April 2014 Surgery Sisters

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  • krisnanbrandy123
    krisnanbrandy123 Member Posts: 66
    edited May 2014

    yes---my PBMX was 4/16 and up until a couple of days ago I was feeling exhausted at different points during the day.  It has gotten better.   My PS says that the surgery, pain and healing are exhausting.  And his nurse said that emotionally it is a lot to process so that can make you feel tired.  

  • busymama
    busymama Member Posts: 6
    edited May 2014

    Thanks for the warm welcome :)

    DiveCat, no both of my tissue expanders are still in. the infection was where they had stiched me the first time. They will not do anything now until my skin heals. although it is a pain in the bum waiting.. i guess it is kind of a good thing as my boobs are still changing so much. I would hate to say no to filling the tissue expanders and have them removed and then not like the shape of my breasts afterwards. 

    I have a bit of pain under my armpits today. Im hoping the puffy sausage look under my right arm will go soon. 

    Question.. sometimes I get a funny feeling in one breast. The only way I can describe it is that its like when you drink too much water and then jump around. But instead of it being in my tummy it is in my breast haha hope that makes sense. It feels very strange and I will feel it when Im walking around. Anyone else?

  • busymama
    busymama Member Posts: 6
    edited May 2014

    Oh and my mum and her sisters had the testing done and all came back negative. They were the first in our family to have it done. All 3 of them have had breast cancer. It goes right back on her side of the family and they all seemed to get it quite young. My doctors told me there was no point in testing.And same as you DiveCat.. they think it may be an unknown mutation. I have a daughter and do worry that she will be facing the same surgery when she is older. 

  • Debzjourney14
    Debzjourney14 Member Posts: 67
    edited May 2014

    Question- I had a lumpectomy april 9.  The doctors said my incision was healing well.  Today I noticed a tiny little red area at the end of my incision.  I put some antibiotic salve on it.  Tonight it almost looked like a pimple.  I got the hydrogen peroxide out and when i pressed the cotton swab to it pus(i think, it was white) came out.  I pressed around the red area and a little more came out. I put a piece of gauze on it and plan to call the doc or nurse tomorrow.  I am supposed to start rads wed. (Get my tatoos and run through tue.) will they postpone my rads because of this small infection(i dont have fever) ??

  • DiveCat
    DiveCat Member Posts: 968
    edited May 2014

    busymama,

    I am glad you were able to keep the TEs. 

    I sometimes get some discomfort under armpits. Initially it was due to my implants being so high up in there, and swelling, now I think it is more related to nerve damage. I get a sunburned/chafed feeling. Ice packs under my arm help! Make sure not to put it directly on your skin though as you risk freeze-burns due to lack of sensation and sensitive skin.

    The weird breast feeling might just be related to your muscle, cut nerves, etc. I get a few random odd feelings now and then. Weird feelings are common, but of course always watch out for signs of infection.

    I hope by the time your daughter is older there is more known to explain your own family history, or options other than surgery. I hope the same for my younger sister (she is in her late 20s and not interested in surgery, at least not at this time, which is absolutely her right but I worry about her....neither she nor my other siblings know of my mum's progression yet and I know she is going to take it very hard). I am nearing 35 and was not confident another option would arrive in time for me, and my anxiety was increasing as I got closer to age of dx's in my family. In any event, I have no regrets about my own surgery and do not believe I would even if they did come up with another 90%+ effective option next week or could tell me tomorrow I most certainly would never have got BC. I can only act on what I know or knew and felt was right choice for me at the time and I am quite okay with that. I hope it was enough!

  • DiveCat
    DiveCat Member Posts: 968
    edited May 2014

    debz...have you contacted your doctor yet? Infections can spread fast, and while you have not had recon that would be at risk you still do not want an infection. The redness concerns me, as does the leaking wound/pus since you are now over 5 weeks out from surgery. Is the area warm or hot? No temp is good, but not a sure thing. 

    I am not sure about the rads. You will need to ask your MO/Rads Oncologist. Radiation as you know is hard on the skin and tissues, and I know generally they want wounds to be healed before they start stressing the tissues with radiation. It will depend on what they see when they look at the incision.

    PS I would avoid the hydrogen peroxide, it damages good healthy bacteria/tissue as well as bad. Even though it looks like it is doing good things when it bubbles up. Use saline wash or clean water and soap to clean it, or as recommended by your doctor.

  • Sugar8
    Sugar8 Member Posts: 47
    edited May 2014

    Glad I found this group. I had a left skin sparing MX. on 28th April after finding a lump on the 4th Dec, tests and 2 lumpectomies. 

    Wish I had gone straight for the MX

    I am now waiting for the clinical oncologist to proceed to radio and chemo to be followed my Herceptin.  Did anyone get a burning sensation on the breast 2weeks after surgery?



     

  • Debzjourney14
    Debzjourney14 Member Posts: 67
    edited May 2014

    DiveCat, I will message you a pic.  The MO nurse called me back, told me to ask about it when i go to rads tomorrow and they want to see me Wed, even if the RO gives me an antibiotic tomorrow.  If it gets any worse, fever, more red or discharge, I am to go to ER.  I am also waiting for a call from the RO nurse.  Thanks for your response.

  • scubalady
    scubalady Member Posts: 109
    edited May 2014

    I had an appointment with my oncologist today to get the results of my Oncotype score and I'm thrilled to say that it was 9, so NO CHEMO!!!!!!!!  My husband and I both started blubbering, we were so happy.  I will have to be on an AI, and while I'm not in love with the idea of 5 years of meds, it puts my chance of distant recurrence at less than 6%, which I could drop a bit lower if I improve my diet, exercise, and lose some weight.  

    Debz, I wonder if it what they call a "splitting stitch".  If an internal stitch doesn't dissolve, your body will try to push it out and it can show up on the surface like a little pimple with pus in it.  Even though they call it "splitting" it doesn't mean the stitches are splitting open.  I think it also has other names, but you might be able to find posts about it if you do a search on the discussion boards.  My PS warned me about that possibility since I had a lot of internal stitches on my reduction side.

  • teachermom4
    teachermom4 Member Posts: 101
    edited May 2014

    Congrats scubalady--what great news!!! I too need to exercise and drop some weight, seems like this should be very motivating! Hope you continue the celebration

  • teachermom4
    teachermom4 Member Posts: 101
    edited May 2014

    Quick and strange question--has anyone experienced numbness or tingling in their thigh following bmx? It's only on one side but it's quite irritating, especially when I am trying to sleep. I'm assuming some nerve was damaged during the surgery?

    Thanks

  • Debzjourney14
    Debzjourney14 Member Posts: 67
    edited May 2014

    thanks Scubalady, it could very well be.  The area seemed more slow to heal than the rest, and looked like it was trying to form a scab, but the docs never seemed concerned.  Now that is red that makes sense. I hope I dont have to postpone rads.  Congrats on the Chemo.  I am relieved that I don't have to have it too.  I really, really need to lose weight too! 

  • busymama
    busymama Member Posts: 6
    edited May 2014

    Great news scubalady!

    Thanks divecat. I have my 6 week post op appointment today so will ask loads of questions. 

    A friend of mine had numb thighs after surgery. mainly at night time. it did go away after a few weeks.

    Personal question here.. does anyone still get sore breasts when due for your period? the top part of my breasts have been sore the past couple of days and I wonder if that is the reason. 

  • Asb
    Asb Member Posts: 99
    edited May 2014

    pheonixtraveler,

    I had the same chemo a few months ago. The chemo brain is the worst. I just did not feel like myself. I am usually very outgoing, but I found myself avoiding joining in conversations because my head was so fuzzy. It does get better but the fatigue gets worse. I had my treatments on a Thursday followed by neulasta on Friday and usually went back to work Monday or Tuesday. After round 4 I was more fatigued and needed more time off. I teach middle school so work was pretty draining but I found it kept my mind off the cancer as well.

    Radical,

    I teach middle school and worked through the chemo. It was hard and I had to take a few days off with each treatment but it kept my mind off the cancer. The parents were wonderful and very supportive as well as my colleagues. Thanks to the neulasta my blood counts were always good so I did not worry too much about getting sick.

  • Radical2Squared
    Radical2Squared Member Posts: 460
    edited May 2014

    Sugar- I get all kinds of weird feelings in my breasts! The burning you speak of I get more often under my arms. The worst I get in my breasts is a feeling like lightning bolts shooting through my nipple (and I don't have nipples anymore so it's even more freaky!)

    My doc told me the burning is nerve damage and is similar to diabetic niece pain. They told me it should go away with time and it HAS gotten much better since then. My doc told me my "lightning bolts" are nerves that were cut surfing surgery trying to heal and find new pathways.

    Still strange and annoying no matter what reasons they give me!

  • aviva5675
    aviva5675 Member Posts: 1,353
    edited May 2014

    spitting stitch- it 'spits' itself out from the inside, pokes out and is annoying.

    I got the genetic testing, as I had bc, a great aunt and a 2d cousin,male. Also Ashkenazi Jewish. I qualified only for the 3 markers relating to the Jewish part, and insurance wouldnt have covered the full panel. Came back negative, so thats great.  See the counselor but I think it will depend on your history and factors if you qualify , at least for an insurance covered, test.

  • scubalady
    scubalady Member Posts: 109
    edited May 2014

    Good morning ladies.  Now that I know that I won't need chemo, I'm thinking that I'll be going back to work in a few weeks, which will be near the end of my fills, but before my exchange.  So, I'll be going back to work with one native breast that has been reduced and lifted from a droopy DDDD to a full C that is appropriately perky for a 62 year old, and an expanded breast that is sitting right under my neck and will be there until my exchange.  Needless to say, this will require some camouflage.  I have the bras that take the little adjustable fill pads to fill out the front of the expander side to match the native side projection, but because the expanded breast is under my neck, it's going to appear much higher than my new native breast.  I'm hoping for some suggestions for camouflage.

    Also, for those of you who have gotten Genie bras, did you get you real size, or a size larger?

  • DiveCat
    DiveCat Member Posts: 968
    edited May 2014

    Scubalady....

    Try some nice scarves, asymmetrical patterns, cowl necks, etc to break up the neck and bust line to camouflage the current differences.

    For Genie bras...ugh, this can be some trial and error...

    I was a 32DD before surgery/35.5" bust, usually wear an 8 in shirts to accommodate my bust and preference for a looser fit as I am a 4-6 otherwise...I could fit into a Medium which corresponded with the bust measurement and t-shirt size, but it was too compressive and gave more of a compressive sports bra uni-boob. I went to the L (sizing up for cup size at or above C as they recommend on their site OR following the band/cup size charts I did not find until later) then the band was still nicely snug (I stretched them out to compare and there was only an 1" difference when stretched) but I got more room in the cups and more lift and separation rather than squishiness. And I understand why people liked the bras so much! With my implants I guesstimate I am about a 32D from comparing to my old bras, and my bust is about 34.5" which would put me technically in a Medium per the chart for all three measurements, but my implants are far less malleable than my native breasts were so I now definitely need a L...an upsize from the bust measurement/t-shirt recommendations AND cup size recommendation....not a surprise as implants tend to be wider and like I said, not as malleable as natural tissue.

    Obviously you are in a bit of a different situation as you don't know your bra size right now, and are dealing with one natural breast and one TE, so it might make sense to guesstimate a bit. I understand the larger sizes fit tighter, so those wanting more comfort than sports-bra like fit up-size.

    Walmart usually carries the Genie bras, so you can go and try them on before you buy. That, or they often have them on e-bay for cheap so you could buy one of each size you think you might be and compare them. 

    image

  • Frostecat
    Frostecat Member Posts: 447
    edited May 2014

    Scubalady - I saw your post - UMX gal here too.  This is my second week back to work.  I would have gone back sooner, but the PS wouldn't release me until he saw me again, and he was out of town.  My native breast is a 40DD, so you are right, being so lopsided makes things very difficult.  I've used a few different bras, and they are all only comfortable for a few hours. I have back-ups in my car if I need to switch.  If you haven't already done so, may I suggest going to a survivor shop and buying yourself a pouf - "Fiberfill post surgical form made by Amoena".

    This helps camouflage the unevenness and you can remove the filling as need be. I have yet to find the perfect bra - this is what I have found out so far:

    1)  My previous support bras, great for the natural side for lift, but mine rub me raw on the bottom of the surgical side - too much lift and very uncomfortable after a few hours.

    2)  Genie bra, not enough support for the natural side.  They are very comfortable and work well on surgical side.  I have shortened/tightened and sewn the strap on the natural side to help lift more, but unless wearing something loose fitting, it wouldn't be my choice in public, lots of bouncing around there.  I can see why the BMX ladies like, if that were the case, I would too.

    3)  Hook in the front jogging bra (Fruit of the Loom) from Walmart.  I had these for post surgery and they are still comfortable.  Again, not a lot of "lift" but it does hold you in, and probably my favorite.  Was looking at Walmart yesterday, they have a huge selection of bras, so trying to find one with the combination of all of these.

    I've been waring a lot of looser tops, sweaters, layering since my return to work.  Everyone tells me that can't tell the difference.  But the "pouf"  makes a huge difference and I wear it in all of the bras.

    Hope this helped.

  • Janett2014
    Janett2014 Member Posts: 3,833
    edited May 2014

    It seems like I've read posts from a few people here who want to lose some weight, and I am one of those. Would anyone be interested in having a separate thread for that? Nothing formal -- mostly just us encouraging each other in our efforts to get in better shape. I for one have lost about 14 pounds since my diagnosis, and I would like to lose about 20 more total. Baby steps though, right? For now my goal is five pounds lost by July 1: slow and easy (kind of like TE fills!). I am making small changes in my eating habits and walking daily.

    Is anyone interested?

  • Janett2014
    Janett2014 Member Posts: 3,833
    edited May 2014

    Correction:

    "20 more total" should read "20 more over the next several months."

  • krisnanbrandy123
    krisnanbrandy123 Member Posts: 66
    edited May 2014

    I am interested! I really need to lose 20 lbs before exchanging from expanders to implants.  

  • teachermom4
    teachermom4 Member Posts: 101
    edited May 2014

    I'm definitely in! I need to lose 30 before my exchange!

  • vfay49
    vfay49 Member Posts: 101
    edited May 2014

    I'm in!  I saw my PS today.  If I want to help get rid of my side boobs, I need to lose some weight before my exchange.  I probably could stand to lose 20-25 lbs.  He suggested seeing a nutritionist.  I plan to try losing on my own for a few weeks and see how it goes.  I have lost 15 lbs since my diagnosis and would like to keep it going in that direction.

  • Asb
    Asb Member Posts: 99
    edited May 2014

    I am a size 2 and was a 34 b/c before, I am only filled to 100cc at the moment since he had to remove some of the saline at my second surgery. I got a large genie bra and love it. I also got a danskin zipfront sports bra from Walmart and it is great as well, just enough padding to even things out.

    Over the last 2 years I have worked really hard to lose weight and get back in shape. I gained a little with the neoadjunctive chemo but am back down with the loss of appetite due to surgery. I actually worked with a nutritionist last spring and got some awesome recipes I would be willing to share. I am facing chemo again in July and want to make sure I eat healthy and don't gain again this time. It is very easy to indulge when you are not feeling good. 

  • Radical2Squared
    Radical2Squared Member Posts: 460
    edited May 2014

    Hey asb: you really did GAIN weight with chemo? I start in June, had surgery a little over a month ago. I don't have a scale, but I know I'm thinner than I was before surgery. I am one of those people who eat to live, not live to eat...and I haven't had much of an appetite lately.

    I am very nervous that chemo will further suppress my appetite and between the diarrhea and vomiting associated with the a/c & t chemo drugs I might lose even more weight. I am already skinnier than I was in high school. It's bad enough to have a cancer diagnosis. I don't want to look like a heroin addict too! I'm also afraid doc would stop chemo if I can't keep my weight up. Any eating suggestions? Anyone can chime in here, I was just happy to hear someone really did GAIN weight during chemo!


  • aviva5675
    aviva5675 Member Posts: 1,353
    edited May 2014

    I did Medifast by coincidence before I was diagnosed. I started 2 years ago this month, did the program for 6 months, and had lost 40 lb.  I also was running a bit. I kept that all off til about 6 months ago (I was dx last Aug), and have put 6 lb back on. Im sure its a combination of not working out, being laxer on what I eat, and se of some meds. But still, Im not happy about it.  But I totally recommend the Medifast program, if you are willing to stick to the plan, and can afford it.

  • scubalady
    scubalady Member Posts: 109
    edited May 2014

    Frostcat and DiveCat, thanks for the info.  I did pick up some Genie bras at BB&B yesterday, and while they are comfortable, I don't think they're as good for someone with a UMX as they are for someone with a BMX.  I may make a trip to Walmart and check out the Fruit of the Loom, or I may just go to the local Cancer boutique and get a couple more of the Amoena front hook that take the puff insert.  I don't need a lot of the fill in the puff, but it's a bit of a challenge to get it shaped correctly to match the native side since the expander side is pretty high but flat where the native one projects.

    I'll be taking my first Anastrozole today and am really concerned that it will put more weight on me and ruin my efforts to lose weight.  I'm On my way! Of those people who gain weight watching food commercials or cooking shows.  Once I'm back to work, getting enough exercise to have an impact is difficult because I work 9 hours a day at the computer, and have 2 hours of driving.  Before diagnosis I was doing spinning class twice per week and one Zumba class and still couldn't loose weight.  I really couldn't get in any more exercise time and still stay on top of home needs and errands.  It was frustrating.  

  • KLJ
    KLJ Member Posts: 284
    edited May 2014

    Yikes, sorry if I said something that is wrong! I definitely need to read more. Should have had a way to record everything he was saying. So much information in one hour it was overwhelming! Lesson learned.

    Has anyone come across any books or info that gives solid information on a good diet to follow with ER/PR + cancer? I definitely want to step up on my eating habits. Not just for weight loss but to make sure that what I am putting in my body is not feeding any left over cancer cells. I know about eating organic/non gmo products but I know there must be some book out there that I need to be reading. Thanks everyone and I will keep my fingers quiet and my ears open!

  • amyo
    amyo Member Posts: 20
    edited May 2014


    Jannet2014= I would love to follow a weight loss support thread. For years I've been trying to drop the 10 pounds I gained from Tamoxafin, I just started my first AC treatment yesterday, have 3 more to go which will end 7/1, I have not had any nausea yet and may not have, actually I was told to expect a weight gain due to some steroids I'm giving during chemo. I plan to walk everyday and get back to me last summer daily of 4 miles. I was doing at least 2 Zumba classes but understand that won't happen for some time.  

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