Pleomorphic LCIS?

jsd44
jsd44 Member Posts: 33
edited June 2014 in ILC (Invasive Lobular Carcinoma)

I am trying to learn more about my post-lumpectomy path report. I have ILC, but the report also says, "Lobular carcinoma in-situ, pleomorphic and classic type." Has anyone else faced the diagnosis of pleomorphic? Does anyone know of specialists in lobular cancer in the Massachusetts area? (I haven't checked Dana Farber yet but will--just thought I'd see if anyone had recommendations for who to look for.)

Thank you.

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  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited May 2014

    I am afraid I do not know about pleomorphic but I have just had my post op report from my surgery at Brigham and Womens Faulkner and it was for a 1.5 ILC and additionally mentions LCIS with microcalcification and epithelial hyperplasia which I need to find out more about. So many confusing terms. Thankfully there were were clean margins on the ILC and the surgeon has just referred me to a medical oncologist at Dana Farber but my first appointment is not for 2 weeks so I can't really recommend anyone yet but I feel comfortable with being sent there-- even though I think it may mean getting the train into Boston. It sounds like we are on a similar timeline for treatment.

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited May 2014

    The invasive cancer "trumps" the LCIS. The LCIS is insignificant to the invasive cancer diagnosis.

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  • lekker
    lekker Member Posts: 594
    edited May 2014

    While I don't think classic LCIS affects surgical margins, the presence of PLCIS might.  This is because LCIS is generally viewed as an indicator of risk while PLCIS is more like DCIS and considered a pre-cancerous lesion. This is still being debated in the medical community so you need to talk to your oncologist about it.  My post-BMX path report found another tiny invasive ILC tumor as well as classic and PLCIS.  My margins were clear though so rads weren't recommended for me.

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  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited May 2014

    I also got a referral to a radiation oncologist too, maybe as I just had a lumpectomy,  I have my initial appt. next week but I am hoping to hold off the daily treatments until mid June as I want to have a few days away relaxing with my DH and dog before it starts. 

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  • jsd44
    jsd44 Member Posts: 33
    edited May 2014

    Thank you for all the replies so far! I have an appointment with my med. onc. on Monday so I will be prepared.

    lyzzysmom: It does sound like we are on a similar timeline. I am happy to hear that yours was caught very early and with *no* node involvement. I'm planning to call Dana Farber on Monday--after researching their oncologists more--to get an appointment. How is your surgery recovery going? I'm 10 days post-op and it's a bit up and down. Not much pain but swelling and discomfort. I'm usually very active and I don't like "taking it easy"! 

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  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited May 2014

    I think mine was discovered by chance as I mentioned a recent skin rash and  swelling that I thought was just an infection at my annual physical but my doctor decided to investigate. ILC is so sneaky. We tend to expect lumps..

    I had the lumpectomy  on 5/6 and started work from home on 5/13. I originally intended to drive to the office maybe 1 day this week but really did not feel up to it, very tired.  I only took the painkillers they gave me on the day of the op, since then just a Tylenol at bedtime, the pain has not been bad at all, a bit worse in the evening, but as you say it is still swollen and uncomfortable and I am on day 12.  

    I do wish you all the best as we start this journey. I think we will be in good hands at Dana Farber.

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