Postmenapause IDC Women: What AI are you taking?

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  • flannelette
    flannelette Member Posts: 984
    edited April 2014

    hey Ruthbru - one thing this thread just made me notice is - after sitting for a while I am no longer stiff as a board and can actually just get up & walk! it's been gradual - and I've got arthritis, being 5 yrs older.....but, really, the stiffness IS declining - yea! it's been about 3 months now and there finally IS a difference

  • ruthbru
    ruthbru Member Posts: 57,235
    edited April 2014

    It is so gradual that all of the sudden you go 'Aha!' ThumbsUp

  • livin-in-sunshine
    livin-in-sunshine Member Posts: 27
    edited April 2014

    Hi all,

    I'm a total newbie to the group and I'm probably going to sound like a rebel. I started reading this thread because I tried Arimidex for a month and quit. I'm now 3 weeks into Femara and don't like it either. I have sweaty hot flashes  every few hours and my joints ache. If I try to go for a run I really pay for it. I don't have as much energy as pre cancer days...maybe 80% but probably 70% strenght and endurance. I'm a regular exerciser and have always been on the healthy side.

    From everything I'm reading, it looks like my chance of recurrence only changes from something like 90% to 92% for the 5 year mark if I continue on an AI for the recommended 5 year plan. I hope I don't get kicked off for asking this, but, Has anyone just skipped the AI and not regretted it? I realize it is a big personal decision. I'm just looking for more information before my next appt with my oncologist.

    Thanks!

  • Delufox
    Delufox Member Posts: 18
    edited April 2014

    just had my med onc and rad onc appts and it was everything the surgeon thought - 4 weeks of radiation and no chemo. I know this is relatively good news but I am so anxious and can't seem to breathe! I don't have a lot of support - both my husband and daughter are psychotherapists who think I am "overreacting." Will you guys be my support? Also dealing with an elderly father with the beginnings of dementia who I can't even tell since he is so demanding about his own needs. Is a glass or two of wine at night ok?

  • livin-in-sunshine
    livin-in-sunshine Member Posts: 27
    edited April 2014

    Delufox, I'm new also! You actually have one post more than me after I enter this one. From what I'm reading this is a great place to find support. 

    When I met with my nutritionist, she informed me that a glass of wine or 2 increases your chance of breast cancer by 11 % or something along those lines, I just smiled and said, " Well, I already have it." So I did what I needed to do. I ended up having chemo and my taste for wine went out the window. I saw that you are not having chemo...radiation didn't change my tastebuds.

    You will be done before you know it. I hope to hear how you progress. If you can exercise, it will be extra good for you:)

    Hugs and prayers.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited April 2014

    * I, personally, don't drink alcohol every day, even a glass or two. I save it for a nice dinner on the weekend or other special events. I don't think an occasional drink is going to hurt you, but alcohol is a fat.....fat feeds estrogen, and if you are estrogen positive, you know where that can lead. Delufox, have you ever tried yoga or meditation? They are good to help with the stress level. And I found a 'stress relief' hypnosis CD which really helped me (much to my surprise). And no, you are not-over reacting! The whole thing is absolutely terrifying when it is happening to you; no matter how 'good' the prognosis!

    *Yes, to the exercise! Whatever you can do will help you so much both mentally and physically. If you want some exercise buddies, check out the 'Lets Post Our Daily Exercise' on the fitness forum. A great group of ladies in all stages of treatment and beyond & at all levels of exercise too.

    * As far as taking or not taking an anti-hormonal. The risk of recurrence is highest in the first 5 years, and those pills are the biggest medical thing we can do to reduce the risk (bigger than chemo, bigger than rads....my risk reduction was 40%). I have several triple negative friends who would LOVE to have the insurance policy we get by taking an anti-hormonal. It does take time for the body to adjust (I think, to be fair, you have to give it at least 6 months). Chemo takes a long time to bounce back from (with or without anti-hormonals), so your energy level will be down for quite awhile because of it either way (sigh....but it does come back if you keep working, even on Als). I guess what you have to answer for yourself is, "What if I quit, and I have a recurrence? Will I wish I would have stuck it out, or am I at peace with my decision no matter what happens?"

  • Redheaded1
    Redheaded1 Member Posts: 1,600
    edited May 2014

    Delufox,  my MO said I could have a wine on special occasions, but not to drink it like it was soda pop.......and you know, I have a aging father who is just like yours---he keeps me running and I have no spouse or kids.   I've found a .5 Xanax is just the thing.  (No ladies I'm not joking), my PCP gave me a script, and I take one a bedtime when I can't sleep and I take one an hour before my rads, since I had 2 panic attacks during rads.   I am retired, and I am very calm, and not too sleepy or anything.  Don't mix it with the wine---and you can even break them in half to give you a lessor dose.

  • edwards750
    edwards750 Member Posts: 3,761
    edited May 2014

    I am post menopousal so I took Arimidex for the first year despite having osteoporosis. I took a supplemental drug to offset the damage it was doing to my bones. When that drug got so expendovd my Oncologist switched me to Tamoxifen. Since then my numbers are way up as far as bone density so it's doing its job. Have to say though the SEs are much worse than with Arimidex. Finally, there is no way I wouldn't take something - too afraid to take that gamble. My recurrence rate is 8% with taking Tamoxifen for 5 years. Worth it to me but to each his own. Diane 

  • edwards750
    edwards750 Member Posts: 3,761
    edited May 2014

    sorry typo -drug got so expensive 

  • badger
    badger Member Posts: 34,614
    edited May 2014

    I was in peri-meno at dx so was put on tamox.  Been on it 4 years, 1 more to go.  So far so good.  I would take it 5 more years but onc says I'm not a candidate for that protocol so will go on an AI next year.  Not sure which one yet so I appreciate this discussion. ♥ 

  • peacestrength
    peacestrength Member Posts: 690
    edited May 2014

    Edwards - I'm with you,  I too am not willing to take the gamble either....especially being stage 3.

    Badger - sending you a pm.

    I was on Tamox for 1 month before having my ooph; then after my ooph, I've been on Femara.

    Thanks for keeping this thread going.

  • B-B
    B-B Member Posts: 5
    edited May 2014

    how many years do you take Arimidex? This may be what I will be taking. Treatment plan appointment today.

  • Moderators
    Moderators Member Posts: 25,912
    edited May 2014

    Hello Sistersu, and welcome to Breastcancer.org. Until you hear from members with their own experiences, you can read more about Aromatase Inhibitors in general, as well each one specifically from the link at the main Breastcancer.org site. 

    Here on the discussion boards, there's a large and active topic For Arimidex (anastrozole) users, new, past, and ongoing in the Hormonal Therapy forum, where you can connect with others being treated with this AI.

    • The Mods

  • ruthbru
    ruthbru Member Posts: 57,235
    edited May 2014

    The standard of care is to take it for 5 years. Some ladies who have a high chance of recurrence are taking it longer, but the research is not yet in on that.

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