Starting Chemo in April 2014

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  • linda505
    linda505 Member Posts: 847
    edited May 2014

    Wow lots of activity in here today - 2nd treatment was long but uneventful.  Tired now - hope I can sleep tonight - ughh I hate the steroids.  I was in the chair for 5 hours - longer than my first treatment which was about 4 hours - no one can figure out what longer?  lol - oh well.  get my shot tomorrow even though all the bloodwork has been and was good.   Hope everyone elses was "easy peasy" too and good luck on minimal SE to all!!  picture of chemo 2 with my LGFB wig!!  and my bushy REAL eyebrows LOL

    image

  • Longislandl8y
    Longislandl8y Member Posts: 145
    edited May 2014

    Oh Swiss Miss, I forgot you were also going today! Sorry! Glad you smiled over my mantra! :) I am halfway today too! Who's better than me??? You are!!! :D

    I'm in a fog, going to bed in a few minutes.

    Good night fellow warriors!

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited May 2014

    What a great wig Linda!  And an even better smile.

    My wig gives me a headache so I wore a beret today, even though it was 8l degrees.  It's still cooler than the wig.  

  • ColdInCanada
    ColdInCanada Member Posts: 95
    edited May 2014

    clarrn - SO SORRY to hear about the lymphedema. I, too, was diagnosed about a week ago. Here's what the lymphedema PT told me, and I hope it makes you feel better about it all. Basically, I've had some mild swelling and pain in my arm and hand since my surgery in Feb. My BS blew it off saying it was "normal healing", claiming that HIS patients RARELY get lymphedema (insert eye roll here). After some pushing on my part, and a couple of "there's nothing there" ultrasounds, he FINALLY referred me to a specialist. The specialist was AWESOME, and completely reassured me that while YES, I do have some swelling and YES, it looks like a mild case of lymphedema, it is still very early stage and easily treatable. In fact, she thinks we can likely CURE it by getting full range of movement back in that arm. 

    I had been faithfully doing my stretches until I found out I needed chemo, and then the port went in, and then chemo started, and suddenly it had been a few weeks since I had stretched out that arm, and it is still pretty stiff. The PT is fairly confident that getting that arm back in shape will solve the whole problem.

    IN ADDITION, she told me that chemo causes swelling. Lots of it. So expect to see pain and puffiness throughout your chemo treatments, and don't panic. I was given some stretching exercises, and a follow-up appointment, and a big thumbs up for making it this far.

    I hope this helps a little. And I really hope your appointment with the specialist ends the same as mine. :)

  • Swissmiss
    Swissmiss Member Posts: 111
    edited May 2014

    Finally received my onchotype results from my MO.  I am halfway through chemo, so obviously I didn't base my decision on the results, but I was still interested.  My score is 11, which is low.  Because I had only two lymph nodes positive the score came back as "node negative." But I think any lymph node involvement would be too risky not to do chemo...I mean, I'm planning on living for many, many years! I have kids to raise, graduations, mother-of-the bride or groom gowns to shop for, anniversaries, vacations...chemo seems like the best way to be certain the odds are on my side.  I guess I just needed a reminder of why I'm putting myself through this whole ordeal.  Especially since SE's are kicking in already.  

    Be strong, we can do this!

  • Golfingirl
    Golfingirl Member Posts: 40
    edited May 2014

    Mscaruso - I'll be thinking of you this Friday while I'm in the chair. Hoping this round will be easier.

    Lovebeingnana - So sorry to hear about your tooth! Miserable.

    ColdinCanada - Love your posts. I'm from Calgary too but living in Atlanta. I hope the TBCC is treating you well. I worked at Foothills for 15 years. I sure miss home. Especially now with all my family there. They're rotating coming out to see me. My little sister flies in tomorrow. So excited!

    Longisland - May I steal your mantra? I meditate and have been looking for a mantra whilst I receive chemo... it's perfect!

    Swissmiss - congrats on being half way done!


     

  • Footballnut
    Footballnut Member Posts: 742
    edited May 2014

    image

    live from credit valley hospital. Round 2!!!  One more round of FEC then on to taxotere and herceptin. Rock n roll!!  So far so good. Hoping for minimal SEs although feeling strange while being infused 

    Love reading all of your posts!  It would be cool if we could all hook up somewhere in the future to meet!!

    Have a great day all!!

  • LovebeingNana
    LovebeingNana Member Posts: 134
    edited May 2014

    Footballnut you look great!!!!

    Linda I hope you got sleep last night. 

    I hope everyone has minimal SE's!!!!!

  • EverForward
    EverForward Member Posts: 242
    edited May 2014

    Football, I was just having the same thought about how cool it would be to meet everyone in person in the future!

    Still starving this morning, but feeling almost human.

  • MomMom
    MomMom Member Posts: 523
    edited May 2014

    Wishing all you ladies in treatment now easy infusions and no SE's.  You both look awesome in the chair!  Thursdays are my chemo day.  Tomorrow is the 4th of 12 weekly Taxols.  Yea!  I'll be 1/3 of the way through -- then onto rads.  For those of you with my treatment, 4 AC followed by weekly Taxol, the Taxol is much easier to tolerate - so take heart. 

  • Longislandl8y
    Longislandl8y Member Posts: 145
    edited May 2014

    Good morning ladies.  Football, I am in love with your picture! You look great! And the NY gear makes me smile :)

    Golfin girl - Please, use that mantra in your meditation.  If we all use it, maybe we can send out a strong vibe to the universe and heal lots of people!!! Happy

    Swissmiss - I agree with you wholeheartedly.  If those little effers got into two nodes there could be stray cells that the chemo will kill (Die you little f*ckers!).  But 11 is a beautiful oncotype score - happy for you!!!

    Everfwd - I just started steroid pills today.  Hope I am not a ravenous psycho in a few hours, hahaha.  But if so, so be it.  I'm already gaining weight - I've got to go with the flow here.  There will be plenty of time to lose it once we're out of the Twilight Zone and back to our regular lives.

    Have a great day ladies!

  • Footballnut
    Footballnut Member Posts: 742
    edited May 2014

    we really should try to arrange some type of get together. Imagine the discounts that we would get!!!  Lol

    Tx for the kind words!!

    Home now. They have me extra anti nausea meds today so hopefully no vomiting this time!!  Feel tired now so I guess I should rest but thinking about eating first

    :-)

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited May 2014

    Does anyone get sharp shooting pains in their gut?  I'm on T/C.

  • SharonDe
    SharonDe Member Posts: 222
    edited May 2014

    Timbuktu - yes to the sharp shooting pains.  In my stomach, and other areas as well. In my case, they usually don't last too long, but are a bit scary.

  • Golfingirl
    Golfingirl Member Posts: 40
    edited May 2014

    Footballnut - you look great. I hope this rounds goes much smoother for you. Rest well.

    BTW. I like your hat!

  • merg
    merg Member Posts: 61
    edited May 2014

    Going to get my Neulasta shot soon. Do you guys get a red face after treatment? I don't need blush now.But I'm not hot or flushed. I'll ask at the docs today. Just wondering. Have an easy day Ya'll!

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited May 2014

    Thanks Sharon, that's reassuring.  I just spoke to the Cancer Society Onco nurse and she said that chemo can cause inflammation and that can make tumor markers rise.  The liver, pancreas, etc, can become inflamed.  

  • jhodro
    jhodro Member Posts: 240
    edited May 2014

    Football: You look great, as always! Hope you get some rest and avoid the nausea!

    Merg: My face is always red the morning after my treatment - for about 6 hours or so. I was told it was the steroids for me. It looks like a sunburn - face and chest. It just kind of fades by mid afternoon.

    Hope for no SE's for everyone this week!!

  • mmtagirl
    mmtagirl Member Posts: 509
    edited May 2014

    Linda and Footballnut, love the chair pics.  You both look radiant given what you are going through.  Peace to all of us going through this.

    Mommom, thanks for the reassurance on the taxol.  I found out yesterday that I will start 12 weeks after my next round of AC.  Was assured the side effects and lose dose would be easier on my system than Taxotere.  Wish I new this when I switched to AC from TC if nothing more than to get myself mentally prepared.  Did I tell everyone this already? I feel like I am repeating myself...chemo brain.

    Thank you decadron for keeping me awake all night last night.  Slept for an hour. Worked the morning while wired with more decadron and came home to sleep for a bit.  Napped for 1.5 hours and off to soccer game. Hope tonight I sleep better.

    Nauseau still hanging with me.  Forcing myself to eat something every few hours and that seems to help. So many nauseau meds it is hard to keep them all straight and on the right schedule.

    Hang in there warrior women.  And, Yes a get together would be awesome if it can be worked out!

  • ColdInCanada
    ColdInCanada Member Posts: 95
    edited May 2014

    For you brigadoon!

    image

    See? Total PIRATE. 

  • SharonDe
    SharonDe Member Posts: 222
    edited May 2014

    You crazy kids! Enjoying all the fun photos.

    Good thoughts for anyone going in tomorrow.

  • brigadoonbenson
    brigadoonbenson Member Posts: 412
    edited May 2014

    ColdinCanada - I LOVE it!!!  Now look in the mirror and tell those nasty cells to walk the plank and jump into Davey Joneses' locker!

  • clarrn
    clarrn Member Posts: 557
    edited May 2014

    I am stealing the look!  I actually have a pirate dinner to go to on the 30th with my husbands work.  Should be fun!

  • EverForward
    EverForward Member Posts: 242
    edited May 2014

    Weird sleep pattern means I'm in bed by 8:00 and awake at 3:30. So here I am. My MO explained about the stomach thing. She said chemo destroys any cells that reproduce often, which includes cells lining the stomach. that's why I feel simultaneously ravenous and like I want to swallow a bottle of Petpto Bismol. I'm hoping this fades away soon. It's amazing how even a slight stomach problem can impact your productivity. 

    I booked a massage for Saturday!

  • JanetP1507
    JanetP1507 Member Posts: 46
    edited May 2014

    5th Taxol treatment today, I hope. My BP was low when I went in for my labs yesterday, so I hope my CBC is ok to proceed this afternoon. 

    Anyone else in the chair today?

  • linda505
    linda505 Member Posts: 847
    edited May 2014

    so cute Cold!!  Love it - funny when I got my treatment tuesday I was looking through the basket of free stuff they always have there - hats and scarves and things and there was an eye patch in there and I thought of YOU!!! LOL

    Day 2 and feel pretty good - they cut my carboplatin by 15% and I do think it is helping with the neuropathy  - last time on day two my fingers hurt more when I typed but we will see where this goes by the afternoon - but I am keeping my less achy fingers crossed.

    I had bald spots and what my hubby called racing stripes and I couldn't take the itchy feeling any longer so hubby shaved me and now I am using coconut  oil on it and it feels so nice - Not a great picture but it is my "oh is the me look?"  LOl

    Hope you all having great SE free days or minimal ones that you can manage - and in everyones pocket who is going in the rest of the week!!

    image

  • Golfingirl
    Golfingirl Member Posts: 40
    edited May 2014

    merg - like jhodoro said, it's likely the steroids. I'm flushed all week. My face feels hot but my hands and feet are ice cold. When that flushing fades, I'm very pale, almost gray. I need to try to get some sun so I don't look so darn sick.

    JanetP - good luck with your treatment today. I'm in the chair tomorrow.

    Coldincanada - I'm diggin the look

    Linda - you look great bald!

     

    Just curious, do most people's oncologists put y'all on a strict regime for anti nauseants? Mine does and it certainly keeps it a under control but I also have the flexibility to take two other drugs in between these strict doses incase I require it. I do require more at times.

    For example: Decadron 24 hours before chemo I start the pills for 5 days, in the chair: Emend, Decadron, Zofran IV, then Zofran orally every 12 hours for 3 days. If needed: compazine, ativan, zofran.

  • mikishelley
    mikishelley Member Posts: 83
    edited May 2014

    Golfingirl-My MO doesn't give any strict regime, decadron and famotadine after chemo but that's it. Although my chemo is a little less than yours.

    Just wondering if anyone here will be starting Tamoxifen soon?

    My last chemo will be on June 2nd and I have no idea what it will be like to stop chemo have my exchange surgery and start the tamoxifen. 

    Love the pirate look. There is a pirate ship that does cruises on the Mississippi river here in St. Louis, MO. Just an idea for the "get together". We could all dress up and be on a real pirate ship. I will see if I can find a link to the cruise and post it later.

    Have a great SE free or at least minimal SE's week. 

  • mikishelley
    mikishelley Member Posts: 83
    edited May 2014

    Found the link fairly easy http://www.gypsyrosepirateship.com/

    As an avid boater on the Mississippi river it is always fun to see the Gypsy Rose and everyone is always having a blast! Just a thought since the pirating theme seems prevalent here lately.

  • Tinkerbells
    Tinkerbells Member Posts: 211
    edited May 2014

    Good luck to all of us in the chair this week.  I am loving the photos.  We will have to create a forum for after chemo photos, when we have hair and don't look like Captain Jack Sparrow.  I head to the chair tomorrow and I am going to use the mantra you guys have going - DIE F****** DIE.  It will be the only thing getting me through it.  I would take a lorazepam during the tx but can't - have my daughters 9th birthday party in the afternoon.  I'm sure the steroids will keep me moving until afterwards. 

    You guys are all so amazing, Will check in once the brain fog post chemo settles.

    Not sure if anyone saw it, but the NYT had a great op-ed piece about aspirin use and the potential to prevent cancer and recurrence.  A new idea to consider post-treatment. If it can't hurt I am all for it. I intend to pull every trick in my arsenal to prevent this sh*tshow from happening again. Going to see what MO thinks. Not that I will necessarily listen to her if she nixes it!! Ha!

    Sending no SE vibes to all.

    Sandra

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