The "Be Positive" myth

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  • Teka
    Teka Member Posts: 10,052
    edited January 2014

    I find sometimes, trying to support & encourage members going through a ThumbsDownis like chasing my tail, exhausting!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    I see no one's blogged here since 2 plus years ago so here goes....  I agree with many others here that if they hear one more person tell them "be positive" or have a "positive attitude" they will blast them.  Same with the whole "think pink" mentality.  I think the whole pink thing exploits women with BC and has research done anything to come closer to a cure in the last 20 or 30 or 40 years?  No.  But they have been able to target more types of cancer with the right treatments.  I guess I'll be "positive" about that but nothing more...  I lost a very young friend last summer to BC, and she was probably the most positive thinker out there. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    Good job bumping this thread up. Don't want to let this one get buried or die.  Great thread NM.... I find "positive thinking" is EVERYWHERE like an insidious octopus that has it tentacles into EVERYTHING. What is so abhorrent about it is it has become so engrained into normal language but it DOESNT belong there. I have a good reason for saying this and yeah I could write a book. Theres people who use it unwittingly because its become a favourite cliche and STUCK LIKE A DANG PERENNIAL LEECH. Really its so bad that nice people, old people, and anyone in between that never used this hideous phrase suddenly took it on board about 15>20yr ago..give or take ...

    Im gonna say it again and again and again....at the end of the matter  it transfers the total blame on YOU. Its YOUR fault because you didnt have the right attitude, or you didn't think "good things" hard enough long enough .... BALONY

    How about being real about this. Its is what it is. If youre miserable you need to be able to say so and NOT feel guilty about it. Oh yeah the "positive" crowd really lay a guilt trip on ya.  If youre happy then GREAT! but not because youve conjured up an impossibility by using presumption and other dodgy antics. 

    Ha ha- thoughts may fly higher but the earth brings them down. (I *think* thats a Genesis lyric)

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited February 2014

    That's my beef with the 'think positive" thing, too.  Don't blame me for breast cancer, I did not give it to myself. Thinking anything is not going to make it go away.  Thinking positive will not give me my own breasts back or take the scars away.  And if you haven't been through what I'm going through DO NOT tell me how to feel!  

    Sometimes I wish I could follow a bunch of the "think positive" folks and see how many get cancer themselves, and then ask them how the positive thinking thing is working for THEM.

  • shoppygirl
    shoppygirl Member Posts: 694
    edited February 2014
  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited February 2014

    As I'm sure I've said on other posts, never ever underestimate the power of anger to MOTIVATE.  To my thinking, if anger keeps you slogging through treatment, gives you the grit to face a cancer diagnosis head-on, makes you determined that it WON'T WIN even when you feel like giving up, then ANGER a pretty valid emotion.  It sure helped me a lot more than the "be positive" bit.

    Warrior Women, Unite!

  • ziggypop
    ziggypop Member Posts: 1,071
    edited February 2014

    LOL - Selena - love your attitude. Anger does motivate and sometimes a little selfishness can be a good thing too. Personally, I like to be positive sometimes because it just feels good (being positive means just having fun), but I sure as shit don't want anybody telling me to be positive. The other night my Aunt was visiting (she has been a great help through all of this... but), I just had my exchange surgery & it really didn't go all that easily and I have been feeling really weak and short of breath, etc. So she was about to leave and she said .. "But aren't you happy about your new boobs?

    I was thinking.. you mean these one weird nippled and one nippleless Frankenstein looking things that hurt like shit right now and that can't feel any sexual pleasure - um, happy? Not so much. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    Sometimes I wish I could follow a bunch of the "think positive" folks and see how many get cancer themselves, and then ask them how the positive thinking thing is working for THEM.

    Haha  Love it no prizes for guessing what the answer would be, um, that is unless one is totally delusional.  I kid you not, youd be surprised who calls black white when its still black.

    As for me, I refuse to use "negative" and "positive" except in the proper usage before it was hi-jacked....

    Power phases? yep, increments decrements, yep, 100% yes or no, yep. 

    Trying to educate people about this insidious parroted phrase is like spitting into the wind or sticking your finger in the dyke. I generally dont bother except in dedicated threads like these, but anyone telling me to "be positive" well that's a different matter.

  • Tarot
    Tarot Member Posts: 41
    edited February 2014

    Wow, I found a "home"...BAHAHAHAHAHAHA! I am full-on pissed off with this whole "you have cancer? just be positive, it will save you" BULLSHIT that gets handed to me on a daily basis.....I m so grateful to know that I am not alone in feeling this way.

  • wenweb
    wenweb Member Posts: 1,107
    edited February 2014

    Welcome Tarot.  As always, sorry you have to be here 

  • Tarot
    Tarot Member Posts: 41
    edited February 2014

    thanks, wenweb....it feels sooooo good just to able to be honest about what I am feeling, and to see so many others do the same!  

  • wenweb
    wenweb Member Posts: 1,107
    edited February 2014

    You're welcome Tarot!!  I've noticed in a more general sense that being honest feels really good, even if what you are being honest about seems embarrassing.  I can credit BC for that!!

  • Morwenna
    Morwenna Member Posts: 1,063
    edited February 2014

    I had it on two occasions just two days ago at work... One, we were talking about what the Alberta government was doing to our pensions, and I ( quite lightly, in my opinion) remarked that I wasn't going to get into a stew about it as odds are I won't make it to retirement age (I'm 54). There was a collective sharp intake of breath, and I was severely admonished, "you can't THINK that way. You gotta stay POSITIVE!"

    Then another guy, a doctor btw, tells me it is most important to "be relaxed". I was remarking on the pain (nuisance) of having to wear my LE sleeve, and he tells me the LE is a GOOD thing, as it means they did a proper job clearing my nodes. Burk!  ;)

    I'm almost back to fulltime, on a gradual return to work. I do feel a bit weary, but this same guy assures me that 6 months of chemo last year wouldn't be affecting me now, and radiation does not cause fatigue! 

    Hah. This guy was a surgical oncologist in China, but not working as a doctor in Canada. I'm glad he's not MY doctor anyway, he'd be getting his marching orders!! :o

  • Tarot
    Tarot Member Posts: 41
    edited February 2014

    what a difference a surgery date makes.....March 10th. And...went away for a couple of days. so my attitude is much better now. Thanks all of you wonderful people for helping me make through those awfully dark days, all 10 of them, LOL

  • maidentiredofwaiting
    maidentiredofwaiting Member Posts: 155
    edited June 2014

    I'm so glad this thread is here.  I too get the "stay positive" speech whenever cancer is mentioned.  I'm ticked I got cancer and when you are in pain and facing a mastectomy you don't feel very positive.  Sometimes I just want to scream!   I know people mean well but this whole process is hard enough to deal with without being told how you should feel or think.  Cancer sucks!  I lost my mom to colon cancer nearly 4 years ago and she always tried to stay positive and I admire her for that. But  I am scared, confused, overwhelmed, angry, and sad all at once and I don't know how she did it.  Wish she was here.

  • Basia
    Basia Member Posts: 790
    edited June 2014

    I was positive, I was a happy person until about a month ago when I was diagnosed with recurrence, was I not positive enough? I love when everyone says, but you have such a great attitude about all this, how could this happen to you? Because having a great attitude is the cure! I am not in the mood for this think positive crap right now. Sorry to sound bitter, but like I've been telling everyone, I'm allowed! Thanks for reviving this thread :)

  • maidentiredofwaiting
    maidentiredofwaiting Member Posts: 155
    edited June 2014

    Hi Basia!  You are right, you are allowed!  I'm sorry to hear about the recurrence. Vent away, it feels good to have others to talk to.  :)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2014

    I see Ive been pipped at the post, keeping one of the most important threads on this forum alive.  GREAT!

    Basia, you don't sound bitter to me, but real and its great another one has seen this idiocy for what it really is. The more the merrier.

    Ive got better things to do than get annoyed, BUT..... about a week ago OK, yeah, I got REALLY annoyed. For the 1st time I met a (distant) family associate who's had cancer and seems to think her long NED was attributable to her positive thinking. She was extremely pushy and intent on pushing the whole game onto me and she pursued her "cause" with as much zeal as a cultist. When I calmly but firmly disagreed, well um, she didn't like it. I COuldn't even get a word in edgeways. Whatever. I can cope with this type of response but when she actually blamed a persons death on their "negative attitude", then turned around and flatly denied that she had done so,  yep, that pushed a button and I became a LOT more challenging. You see people who propagate these lies don't have consistency in mind when they argue their cause. When you show up their contradictions they can really go pear shaped on you and act like a cornered rat, which is only indicative that they have real problems. Her way of dealing with it was to "see me out" (not even her house). I said no thanks I'll see myself out. My challenge rattled her cage far more than mine got rattled. The point is, GOOD, now she knows not everyone is going to fall and worship as she spouts her nonsense. Hopefully she remembers me when she spreads her next lot of lies.

    She reckons "they" are breaking their necks for her to spin the positive stuff at meetings and speaking engagements. UGH . How many more people are going to get suckered into this unrealistic ridiculous nonsense and then get a mighty slap of disappointment when reality comes knocking. These people do sooo much damage. Seriously.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2014

    Hi Maiden. I'm sorry you've lost your mom to cancer. Mine passed unexpectedly during my second month of chemo. So many times I've wished she were here for me to talk to about this whole cancer ordeal. I feel your pain.

    Great topic, BTW.

  • maidentiredofwaiting
    maidentiredofwaiting Member Posts: 155
    edited June 2014

    Hi Clickchick,  Thanks for your message.  I am so sorry to hear you lost your mom too.  I had a really hard time after my mom died as we were very close and she is the one I always turned to for advice.   Feeling very lost without her. 

     I am really nervous as tomorrow I go in for a 2nd opinion with a breast surgeon and see a plastic surgeon.  I think I might get a new oncologist too since I have lost faith in mine-long story!  They have already suggested I get a sentinel lymph node biopsy and a mastectomy at a minimum due to the extent of dcis.  My mri showed lots of abnormal tissue too so I'm worried it is invasive .  Weird how that never showed up on the mammograms.  How are you feeling after radiation? Take care!

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited June 2014

    Maiden--being
    toldhow to feel by someone who does not
    have cancer is infuriating and frustrating to me, always has been.If you don't have cancer, how do you know how
    I should react?And what is so wrong
    with being upset or angry or confused or sad or any combination of the above
    when facing a potentially lethal condition?Really.There's a couple of
    "be positive" people Iknow
    that I am just waiting for them to get cancer or something serious so I can
    give them the "be positive" line they gave me, just to see how they
    react.Actually, I doubt I'd ever have
    the balls to actually say it, but I do think about saying it! I am sorry for
    your loss of your mother.So not
    fair.

    Basia--that's
    another part of the "be positive" thing that irks me, It' a way of
    blaming the victim.I wasn’t positive
    enough so I got cancer?Really?The why doesn’t being positive CURE
    cancer?Besides the obvious loss of
    revenue to the pharmaceutical industry, that is.

    Musical--yup, that
    drivel is VERY damaging.What will the
    family member do if she gets a recurrence?Go around talking about how her own negative attitude caused it and how
    she is curing it with positivity?I'd
    like to see that one!

    And yet another
    myth, that mammograms pick up all bc.Mammograms do NOT, they are only a screening tool.Practically useless for women with dense
    breasts.Known to be useless for lobular
    bc and inflammatory breast cancer.

    Well, I'll get off
    my soap box now.Have a happy Hump Day
    everyone!

  • maidentiredofwaiting
    maidentiredofwaiting Member Posts: 155
    edited June 2014

    Thanks NativeMainer! Happy hump day to you too.  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2014

    Anne, how arrogant is that! thats soooo typical of the positive pushers. Unless these people get a clue (unlikely) they're just not worth your company. Its hard with family, but with a response like that it sounds like your sister not only doesn't have any empathy, it's only the school of hard knocks that will give her some. Some interim strategies wouldnt go amiss in the meantime, like ignoring her where possible and making it short and sweet when its not.

    Native, lol, Id like to see it too. Love your logic. Usually I overlook a bit of a stupid lapse in common sense, or if someones open to see where theyve had foot and mouth disease and offended others, and yet meant well. I've met these, gently said my piece, they've gone away having learned something. Win Win. However, this lady really took the cake with her over zealous dumbhead "positiveness".  Id never wish this lousy disease on anyone but should she reoccur and I came across her, I wouldn't be silent. This is about where your comeback would come in.

    Dense breasts and deep tumour, mamms did me no favours. I found my own.... a couple of weeks after a mamm.

  • Lily55
    Lily55 Member Posts: 3,534
    edited June 2014

    positivity makes NO difference to BC outcomes, they did a 15 year study expecting to prove this myth, but in fact they proved that wonen who authentically expressed theur feelings, the whole range of them, did best.  i HATE the Positivity Police, they do us all a dis service

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2014

    Lily, yeah a disservice because honest people don't like being lied to. Actually I'm wondering if it does make a difference (in the opposite way, that is)... like the shock of being slapped in the face with reality. This positivity/negativity business has some nasty little faces which in the end all paint the same picture. A delusional one.

    If that woman I encountered reoccurs, she'd be just as likely to pull a crazy stunt like, "well it was fun while it lasted" ... positivists are like that.

    Love this lyric "thoughts will fly higher til the earth brings them down" (Genesis: Selling England by the pound) 

  • Betty14
    Betty14 Member Posts: 89
    edited June 2014


    I like this thread...I think outlook is determined by genetics/environment/nurture. I think a lot of positive people had positive parents and were nurtured into being positive. I have seen families where all the members were jokers always laughing even in the face of adversity. I have also seen families where depression was a dominant factor in their lives and they struggled with it on a daily basis. I myself have a family that has been plagued by depression and anxiety and related nervous disorders. I suffer from anxiety and I was brought up by  two anxious parents..my mother being a catastrophic thinker always putting her fears onto us...I was a fearful child and I developed  'the worrier' personality. I'm always worrying about something wether I want to or not...it will just pop up somewhere in my day....there you will find the worry bug. It bites when I least expect it and sometimes it will send me into a panic.

    I've had severe anxiety for 20+ years and I believe it is genetic and it has affected my family and myself....I see it. Sometimes I have short bouts of depression and I get fed up with everything .....other times I'm manically happy and enjoying life to the fullest and embracing my passions.

    Sometimes I have days where bc doesn't come to mind and I forget I had it for that day......that's a great day, on other days it's all I think about.

    Am I a bad person for wishing I never had cancer.?..NO....am I a bad person for getting angry that I got this disease?.....NO

    Am I a bad person because I can't be positive about my dx ?....NO....If I am positive it's not because I am grateful that I got dx with bc but it's because I'm feeling good within myself at that time.

    Just because a person with cancer is positive doesn't mean they love their cancer.....it means they have a positive outlook at that time....just because these people put on a brave face to the world doesn't mean they don't cry themselves to sleep at night. The thing is that in the end all that really matters is that we be free to feel whatever we feel at any given moment. I think it takes as much strength to get through life with a  positive outlook than it does with a negative one. You're getting up in the morning and surviving and getting on with your day...

    I don't give a damn what people think of me anymore....some days I feel crappy others days I feel like I could conquer the world and sometimes I'm neither here nor there.....just meh. But I never am glad or happy or grateful that I got a disease that could potentially kill me just like I wouldn't be happy or joyous or grateful if I was told that the aeroplane I was flying on had a faulty engine and we might all crash and burn....I wouldn't turn to the air hostess and smile and say " I'm so grateful for this opportunity to fly '*** airways'. ...the food is great "

    I'm not bothered by people that are positive about their cancer dx...I'm bothered by those people that expect it of you.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2014

    I think the title of this thread,  The "be positive" MYTH (emphasis mine) says it all. That's just it...its a myth.  

    Betty, you seem to be saying because of genetics there's a legitimate "positivity". Let me say, whether you're happy, sad, depressed or elated, optimistic, pessimistic
    or any number of other things it's not because you're being positive or
    negative. I do believe things can run in families, but "positive and negative" have nothing to do with it. The only time you're positive is when you're either 100% sure about something, or embracing the religion of positivity. That's basically what my dictionary tells me.

    Spiritual aspects aside, if words didn't matter then none of us would bat an eye when someone else said something hurtful. On that guise, I'll say if words matter then so do their meanings.  For the most part we don't even know the future let alone be sure of it...... so when someone tells you to be positive they're trying to make you do the impossible. Its a semantic error.

    The most obnoxious thing about this is that when people tell you to "be positive" among other things, they're putting the onus on YOU to fix yourself with the power of your thinking and that if you fail at it, then its your fault cuz you weren't positive enough. That is absolutely and absurdly unfair, devastatingly cruel and hurtful. Alluding to what I said above, I can't think of anything more callous and selfish than to blame someone for their death because they weren't "positive enough". 

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited June 2014

    Big hugs to all those who have lost their moms. My own mom was dx'd with BC at the age of 60. She had a UMX, with no rads, no chemo, and no AIs (weren't invented yet.) At 67 she was dx'd with Parkinson's, which robbed her of her independence and her health. But in caring for her, we would find ourselves laughing at something ridiculous, and her famous saying was "I can laugh, or I can cry, and it damn well feels better to laugh." She passed at the age of 88 due to Parkinson's, without ever having a recurrence of the the BC.

    When I turned 60, I got the call. I had BC. The very first thing I wanted to do after I hung up with the Radiologist was to call my mom and pour my heart out, but she had already passed. I decided that I would follow her example, and that she would be my role model.

    I had many people tell me how positive I was during my difficult days. All the medical staff complimented me on my positive attitude. Trust me, I was doing that for myself and for my mom. Being positive simply made me FEEL better. It was like free Valium.

    But it was MY choice. It wasn't about some well-meaning friend or stranger telling me that I HAD to stay positive to BEAT THIS THING!!!

    And I had plenty of fire-breathing BIATCH moments. Seriously scary. 

    I am a nice person, I really am. But I have no problems  dishing out some harsh reality where it is warranted. I never actually said out loud "I am positive I am about to smash your face into the sidewalk..." but I came close. At least I think I didn't say it out loud.

    Others who gave out advice freely, well, I just took it on a case-by-case basis. Some were just uneducated folks who loved me dearly and would have taken the cancer from me if they could. I tried to listen and remember they loved me. Others were just plain stupid and pushy.

    I had some great zingers for that crowd: "Oh, I'm sorry, what part of this is about YOU?" (Silence.....)  "OH - you have breast cancer too? What kind? Thank goodness you are an expert! Tell me more!" (Silence.....) "Wow - all this time, and I had no idea you were a medical doctor! Tell me, what is your specialty?" (Silence...)

    Like I said, being positive is for ME. I count my blessings, not my remaining days on earth. Neither should anyone else who thinks they know better than I do how to live MY life.

  • MsPharoah
    MsPharoah Member Posts: 1,034
    edited June 2014

    Blessings, love your post.  You described exactly how I feel about being positive.  I'm not a perfect person and can get "out of hand" often, but I do choose to "make happy" and I have always been that way...not just after I was diagnosed.  I also give well meaning loved ones a break when they make inane statements.  They love me, they care and I cherish them.  I don't feel the need to scold them.    I haven't had to deal with comments from people who don't care about me, because I haven't shared my diagnosis with them.  

    Many of my loved ones have commended me for being so strong, so positive during my treatment and I think to myself... I was positive for you, because I love you and I know you were afraid for me.   

    MsP

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited June 2014

    Great comebacks, blessing! 

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