Starting Chemo in April 2014

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  • merg
    merg Member Posts: 61
    edited May 2014

    My hair hurts. It's coming out fast. "Chair Day 2"  is Tuesday. I am not looking forward to it. I brought my wig back but they wouldn't take it at the ACS. It's too small. I have a big head. The lady is trying to get me an xl wig. All of hers were average. Kind of bummed today. That's all. Rest easy ya'll.

  • mmtagirl
    mmtagirl Member Posts: 509
    edited May 2014

    Merg, several of us are in the chair Tuesday. We will be right beside you.  Let's all log on and support each other..... We got this!

  • MakeLemonade
    MakeLemonade Member Posts: 153
    edited May 2014

    Add me to Tuesday - A /C #3 

  • jhodro
    jhodro Member Posts: 240
    edited May 2014

    Me too! Tues will mark my half way: 6 out of 12 Taxol. Then I get a break week (H only). Looking forward to that!

  • Swissmiss
    Swissmiss Member Posts: 111
    edited May 2014

    I am also in the chair on Tuesdays...my 4th round of AC tomorrow.  Then I'm doing Taxol for four more rounds, every other Tuesday.  

    The hair loss has really thrown me...I would truly prefer to stay home and not deal with the wig or the scarf or the hat at all.  But  this last weekend I braved a day at a festival with the wig, and yesterday I hit the mall with my teenagers wearing just a cute hat.  Honestly, I felt better in the hat, as I always feel like people "know" I'm wearing a wig anyways, so why pretend?  I was always under the impression that my hair would start to grow back right after my last chemo infusion...but now I'm reading about women who are still wearing their wigs almost a year after?!  I'm scared now.  I just want my hair back :(

    Despite the hair issues, it was a lovely weekend and I felt good physically.  Hope you're all enjoying your Monday!

  • linda505
    linda505 Member Posts: 847
    edited May 2014

    Add me to the Tuesday chair - 2nd TCH - so not looking forward to it - had such a good 3rd week - felt close to normal and now gotta start it again. Oh well ...Just got home from my PS - got a 100 CC fill and no pain from that yet - so YAY!!  Got my LGFG class this afternoon - we shall see how that is.   

  • Rosiesride
    Rosiesride Member Posts: 513
    edited May 2014

    had my 5th TAC last Monday...June 2 is my last chemo...there is a light at the end of this tunnel!  Then radiation thru the summer...I spent 300.00 on a wig...wore it a few times...stubble was uncomfortable, so I just shaved my head smooth with a good electric razor.  I love my caps and little scarves I tie around them...they were my moms so I feel she is with me all the time!!  I also got lightweight bandanas for 1.00 at family dollar!  Summer wear!!  I never go out bald as it would be a shock to some!  My wig lady was great with good tips: best one was for skin care...mix 1/2 avocado oil with 1/2 coconut oil ...helped my rashy skin a lot!  I slather it on my face all day!  Never had so many compliments on how good my skin looks!  I think I have more time to pamper myself so even with the chemo, hair loss and such, I have looked pretty healthy!!  I always have face makeup and eyebrow pencil in before I go out so that helps with confidence !  

    It seems like a lot of us entered the dx thinking lumpectomy/ radiation only....then surprise!  Chemo!  I learned so much through all of this but mostly that there are blessings through our storm and remaining positive every single day helps us get through it....Pinterest quotes helped me!! Lol...good luck and it will be over soon!!! 

  • Rosiesride
    Rosiesride Member Posts: 513
    edited May 2014

    Swiss miss...hey...seems like we are close in our treatments....I will start rads mid June....also had right lumpectomy and have decided to stay with it...no more surgeries...had 3/11 nodes ...about the hair...I have my last chemo June 2...I feel my stubble growing in already...I think the hair grows back pretty quickly...maybe the ladies who are still wearing the wigs just like it better than their old hair??  I always had short and will plan on a cute pixie anyway so it may be easier for me and the hair thing...I do get sad for people with long hair ...but I think it starts to grow back fast!? Rosie

  • Swissmiss
    Swissmiss Member Posts: 111
    edited May 2014

    Hi Rosie!

    Thank you for giving me a positive outlook on the hair regrowth...I like having something to look forward to :)  A year ago I had long, long hair, and throughout my diagnosis and treatment I kept cutting it shorter and shorter, so having short hair won't seem like a compromise in the least.  I would have never pictured myself in a pixie, however...but I am very much looking forward to finding out how I'll look.  Who knows, maybe I'll end up keeping it short :)

    And I like wearing bandanas at home...so much cooler and lightweight than most of the hats I have.  Today I am determined to take some time to learn how to tie scarves via YouTube.  I am so fortunate to have received a beautiful pink scarf as a gift, but in these Oklahoma winds, I better make sure it's securely on my head...wouldn't want to shock anyone at Walmart with my bald head.  LOL!

    After tomorrow marks my half-way point in my chemotherapy.  I am hoping to move onto radiation in August.  With luck and prayers and determination, next summer will be a lot more fun :)

  • Longislandl8y
    Longislandl8y Member Posts: 145
    edited May 2014

    Hi ladies.  What a great weekend it was, leading up to tomorrow's infusion.  The weather was lovely and hubby and I took in a minor league baseball game (complete with a ballpark beer!) where my best friend's nephew plays. Very enjoyable! My toes are almost healed (from that brutal hike the weekend before) so I'm looking forward to walking again soon.  Hopefully tomorrow before infusion. 

    Janet P - thank you for your comments on antioxidants and green tea.  I've been drinking 2-3 cups a day and will speak with my MO tomorrow about whether I should stop or not.  Since reading your comments I did a bit of research and came up with opposing viewpoints on it.  That's why I'm so glad we have each other here - this is the greatest resource for info.  Somehow between all our doctors put together, we can get the info we need, lol. Winking

    Linda & MMTA let's get in the huddle before tomorrow's infusion.  "Easy, Peasy.. Easy Peasy, Easy Peasy!"

    <3

  • jhodro
    jhodro Member Posts: 240
    edited May 2014

    swissmiss..with any luck i'll have my last chemo treatment on July 22, so I'll be with you at radiation in August. I haven't met with the RO since I started chemo, so I'll probably give them a call to make sure it's lined up. I have 6.5 weeks of daily (m-f) treatment. I'm looking forward to getting back to a normal schedule. :) I also miss long hair! I got a longish wig so that I can wear it until my real hair grows back more, but honestly, I like the hats and the cap-scarves (with elastic in the back that you tie too) better. The wig is very itchy with my stubble. We'll see how much I wear the wig when I return to work. 

    Happy Monday!!

  • Footballnut
    Footballnut Member Posts: 742
    edited May 2014

    tomorrow I have my genetic consult, bloodwork and see my MO. I'm getting very anxious. Some days I am so positive but the past two nights I have cried once again convinced that I'll be gone in a few years

    For me the thoughts of taking pills is awful. I hear good and bad about tamoxifen which I'll have to take for who knows how long

    What really upsets me is not do much dying but how. I told my DH that regardless of when my time comes - 2-3-5-10-15-20+ years I just don't want to ever be a "head on a stick". We lost a good friend to a rare form of skin cancer last year and he got so sick towards the end. It's thoughts like that that I have to push from my mind

    One never knows what will get us or when but having cancer makes me think the worst if I allow it to creep into my mind

    And now it seems to be everywhere even when I don't think about it. We watched a rerun of criminal minds and one of the criminals had breast cancer. There she sat bald as she was told to do the right thing despite being stage 4 and  not having much time left. I nearly lost it

    Then I pick myself up and say f@ck this just live!!!!

    Hope the bloodwork doesn't hurt tomorrow. They'll go through the port. The first time they did as well but the needle was put in during the procedure so I was sedated at the time. I bought the emla cream so I might use it

    :-)

    Sorry if I brought anyone down. I'll try to pick my spirits up by focusing on the hockey game tonight. Go rangers!!

    :-)

  • SharonDe
    SharonDe Member Posts: 222
    edited May 2014

    Sending good thoughts to everyone for tomorrow - looks like a large part of our April Group will be in treatment on Tuesday.

    Footballnut - hugs to you.  Never worry about expressing your feelings here - if not here, where?  Hope the testing tomorrow goes okay for you.

  • brigadoonbenson
    brigadoonbenson Member Posts: 412
    edited May 2014

    Footballnut-  I think that one of the best things about this website is that we can come here and say what is on our mind without having to censor it for prime time play.  I try to stay positive with my children, grands and friends but every so often we all need to expose our innermost fears or physical/mental state.  You picked the right place.  I guarantee there are readers who identify with your feelings.

    I hope to have many more good years but I have plans for when the end comes because it gives me peace.  I don't want a funeral, memorial service or obituary (too expensive).  I want my body to go to Medcure but I too worry about being a stick as they won't take anyone under 85 lbs. 

    I believe that we will be posting for years to come.  I have worried about a ton of things in my life and 99.0% of them haven't happened.  Guess there is a lesson in that.  Maybe I will learn it someday.

  • linda505
    linda505 Member Posts: 847
    edited May 2014

    Footballnut -Cancer sucks!! Chemo sucks!!! You are allowed to have down days you are allowed to cry and you are most definitely allowed to vent and here is a great place to do all three and you will never bring us down - we are here to support the hard times and cheer the good times.  We are super heros and even they have bad days!!   Blood work through my port didn't hurt at all and I don't have emla - they sprayed it with some freezy stuff.

    Had my LGFB class today and it was very nice - got some nice makeup and meet 7 women going through this - the youngest was 48 and the oldest was 77 - she sat next to me and we had a blast together - I am 57.  She has treatment tomorrow at 1030 - so I will be there when she comes in.  It will be her third treatment and she is doing great and she hardly had a wrinkle on her face and the biggest bluest eyes I ever saw.

    Huddling saying "easy peasy" LOL

  • MommyQ
    MommyQ Member Posts: 117
    edited May 2014

    Best wishes to everyone having treatment tomorrow. My #2 is Wednesday. :S This past week was nice and SE-free, with the exception of losing most of my hair between Day 13 and today (Day 20). I still have a tiny bit of hair left, but not much. Last Thursday, I went to a local wig shop and got a new wig. Fortunately, my insurance should be covering the cost of the wig 100% since I've already reached my max out-of-pocket on medical payments!

    linda505: I also had a fill this morning and went to LGFB this afternoon. I only went with 60cc though because the 100cc last time was too uncomfortable.  The LGFB went well. There were 5 of us and we each got a gift bag of good makeup! A professional cosmetologist went over how to apply each makeup item in the bag as we each applied the makeup to ourselves, and then went over scarf tying and other options to wigs. Very organized and well executed. I attached a photo of the gift bag and the stuff in it. There was makeup from Lancome, Estee Lauder, Elizabeth Arden, Mary Kay, OPI, Smashbox, Kiehl, Cover Girl, Biore, Olay, it Cosmetics, and NYC. It looked like they ordered the gift bags from the ACS, who collected and assembled the makeup, which were donations from the big cosmetic companies.

    image

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited May 2014

    I had TC #2 today.  Everthing seemed to be going well.  I had a room with a bed and bathroom so I fell asleep for awhile.  That was the best.  The bad thing, I could not make it to the bathroom in time and peed all over the place!  I sure hope that SE leaves!

    Then, when I was all done and ready to leave, the nurse told me that my tumor markers went up.

    Just from 30 to 50 so they want a ct scan before chemo # 3.  I thought most drs don't even pay attention to tumor markers because they are do unreliable.  But she really wanted a CT scan from the start so i'm going along with it.  Anyone here have tumor markers go up

    during chemo?

  • linda505
    linda505 Member Posts: 847
    edited May 2014

    Looks just like mine MommyQ - my makeup collection was very nice and we had someone teach us too.  Funny part - I haven't lost any of my eyebrows yet and since I know they are going to go I haven't plucked nor waxed them in the last month and they are very bushy.  So I didn't participate in the fill in the eyebrow part and when they were done one of the volunteers came over to me and said "Oh honey you have over down the eyebrows" and proceeded to try to rub them off - I was like STOP those are real LOL.  It was so funny.

  • Ddkath70
    Ddkath70 Member Posts: 129
    edited May 2014

    hey there ladies! You guys rock..I'm serious. Every time I feel like it's all just too overwhelming, I come here and learn that I'm not alone.

    Looks like a lot of you are in the chair tomorrow...good vibes coming your way {{{{{{{{{{{}}}}}}}}}}}}!!!!!!! It also looks like a lot of you are marking your halfway point. That must feel great!!!!

    Thanks for the advice (a few pages back.lol). We all seem to have a lot in common. ColdinCanada, please let me know which nausea meds they switched you to if you can. I think I will be in the chair for round 1 on Tuesday so I'm partying this weekend. Well, as much as possible considering I'm having another surgery on Friday to put my "power" port in. No, joke that's the name of it. Lol. I told them to just knock me out, and my surgeon actually said it before I could. He said, "you have been poked, prodded and through enough. Let's make you comfortable and unaware of any pain or discomfort". I said, AMEN!!!!!

    So, I had an echocardiogram today, met with the vascular surgeon and went to a chemo class where I had a small breakdown. The nausea just really scares the shit out of me. Excuse my mouth, I'm originally from NJ, I curse like a sailor. Wednesday is bone scan, genetic consult and cat scan, Thursday is a follow up with my MO where I will find out more details. It's all so scary and really feels like I'm talking about someone else's life. 

    I'm forging forward, gaining strength from my support team and you great ladies!!

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2014

    MommyQ my bag looked very similar from look good feel good today. I had a great time. I may even be able to draw an acceptable eyebrow. Had my onc appt and they just went over the SE's that I am having. Still have the darn heartburn no matter what. I rocked the bald at my appt today and I was chuckling at the OMG you look great bald comments. I appreciate them because it means that I am not looking like crap yet but I kinda like having hair. It keeps my head warm. Lol. 

    I wish #3 was tomorrow so I could get it done. I have treatment next Tuesday which is also our anniversary. 

    Speaking of anniversary's Sunday marked my last chemo 5 years ago which made me really sad that I am back in the chair. I know it could be worse and I got over it quickly but I was still super sad about it. 

    So number queen checking in 21 days to go until last AC infusion. 

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2014

    Ddkath- welcome to I cuss like a sailor club. Lol. I erase a LOT. Lol. 

  • Lakegirl1
    Lakegirl1 Member Posts: 316
    edited May 2014

    Ddkath70 & Jaimieh...I'm right there with you, can curse like a sailor and Pres of the No Nausea club!!!   I just had my 1st infusion, I got Aloxi, decadron, Pepcid and Benadryl before Taxotere. To go home...I get Zofran and Ativan.   I also have really bad GERD, so I also take Nexiumm twice a day!!!   

    Ok, WTH with the acne???  Any suggestions?  This SUCKS!!!!  Acne on top of losing my hair is insult to injury!!!

  • Ddkath70
    Ddkath70 Member Posts: 129
    edited May 2014

    Lakegirl, how are the nausea meds holding up? Hope they are working like a charm!

    MommyQ, I believe you said in an earlier post that you just recently had a bone scan and CT scan. My itinerary says that I have to show up 2.5 hours early for an injection???? What is that about? I didn't ask my MO yet. I was going to do that tomorrow. Just wondering if you had that as well.

  • nancybel
    nancybel Member Posts: 81
    edited May 2014

    lakegirl1 I too am having bad acne. Not sure what that's all about. Considering hiw much water I've been drinking I thought my skin would be good. I guess no such luck. I've only had first of four rounds and SE have been pretty minimal.  

  • rosemamma88
    rosemamma88 Member Posts: 22
    edited May 2014

    I just found out today I'll need chemo as my HER2 was positive- almost 9%. I've found great comfort in reading your stories.  I also cried quite a bit when I found out.  My hair is looking the best and longest it has in a long time, it figures.  I like the comment that one of you made about people who say "it's only hair,it will grow back"  yet they're not the ones about to lose theirs!   Oh the things people say.  We should start a topic thread on things people say because if I don't laugh about it I may want to smack them.  I thought I was past this cancer thing.  Had a BMX 2/14/11 for DCIS no cancer in lymph nodes, clear margins (though I think they should have been wider).  Now I am back after finding a lump.  IBC.  ER+ HER2 Positive.  All this after I had a bilateral mastectomy for DCIS!  Anyway, that is another thread that I have explained.  But I am really scared of the chemo. I always thought how blessed I was to have avoided chemo and radiation and the drugs.  But here I am.  We all are part of that "club" now and it sucks.  But I know dwelling on the "why me?" doesn't change anything.  I am just really clueless of what to expect,  BS mentioned the port today.  Why can't they just do the IV each time?  I don't like something sticking out of my skin for all those months.  I'm sure there are reasons.  And some of you are talking about a "cold cap"  What is that? 

  • linda505
    linda505 Member Posts: 847
    edited May 2014

    Hi Rosemamma - welcome to the forum - sorry that you are going through this yet again.  You are going to be getting Herceptin for the HER2 part of your BC and that is a long program - a years worth of IV's once every three weeks so the port will become your best friend.  The surgery to put the port in is minimal with just some discomfort for a few days and I do not feel anything when they access it for blood or give me my treatments.  

    There is a topic on here on cold caps - they are being used to try to save your hair.  I know they are expensive and I am not sure that insurance covers them.  Here is a link to that topic - someone there can help you with questions.  You will also have to ask your MO if he will allow you to use them - some do and some do not. 

     https://community.breastcancer.org/forum/6/topic/...

  • EverForward
    EverForward Member Posts: 242
    edited May 2014

    Some advice: if you are foolish enough to change all your website passwords while under the influence of chemo brain, at least have the sense to write them down! Sigh.

    Between getting my wallet stolen, chemo #2, and forgetting my new passwords, this is not my best week. Oh, and there are no LGFB classes that are not during working hours, so no cool makeup for me.

    Ok, pity party is over.

  • linda505
    linda505 Member Posts: 847
    edited May 2014

    Everforward - call the center or ACS that does the LGFB classes and ask them if they can at least get you a bag even though you can't attend.  I don't know how that works but those volunteers that work those are usually all breast cancer survivors and I would bet that they would try to find a way to help you

    So sorry for all you troubles this week - I think you are getting them all out of the way now and everything will be smooth sailing for you going forward!!

  • merg
    merg Member Posts: 61
    edited May 2014

    Hey Ya'll. Today is "Chair Day". It's round 2 for me. I go at 10:00. What time does everyone else go? Happy Thoughts to everyone!(oh yea, I really don't want to go....)

  • mmtagirl
    mmtagirl Member Posts: 509
    edited May 2014

    I am having head acne, too!

    Hi Rosemomma, welcome.  I do not have a port and have 4 rounds of chemo.  Veins working well so far. 

    Tuesday ladies- here we go! Easy peasy!

    Found this on Facebook today.  Who knew?

    image

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