Starting Chemo April 2009
Comments
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Great news. Thank you so much for writing the update. Love to your daughter (and you of course) and keep us updated. We're all virtual grandmas here!
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Geri, so pleased to read your update. I hope that things continue to progress as they should. Sending love and prayers to you and your family.I don't relate to myself as a survivor, because I feel that I still struggle with it in my day to day life. Of course, so far I have survived the disease and the treatment, but I never went back to being the same person I was before. My sister was 7 years out and got a new primary. I try not to think of it too much in terms of time, but I suppose that with each passing month/year, we should somehow be celebrating and thankful that we have come this far.
With so many challenges in my life at the moment, I am still on the "day by day" track. I try not to think about it too much between appointments.
Amy, I hope your friend finds the coming months manageable. Sending good thoughts.
Sending you all hugs as always and thank you for being here.
Judy xxx
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Wonderful news Geri! I will keep your family in my daily prayers.
My Mom donated her body to medical research and over the weekend I got the letter that she had been cremated and her ashes were ready to be picked up. I will go get her tomorrow afternoon and bring her home for now. She told me to take some of her insurance money and scatter her ashes in the waters off Bermuda. Maybe I'll get to do that next spring or summer.
So I'm trying to stay upbeat and not get too morose or down this week. It seems that each week, something happens that reminds me she's really gone. I have to pull my energy and resolve together and clear out her condo so I can sell it this summer. So far I've only been able to drag myself over there once a week to get the mail.
This is a process, and a journey. Be we all know about processes and journeys! So one day, sometimes one moment, at a time, I know I'll be ok!
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Thanks for coming by Alaina. It must be very difficult to process such a loss. I am sending you strength and positive thoughts and hope that this journey is manageable for you. We are all here for you.Geri, how are things going with your daughter. I hope that everyone else is doing ok.
I am not in such a good place; I found a lump in my upper chest over the weekend and am going to see the Oncologist tomorrow; I am terrified and frantic to be honest. I am sure that it will not be good news and am just not sure that I can do this all again. I know that I am getting ahead of myself here, but I could hardly believe it when I found it. I will be in touch again soon with any updates.
Sending you all hugs as always, Judy x
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Oh Judy how my heart sank when I read your words. I know we should wait to see the doctor and not let our minds jump ahead, but I also know that is impossible. So the best I can say is - try to stay busy, distract yourself, and let the hours pass by. When you see the doctor, you will get some answers.
Please write back when you have seen the onc. My heart is with you every moment.
In love, sisterhood, and support and with ONE BIG HUG - Amy
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saying prayers your news will be good Judy...sending love
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Judy, sending fervent prayers your way.
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Judy, thinking about you and hoping we hear from you soon.
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Judy! Thinking of you!
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Hi all,
So, I saw the Onc on Tuesday morning and she said that it is most likely a "fat necrosis" which is not uncommon following the DIEP Surgery. She sent me for an ultrasound; the second doctor also thinks that is what it is, but wants me to do a biopsy because I am BRCA1. That has been scheduled for 8th June.
So, even though, I should be relieved, I am still not calm and am finding it difficult to be positive. My mind is running away with me and the 8th June seems so far away. I did ask the doctor if she thought it was ok to wait and she said that if they thought it was anything sinister they would move me up.
Things with my daughter are still very bad and it has been a particularly difficult week this week. I am exhausted and finding it very difficult to cope.
Thank you all for checking up on me, I don't know what I would do without you.
I hope you are all doing ok and have a good weekend, hugs to you all, Judy x
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Oh Judy I am so glad the doctors think that is what it is. I did wonder if it had something to do with your recent reconstruction and hoped that was the case. Yes, the waiting is the WORST (as we all know) and we are right here with you, counting down the days. From the way I look at it, within 2 weeks you will have the biopsy done and the results back.
I was just talking to someone this morning and we were agreeing that when you have been waiting for medical news and are very tense, that even when the news comes and it is good, you DO NOT immediately relax - that it takes your system a few days to fully absorb it, let go of the level of stress you have been living under, and get past it.
So while it is great that the doctors are confident that this is nothing serious, give yourself a few days to absorb that and hopefully your level of anxiety will gradually come down.
And we are all with you, hoping/praying that in 2 weeks this will just be a memory and nothing more.
Love Amy
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Judy, I am so hoping your daughter shows some improvement. Nothing worse than when our kids are not well.
I also have some lumps following the DIEP. Since they appeared at the same time as the surgery, my doctor hasn't worried about it as she also says fat necrosis. Even though I'm BRCA2+ she hasn't ordered any additional tests. But if I felt a change to what I have, I would definitely do the same as you and get my doctor to look.
Spring has finally arrived. Today I bought a couple of baskets of flowers and put them at the front of my house. Unfortunately, however I thing my butterfly bush has died. It was such a tough winter. Maybe something will pop up in the next few days.
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Thank you so much for your support and encouragement. It is a true comfort to know that I have you standing by my side. I am really hoping this is nothing to worry about too.Hope you are all doing ok and Geri, I hope your daughter is feeling well.
Sending you all much love for the weekend, hugs to you all, Judy x
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Just passing through to say hi to you all. This week seems to be passing very slowly, the biopsy is scheduled for Sunday morning at the hospital. I am trying to keep busy. We have very old friends here from the UK at the moment and we enjoyed a lovely dinner out with them last night which was lots of fun!
Geri, how is your daughter feeling? I hope you are all doing ok.
Sending hugs as always, Judy x
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sorry I haven't been writing. Things are not very stable with my daughter, as her blood pressure is very high on a lot of medication, and she's only 8 weeks pregnant, so she has a long way to go. I am vy worried for her and the baby. She sees the hi-risk OB tomorrow. She's very stressed and depressed...not a good way to experience a pregnancy. We will see what this doctor says.
Judy - my prayers for what I am sure will be a negative biopsy, but I know the worry doesn't go away until you get that report.
I hope everyone else is doing well
Geri
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Geri, I hope the OB can take some positive steps. I'm know you are worried about the baby as well as your daughter.
Judy, I know you are worried but I hope the doctor is right about the fat necrosis.
I don't think we ever stop worrying. My shoulder hurts and my back has been achy. I'm hoping it's only old age creeping up on me.
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Hi all,
Geri, sending prayers and good thoughts your way. I hope that things improve for your daughter and that she can begin to feel well and happy and enjoy her pregnancy.
I had my biopsy this morning; I found it so traumatic. The doctor was very sensitive and understanding and was still cautiously optimistic, but as you know, until we see the results with our own eyes.....thank you all for your support and good thoughts, it really helps me through the day. I will let you know when I hear from the hospital.
Have a good Sunday everyone and I will come by again soon.
Hugs to you all, Judy xxx
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hi Judy - have you heard anything on the biopsy? I know it will be ok, but you need to have this off your mind. Did the doctor say when to expect to hear? I hope your daughter is doing a little better...you need a break - it seems to have been one thing after the other for you.
Helen, thank you for the understanding about my worries for my daughter. She saw the high risk OB on Friday, and they increased her medication again, and it seems to be bringing it down somewhat? It will be a very challenging pregnancy, and the doctor has already told her they will deliver her early to reduce the risk of pre-eclampsia, so if they deliver at 37-38 weeks, we will have a late December baby...hoping not on Christmas- always get shorted on gifts
. My daughter is much happier this week, and is talking about names, so I am so happy to see her enjoying this experience. Please keep her and the baby in your prayers for the next 6 1/2 months.
Hoping everyone else is doing ok and finally enjoying the warm weather.
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Hi all, I have still not heard anything from the hospital. I was in touch with my Oncologist after the biopsy and she said to be in touch with her at the beginning of next week. These past few weeks have been so long for me; I really do need a break. I feel very worn down from all the stress.
My daughter is making slow progress, but it will take time for her to be back on track.
Geri, I was happy to read that your daughter is feeling happier this week. We will keep you all in our hearts and prayers and hope that the ride will be smooth for her and all of you. My eldest was born on 25th December! Around the same time that we celebrate Chanukah, so she has always enjoyed two sets of gifts
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Helen, how are you feeling? How is your shoulder and back?
Hope you all have a good weekend; I will let you know when I have any news.
Hugs to you all and thank you for your support, Judy x
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Just checking in with everyone, as it has been so quiet lately. Judy - if you have not heard anything yet re your test, please call them. Waiting is so hard - the hardest thing of all, I think.
Geri - tell us how things are going there, speaking of waiting.... 9 months is the longest wait of them all!
Ruby turns one this week. The party is on Sunday. I think the first year is more a celebration for the parents for making it through the bumpy road of the first year of parenthood! It sure has been a pleasure being the Grandma - a whole new role for me and one I am SUPER enjoying - more and more as she gets bigger.
It is getting very hot here. I swore I would not complain about the heat after the polar vortex. We shall see if I can keep that promise.
LOVE TO ALL!
Amy -
Hi ladies, well today, I spoke to the Oncologist and she confirmed that the lump is a Fat Necrosis and we have nothing to worry about! I am so relieved! I was convinced that it was going to be bad news.She said that we just have to keep an eye on it; I have a scheduled MRI and a check up in September.
I cannot thank you enough for being so supportive, you are all a rock for me and I am so appreciative to have you all in my life.
Geri, how is your daughter doing? And how are you? I hope everyone is doing ok. Happy birthday Ruby! I don't know where the time goes, but we should only share good times!
Helen, how are you feeling?
I am sending you all hugs with a deep sigh of relief tonight.
Judy x
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Deep sigh of relief here for you too, Judy. I know it will probably take a few days for the built-up worry to dissipate. Be gentle to yourself and you should feel a lot better by the weekend.
SO GLAD it is nothing!!!
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Good news, Judy. I also have some lumps that are probably fat necrosis. They appeared along with the DIEP surgery.
Amy, congrats on Ruby's 1st birthday.
Geri, hope your daughter's pregnancy is improving.
I doing ok. My shoulder still hurts but the massage therapy is helping. But I'm totally off my healthy diet and exercise. Don't know why but I can't get myself motivated again.
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Thank you all. Amy, it is taking me a while to calm down after this. Helen, I hope the massage therapy continues to help.Hugs to you all, Judy x
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hey all...thinking of you. I made it to my five year mark but got depressed that I'm still on the every six month watch. I guess my second cancer reset the onc clock. So I have three more years of every six months.
I started another research study throughout OHSU. It is a study for post chemo women (not just bc but any cancer). It focuses on balance issues. Did you know women that have gone through chemo tend to fall more as they age? The study focuses on the effects of three different exercise programs. I'm in the Tai Chi class and love it. It causes my leg a little problem, as I'm still dealing with edema, but it's wonderful. At least I feel like I'm doing something positive. The other programs are strength training and flexibility training. We didn't get to pick our class, it was totally random.
Sounds like there have been lots of struggles and joys in everyone's lives. I'm happy to celebrate life with you ladies. Hugs to all.
Betsy
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Hi everyone. Not a lot happening here. My shoulder is still sore but a bit better.
Just found out that my ex-husband has prostate cancer. I think he just got the dx so has to see an oncology team to find out next steps. I feel badly for my sons as their parents have given them a lot of worries.
My beautiful butterfly bush (seen in my avatar) didn't survive our polar vortex winter.
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Betsy, so nice to hear from you! Your study sounds interesting. We are all certainly dealing with lots of issues, both good and not so good in our lives; I am so grateful for all of you ladies.Helen, glad to read that your shoulder is a little better but also sorry to read about your ex husband.
Geri, how is your daughter feeling? Amy, how was Ruby's first birthday?!!
I am doing ok; still struggling with my daughter, but there is definite improvement. I am finding myself very low a lot of the time and I cry a lot. I know that I need some sort of help, but I just don't know what would be best for me. I don't feel like sitting in a room and talking to someone. Just not sure how to move forward.
As always, very thankful that I am able to come here and talk to you all.
Hugs always, Judy x
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Judy, you are right in that there is always something to worry about and I think it's our kids and family that worry us the most. I understand your not wanting to talk to someone for hours on end but there are meds that help. I think you said you are taking either Tamoxifen or an AI and they can also cause depression. I know the AI affects me that way. A doctor can give you a prescription that can help get you through this stressful time. I take Wellbutrin and while it doesn't solve problems, I am able to function better and no longer cry all the time. Wellbutrin doesn't have side effects that I can determine and my onc also likes this medication. All the drugs we are on really mess with our emotions.
Geri, how are things going?
How is little Ruby?
Today is Canada Day. Our country is 147 years old.....older than Israel but still very young. My kids are coming for dinner and we'll bar-b-que souvlaki. There are 10 of them now...DSs, DILs & 4 little ones. It will be noisy, chaotic, and will take me 3 days to clean up but it's worth it.
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Happy Birthday to Canada! I saw a lot of Canada Day treats on Pinterest and didn't know why. (Do you ladies use Pinterest? I find it a LOT of fun, and enjoy browsing it at nights when I can't sleep...)
Ruby's first birthday was fine. Fun party and all is well there. I continue to enjoy my Th/Fr time with her - cannot believe it has been a year already that I have been doing it. Time goes SO FAST!Judy - I thought this line you wrote was powerful: I know that I need some sort of help, but I just don't know what would be best for me. I think that is a good starting point. Maybe you could ask your onc or surgeon (or any friend or health practitioner that you trust) and see what type of support IS available where you are. I find for me, that when I am not sure what direction to go, if I get a lot of info on my options, then usually ONE choice out of the group seems to resonate with me, like "Yes, that's it" and I will explore in that direction. I know that the 'low' feeling can lead to being stuck or paralyzed and not having the motivation to do that research, but I am really encouraging you to do so and it could be the doorway to better times ahead. Whether a pharma solution, a group, talking, exercise, meditation, I don't know - or even a combination of some of those (or something entirely different) - I really don't want more time to slip by with you feeling this way. I don't want the bc to steal even more than it already has.
Helen - I feel for your family about your ex's dx. I know that even though you are divorced, the connection does not end, when you have children together. My ex's suicide attempt last year impacted all of us (me included) very deeply. I hope things go well for him, and your kids. On that note - My ex has just relocated BACK to Colorado to be with a woman. My kids were sad that he moved away (again)- it is 2000 miles, and he will not have funds to travel back here very often. They feel he has chosen a woman over them, which, unfortunately seems to be the truth. My daughter knows that Ruby will not really know him. I feel their sadness, but there is nothing I can do.
Love to everyone. Geri - how are things there?
Amy
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Judy - I am thinking of you every minute with the challenges that are going on over there right now. Sending peace and love to you in what must be a very stressful time (in addition to the other stresses you have to deal with).
Please let us know how you are faring.
With much love and wishes for peace
Amy
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