surgery length for double MX and reconstruction and MRI issue

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pollyanna5
pollyanna5 Member Posts: 85

Things are still moving along, I meet with the plastic surgeon on Friday.  

 Still waiting on a MRI.  The hospital MRI department is trying to schedule it when I have my next cycle and a certain day of the cycle, but I have always been highly irregular due to PCOS and hyperprolactamenia , so my periods can be as little as a few times a year, sometimes very short.  They are also affected by my stress levels easily, which will throw them off as well.  I keep explaining this to the MRI booking office, but they won't book it until I'm on the first day of my cycle.  I explained this could be months given my cycles, but she won't book it, and got a little snotty with me saying the MRI's must book between day 6-10.  I also explained I have DCIs, and looking at a double mastectomy and she kept to the same line.  I called the breast cancer clinic back, and she sounded frustrated with it and she is going to take care of the appointment, and I'll have one in the next few weeks.  Did you find this timing issue with your cycle  when having an MRI?

She said I am on track to have the double mastectomy and reconstruction at the end of June, early July.   I am wondering how long the surgery takes I've read online 4-5 hours, but she said it could be 8 hours due to the reconstruction (DIEP).  Then 5 days in the hospital afterwards.  How long were your surgeries for double MX and reconstruction?   And do they do preliminary nipple reconstruction at surgery with tissue, then tattoo the colour on later? \

I am anxious to get moving with this, have the surgery, any radiation if needed and recover, and then just get on with my life.    I know it's not too long, but I feel like it's not real as it seems far away right now, yet life seems on hold until it happens. 

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  • Janetanned
    Janetanned Member Posts: 532
    edited May 2014


    Typically a BMX with immediate reconstruction/DIEP is a long procedure.  It is my understanding that depending on how your BS and PS work it can take 10 - 12 hours.  My BMX/DIEP took almost 12 hrs.  I was scheduled for surgery at 7am.  I arrived at the hospital before 6am.  My husband spoke to the surgeon around 8pm as I was sent to recovery.  I stayed in a special post surgery unit at the hospital for 5 days.  The flaps need constant monitoring the first few days to make certain there are no complications.  I took 6 weeks off from work to recover.  The recovery was slow but steady.  A visiting nurse came to my house a few times to check on the incisions and make certain the healing continued at home.  I was able to resume all of my activities by 6 weeks.  I drove for short distances at 4 weeks.  I did not need strong pain medicine.  I began pt/ot midway through my recovery time.  An OT came out to my house to get me started on ROM exercises.  It was a pretty intense few weeks, but well worth the outcome.

  • Janetanned
    Janetanned Member Posts: 532
    edited May 2014


    I forgot to add that the nipple construction doesn't take place until you are fully recovered from the DIEP.  My surgeon wanted to wait at least 6months.  I waited for about a year due to scheduling issues.  I will probably get the tattoos this summer.

    The nipple surgery might include other 'fixes', so you should be fully healed and settled.  Your flaps will change after surgery.  They drop a bit and start to look more natural.  They will also change if you lose or gain weight.  You might need some lipo around the scars at your waist.  It seems like a long journey, but once its done you should not need any other procedures later in life.

    Some women are able to save their real nipples. You might be able to have a nipple sparing mastectomy.  This is something to ask your surgeon.

  • pollyanna5
    pollyanna5 Member Posts: 85
    edited May 2014

    Thanks Jannet!  

    I am having nipple sparing surgery on the left where  Iam doing a prohphalactic removal,  but the surgeon says it is not wise on the right given amount of DCIS involved.  

    Wow, that is a long surgery!  

    Out of all of this, I am most weirded out by having no nipple for a while!

  • Janetanned
    Janetanned Member Posts: 532
    edited May 2014


    Think Barbie.  It is pretty weird!  The whole procedure is pretty weird! I can't imagine coming up with the idea to move abdominal fat to an empty breast pocket to make 'new' breasts.  However, I am thankful they did.  My results are pretty good and once I had nipples things began to look real.  My husband doesn't think I need the tattoos.  I just want them though.

    You can start preparing for the surgery by gathering items to make the recovery easier.  There are a number of threads covering this topic.  I bought a comfortable recliner to sleep in and a shower chair for the first few at-home showers.  Both items were good purchases as I used them often and then let my son use them when he had shoulder surgery. I still have the recliner in our empty bedroom and I often use it for naps.

  • njmae
    njmae Member Posts: 48
    edited May 2014

    I had this surgery on March 19 but had to have a TRAM flap instead of a DIEP due to radiation damage from a prior cancer.  The surgery was about 5 to 6 hours.  I was in for four nights but could have left after three.  I had a shower the next morning.  Four drains, three removed after one week, the fourth after two.  I was able to do stairs immediately when returning home.  My PS does not do binders or wraps, said no bra for a few weeks.  I started on walks on the block immediately and now do a few miles at a clip.  So I am just beyond 7 weeks out.  My belly button is having some delayed healing so I have to dress it twice a day.  I have used calendula and coconut oil and do scar massage.  In some areas the scars are quite faint already.  I am trying to be good about not doing too much but I am itching to get out in my garden.  I have a prescription for PT but I may skip it as my range of motion is pretty much normal.  I was expecting much worse.  I am 64 so I really thought recovery would be more difficult.  Guess I am lucky!  Also lucky in that the uninvolved breast which I insisted come off had 3 cm of Grade 3 DCIS just like the other one, but not detected by mammogram.  Had a feeling about that, I must say. Maybe an MRI would have picked it up.  So far, so good.  I see the PS next week about nipples, but my thought is to wait until fall when there is more clothing to cover up as they heal.  Also can't interfere with gardening season with more procedures!

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