Starting Chemo in April 2014
Comments
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Jamieh...your photo made my day
If you weren't feeling well, you'd never know it...you are radiating joy!
For those getting their periods: I did round three last week (I go every two weeks), and for each of my three rounds I've have heavy bleeding. It tapers off right before my infusion, then starts again (heavy) a day or so after each infusion. I think it's strange. I almost feel the chemo drugs are triggering the bleeding. I had issues for fibroids last year, and I actually think the problem never went away, even after my gyn removed them via d&c. Chemo SE's are bad enough, but to be wearing a pad nearly every single day since my first infusion is really wearing me down
I've had a good two days, with only minor SE's so I was able to see the dentist for a cleaning. Due to our move to OK last year, I hadn't been to the dentist in almost a year...felt so good! Rx fluoride to make sure my teeth stay healthy during chemo. Ladies, don't forget to keep your smile beautiful
Have a wonderful day, Ladies!
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My hair started falling out exactly 2 weeks after infusion 1 and I got a buzz cut the following Saturday (which was last weekend). The hair ("drapes" and "carpet") have been coming out mucho this week. At least the long hair was easier to get out of the shower drain. These short hairs are a mess!
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Thanks, Timbuctu - I had a really easy infusion day today. No issues at all, not even a headache so far. I also scored a prescription for Ativan so will take it tonight to see if it helps,with sleeping.
Here's one of several wigs my stepdaughters sent from California - decided to model this most elegant one during today's infusion:
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Good going!
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sharonDe love the wig! I am so jealous!!!!
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Sharon!! love it!!
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Oh Sharon! I LOVE it!
Thanks so much for making me smile today! I have a neon pink wig coming in the mail soon (it was $7 - I couldn't resist!). Remember that show Jem and the Holograms? When my wig arrives, that could be US.
Jaimie - Love the photo - how fun!
Well, I met with my MO today and we changed my anti-nausea meds AGAIN. Since the Zofran seems to be keeping the nausea at bay on Chemo day, he added it to the 3 or 4 days following chemo as well. Plus Stemetil for any break-through nausea. Here's hoping that the THIRD time is the CHARM! And, yes, he confirmed that the fatigue is cumulative, so I can expect to continue sleeping through the first week post-infusion. Oh, and the eye twitching is ALL TAXOTERE'S FAULT. The other day my children were hollering at each other (they were in different rooms, not mad at each other), and I was all: "HEY! You kids knock it off! You're stressing me out. Look at my eye twitching!" The got a huge laugh out of it. I aim to please.
Tomorrow is Round 3 - the HALF-WAY point. Phew! I can't say I'm EXCITED, but am looking forward to saying "Half-way done!", complete with some serious happy-dancing.
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Love the pictures ladies!
I went to LGFB today. It was better than I expected but I had low expectations
Got a wide range of makeup (and a lot of MAC which I do wear) learned how to draw on my makeup eyebrows and lashes. Best part was meeting people, even one my age with small kids who was also looking to connect. I think she will be my 'Nordie's at noon' friend. So I am glad I went. Really wanted to pump my mascara wand
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Longisland- I totally got my P too (shortly after round 2) and was so disappointed! and it was heavier and more days than my normal cycle! Not cool!! But happy its over and maybe now it'll cease?!
Sharon - good luck girl!!
Jaimieh - ugh the metal taste is aweful
I got it after both round 1 & 2 so I guess I can count on it for all 6 rounds
the only silver lining for me was that it lasted only about 2 or 3 days. Hope it goes away soon for you! ps - love the pic!!!!!
Football - your commitment to working out is awesome! I have to get on board with you girl! I feel accomplished when I emoty the dishwasher lol!!
Clarrn - so happy you had a great experience at LGFB!!! Im still on the fence?!?!
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Hi all,
Well I'm the day after round three and feeling ok. Wondering if I'm going to jinx myself by saying that out loud. Lol. My MO added Prilosec to my ever increasing list of meds. However, so far today heartburn hasn't reared it's ugly head, so I'm keeping my fingers crossed. I asked about my phlebitis. He said it might clear up or it could always remain a problem. But for now, my arm is not aching. The veins are just swollen and hard. I guess I can live with that. I am receiving Emend in my infusion and it seems to be working great also.
Clarrn - thanks for the pep talk! I was SO not wanting to go to chemo but am relieved its over. I did get the dreaded headache a few hours after my infusion, but so far that is the worst of it. I keep telling myself I only have ONE more to go! I'm hoping the Taxol will be easier on me like my MO tells me. Good luck to you on your next treatment!
Wishing all of you a wonderful SE free week!
Hugs to all, lilyrose
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Sharon - you rock the blue wig! Love it!
Hugs, lilyrose
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Sharon love the blue wig.
So tonight was my daughters concert for chorus and I wasn't going to miss it. So I talked to the principle last week about an easy out seat. A seat close to the front near the door and he said no problem. Well I asked him for the seat and he told me it wasn't me who asked. I a lost had to show him that I was wearing a hair piece under my hat. Luckily he just gave it to me. So I apparently do not look like the typical chemo patient.
. Go me!
Is any one else going to be on weekly taxol after AC???
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You look great - You will definetly rock the bald look -
I love the blue wig0 You rock Ms. Lady -
Jaimieh,
Yes I have one more A/C infusion then going onto 12 weeks of Taxol. My MO says he thinks it will be much easier to tolerate. I hope he's right!
Hugs, lilyrose
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Good morning all,
LOVE LOVE LOVE all the pics!!!
I went in for my 4th treatment yesterday (just my weekly low dose of Taxol, no cisplatin, thank god!). I was a little worried about my blood work because the cisplatin pretty much laid me out for most of Sunday and all day Monday, I was not able to eat very much. My chemo nurse looked up my blood work when i arrived yesterday and said "Your labs look GREAT! Whatever you're doing as far as your eating habits, keep doing it, it's working." I wanted to share a couple of my tips with the rest of you. I get my treatment on Thursday, so Friday, Saturday and Sunday I immediately start taking my anti-nausea med alternating every few hours with Tylenol, that seems to keep my SEs from hitting too hard over the weekend. I drink copious amounts of coconut water, and I also drink my protein shakes on those days. I got the recipe from someone here but for the life of me I can't remember who or which board,so my apologies to the OP! I changed it a little to accommodate my preference for Trader Joe's products. I pour a cup of TJs Unsweetened Vanilla Almond milk, 2 scoops of TJ's chcolate whey protein powder fortified with 21 vitamins, a few frozen strawberries and a small handful of High Fiber cereal, in my ninja single serve blender cup. It tastes like a chocolate milkshake and I'm getting the calcium my bones needs, protein and vitamins, and a dose of fiber to keep from getting "backed up" by the meds! Monday through Thursday I switch to my fruit smoothie. I use about a half cup of TJs 100% orange juice, a banana, some TJs frozen pineapple tidbits, and fresh spinach and kale leaves in my single serve cup blender. It's delicious and full of replenishing vitamins and minerals. Beyond this, I just try to make healthy eating decisions--whole grain toast with natural PB or some oatmeal or egg whites with spinach and mushrooms for breakfast,a salad or soup for lunch, and stir fried veggies (in coconut oil or flavored olive oil) with brown rice and fish for dinner most nights.
Everyone is different, of course,and these are just some suggestions based on the chemo nurses' assessment that whatever I'm doing is working, my body is bouncing back week after week and I haven't lost or gained a significant amount of weight yet.
Fight on my fellow warriors and enjoy the weekend!
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Thanks for the suggestions Janet - will try the first one - the 2nd has too much sugar from the fruits for me due to diabetes.
Here is me with my free wig that I got from the ACS
FOOBS check
Wig check
Ready for the day Check
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Love the pic, Jaimieh! And the blue wig, And the ACS wig. I need to see about my ACS wig. It's too small.
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Good morning, post TC #2. Glad y'all got a chuckle out of the blue wig - the costume wigs were a fun gift from the girls
Linda - that wig looks great. Can't believe it was a free one.
I had a good night, only concerning SE was redness and tingling in feet and palms. I don't need the whole hand & foot issue to blow up. Lightly moisturized and went to bed, drinking lots of water. Much better today. I also read that hot water exacerbates, so perhaps no hot soaks in the tub for now.
A 1mg dose of lorazepam (Ativan), and managed a full night's sleep. What a difference!
Sending good thoughts to all for manageable SEs.
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good morning all!
Ure all doing great! Sh and I decided not to travel this time around. We will wait until treatments are done but he took the day off today anyhow. We will go visit my mom and chill around the city. Play tourists!!
My head was driving me NUTS - the itchy scalp woke me up so I put a cold compress and then went back to bed. More pimples showing up. Guess the hair will be gone soon
Have a great day all
:-)
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Morning ladies!!!
Ugh, today I noticed my eyelashes on my right eye are thinning. Looks like maybe 1/3 on the bottom are gone. Waaaaa :-(
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Linda, your ACS wig looks fantastic on you!
Feeling a little achey and sore today (2 days post 2nd infusion), but not too bad so far. Bald spots on my buzzed head make me look sicker than I feel.
I hope everyone is managing their SEs better as we move forward.
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Linda you look awesome
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Sunshine boo on the eyelashes. They will be back.
Lily rose my mo keeps saying the same thing but I am leery. They will also be adding herceptin and perjeta to the first, fourth, eight and 12th. So I am getting nervous. I don't handle change well.
My hair is still hanging around slowly falling out. I have tried on or bought a new wig yet. I am lazy about it and I guess I have a bit of denial still going on.
I realized that this treatment is going to be 15 days apart because of Memorial Day. So I get an extra day followed by a short treatment going into number 4.
Okay off to try and be productive today.
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jaimieh-
Herceptin and Perjeta won't make much of a difference. This is my second time with Herceptin and I've never had issues. The only problems I've seen reported with Perjeta is rash the first treatment (which I had) and a little diarreah. I just had my 2nd round with it and so far no rash. I think you will do great!
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Sunshine - You may want to look into Latisse. My PS stated he's had good luck with chemo patients retaining lashes and brows. I also found a study supporting its use:
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Janet P, I love your regimen and try to follow very similar regimen myself. I admit though, that the week following treatment is a "wing it" week and I'll allow myself to eat whatever feels good. In addition to green smoothies and salads, etc. I also supplement with a vitamin/mineral supplement (Called Women's One that I get at Whole Foods), b12, b6 and D. After my 2nd infusion my nurse was also excited about my "Great" counts. -
I too will move on to weekly Taxol post AC. Also heard it is easier so fingers crossed!
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Linda - great wig!
Jaimieh - I am taking Herceptin now, and one week out of each month I have it by itself, and I felt really good that week. I will continue on Herceptin for a year after I finish chemo in late July.
Clarrn - I'm doing weekly taxol, 3 weeks on, 1 week off for 4 rounds. I have found this second round to have more SE's, but by far not horrible. I'm more cranky and uncomfortable, I'd say. My numbers have remained pretty steady, so I haven't had to have Neulasta or anything.
I finally got out to walk today, I hadn't exercised since Tuesday's infusion, mainly because the weather has not cooperated. I feel soooo much better when I'm able to get outside. It was cool but I was still able to get in 2.5 miles. I've lost most of stubble on my head, it's now very thin. On the bright side, 5 weeks since waxing and no need to do that again any time soon!
Happy SE free Friday & weekend to all!!
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Hello Ladies! I am loving all the photos here! We are SO gorgeous, you know?
Here I am just finishing off Round 3! This means just THREE more rounds. Woo! Hoo!
Sunshine - Notice how my eyes look all squinty? That's because MY lower eyelashes are thinning too. Also my upper lashes and my eyebrows.
I have never worn make-up, but I think I may start with a little eyebrow pencil and some liner, just so my eyes don't disappear entirely! That's a look I'm pretty sure I can't pull off. Ever.
For what it's worth, Ladies, regarding the whole antioxidant thing, my oncologist firmly told me NOT to go there. He said it can interfere with the chemo treatments, as can adding a bunch of vitamins. He said to eat WELL, and eat HEALTHY, but eat NORMALLY. Anyway, I'm not putting on my Smarty Pants or anything, just sharing. Take it or leave it.
We have a long weekend here in Calgary, and it's relatively sunny, so I took a 2km walk with the family, and now I am heading to the back deck to enjoy the sunshine on my face...through layers and layers of sunscreen and big floppy hat.
Have a wonderful weekend!
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Great picture ColdinCanada! I hope it's warming up there for you, finally! Enjoy your weekend!!
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