Starting Chemo in December 2013

had my port out today. No big deal but usual soreness from incision. Looking forward to it healing and my "alien bump" being gone. 3weeks Pfc today. Not much hair to speak of but feeling pretty good. Sparse white fuzzies when looking close up, which I examine everyday of course. I know...it will come. Argh, patience! Get stiffness and sore feet in morning and when walking or standing. Have been doing yoga 2x wk and that feels great. 

Jbokland, where can we get your head bling? How do you stick them on? Someone must have to do it for you

DJ- good luck thurs. You'll be in my thoughts, and I'll be in your right pocket, chasing any little bad buggers away

missy, I had a UTI after 3rd chemo. I think our immune systems are so compromised - I tend to get UTIs when I'm really run down.

I walked about 45 min this am. Got a fitbit and I'm loving it. Definitely motivating me to be more active. No movement on the scale, unfortunately. I just started back in the 5:2 fasting diet today. I had been on it for the 2.5 months prior to being diagnosed and had lost about 15 lbs then (which I gained back during chemo). I have a lot to lose - "ideally" 40 lbs, realistically I'd be thrilled to lose 30. I don't feel like waiting through rads etc before starting to get fit & lose weight. 

Missy- yuck UTIs are painful.  Maybe too much fun in Mexico?  No really, your immune system is still lagging from all the chemo.  UTsI are so common in healthy women not surprising someone gets them post chemo.  At least they are easily treated and relief is fast.

Amanda and Robin- I hate waiting for results. Hopefully all will be good. and Amanda, bitch and whin to your heart's content. That is the whole reason for these forums, Mutual support and unconditional acceptance of whining.

Lisa - good for you getting your port out.  The flowers are beautiful. Our tulips are just about all done around here.

Barbara

today was a bah humbug day for sure.  If my long term disability doesn't get here soon, I am going to have my lawyer friend call them!  I called 3 times last week and twice today.  They said it should be sent out Friday.  They owe me from February!! So so annoyed and I almost cried on the phone explaining how we needed this money my money now.   Grrrrrr!

Good luck to everyone testing and waiting for results!!!  Prayers 

lots going on here!  So glad chemo is over, my port was taken out last Thursday, healing well, I love sleeping on my side again without that bump there.  Hair coming in like crazy, if it were all brown instead of white fuzz I'd be happier.  Started my latisse as well, and my first tamoxifen today.....wondering what side effects that will bring.

Had enough energy these last few days to walk two miles, stairs I still can't do very well without being out of breathe....it's beginning to look allot like REAL life again....I'm prepared to be patient, but don't want to be!  

My best wishes and prayers to all of you going for more testing and results.

good to hear! 

My hair is white fuzz, but I had white/platinum (bone strsight) before. Will be interesting to see if I get any curl or body. 

I have Taxol #8 this week. Counting down the days to pulling this port! 

Just keep swimming.  Just keep swimming 

I am enjoying my "free time" between chemo and RT. Not really doing much but working but feel some energy coming back.  The neuropathy is also less severe  I was able to go on a 3 1/2 hour Audubon bird walk at a local park on Mother's Day. Lathered up with sun screen and kept a scarf on my head.  Other then having to watch my feet walking over the rough trails because of the neuropathy, it was wonderful to be outdoors and doing a normal thing.  I was really wasted the rest of the day though and had to wait until the next day to grocery shop.  Good thing there was frozen pizza to make for dinner.  Walking this weekend for Relay for Life.  Should be fun. Need to get cookies made for the bake sale during it. 

Going to RT on Thurs to meet with RO again, get CT scan and simulation planning. Guess I will be getting my first and last tattoos then too. Getting a bit anxious tanking about the radiation.  Like starting g chemo it is all a big unknown what will happen.  Worst thing is no deodorant for 6+ weeks.  

Barbara 

Robin....this sucks..... A big ole FU to cancer............

I am hoping they call with results. No uptake is the small positive I am holding tightly to. If they find cancer cells, I am thinking it would be dead ones. Which will be good/bad news. Good that my treatments are working against my cancer. Bad that it spread. It is a freakin aggressive anomaly. Most ILC is slow growing but mine is not only grade 3 it is also triple positive. Those things are not usually seen all together...go me... Only 1 in 10 cancers are lobular and pleomorphic lobular is an even lesser seen subset. My beast shouldn't be statistically possible. Okay...done with pity party...did you all get your hats and noise makers? 

The lower node was 8mm x 8mm - so if cancerous is macromet number 10. If either are cancerous I don't know if it is a recurrence or just changes my DX to Stage IIIc. Will ask BS tomorrow. 

hey girls! I finally heard from MO today. He feels confident it was a false positive, but I am having a CT scan tomorrow to be sure. I am having a lobectomy one week from tomorrow. That just 3 weeks post last chemo. I'm a little nervous about it but have been exercising in the pool, getting lots of rest, and I was down 3 lbs when I weighed in today! Hoping to have speedy recovery so I can start rads ASAP. 

I'm jealous of everyone getting their ports out. My dr recommends keeping it 2 years! 

Robin- try not to worry, I know it's easier said than done. So sorry you are having to go through more scans, tests and waiting. Praying for great results!

Robin I'm so sorry. That sucks. Cancer sucks. Keep us posted. Will be praying for you. 

Follow up with MO today. He is waiting until I see him again in 3 weeks before starting Tamoxifen. I'm having some depression/anxiety issues he wants to address first. Afraid Tamoxifen may make it worse. Makes me nervous thought to wait. I don't want any estrogen creeping back up on me. 

Having my SIM tomorrow that rads to start Thursfsy. 

Holley, no bleeding gums here. 

I just realized that the past three days I have blown my nose in the morning and not gotten any blood or bloody chunks. YEAH  progress. 

Barbara 

I will keep you all updated. 

Holli, yes on the bleeding gums....all through chemo, even with the extra soft children's toothbrush. Still have an issue with it. The don't bleed long, just every time I brush. Well, sometimes with hard food...think any kind of chip....tortilla, potato, pita....lol

After reading the posts I realized that I don't blow my nose too much anymore. Although there is no hair on my head maybe there is some in my nose now.

No bleeding gums. My MO gave me the ok to get my teeth cleaned 3 weeks pfc.

Praying for you Robin-keep us posted

holly, I would call them. Each department has different protocols.  My friend went through it last week and told me it took about 2-2.5 hours.  But then there is a dry run a few days later also.