Who has opted for BMX?

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  • toomuch
    toomuch Member Posts: 901
    edited August 2011

    Tina T - Thanks for the good wishes.

    Ellie1959 - Posts like yours give me hope and scare me at the same time. It's amazing that your mom has been cancer free for 17 years. But so sad that you followed her with the same diagnosis. I look at my 19 yo daughter's breasts sometimes and just wonder what's going on in there. It's awful. Anyway, fabulous that you're NED at 5 1/2 years too.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2011

    This is a very good thread for those considering a prophy BMX. I will post it and come back with a link re:DR, Christine Teal if I can locate it.

    http://abcnews.go.com/Health/breast-cancer-surgeon-makes-radical-decision-knife/story?id=13731902

    Tested link and it works. will test again after posting

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited January 2012
  • bettypage
    bettypage Member Posts: 13
    edited January 2012

    In Dec '08 I had IDC diagnosed in left breast, then after an MRI in Jan '09 I learned I had ILC in right breast. On 2-17-09 I had BMX w/immediate skin & nipple sparing reconstruction with gel implants. Next month is my 3 year BMX anniversary & I am very pleased with the results. I have no evidence of cancer & my breasts look & feel great.

  • sweetbean
    sweetbean Member Posts: 1,931
    edited January 2012

    I had a NS BMX with great results.  Having my exchange in two weeks - wahoo!

  • Galsal
    Galsal Member Posts: 1,886
    edited January 2012

    I've opted for BMX.  Although it was a decision for great consideration and thought, I chose to go this way.  Does it scare me?  Oh hell YES.  But, between the feeling I can't shake there's something in the "good" breast that no scan has found yet, that this is PILC, that I'm a worrier and my quality of life would suck at always being on alert without the BMX, that there is a good chance they can't get a clean margin, and that there are four recent generations of multiple persons and types of cancer in each generation...I know it's the right choice for me.  It did surprise me slightly that the Nurse felt I'd made a good choice. 

    Sally

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited January 2012

    sally. hope I make sense-------been up all night. I am a nurse and I choose to have a elective bmx  based on family hx, during the approval process BC was found. Please , please, seek Whippettmom /Deborahs advice- going through this process. I did not find her untill it was all done except nipples. Deborah can give you advice that most docs have't got a clue about. type , product size/

    Not getting her advice ,I ended up with Foobs that are to big for my body size and pain for 2 1/2 years that I believe I didn't have to happen--------b/c the foobs were to damn big. plus I have to be seriously careful about LE, because the damn things are to big. I will go and bring her site back to you----------I was licesed in 1974----worked in teaching hospitals from 1974-till1988------------Operating room with 5 plastic surgeons---------sounds old school, Yes some techniques have changed, But Dboerah knows more about what to suggest than current  doc's Please listen to her advice

    http://community.breastcancer.org/forum/44/topic/746448?page=168#idx_5040

    tested it it works. Serious, we are the same age , have no clue how she keeps up with everyone.

     She is committed that if you get Foobs, you get the right size and type for you body

    I told my doc exactly what I wanted and he gave almost 180 degrees opposite of what I asked for,

    Debroha-----------is a guide that you will never find-------------ANYWHERE,

    http://community.breastcancer.org/forum/44/topic/746448?page=168#idx_5040

    tested link it works. Talk to wippetmom/ deborah ------------only for advice-------others are seeking advice, or can't let go of the site/thread b/c they just can't let go of Deborha. So , there are many others on the site/ thread, but is she that you need to talk too----------Sheila

  • Galsal
    Galsal Member Posts: 1,886
    edited January 2012

    both the links worked.  thanks for the input.  i'm not doing implants but it brings to mind a question - how do they judge what size to make when doing a Tram.  i'd love to be an average to full C, considering am now a DD/DDD and have been D since 16.  will continue reading!

    sally

  • TinaT
    TinaT Member Posts: 2,300
    edited January 2012

    I had multiple biopsies which had to be done by both US and MRI so the process took almost a month.  For several weeks I knew I had ILC and I really struggled to reach my decision for lumpectomy over mastectomy.  When my second cancer was found (DCIS in same breast) lumpectomy was no longer an option, but I easily came to the decision to do bilateral over unilateral MX.  My BS was very good about giving me the pros and cons of each, but seemed a bit relieved when I chose bilateral surgery.  At pathology I had multiple other areas of ADH that hadn't shown on mammogram, US, or MRI (oddly, still all in the same breast).  Even though all the pathology was in the same breast I felt really good about choosing bilateral surgery over unilateral. 

  • ccjj
    ccjj Member Posts: 128
    edited March 2012

    My ILC did not show up mammo, so I knew BMX for me.  I did not want to spend hopefully many years stressing about another mammo not picking up more ILC.  Plus with a BMX I avoided radiation. My cancer was on the left and I know they are good at pointing that beam these days, but 6 weeks of that was very unappealing to me.

  • msippiqueen
    msippiqueen Member Posts: 191
    edited May 2012

    Hello Ladies,



    Pardon my reading your thread as I am an LCIS girl. May I use the ABC News link SAS recommended a few post back for the LCIS forum? It may be useful when LCIS women consider their options of watchful waiting or PBLM.



    I would also like to invite you, though no invation is needed, to come visit us on the LCIS forum and post anywhere you would like.



    We have a robust discussion going on about LCIS and it's relation to ILC. Whether ILC can show up without first originating from LCIS. I am a rare visitor here but as we're discussing ILC on the LCIS forum, I popped back in.



    If I have overstepped in anyway here, I apologize in advance and will apologize specifically as needed, just let me know.











  • mary625
    mary625 Member Posts: 1,056
    edited May 2012

    I will take up your invitation to join on the LCIS forum because I had both LCIS and ILC in my tumor. 

  • msippiqueen
    msippiqueen Member Posts: 191
    edited May 2012

    The LCIS forum will be enriched by your joining us, mary625. I welcome you in advance!

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited March 2014
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2014

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