion closer to the ribs.  I just watched it, it would come and go and now im more aware of it.   i thought that maybe it was the disolvable mesh disolving but would have thought it would be the same on both sides.  So I wanted to come to you seasoned DIEP ladies to see if there are any similar experiences.  my MO ordered a scan but doesn't want to schedule it until i see my surgon to see if it's normal or not.  I have a bad feeling the same feeling i had after my biopsy.  when i had my scan prior to the DIEP (the abdominal scan) there wasn't anything but we all know how that goes. 

  • hrf
    hrf Member Posts: 3,225
    edited June 2014

    I'm glad to see there is still activity on this thread. I had my DIEP last August. I had a revision in October to get rid of necrotic tissue and a little rearranging of the foobs to make sure they still matched. On May 1 I had second revision for nipples and lipo to get rid of the abdominal wings. Also a little fat grafting to build up a small area that was a little depressed. Seems to have worked. In about 3 months I'll get tattooing. Overall a year long process.

    I am very happy with my results. They might be a little hamburger bun like but not totally and I am happy.  Main thing is that I feel better about myself, feel more comfortable in my body, and look better in clothes. These are definitely less saggy than the originals and actually more comfortable. For me, I think the only thing that would have made me really perky would have been implants but that wasn't an option. 

    For those of you still thinking about DIEP I would definitely recommend it. All my revisions are covered by our provincial health plan so I never had to deal with any insurance issues. 

  • GwennyMD
    GwennyMD Member Posts: 147
    edited June 2014

    Jenjen I had mesh on right side because PS had to remove some muscle.  I also did not wear any compression. I do remember having lots of weird pains during the first few months on that side of my stomach but they have ceased.  Now I sometimes feel weird movement when I lay on either side or stomach. 

    I would like to know what everyone is using their incisions.  Mine get irritated when fabric rubs against them.  The side of my stomach incisions are not very low so some of my pants and underwear rub against them.  In addition I now have incisions under my breasts after they were lifted in my first revision.  By the end of the day I am rubbing and scratching and cannot wait to take off my clothes. I have heard about Bio Oil which I plan to buy this weekend.  I thought I remember some discussions about this topic but don't remember which thread.  

  • jlbloom
    jlbloom Member Posts: 228
    edited June 2014

    Jenjen, I haven't had any mesh, so I can't contribute.  

    hrf, good to hear from you!  Sounds like we have traveled similar surgery paths.  I'm losing some of the skin grafting of the right areola, but PS's nurse said they can't really do anything.  Even with all the 4x4s I guess there was too much pressure on the top part.  If the nipple survives, that is the main thing.  I really doubt it will make much difference when the tattoos are done.  I agree whole heartedly that this reconstruction is all I hoped it could be.  

    I must have done something else I shouldn't have because I'm guessing it is a hematoma on my left love handle area.  It is like a large hard bruise.  It doesn't really hurt and it is flat.  Wearing my binder 24x7 except for showering.  It will go away.  I have an appointment next Tuesday, so we will see what my PS has to say.  Gwenny, it is so true that we have a raft of doctors that I had never even heard of before fbc.  

    Have a good one, ladies!  ...Julie

  • SheChirple
    SheChirple Member Posts: 954
    edited June 2014


    I completed my Stage II yesterday, 6/9/2014.  I'm all bandaged up so I can't see it, but let me say this:

    Less pain, no drains, I can see there is more lift and better shape in the breasts, and less swelling at the abdominal scar. OH, did I mention NO DRAINS!

    PS said 2 wks off work, gave me OWO for 3.  This will cause problems at work, but I'll figure it out.

    Doing well so far, but couldn't really sleep last night.

  • jlbloom
    jlbloom Member Posts: 228
    edited June 2014

    Congrats, SheChirple!  They just keep getting better.  ...Julie

  • lahela
    lahela Member Posts: 515
    edited June 2014

    SheChirple, great to hear it went well! Hopefully you'll have an easy recovery and be happy with the results!

  • damiana9
    damiana9 Member Posts: 389
    edited June 2014

    Hello long lost DIEP sisters!!! I am on summer break from school- it has been glorious!! LOL!  

    Updated on me:  I had my official stage 2 in December, but had a reaction to the stitches which caused some major healing issues.  I got a fipple then that also ended up falling apart because of the reaction.  I am scheduled for another surgery July 11.  He will reduce the DIEP side again because it is still a good amount bigger than my real side.  Then he will make a nipple using alloderm to help with projection.  I am excited about that because currently I have 1 headlight on and one headlight off.  It really really annoys me as depending on the shirt I am wearing- it can be quite noticable!

    Hope you all are well!

  • RHGSR
    RHGSR Member Posts: 774
    edited July 2014

    hi ladies! I haven't been here in a while. Had my DIEP in November 2013. Finished chemo at the end of April and Rads at the beginning of July. Set to have phase 2 next week then phase 2b about 2-3 months later. So I will probably be popping over here more often. My poor radiated foob shrunk quite a bit. :0(

  • Ridley
    Ridley Member Posts: 634
    edited July 2014

    rgh - congrats on finishing treatment. You look great.  This thread hasn't been very active, but there is a 2014 one that a lot of us have been posting on so you might want to pop on there as well,  good luck with phase 2.  

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited July 2014

    Actually, most of us are on the "Moving on after the flap". Thread.........come join the party!

  • klanders
    klanders Member Posts: 244
    edited January 2015

    Looks like I'm not moving on. The two lumps are invasive ductal carcinoma. Same as before and in almost the same spot. I have these beautiful breasts and now it looks like they are going to get cut up, radiated and chemo'd. Anyone have any idea what the affects of all that will be on my DIEP breasts? Maybe there is already a thread for that so I'll go look. I really thought that by doing the BMX I wouldn't have to do this again. But I also chose not to take the tamoxifen. Now I see how foolish that was. Aaarrrggghhh. :(

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