Spring 2014 Rads

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  • Anneb1149
    Anneb1149 Member Posts: 960
    edited May 2014

    congrats mz_mes! 

    Anne

  • Deblc
    Deblc Member Posts: 479
    edited May 2014

    Hi Ladies, I am about to start rads but having insurance delays so not sure of start date. How soon did you start rads after chemo? Does anyone know if there is a recommended time period to start after chemo? Thanks.

  • Redheaded1
    Redheaded1 Member Posts: 1,600
    edited May 2014


    Congrats to all who have finished or will finish this week  WOOOHOOOO YOU MADE IT!

    It has been 1 week today since I finished---saw Nurse today, then saw MO, who is putting me on Arimidex, but not to start till my poor skin heals (2 weeks longer he suggested). Then came home and the RO wanted to see my skin, so I went back, and she decided to get me a compounded crème from a pharmacy about 70 miles away, but they will deliver it.  And Nurse will check me again on Thurs afternoon.  In a week, my entire underarm area has opened, along with the boob undercrease which we been treating for a few weeks.  But, Ro showed me some white patches and said it was new skin cells being formed, so that was encouraging.   She did tell me that it is hard to predict who will have SE after Rads and who will get them during, and that is why she says no vacations/travel for 3 weeks post rads....

    All I know is this---if it comes back in this breast, or the other breast, they are both coming off and I am getting a smaller, perkier pair....I don't know why I listened to four doctors.......AGHHHHHHHHHHH  I'll be willing to cash in 40D's for A.  On a good note, my diet changes sinceDX which included oatmeal EVERY morning, caused my Total Cholesterol to go from 212 to 171.  So, SILVER LINING found.

  • Redheaded1
    Redheaded1 Member Posts: 1,600
    edited May 2014

    Yeah, well I do know why I listened to them---I was afraid of the Lymphea demon......

  • have2laugh
    have2laugh Member Posts: 132
    edited May 2014

    Last treatment today as well-Congrats mz-mes and Lonnie! Brought rad techs lunch and even shed a little tear saying goodbye. Have to say they were wonderful! No bell but I was thrilled never the less. Was going to have celebratory dinner last night but delayed due to wonderful circumstances. Memorial day memorable as I became a grandma for first time and you are so right Anne really so much more than I imagined! Beautiful healthy not so little girl at 8lb 3oz and 20 inch and unbelievable easy labor and delivery for my daughter-could not ask for more than that. My three year old insists on being called Aunt Maddi which is so cute.

    I have much to be grateful for! While many were surprised by their diagnosis, with two sisters with breast cancer I kind of expected I would find myself here at some point. Three out of five sisters now and no BRCA but clearly something. I know there is some controversy over how we classify and treat DCIS versus invasive cancers but I was diagnosed 1-2 years younger than my sisters on my first MRI and am so happy non-invasive but a lot of the breast involved so ladies please encourage your families or those with family history to keep up with appointments.

    For those in process-boost site sore but remainder of skin healing incredibly fast. Hang in there. Also have to add I stayed motivated as I looked to right during treatments and saw masks head and neck cancer patients have to wear. Ladies-they are literally attached to table during treatment. I have had the opportunity to meet several survivors of head and neck cancer volunteering at cancer screenings and fundraising walks with best friend who is speech path with this population. As a group-they do not receive the same types of funding breast cancer does. Imagine radiation and treatment taking away speech or ability to eat or drink! They are truly warriors like many of you here. This has been a humbling experience and I am oddly thankful to have had the chance to slow down and really refocus on the things that are most important to me-my family and friends. Thank you all for your encouragement! On to Tamoxifen and back to busy but wonderfully full life!

  • Anneb1149
    Anneb1149 Member Posts: 960
    edited May 2014

    Have to Laugh

    Congratulations on your granddaughter. If you think it's great now, just wait till you walk into the room and she recognizes you. You have come through a really tough journey- now it's time for a journey of pure love that just grows and grows. 

    Anne

  • Deblc
    Deblc Member Posts: 479
    edited May 2014

    Hi everyone I am supposed to start radiation soon but encountered a problem I didn't anticipate.  I went to get the simulation done today, but my arm is STILL very stiff after surgery and I couldn't get/keep it in the position they wanted without a lot of pain (both arms way above my head). They say I need to do physio before I can do radiation to get my arm in this position and to be able to hold it there. Did anyone have a delay in treatment due to this? Also the techs told me to put NOTHING on my skin (no aloe, or lotions whatsoever) as it may make side effects worse. I was very surprised at this, as from everything I've read, most people do put something on their skin after treatments.

  • justachapter
    justachapter Member Posts: 158
    edited May 2014

    Hi Deblc,

    Welcome!  I can't answer your first question, but I'm sure someone has had a similar issue.  Actually a lady going through radiation with me right now, did but it wasn't her surgery, it was a previous surgery from a motorcycle accident in which she ended up with a titanium plate in her shoulder.  She was telling me the story yesterday when it was my turn, so I never got the full story.

    On the aloe or lotions, I think Dr's don't want you putting too much on before you even start as it can cause you to react early.  You aren't supposed to put anything on two-three hours before treatment, but can soon after.  I told someone recently here (sorry) you weren't supposed to immediately after treatment, but just confirmed that with my Dr. yesterday.  I went with the use it when you need it and it served me well through the first 4 weeks.  I'm now having some burning discoloration, but my Dr. said that was to be expected.  You can put all the lotion, aloe on but we all react differently.  I only have 2 more full and then 10 boosts.  The boosts will be the hardest for me as I also have a bolus which brings radiation to the top, and add into you still have the same amount of radiation each day, but the field is much smaller.

    Good Luck!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2014

    Deblc, My RO told me no creams or lotions other than 100% Aloe Vera when needed (not the normal of what everyone else was being told). I only used it a few times during treatment and had only a slight tan under my arm, and slight redness under my breast (barely noticeable) when finished. The RO was very surprised about how good my skin looked.

  • Phebe38
    Phebe38 Member Posts: 197
    edited May 2014

    debic: I had surgery seven months before radiation and I still had problems putting my arms up also I have a port on the opposite where I had surgery. So both arms were quite sensitive to put up for approx five minutes. I did it though. I'm going for physio as soon as there's an opening. We only have one who comes to our town.

  • Amazonwarrior
    Amazonwarrior Member Posts: 485
    edited May 2014

    Finished rads today!

    Yaaaaaay!

    It's done!

    It's over!

    El final!

    La fine!

    Basta!

    Ende!

    La fin!

    Koniec!

    No more!

    I am thrilled that I am not going to hear that lazy whine of the radiation machine any more!

    Overall I am happy, but exhausted and slightly numb.

    I guess the recovery process has to take place now.

    I said good bye to the RT staff at my rads unit with a thank you card and box of pastries. (Even got a hug from one of the therapists!)

    Now I am resting at home. I caught a nasty cold from my son, so I have to take care of it too.

    I imediatelly started to take supplements and vitamins to boost my recovery as my RO said it was OK.

    Here is a pic of the skin after 25 rads of 50 Gy's to the chest, axilla and supraclavicular areas, 4 angles and bolus each time.

    Used emu oil and calendula cream. Yesterday I even introduced onion and cabbage juice compresses.

    I was taking 6g of Curcumin C3 complex with Bioperine and 30g of L- glutamine daily plus a one multivitamin. I will continue with this regime for another 2 weeks or until healed.

    image

  • Phebe38
    Phebe38 Member Posts: 197
    edited May 2014

    wow! So happy for you 

  • Deblc
    Deblc Member Posts: 479
    edited May 2014

    Thanks for your responses. Phebe, the tech said I had to hold that position for 20 minutes. Couldn't even get it in the right position to their satisfaction, much less hold for 20 minutes. I am hoping I will not need a lot of physio before I can. I wish someone had impressed on me the importance of physio beforehand. I have had no follow up with the surgeon since I started chemo, and my MO does not check things like range of motion. 

  • Sunshineinky
    Sunshineinky Member Posts: 461
    edited May 2014

    Wooohooo amazon!!! I'm so happy for you! I keep flipping forgetting to ask my RO about curcumin and tumeric!! 

  • Phebe38
    Phebe38 Member Posts: 197
    edited May 2014

    Debic, my radiologist ask me to do those exercises but was not consistent so I paid for it during radiation. That's why I ask to see physio so he/she can show me how to exercise my arms. 

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited May 2014

    Hi Deb

     I was worried about the sim & having to keep the arms up & in place for 45 minutes. I was just 3 weeks post BMX so was still a bit sore. Luckily I did it though they didn't have me start rads for a week after sim.

     In hindsight I probably would have done better with NO cream. My skin is sensitive to lotions. I had that allergic reaction to the petroleum in Aquaphor & Eucerin by day 5 which just set my skin into a turmoil & it's just got worse. My choice would have been to just use organic virgin coconut oil even though I have heard that is a no-no.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited May 2014

    Wow Amazon you look good!!! Congrats on finishing rads & congrats on such a nice chest LOL No puckers, no fatty tissue, where's your scar? You look awesome!!!!

    Tomorrow is rad #28, my LAST ONE!!!!!!

  • Redheaded1
    Redheaded1 Member Posts: 1,600
    edited May 2014


    Debic, do your exercises and do not worry.  The sim is the hardest.  I think m ine took an hour......and I was numb from shoulder to fingertips when we finished.  I wanted so bad to put my ar m down for a minute and they said NO, we have to start over if that happens.

    So you had good techs who recognized the need to wait.   Once your sim is out of the way, you won't be in tht postion so long, and they will probably make a soft mold for your arm to fit in to help get you in the right position.  You do have to stay still while your Rads are done.

    I was blown away by the ladies who didn't use any crème and how well their skin looked.  I wish I had known about the curcumin (Tumeric)  capsules and taken that---that was my other big amazement.  I told my MO about it and he told  which Indian Restaurant in town could have fed me with it! LMAO. 

    Amazon, you look amazing.  WOOHOO for being done..  Is all that stuff you are taking in one pill?  What does it do for you besides keep you from burning during rads?

  • Amazonwarrior
    Amazonwarrior Member Posts: 485
    edited May 2014

    vintage: Yeah, the scar is there in all its glory. It's just that the pic didn't show it all. ;-)

    Redheaded: I took the curcumin pills in 2g x 3 per day and L- glutamin: 10g x 3 per day

    It boosts/ protects your healthy cells and weakens cancer cells so they are more susceptible to radiation treatment. 

  • lonnie713
    lonnie713 Member Posts: 236
    edited May 2014

    woo woo amazon...congrats.  Your skin looks great. 

  • Anneb1149
    Anneb1149 Member Posts: 960
    edited May 2014

    I joined Amazon in being finished TODAY!! My appt was at 8:00am and by 9:45 on was on the way to the airport. I am back in my home in Fl. Reunited with 11year old grandson, and will be leaving in a few minutes to surprise the other two.

    We went to Chilis for dinner last night to celebrate the end of radiation and had the same waiter we had when we went to celebrate the pathology report after BMX. He remembered us and we told him why we were there again. He came back to the table with some kind of microphone and told the whole restaurant why we were there. Everyone applauded. I hate being the center of attention, but it was pretty cool. 

    Anne

  • Sunshineinky
    Sunshineinky Member Posts: 461
    edited May 2014

    Yay for you too Anne! Aren't those Grandbabies just amazing!! I have 1 and another one due in November.  

    It was really nice of your waiter to do that!! It's a HUGE accomplishment to be done and I personally can't wait! 

  • MomMom
    MomMom Member Posts: 523
    edited May 2014

    Amazon & Anneb - CONGRATS!!!  Will definitely check out the Curcumin Tumeric pills with my RO before I begin rads.  Thank you ladies for your experiences, photos, and words of encouragement!!  You have a lot to celebrate.  Enjoy!!

  • Redheaded1
    Redheaded1 Member Posts: 1,600
    edited May 2014

    Anne, how wonderful----you enjoy every minute of those precious children.  I have learned a great deal from your posts-----For all you about to start Rads---there is light at the end of the tunnel and it is not a TRAIN coming at you......... 

  • aussielovergirl
    aussielovergirl Member Posts: 46
    edited May 2014


    I'm using the calendula ointment and gel  -- and also aloe vera gel.  I just finished two weeks ! A little  tan/red, but otherwise ok.

    I also bought some curcumin and will start taking it as a supplement.

  • Rosiesride
    Rosiesride Member Posts: 513
    edited May 2014

    vintage...you said you had anemia...I am going for bloodwork today...last chemo is on Monday! Woopwoop!....did you ever get an iron infusion and if so, any side effects from it?? Bowel issues?  If count is low I want an infusion!! Hard to know if the fatigue after 5 TAC is normal but I do have anemia issues....I see RO today..congrats to all who have finished!!!..peace and healing to you!! Rosie

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited May 2014

    Rosie

     I was borderline each time with whatever # they use to require a blood infusion. I would have preferred an infusion but dr felt it wasn't absolutely necessary. I did go in for fluids & that helped. I also took Blood Builder for a short time. I had bad constipation issues. Actually got blocked up awful because I have a rectocele & ended up in the ER. So did not take iron.

  • Anneb1149
    Anneb1149 Member Posts: 960
    edited May 2014

    One Happy Grandma

    image

    Enough said!!

  • AKJ
    AKJ Member Posts: 190
    edited May 2014

    congratulations to all finishing rads! I'm on my second week and so far so good. Still exhausted from the chemo though. So I missed what the curcumin is for?

  • Sunshineinky
    Sunshineinky Member Posts: 461
    edited May 2014

    Great picture Anne!!!! 

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