Broken left wrist in fall. Worried about lymphedema.

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Sydneyluv
Sydneyluv Member Posts: 26
edited June 2014 in Lymphedema

Mostly I'm a lurker with great appreciation for this site and all who participate.  So yesterday I fell and broke my left wrist - good news because I'm right handed. But the bad news is that my breast cancer was left sided with 3 negative sentinel nodes removed.  I've been so careful about blood draws and blood pressures on my left arm. But now this. And I'm concerned about setting off lymphedema. Thoughts?

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  • Kicks
    Kicks Member Posts: 4,131
    edited May 2014

    Anything is possible.  A year ago last Jan, I slipped on a dog bone in our hall (yup that is the truth - couldn't blame it on the blizzard we were having at the time).  I did a 'really good job' on wrist which required surgery.  I was already dealing with LE.  Since then  I haven't had any more iasues with LE than before.

  • Spooky1061
    Spooky1061 Member Posts: 33
    edited May 2014

    It should be fine. Just make sure that no stitchings came open if u had stitches. I did good until after my two week follow up I started getting fluid build up under my armpit. Then it started in my breast. Fluid pressure made my incision come open early Wednesday morning. I ended up Thursday at the Drs office with a hematoma and emergency surgery Thursday night. They took out the hematoma and put a drain under my armpit. Home health nurse will be here tomorrow to show us how to change the dressing and change or flush out. We'll see. Hope u r doing better than I am v

  • Kathy044
    Kathy044 Member Posts: 433
    edited May 2014

    My thoughts Sydney are the same as above, any additional problems with lymphedema due to the break are not likely to be long lasting . The removal of nodes is a permanent risk of LE, a broken wrist is temporary.

    I broke my right wrist a year and a half ago, cancer side, right handed, 15 nodes removed with some evidence of compromise to LD drainage system as per LD therapist so I was worried too. It all turned out OK in the end.

    Kira had written about her own experience earlier and that really helped me to place my concerns on getting the wrist fixed first and dealing with any LD problems later. Thank you Kira.

     I wore a cast for just over five weeks and I do believe the swelling from the trauma of the break lasted a little longer than it would have without compromised lymph drainage at least from what I understood to be normal by Dr Google. I did keep my arm elevated as much possible and put my arm in a sling when I went out and that must have helped as the swelling and discolouration didn't move onto my hand area. I got complimented for that from the cast tech. I also slept with my arm up on a pillow but that's how I sleep anyway (or try too) on my LE side. I even did the Lebed DVD the last two weeks with the cast.

    When the cast came off I did develop full blown rebound LE hand and full arm within a few hours and it was painful. I went to my  family doctor the next day and she arranged for me to have physio for the wrist and swelling. I knew there was nobody close by trained to do mld but I took what was offered and the physio did recognize and understand enough about LE  to know the importance of getting the swelling down to facilitate healing.

    Meanwhile I learned the LE therapist I had been seeing had retired so that wouldn't have have worked out anyway. By the time I got around to seeing the other LE therapist, same clinic, two months later everything looked fine, of course, measurements hadn't changed any, except for the wrist which was likely from the break not any LE swelling.

    Let us know how things are working out Sydney, and thanks for starting the topic.

    Kathy

  • purple32
    purple32 Member Posts: 3,188
    edited May 2014

    KATHY said:
    . I did keep my arm elevated as much possible and put my arm in a sling when I went out and that must have helped as the swelling and discolouration didn't move onto my hand area. I got complimented for that from the cast tech. I also slept with my arm up on a pillow but that's how I sleep anyway (or try too) on my LE side. I even did the Lebed DVD the last two weeks with the cast.


    I second that! GREAT advice, Kathy, and it's a lways good to feel you are being PRO-active too.

    My LE is on the left where I had *previously* broken a shoulder and torn rotator cuff, broke elbow and left knee ( 3 seperate occassions)  I often wonder if scar tissue <shoulder> played  a role.

    Once you are fully healed, ask your DR if there is anything you can do to break up scar tissue perhaps.

    ( Beware of " regular' massage though M.L.D may be advised.)

    I'm  betting you will be fine -   good luck to you!

  • Kicks
    Kicks Member Posts: 4,131
    edited May 2014

    My LE guy was in the surgery and wrapped me above the splint/bandage after surgery.  When I went later and got a cast it was a 'short arm' as opposee to an above elbow as Dr originally wanted and then I went over to see my LE Guy for what to do with wrapping above.  No different issue since than before.

  • Sydneyluv
    Sydneyluv Member Posts: 26
    edited May 2014

    Thanks everyone for your responses and good wishes.  I am keeping my arm elevated day and night. Not much else to do until I know whether or not I'll be having surgery.  I haven't had any signs of lymphadema prior to this accident.  So hopefully this won't bring it on.

  • kareenie
    kareenie Member Posts: 339
    edited May 2014

    I badly broke my wrist 4 years after my first BC surgery with ALND. At the time I did not have LE but I worried about triggering it. My hand swelled up like a balloon but after surgery to place pins (long scar), external fixation (more scars) followed by PT, swelling was gone and I regained normal ROM. 

    I did not manifest LE until after my second BC surgery with ALND and rads 14 years later.  Although I do wonder if scarring in hand and wrist contributed to hand/wrist/forearm focus of my LE.

    Good that you are being proactive. Ask for referrals to PT or LET afterward if needed.

  • Sydneyluv
    Sydneyluv Member Posts: 26
    edited June 2014

    Hi all,  I did end up having surgery on my wrist with a plate put in to stabilize things last Thursday.  I seem to be healing OK.  No point in worrying about LE at this point. Thanks again for your wisdom.

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2014

    Sydney, so glad to hear the healing is going well. True, there's no point in worrying about LE at this point, but there's good reason to request a consult with a well-trained lymphedema therapist to assist you with recovery, lessen your risk of developing LE, and help you stay on top of it all. Here's how to find a qualified therapist near you:

    http://www.stepup-speakout.org/Finding_a_Qualified...

    Any doctor on your team can write you a referral.

    Hugs! Be well! Heal!
    Binney

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2014

    I agree with seeing a LE Therapist while you are recovering and after.  You may or may not be sent to PT after cast is off so it would be a good idea to already be with a LE Therapist to give support with what is recommended.  A LE Therapist can be a PT or an OT - my LE Guy is an OT.  I was never sent to PT for rehab after my wrist surgery as my Guy said there was no reason as knowing me for years, he was sure that I'd do a better 'job' on my own than they would tell me to do and that I'd comtact him if I had issues that I needed help with - he was right.  Actually, PT is not allowed to work with me without my LE Guys approval even when other than LE arm is what needs work. Twice I've had 2 relatively minor issues that the Dr sent me straight to PT for, only to have to sit there and wait til they could get approval from my Guy to work with me.

    We are each different and our support system is different.  My care is through VA and all I can say, PERSONALLY, is that I could not have asked for better/more timely/needed care for MANY years.  When my local facility (a smaller one) did not have what I needed, I have been 'outsourced' immediately.  Hubby has also gotten great care simce he retired.

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2014

    Kicks, I've been thinking about you and your excellent VA experience lately--for obvious reasons! I'm really grateful that you and your DH both have been so well cared for, and it's given me some much-needed perspective throughout all this VA brouhaha. Onward!
    Binney

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2014

    Binney - It is obvious that there have been some horrendous happenings at some VAs and some Veterans, so there does to be a 'bottom up' fact finding and in some cases, 'heads should fall'.  Definately, not all Veterans at all sites are not getting less than good care.  My thought is that at larger facilities, you are more possibily/likely going to have 'prooblems' - my Facility is a smaller one.  I was immediately outsourced with my IBC.  When my retina was detaching, I called for an appt. and was booked in the first available appt was in  8 days BUT told if anything got worse before that appt to get into UC ASAP as they could get in quicker than me calling.  It got worse so Hubby took me up to UC and I had an appt the next day at the Eye Institute in town.  Have I ever waited to have a 'routine' appt - yes.  But I have never waited for anything 'needed now'.

    Yes, there are problems that need to be addressed - but not all Veterans are getting bad care or no care.  

    I'll get off my soapbox.

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