So many lymph nodes

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  • Maggs09
    Maggs09 Member Posts: 193
    edited June 2013

    Sharon, so they are probably tiny, (like my were). My lung dr said that anything smaller then 8-10 mm is to small to biopsy; also PET wouldn't give a reliable reading.

    (My were 2,3, 5 &6 mm).



    Besides, the chances for tiny nodules to actually be malignant are very small.

    As you probably know from my previous posts - I had a thoracic surgery to remove wedges with all those nodules and the result was: inactive inflammation due pneumonia (which I never knew I had!) and some granulomas.

    And I had a big reason to worry with such an extensive lymph node involvement with bc and second primary treated only with surgery.



    I feel very positive about your nodules, I'm sure they are nothing dangerous or related to BC, but if you are anything like me - you will feel safer keeping an eye on it.

  • shoppygirl
    shoppygirl Member Posts: 694
    edited June 2013

    Just to put in my two cents, I have a 6mm lung nodule found at dx that they are watching. Four doctors have now told me that they are very common. It just because we have bc that they are looking at them so much. Still, it is very difficult not to be worried about it.

  • Ihopeg
    Ihopeg Member Posts: 399
    edited June 2013

    Hi! This is the first time Ive been on this site for awhile. I too thought that I was Stage 1 going into surgery... That phone call telling me it was 19/20 was the worst! Im doing fine now. Finished 5 years of Femara after chemo, rads and ooph. You can do it!

  • sharon1953-
    sharon1953- Member Posts: 36
    edited June 2013

    Good news about the CT scan.  No growth on the lung nodules!!!  The MO did lots of blood work with tum makers and said my blood work was perfect.  Hard to believe it is perfect, with BC.  I start my chemo treatments Tues.  TCH 6 treatments every 3 wks. and herceptin for a yr.  My path report changed after surgery. 

  • Momine
    Momine Member Posts: 7,859
    edited June 2013

    Sharon, excellent! At my first chemo the onc was checking off my bloodcounts with the nurse, and commented that they were perfect. I quipped that I was in perfect health, except for that cancer thing. Onc glanced down at my stats, and not missing a beat, quipped back that even the cancer was perfect (treatable).

  • shoppygirl
    shoppygirl Member Posts: 694
    edited June 2013

    Such good news!yay!

  • Maggs09
    Maggs09 Member Posts: 193
    edited June 2013

    Sharon1953, that is a great news! No growth/change on lung nodules means that they are less likely to be suspicious!

    Good luck with your chemo. Make sure to drink a lot of water on the day of the tx, (during and after, 12 8oz glasses or more) and try to walk as much as you can. It helps with the SE and protects kidneys and liver.



    Ihopeg, thank you for posting! It helps so much to hear from others with an extensive lymph node involvement that are doing great years after dx.

  • living
    living Member Posts: 45
    edited June 2013

    At home from work recovering from recconstruction surgery.  I guess too much time to think about my cancer is crippling me.  Wish I could get past this feeling that cancer will be back sooner than later

  • shoppygirl
    shoppygirl Member Posts: 694
    edited June 2013

    Living. I hope your recovery goes well. I also cannot not stop thinking about the cancer returning. I wish I could turn my brain off! Take care!

  • kimf
    kimf Member Posts: 334
    edited June 2013

    I had 15/23 positive nodes 8 1/2 years ago and am doing great. Anything over 10 nodes is all lumped together into stage IIIC if mets aren't involved. Most of us get the big guns re: chemo/rads and herceptin/hormonals if they apply. Do everything you can. Also, be diligent with the lymphedema. I developed a slight lymphedema but immediately went to a lymph specialist who did lymph drainage massage 3 xs a week for weeks. I wrapped my arm and hand for 4 months then wore a sleeve and glove for 2 more months. Since then I've been fine and that was 6 years ago. Good luck to you all! My thoughts and blessings are with you. 

  • SpunkyGirl
    SpunkyGirl Member Posts: 1,568
    edited June 2013

    It's always a blessing to hear from you, Kim!

  • RealtorJackie
    RealtorJackie Member Posts: 91
    edited June 2013

    My cancer appeared between yearly mammograms.  I found it myself.  When they told me it was about 2 cms., I thought, OK, I will get through treatment and be done with it.  When I had surgery, they found 15/23 nodes positive.  I was TOTALLY SHOCKED.  That was 2 1/2 years ago.  I am checked every 4 months.  I am cancer-free.  I live every day to the fullest.  I do not let myself fear the future.  I have survived so much.  I am moving forward.

  • kimf
    kimf Member Posts: 334
    edited June 2013

    Hi Bobbie! How are you sweetie? I think of you often. Hope you are well. I know its been awhile! Don't want to highjack this thread...pm me and fill me in on how you and the boys are doing since you lost your love. xx

  • sharon1953-
    sharon1953- Member Posts: 36
    edited June 2013

    Your story sounds so much like mine.  I found mine also after having a mammogram that did not show anything.  Mine was about 2.5 cm, but at surgery had 18 positive lymph nodes.  I had my first chemo treatment Tues. Stories like yours, give me HOPE!!!! Would love to hear more. 

  • AryaS
    AryaS Member Posts: 131
    edited May 2014

    I am returning to this thread a little over one year later.  I made it through treatment and had my exchange surgery several weeks ago.

    We found out before I began radiation that on top of the 35 positive nodes, I had some capsule extension too.  I think it's good that they didn't tell me to start.

    Treatment was not at all fun but I made it through and I am getting stronger every day.  Gained 30 pounds thanks to those wicked steroids and I have a head full of chemo curls and now I have to pay for my Brazilians again....but I'm still standing.

    Thank you to all who so responded to my op with such care and concern.  Your words meant the world to me.

    And for those of you stumbling onto this thread with your own lymph node craziness, please know that there is hope. 

    I feel so fortunate to have found you all.  Thanks again.

  • Moderators
    Moderators Member Posts: 25,912
    edited May 2014

    Hey Aryas

    It's lovely to hear your encouraging words and how much the women in this thread have helped and supported you throughout your treatment and surgery. 

    Warm thoughts to you and your family

    from the Mods

  • Marie715
    Marie715 Member Posts: 46
    edited May 2014

    Thank you to everyone who responded to AryaS. and also to AryaS for the update.  The posts have encouraged me also.  I had 18/21 positive nodes on the left side.  My RO said "Your lymphnodes did what they are supposed to do.  They trapped the cancer.  Maybe you have the type of cancer that likes to hang out in the lymph nodes". I thought that was a great attitude to have.  So, yes, until I'm told otherwise, I had the type of cancer that liked to hang out in my lymph nodes.  : )

  • dutchiris
    dutchiris Member Posts: 855
    edited May 2014

    One year ago yesterday I had my last chemo.  In few weeks it will be one year since my BMX.  I felt I'll when I heard I had 19 pos. Lymph nodes.  I lost 10 lbs in two weeks.  Here I am however amd I'm feeling everyday.  Congratulations AryaS and Marie on one year.  Thank you for sharing hope here.

  • mary625
    mary625 Member Posts: 1,056
    edited May 2014

    Congratulations Arya and Marie!  Arya--did they let you have implants after radiation?  I can't get anyone to agree to it.  I've had no recon at all.  

  • AryaS
    AryaS Member Posts: 131
    edited May 2014

    Mary-

    Yep.  They placed tissue expander at the BMX surgery.  The lymph node involvement was really unexpected.  My PS told my hubby while I was in recovery that there is a higher risk of implant failure after radiation but we were going to try it.  I got all my fills during chemo and before radiation. And had to wait 6 months after radiation was finished to do the exchange.  I had TE' s for over a year and they were beyond uncomfortable!  Hated those things.

    I had the exchange surgery 3 weeks ago.  The PS made new incisions underneath the foobs because he said some women's BMX incisions have been splitting being used in multiple surgeries.

    Well guess what?  I have a small hole in the same place on both new incisions, the one on the radiated side is a bit bigger.  PS is perplexed.

    My TE' s were filled pretty big, a large c.  My new implants have left me much smaller than I wanted.  I'm barely filling a b cup.  I am not thrilled but am waiting until the holes are healed before I speak up.

    When are they telling you to expect reconstruction? Are they telling you anything?

    My understanding is that my reconstruction has a higher chance of failing.  But I am trying to be optimistic.

  • Lucca06
    Lucca06 Member Posts: 69
    edited May 2014

    Mary, I had an tissue expander put in post radiotherapy hoping to have it replaced with an implant once expanded.  The outcome wasn't good.  Although my skin looked to have healed really well the fills were excruciating as there was no stretch in the tissue, then 3 weeks before it was due to be replaced (it was fully inflated) my scar broke down from the pressure and it had to be removed.  I have since had an SGAP procedure.  The doctors weren't keen to try the implant route but for a whole list of reasons they agreed to give it a go as long as I appreciated the risk.

  • mary625
    mary625 Member Posts: 1,056
    edited June 2014

    I knew I was lymph node positive and headed to radiation from the beginning.  That and I think the surgeons' general preference now for using body tissue resulted in a a very strong recommendation not to do implants.  They wanted to put in TE's anyway, and I don't understand why.  Knowing that I would have only 4 weeks for fills and they could be in for a year, I said no.  I could not get my head around the length of surgery for DIEP or similar and rejected it outright.  I'm not sure if they would have done that at the time of BMX or not.  It seemed to me that they would have only done TE's.  I had so much on my mind at the time and was changing between A/C and Taxol the next day.  The PS barely met with me, was very negative and showed me no pics although he's very well known for good work.  So I said "forget it."  BS was not really happy and still wants me to do the recon.

    I'm not sure I'm willing to take the risk now with implants.  It seems like my skin is good, but what is not good is my pectoral muscle.  It is stiff like beef jerkey.  Both sides are bad, but the radiated side is horrible, so I think that TE's behind the pecs and expansions would be horrible.

    I can now have tissue recon like DIEP whenever I want to do so.  I just have other things I want to do, and I still don't have my mind wrapped around the length of surgery and number of surgeries.  

    We are a small group of those who have to have all of the treatment modalities.  Most of the women having rads are lumpectomy patients.  

  • victoriasecret
    victoriasecret Member Posts: 333
    edited June 2014

    I know the feeling....when I went to my first surgeons meeting I thought I was going for dcis as I had never missed a mammo or ultrasound when funky things were felt ...she examined me and said hmm Stage 2 possibly 3 !

    Well you could have scraped me off her floor ..I went straight on Atavan popping them like smarties until I was walking into walls .

    After my surgery 4 days I went back for my post op oh but it gets better 11 freaking nodes 7.5 cm tumor she had to almost slap me because I heard nothing after that I was a mess.

    I did make it to the other side life is good I ignore stats each day is a gift to us all !!

     

    love and light

     

    Cheryl

  • Tessy
    Tessy Member Posts: 47
    edited June 2014

    AryaS,

    What a difference a year makes! You started your chemo a week after I completed mine. My last chemo was May 21, 2013. It took me several months to have any energy but it is all behind us now! I think those of us with any positive nodes were and are worried about the future! It is a scary thing to be told it is in your nodes. My PET scan prior to chemo was clear and I insisted on a bone scan about 5 months after chemo because I was paranoid about every little ache and pain I had, most of it was related to chemo and tamoxifen and my arthritis that was irritated by it all. My bone scan was clear also! I cried tears of shear joy and relief. I am happy for you and wish you many years of happiness and health! 

  • life-2
    life-2 Member Posts: 8
    edited July 2014

    Hi.....I also had many lymph nodes removed.  I had 30 nodes removed with 26 affected with cancer.  I'm happy to report I am doing well and am thankful each day for my life, and to all the extensive research and treatment for breast cancer.  

  • Tomboy
    Tomboy Member Posts: 3,945
    edited July 2014

    yay, life-2! where ya been?

  • life-2
    life-2 Member Posts: 8
    edited July 2014

    Hey Kathec- it looks like we are "c" sisters.  How has it been going for you?  Do you mind if I ask how old you are?  I'm 39/was diagnosed at 38.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited July 2014

    Victoriasecret, your post cracked me up.  I'm trying to picture your surgeon slapping you around after sharing the pathology news.  I can relate.  I told mine I felt like I was drowning. 

    But...YAY for the other side!  Each day IS a gift, whether we've been through breast cancer treatment or not. 

    Doesn't it feel a bit odd, when talking about radiation with someone who was DCIS or Stage I?  My friend told me it took her longer to take off her top and climb onto the table than it did for the radiation treatment.  My treatments lasted about 20 minutes and I thought I could smell the meat frying.  My pectoral muscle will never be the same--stiff and tight, not much stretch.  But I'm here to fuss about it!

  • Tomboy
    Tomboy Member Posts: 3,945
    edited July 2014

    It has been going pretty good, except for some reason some lymph nodes on cancer side have just decided to get enlarged and painful! i think it has more to do with lymphedema. i am 54, dxed at 52. they couldnt believe i was 52, told them it was because ispent some time pickled! and had a very physical job that kept me strong and slim. those nodes have been tested, they are fine, but sluggish, probably because i still am not up to former level of activity. are going along well. nice to see someone with more nodes out than me!  and i still have some left around the ones taken out. i think our nodes did the job they were supposed to!

  • Tomboy
    Tomboy Member Posts: 3,945
    edited July 2014

    I updated my therapy to femara, so you would know i passed my "use by" date!

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