April 2014 Surgery Sisters
Comments
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My lifestyle change was the major factor in my weight gain on chemo. I only gained about 6 pounds. Before chemo I was working out 3 -4 times a week but MO said no gym on chemo. It was winter and the weather was really too bad to get outside to walk. My teammate at school also arranged meals for me, so I had people bringing meals 2-3 times a week. The meals were such a big help but they were usually very high in fat and carbs and usually had a dessert. My sense of taste was also all messed up on chemo. Very few things tasted normal. For one week the only thing that tasted normal to me was a bacon double cheeseburger from Burger King, and I don't usually even like Burger King. I found that I was able to eat blander foods easier since they didn't taste that much different and they were less metallic tasting. I did not have any nausea with my chemo and the first few days after a treatment the steroids made me hungry. There are so many different drugs out there to treat nausea compared to when my mom went through chemo it is amazing. My MO was adamant about me taking a Prilosec OTC daily all through the chemo whether. The only day I was nauseous was the day I didn't take it. I will be starting AC July first. I am hoping to be done and ready to start the new school year. I really don't want to have to start the school year with a sub.
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amyo, krisnanbran, teachermom4, vfay49, and anyone else who is interested:
OK, so let's start a weight loss thread. I guess I can start it anywhere, but should it be in "Surgery - Before, During, and After" where we met in the April surgery thread, or should it be in the forum called "Healthy Recipes..." which seems more about eating right? Also we need a name for it. Do we want to include "April Surgeries" in the title? What do the rest of you think?
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That's a tough one maybe in the surgery forum since that's were it started but listing April surgeries someone else may feel excluded to read. Sharing healthy recipies is a good idea, I didn't know that was already here.I'm not too familiar with this process can you post a link ? -
Went back to work last week, and it was pretty miserable. I had students for only a half day my first day back, that went great- but no instruction as I teach Integrated Technology so it was a free choice day. Thursday was a full instruction day, and I flat out couldn't move my left arm by the end of the day. Woke up Friday morning with a huge bulging fluid buildup on the left side and my arm was killing me with any type of movement. Stopped by a CVS on the way to work and bought a sling, and that was the best decision ever. Made it through Friday. I am very fortunate though- I just told my students that I can no longer reach around them to point on their screens, and I needed them to help one another- it is normal for them to help one another, but completly not normal for me to just camp out at my desk. Once I stopped the reaching it was a little easier.
Best news though is tonight I finally got my first fill- and it eliminated most of the pain! I was so shocked! My TE's must have been sitting square on some nerves, because as soon as he filled there was a substantial improvement. I think the pain will be light enough I can actually sleep tonight. Overall I am exhausted after working and not being able to sleep, so I had arranged to have tomorrow off expecting the fill to cause more pain. Looking forward to sleeping in and hopefully waking up rested and in minimal pain. 3 more weeks to go in the classroom, and now it feels like I can actually do it. I super missed my kids so fingers crossed I don't need to take any more days off.
I hope everyone is progessing in a positive direction and being gentle with oneself!
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About starting a weight loss thread: At the top of this page we are on, go to All Topics. Then scroll down to Day to Day matters. Then go to the Forum: Fitness and Getting Back in Shape (right below that is Healthy Recipes...) Next go to the topic Wednesday Weigh In. I think that's what we want, and it's already set up. The idea is that you tell how much weight you've lost every week. See what you think, amyo.
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Off to find it now... I lost over 150 pounds recently and have had a bit creep back on, so I am all in!
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I had my surgery April 30th, bmx with expanders on both sides. The first few days were really bad and then I started feeling a little better day by day. Monday night I started running a high fever with chills and headache and pain on the right side. I called my ps Tuesday morning and was told she wasn't available on Tuesdays and that it sounded like the common flu . I took Tylenol , drank lots of fluids, are soup and stayed in bed and felt better on Wednesday . Thursday I had a lot of pain and right breast was hot and swollen . Called ps again and was told she was not available so go to emergency room . I called my general surgeon who got me in immediately. Am now on heavy duty antibiotics and hoping that they don't have to take the expander back out. I was supposed to have my port put in next Wednesday so I can start chemo June. 2nd but am being told it may be delayed . I spent most of the day crying and didn't sleep last night. I'm trying to tell myself to stop being a baby and just get through this but it has been hard . Has anyone had problems with their TEs?
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Sherry1223,
Oh, I am so sorry! I am shocked they just passed it off as common flu on Tuesday and did did not tell you to go to ER or something! After surgery and with TEs/implants you are in a vulnerable state. I was told ahead of time to call if there was any issue, and to go to ER in my own city if they were not available or I started running a fever, etc.
Do not be down on yourself for being down. Your feelings are completely legit and understandable.
There is a thread called "TE TROUBLE"...it is long, and busy, and I guarantee there are people there who can relate and share their similar experiences.
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Hey Sherry,
I'm a tough chick too (or, I thought I was.) I just wanted to chime in on the emotional side of things. I was always the gal that fixed problems and got things done. When I found out I had bc, I figured thousands of woman were here before me and survived. No problem!
As more things do not go as planned, I'd find myself getting angry that I couldn't just suck it up and deal with it. Who was this new girl that sat around and felt sorry for herself when so many others out there are much worse off?
It's only been slightly better for me. I feel like I am in a recovery program when I say this, my my biggest problem has been to accept that which cannot be changed. I am a control freak by nature and plan everything to the last detail. I keep rationalizing that bc is supposed to be my lesson that I need to be a little more spontaneous and have more fun.
No one but the ladies reading g this post knows these are my feelings inside (well except my nd of 10 years who informed me MondY that he got his own place and is moving out). I have not been able to open up and cry to anyone else...even those who have had bc. The pressure to feel like I have control over any of this makes me cry hysterically, then I get angry at myself for feeling that way!
Moral of the story...use these discussion boards. The ladies here have been scared and out of control. It's also helpful when you feel you might be a comfort to someone else following your footsteps.
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Jannett I found the link and added to my favorites. Looking forward. I walked 1.5 miles yesterday. 2 days after my 1st AC treatment and feel great. I doubt if I lost weight though I have not lost my appetite yet. -
Hi ladies! I'm an April surgery sister too! I had my lx on April 14th so I've been following you all I've just not posted. I'm trying so hard to loose weight! I'm 100% ER and PR positive so I know my excess weight is harboring estrogen! A friend bought me a fit bit and I'm averaging 3.5 miles a day most days but the scales are barely moving. I lost 21 pounds in 3 weeks after being diagnosed just from stress. I also don't feel like I'm overeating considering I've gone to mostly organic etc. my daughter a dietician keeps saying burn more calories than you consume and it'll come off. I'm just not buying it. I'm 45 and being thrown into menopause via hormone therapy.
Anyhow. Good luck to us all!
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I'm struggling with the weight loss too and feeling like Eeyore about it. I thought I'd be dropping the pounds after surgery, like I did with ankle surgery 2 years ago, but nope, I seem to be gaining instead. I'm so very motivated to exercise, but find I don't have the energy to do both my job and exercise. Boo!
One other item you ladies might appreciate, although a bit quirky ... I didn't realize how much my "dissolvable" stitches were really bothering me until one fell out and ... it was like heaven on earth. For the rest of the day, I felt like I'd just won the lottery! haha. I guess I didn't realize how much that thing was bothering me. I had a few extra stitches due to a mole being removed. It's the little things that make us happy. : )
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Well ladies, I am also a teacher (RN nursing professor). I had to leave the classroom two weeks before classes were over. My graduating class wore pink ribbons in honor of breast cancer survivors. Several students even took pictures during the commencement and sent them to me. They said they didn't want me to miss it. Made me cry... in a good way.
I feel so lucky in so many ways!! I am 3 1/2 weeks post op, finally got the last of 4 drains out wednesday. Thankful!! However, I am sore in places I haven't been before. I am thinking it must have been from scar tissue where last 2 drains were in so long.
I also feel lucky because I have the summer off. Last summer I worked, by choice. This summer, I decided after having completed grad school courses for Family Nurse Practitioner, I needed a break. As it turns out, it was a very good decision. I have plenty of time to make decisions, go back to the classroom or pursue a FNP position. Either way, I will always teach nursing one way or another..... Already have Liberty University asking for my resume. Did I mention God is so good?!?!
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Thanks ladies for such a wonderful idea for a weight loss thread. Every since being diagnosed I have turned my life around. I don't want to be unhealthy anymore. I am taking MY LIFE back! Count me in!
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Some of us decided to join the Wednesday Weigh In topic which is in the Fitness and Getting Back in Shape forum. See you there!
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Renee51 -- I just saw that you posted in the Wednesday Weigh In thread. Nice to see you there. We can all help each other!
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hey, Radical...
So sorry to infer from your post that your boyfriend up and left you. That totally bites, just when you could have used a friend.
I am also a triple negative, and am going to have that 16 weeks of chemo, starting at the end of July.
Post surgery, I feel great, only a little bit of tightness at my incision. Really glad I chose against reconstruction. It was the right thing for me.
Chin up -
~Rambling Rose
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I had my one month check up with PS yesterday...he said everything looks great. I don't have to see him for another 4-6 weeks. He said things will keep fluffing at bottom as my tissues relax. My scars look great, and he said I do not need to do anything special with them other than what I am doing (nothing!), but if I want I can try silicone strips/tape. I might go look for some Mepitac tape today.
I am very happy with not only how my reconstruction is looking so far, but feeling. I really already do think of them as "my breasts" even though the stuffing in them is entirely different obviously and they are still falling into their final shape. And *I* am feeling great. I have lots of energy, am very active, exercising daily, and really have no limitations except heavy lifting at this point. I know that a lot of it is pure luck, and I do feel very, very lucky to have had a very smooth recovery especially as I was such a worst case scenario imagining person before this surgery about the surgery. I have not taken any over the counter meds at all in last week and have no pain at all. I have some swelling in mornings when I wake up, but nothing more than that. I feel a bit bad about saying how good it has been given that is obviously not the case for everyone, but when I was researching I had a really hard time finding good positive recovery stories and want it to be out there that not everyone has a difficult or painful recovery after reconstruction, etc.
My mother had a biopsy on her hip tumour yesterday, so now we are just waiting for results on that to decide appropriate treatment in addition to radiation. She has not had a good week, she also ended up with an emergency root canal this week!
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Rambling Rose... Yeah it bites but I'm looking forward to chemo even less! We'll have to compare notes!
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Hi ladies,
I have a question. I believe I have developed a cording symptoms due to my lymph nodes removal. Today I noticed kind of the same cording along my tummy on the left side. It starts a few inches from the belly button and gets close to my rib cage. Anyone else has the same thing?
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I think I may have some cording under my left arm, I have much more limited movement of my left arm and what looks like cording in the arm pit. I go back to the ps on Tuesday, I will ask him about it. I have not started physical therapy yet since I am just a week out from my second surgery.
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I noticed it after my follow with my surgeon and I don't see after Nov. I keep reading on the net that it is due to lack of exercise and because of the scar tissues. I haven't been religious about massaging my scar and been good with doing my stretches. I can use my left arm almost at 90% as I feel the pain when reaching out and can't extend it 100% over my head. But the one on my tummy hurts more when I stretch my upper body.
I will ask my MO when I see her in 2 weeks for my second chemo treatment.
Asb - are you doing the stretches? I find that they help with the pain. Just do the stretches suggest after the surgery. I think I pushed myself a bit much the week after my surgery.
Wishing a speedy recovery!!
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DiveCat,
I am glad that things are going so well for you. I, too, have had clear sailing...here I am 6 weeks post UMX and I feel great. No pain, some tightness...using Vitamin E oil on my scar twice a day. I am back to the gym, working 4-5 days a week.
I sometimes feel guilty and gloating to post how relatively easy things have been for me...but then I thought, our good luck is a strong message for sisters who have surgery coming up and are reading here (as we did, reading Feb and March threads!) to find out what this mastectomy business is all about.
~ Rambling Rose
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Lolis,
I have not really done any stretching. I had some necrosis after my BMX and had to have more surgery opening up the original incisions again, that was almost two weeks ago. Ps said he wanted to wait and make sure the incisions were healed. When I raise my left arm I definitely see the webbing and it is very tight. I hope to get into some physical therapy this week. I have a two week trip to Europe coming up mid June and I really want my range of motion back. I am not in any pain otherwise and expanders are fine. I am finally able to sleep on my side and I started driving last week. I am just ready to have my body back.
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Asb,
I giggled when I read "I'm ready to have my body back."
I put on a bikini top to get some Sun yesterday...truthfully, I probably could just sit in the yard with gauze squares taped to my chest...lol.
I'm still banned from lifting over 10lbs so I've settled for squats and lunges while reading...until last night.
I was convinced my triceps were getting saggy so I lifted a little weight and planked for a bit. This morning, my nice thick scab had turned gooey in spots and was leaking a bit...guess I don't get my body back yet.
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radical, I put on a bikini top yesterday and laughed so hard i almost cried. It had fairly stiff formed cups that I used to fill up. Now it just projects on its own since my TE are only filled to 100cc. It still looked ok but if you touched it it would cave in. I was just going to be at the lake with my family and no one else around so I wore it anyway. Sometime in the day it must have shifted and when I took it off I had a big dent in my right foob where the side wire was. I have been walking on the treadmill and doing leg lifts at the gym but no arm stuff yet. I am trying to do what I can before I start chemo again in July and won't be able to go to the gym.i haven't tried planks yet, do they hurt pecs much?
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Asb, I started by planking on my elbows (I used to do them on my hands). I found that if I kept my arms in tight, the bone of my arm was basically holding my top half up and I could just concentrate on a good tight core.
I can do them on my hands now and it doesn't hurt but I can feel more doc muscle being used (I actually feel the lower part of my foob flex sometimes) so I've mostly stayed on my elbows.
I'm filled to 150 on each side. Today for a friend's bbq I was in an I don't care mood and rocked the triangle top from a string bikini...if I didn't have hips and a few wrinkles, I could've passed for 12 years old! Most of the people there had heard I had bc so instead of strange looks it seemed like it just reminded everyone to ask how I was feeling. I though I would, but I didn't mind the questions or walking around with the obvious change to my body.
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I went to the PS yesterday and he cleared me to get on with my life! He told me to just listen to my body and not start out doing heavy bench presses. Ha! I'll see him again in a year! That's the good news. The bad news is I think I have plantar fasciitis. I'm seeing a podiatrist on Tuesday. So getting back into shape is delayed.
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first fill tomorrow!!
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Zeeba_congrats
Sodie_ that hurts more than surgery!
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