Swimwear Questions

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So, my BMX is scheduled for Wednesday and I hope to be able to enjoy some of the summer in the water!  Which brings up some questions I have - has anyone found a swimsuit that does not require the swim forms (something I found my insurance does not cover) or maybe has them built in?  I don't really know how things will fit differently yet but was curious if anyone had any suggestions?  

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  • Ariom
    Ariom Member Posts: 6,197
    edited May 2014

    Hi Bearhitch, I haven't heard of a suit with built in foobs, but there are many low cost options out there. There are many Mx suits on the market with pockets and straps that won't fall off your shoulders, and higher cut on the chest to hide any concave ares etc.

    A lot depends on the size you want to be after the Mx. If you opt for very small breasts you may get away with an ordinary suit with the little modesty pads that come with these, then there is the option of having some Micro bead forms made by Mary at Mastectomysolutions, or you can follow her pattern on the site and make your own. A lot of women get by with unraveling those net bath pouffy things and re-rolling them into a soft pad that fit into a suit pocket to give the protrusion you want. All these options are waterproof. There are also many of the silicone Prosthesis that use for normal wear that can be used in a suit too. They just can't be used excessively in chlorinated or salt water.

    Finally, there is the racing style swimsuit that competitive swimmers wear which is the choice of some of the girls here who go flat.

    If you google Mastectomy Swimsuits, you will find there is a large range out there. I have a few by Amoena, many here buy LandsEnd. I would suggest trying some different styles at a large department store that sells Mx wear, or your fitter may sell them at the store where you get fitted for your Prosthesis, so that you know what suits you, both size wise and for comfort. then you can source them from anywhere.

    I have found many, brand new, with tags Mx suits on Ebay for very reasonable prices, so that's worth a look as is the Breastform or Prosthesis area where you can pick up new forms and bras etc at really good prices. I actually bought a pair of new Swim forms which I shared with another friend who is a Uni too, and the same size as me. We got one each for $30 each instead of the usual $150.00 each that they cost here in Aus. We don't have the same insurance opportunities here, just one form, or a set, every 2 years, that's it.

    I hope this may help you a bit, feel free to ask if there is anything I have missed! Take care!

  • Kicks
    Kicks Member Posts: 4,131
    edited May 2014

    I swim - not daily or in a lot of chlorinated pools but more often in lakes or creeks.  I just use my daily pros.  No problems at all.  Size might make a difference - I'm on the smaller side (32/34, A/B, depending on the cut/manufacturer).

    You can sometimes find suits (and bras) that have small 'uplift pads' in them that are in 'pockets'  that they can be taken out and pros put in.  I was finally able to find a suit like that as none of the mast. suits were in a size that would fit.

  • River_Rat
    River_Rat Member Posts: 1,724
    edited May 2014

    Bearhitch, I have bought some regular suits with the coverage I need that also have modesty pads that could be removed. But I don't remove the pads except when I wash the suits, then I remove those and hand wash them separately and set them out to dry. In the pocket behind the modesty pads I put some rolled up netting. The netting comes from unrolling one of those net shower puffs. I just roll some up, twist to cover and help hold what I've rolled. It took some playing around to figure out how big to make them - I want just enough so the cup doesn't look caved in. There is a thread here somewhere that had instructions for making an actual form shaped swim form out of the netting. I had trouble with making the form too dense and uncomfortable using that method but many women had good results. I will try to find it and bump it up for you.

  • River_Rat
    River_Rat Member Posts: 1,724
    edited May 2014

    Bearhitch, I bumped that thread. I'm going to try to put a link here too in case the thread drops down the page by the time you get a chance to look.

    Swimming poofy thread

  • MaryFox
    MaryFox Member Posts: 121
    edited May 2014

    Have you seen this?    "monokini swimwear"

    Love it.

  • amygil81
    amygil81 Member Posts: 165
    edited May 2014


    Wow, Mary, that Monokini site is really something. I've been covering up my cancer surgery scars since forever, the bone cancer when I was a teen and the breast cancer I got as a (sort of) grownup. Maybe I should re-think it, as these amazing women have. Amy

  • Annie62
    Annie62 Member Posts: 1,081
    edited June 2014

    Hi Bearhitch - How about a rash guard? Lands End is selling quite a few this year - long and shortsleeve. I have one of each. The swim tunic was adorable but gaps too much in front - you'd need a bikini top under it. I find the rest of the mastectomy tankini tops not a good option for non-reconstruction folks - they are too low and you can see right down the front to my scars. I don't know about their one pieces since I prefer tankinis.

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2014

    HMM - My swimsuit is a non mastectomy suit I bought at Sam's Club.  It's a tankini top and definately not too low.  Perhaps size might come into play - I'm 'smaller' and the mast. suits I've found only go down to 10 so do not fit.

  • Maddie57
    Maddie57 Member Posts: 296
    edited June 2014

    Hi Bearhitch - Nicolajane have some really good tankinis. They do not have built in foobs, but pockets to insert your own. They are comfortable, and hide all scars and things. the good thing is they also sell separate bottoms, as you know how those always get pulled and scruffy. These only come in black, but match most of the tankinis. They also sell a range of bikinis, but I have not tried those. Good luck with your search.

  • Annie62
    Annie62 Member Posts: 1,081
    edited July 2014

    I wanted to give an update on how my swimwear is working this summer since last summer was a fiasco. I finally found a high neck mastectomy tankini made by "It figures" on Swimsuitsdirect.com . I was able to buy the top only to use with current bottoms I already have. With a coupon it was about $35 bucks.Swimsuitsdirect was also really easy to work with and handled returns easily. The suit works great. The neck is high enough so no one can see down my suit when I bend over. The foobs stay up pretty well when coming out of the water. The top is stylish enough. I don't look like I'm wearing an old lady suit. The cons are that the holes to insert the foobs are really really small. I was concerned I might damage the foob. I can always get the tailor to open it up a bit. I'm sure they have a double knit machine. for now I'm just leaving them in there - its the only suit top I wear with foobs. I have a bit of a belly and had to get a 16 (I've wear a 12 or 14 in most other brands) so the pockets are a little big. I'd prefer if they filled out more so the foobs were more secure feeling but the larger foobs felt too big to me (I wear Amoena size 5). 

    the rash guards from Lands End have also been working. The t-shirt one can float up a bit so I tuck it into my suit bottom if moving around a lot. That worked for me. The jacket style is great, doesn't float up. Awesome for a water park. 

    I also have come up with a theory on why its hard to find a mx tankini. I suspect a one piece holds everything in the correct place better when moving around and wet. But the thought of using our community pool bathroom with my foobs hanging low in the toilet stall grosses me out and tankinis tend to be more figure flattering on me. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2014

    I'm glad you've got that worked out, Annie. I'm going to a public pool in a couple of days and I'm trying to figure it all out. I don't wear a prosthesis at all in my own pool. Does anyone know if an Amoena silicone Essentials Lite #442 can be used in a pool? The salesperson I spoke to today said that it could, but she didn't recommend doing that regularly. That didn't really instill any confidence in me. I've emailed Amoena, but I'm sure they want me to spend more money and buy the swimform :) I was thrilled today to get 2 new bras and the silicone form for a $30 copay. It felt like Christmas in August!

    Kelly

  • Ariom
    Ariom Member Posts: 6,197
    edited August 2014

    The Amoena silicone forms can be worn in the water, but both salt and chlorine will reduce the life of them. The clear silicone form that Amoena makes isn't made from the same type of silicone, so although it needs to be washed after swimming, it will last much better than a regular form. The swim specific form also has ridges in the back to prevent the slurping sound, when swimming that can happen with a regular form.

    I picked up 2  Amoena swim forms on Ebay for $70.00, gave one to a friend who is a Uni like me and the same size, and kept the other. Ebay often has brand new forms that I guess people have purchased and find they don't like, or they just don't use them.

    I have a few Amoena Tankini tops and they all sit high enough on the chest, not to fall forward when I bend. They also have adjustable straps, which ensure a good fit and a really good mesh bra with good wide opening pockets, inside.  I usually buy at the end of the season when they are on sale, they are great value.

    Before I found the stores that I now buy from regularly, I tried to modify regular suits, knit bras and camisoles to take my forms. This works really well if you are a smaller size, you can even get away with the little silicone "chicken filet" enhancers, which are available everywhere in stead of expensive forms. Many women here are delighted with the results from Genie type bras and Camisoles which have the modesty pads inside the pockets. These are a fantastic option.

    For me, with a "D" cup on the remaining side, it's more difficult to get the comfort and the fit from modified things, that Mx specific clothing and bras offer.  I now look at it from the perspective of, I had to buy lingerie and clothing that suited me before this, so now I will buy lingerie and clothing that is specific to my needs, after this surgery.

    I realized very quickly that although some, actually most, Mx specific clothing can be expensive, the difference between things manufactured to cover the issues we have, versus modified pieces at a lower price, can actually work out to be a false economy.

    One really good mx specific camisole, can outlast several camisoles that are of a lesser fabric quality, which you've had to enlarge the pockets to accommodate a form. With straps that still fall off the shoulders and it doesn't really sit quite high enough on the chest, maybe it isn't cut well enough under the arms to avoid irritating the place where nodes were removed. All these features are engineered into Mx specific pieces. 

    I became obsessed, with finding everything that is available, for women after this surgery, I am in Australia and the range is very limited here. We really only seem to have Amoena products.I shop mainly in the US and find that by doing a bit of searching, I will find sales and clearance of top of the line Mx products at a fraction of the new price.  Ebay is a great place to search for all kinds of Mx products at discounted prices, as are the big medical suppliers.  

    In Australia we get 1 or 2 if BMX, silicone forms, paid for every 2 years, that's it! From what I can gather from women in the US and Canada, there are "some" insurance companies that are very generous with their allowances for both clothing and forms. If I had that here, wow, I'd be checking what is available to me and purchasing accordingly, up to whatever I was allowed.

    I didn't mean to write a novel here, I hope some of it helps!lol

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2014

    Thanks for all the great info, Ariom! I did notice that the mastectomy store charged my insurance $290 for a silicone form and I have seen them new on ebay for $75. Big difference. I have a pocketed bathing suit, but the pocket was for a thin form that came with the suit. I believe it's too small for my silicone form, so I'll either have to enlarge it or start from scratch. I have to wear a shirt over the suit to covered my radiated area, so it might not be as big of an issue as I think it will be.

    Anyway, I leave tomorrow for the trip and I'm so excited, I don't care if I have a boob or not :) (I don't want my niece to be uncomfortable with her uni-boobed aunt, though :)

    Thanks again!

  • Ariom
    Ariom Member Posts: 6,197
    edited August 2014

    No problem clickchick! I hope you have a wonderful time!

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