Any ER+, Her2+, node positive 3+ years??

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  • Bren58
    Bren58 Member Posts: 1,048
    edited September 2013

    That is awesome Special K!

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  • IsThisForReal
    IsThisForReal Member Posts: 384
    edited November 2013


    Coming up on my 4 year cancerversary this Nov 30th. Highly triple positive, and somehow I never thought I'd get this far with being 100% ER+, 50% PR+, and HER2+++. Still dealing with heavy fatigue, but that's ok, so glad to have made it here! Isn't herceptin incrdible?!

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  • Bren58
    Bren58 Member Posts: 1,048
    edited November 2013


    That's awesome IsThisFor Real! Congrats!

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  • lago
    lago Member Posts: 17,186
    edited November 2013


    Congratulations IsThisForReal. Glad to see you here!

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  • Soccermom4force
    Soccermom4force Member Posts: 631
    edited November 2013


    9 years 12/02/2013 :)

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  • lago
    lago Member Posts: 17,186
    edited November 2013


    Congratulations. Love seeing all these triple positives so far out!

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  • Fitz33
    Fitz33 Member Posts: 243
    edited January 2014

    3 years and 4 months.  I feel as good as I felt before BC unless I think about it.  Been on Anastrazole 2-1/2 years now with some arthritis but I got through any other issues within the first year.  I'm so grateful to my BS and ONC for their care.  I'm still considered high risk but I can live with that (pun intended).  My ONC did tell me last year that my C can come back anytime after I asked her if I was now safer at 3'years.  I like to not think about that and prefer to listen to some of these boards where their ONCs think we are safer at this point.  I don't come on here often but wanted everyone to know there is a good future ahead.  

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  • lago
    lago Member Posts: 17,186
    edited January 2014

    Fitz33 next time you talk to your onc ask her if the likelihood goes down as the years progress. Sure being hormone positive they will always consider us NED and not cured until maybe 25 years pass but I bet the risk goes down over time.

    BTW I'm almost3.5 years NED. No nodes but 5.5 IDC (6.5cm tumor with 1cm DCIS). I assume it's not coming back.

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  • LindaKR
    LindaKR Member Posts: 1,577
    edited January 2014

    lago - have you found any good source/s relating to recurrence for triple positives?  My MO and BS felt that my chance of recurrence, with cautious optimism, decreased quite a bit at 3 years (after diagnosis), in fact my BS said he really hadn't expected me to be there, NED, at my 3 year check up, he also said that in his experience people with my type/size/involvement/etc.... if they make it to this point they don't get recurrences (he's been doing this for about 40 years now).  But then being strongly HR/PR positive has a different recurrence rate (I met some women recently who had recurrences 20-25 years out).  I feel I'm in some sort of limbo land, and that I'm always waiting for the other foot to drop.  The more I research it seems, the less I know, just makes me more unsure? I think that "they" don't really know, and that herceptin hasn't been in the game for long enough for them to know.  I love it when I see the HER2 ladies that are way out and still hail and hearty!

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  • lago
    lago Member Posts: 17,186
    edited January 2014

    LindaKR My understanding from what I have read and what my onc told me is highest risk of recurrence is in the first 2 or 3 years… then drops significantly. I have also read that many of those late recurrences for hormone positive are mostly with lower grade (less aggressive) see link below. When you think about that it makes sense. Chemo works well on fast growing cells. Since the slower cells grow slower or maybe lay dormant (like a virus) maybe that's why it comes back years/decades later. But in general most recurrences happen in the first 5 years.

    This is an old article so I don't know if any follow up studies have been done.

    Breast cancer recurrence seen as low after 5 years (Aug. 2008)

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  • LindaKR
    LindaKR Member Posts: 1,577
    edited January 2014

    Thanks Lago, that's all I had been able to find too, so I guess I'm in the, cautiously/optimistic, clear then, oh yeah, as long as I keep taking the evil one for 5, wait 10 (according to my last MO visit) years!   You gotta love this new normal! 

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  • lago
    lago Member Posts: 17,186
    edited January 2014

    LindaKR I've been posting my infamous speeches a lot these past few weeks. This time for you:

    seat belt speech:


    You don't assume you will get into a car accident every time you
    get in your car. You do put on your seat belt and drive carefully. Same
    with breast cancer. Eat right, maintain a healthy weight, exercise,
    and take your hormone therapy (if prescribed). No reason to think you
    are going to get mets until you actually have a symptom.


    shit happens speech:

    Some people win the lottery and become millionaires but do you
    really think that's going to happen to you? Shit happens. Sometimes
    good shit, sometimes bad shit, but most of the time shit doesn't
    happen. Don't assume shit is going to happen to you.

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  • LeeA
    LeeA Member Posts: 1,660
    edited January 2014

    (I have both those speeches saved :-) 

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  • LindaKR
    LindaKR Member Posts: 1,577
    edited January 2014

    Thanks lago 👍😃

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  • lago
    lago Member Posts: 17,186
    edited January 2014

    Anytime. Still working on my lightening almost never strikes twice speech

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  • marvelher2
    marvelher2 Member Posts: 62
    edited January 2014

    My sister, ER/PR+ Her 2+ 21/25 nodes stage 3c.  11 years NED!

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  • sherry67
    sherry67 Member Posts: 556
    edited January 2014

    Marvelher2,

      That is great to hear thank you for posting...

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  • HensonChi
    HensonChi Member Posts: 357
    edited January 2014

    I was just 6 years out!  Still going and as far as I know I am clear.  Doctor has left me on arimidex for 10 years since she thinks it is working.

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  • LizA17
    LizA17 Member Posts: 159
    edited January 2014

    That is awesome  HensonChi! Always good to see these posts!

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  • my2boys
    my2boys Member Posts: 339
    edited January 2014

    diagnosed in August 2008....small recurrence in 2010.  Here I am in 2014....still kicking!  :)

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  • sherry67
    sherry67 Member Posts: 556
    edited January 2014

    Awesome ,my2boys....:)

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  • elliejdan
    elliejdan Member Posts: 28
    edited January 2014

    hi guys, i dont post much but decided i need to start making connections. great thread

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  • pejkug3
    pejkug3 Member Posts: 902
    edited February 2014

    I just passed my 3 years NED anniversary on January 13.  When I was diagnosed, I was so scared that I would not make it to this point.

    I'm doing well, struggling with losing weight, work full-time + and have 4 minor kids.

    Happy, healthy and thankful.  :)

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  • Footballnut
    Footballnut Member Posts: 742
    edited May 2014

    I'm not even close having been diagnosed only a few months ago but seeing this thread and it successes make me feel great!

    My MO did say that the majority of reoccurrences are within 2-3 years of the initial diagnosis and that the further away you get with NED the less risk of reoccurence   He is the chief MO at my hospital

    Congrats to all of you!!!

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  • LindaKR
    LindaKR Member Posts: 1,577
    edited May 2014

    had my 4 year with the BS on Tuesday, he said he doesn't need to see me again, just watch/feel for any new bumps, lumps, etc... But doesn't expect me to find any, and only call him if I do. I feels pretty confident I won't have a recurrence now, he's kind of a negative Nell, so this is cautious optimism, still wants me to see my MO annually and my PCP at least twice a year, but.....💃💃💃💃👏👏👏🎉🎇🎆

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  • LizA17
    LizA17 Member Posts: 159
    edited May 2014

    wonderful news Lindakr! So happy for you!!

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  • Bren58
    Bren58 Member Posts: 1,048
    edited May 2014

    Great news Linda!!!

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  • Footballnut
    Footballnut Member Posts: 742
    edited May 2014

    awesome news linda!!!  Keep doing what ure doing!!!!

    :-)

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  • Girlstrong
    Girlstrong Member Posts: 438
    edited May 2014

    Linda..that is absolutely fabulous. Thank you for that message, we girls need to hear that and Believe it will be true for us too.  Blessings:)

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  • lago
    lago Member Posts: 17,186
    edited May 2014

    Yay Linda!!!

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