So scared, just diagnosed with tn, need hope

My bs told me from the very beginning that tnbc made me special in both good ways and bad. In a nutshell:

The bad: better chance of recurrence in the first 5 years when compared to other bc patients, less options for treatment, cancer tends to appear elsewhere in the body, more aggressive. (All these things are relative to other bc)

The good! Same or LESS chance of recurrence after 5 years when compared to other bc patients, clear treatment plan, responds to chemo exceptionally well b/c chemo kills FAST growing cells best

One of the reasons tnbc can be so scared is b/c it often occurs in younger women and goes undetected. By the time it is found, it is often late in the game...yours has been found! You're ready to start the game while others may not even know they are supposed to join!

I remember the thing that scared me the most was finding out there was a triple negative breast cancer foundation. One of the dangers of Google is you ONLY find what you ARE looking for!

At the time, I thought..."OMG! It's so terrible that there is a whole desperate foundation for it!"

A little time...a little more education...and talking to more and more "breast cancer people" and now I understand, there is a flu ration for just about EVERYTHING!

I actually think Tiago was trying to offer some hope to those newly diagnosed who are frightened of their diagnosis.  A lot of what he has quoted isn't that far off the mark - I too have read medical data that suggest outcomes for TNBC  are in line with his quotes.  My Oncologist told me 30% of TNBC was recurrence rate. It is also true that most women with TNBC will not have a recurrence.  We have to home in on some positives - its not all doom and gloom.

Wrenn,

I haven't read the long one from Tiago about how his wife's TNBC affected his sex-life.  Like you I would have found that offensive, unhelpful and inappropriate for a site such as this.  My comments were only about the short post he submitted on recurrence figures and TNBC prognosis generally.  I don't think anyone can speak with any authority unless, like us, they have had the devastating diagnosis themselves.

Normandee,  Agree with you wholeheartedly - no one can speak with any authority unless they are themselves going through it. 
Wrenn, I hear you.  After the reference, I read the woe is me posting re how this has/may affect their sex life.  Wayyyyyy TMI for me and inappropriate. 

Thanks for standing up for Tiago, Radical.  I did want to but was chicken to go up against all the other ladies who are hurting from the ordeal they are experiencing right now.  I wanted to say, lets give the guy a break.  He is taking on this disease as our disease, not her breast cancer problem.  He wants her to feel better, more optimistic and doesn't know what to do.  

After reading some of the other threads where the DHs are so unfeeling and usually head for the hills, I thought he was rather touching.  Yes he was explicit, but we girls can get pretty explicit too.  We are always treading on eggs on this board.  It is so easy to offend someone.