August 2013 Surgeries

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  • KBeee
    KBeee Member Posts: 5,109
    edited April 2014


    Thanks Wrenn; I hope you are doing well and that you're recovering from that chemo; I know that round hit you hard.

  • LiLi1964
    LiLi1964 Member Posts: 331
    edited April 2014

    Karen,

    I think I'm also going to just have to let my PS guide the whole implant choosing.  That's kind of what his PA told me but I thought I'd have some say in the matter.  I've been told he is a great PS and my experience with him thus far has been great and I do trust him.  I just don't want the final product to be up so high...I'm tired of walking around with breasts that are at least and inch higher than where they should be and since I too am overfilled by 100cc...I look very freakish.  No..it's not just me.  My husband keeps telling me "you're huge" when I am certainly bigger than I was before and am bigger than I think the final implants will be...but I think he sees the breasts that way because they ride so darn high (and it doesn't help that they both have slipped far from being where they should be which is why I have them in my armpits).  I know my PS is going to have to do quite a bit of nip and tucking to get the pocket where it should be...to get these things where they belong.  And I'm really not willing to easily go in for corrective surgery.  I'm so done with being cut into....  If things don't turn out to my satisfaction, I may just say "take them out and I'm done".  Which would stink, given what we've gone thru getting the TE's placed, the pain, the expansions (sometimes very painful but thankfully I only had 2 like that and the pain only lasted 2 days max).

    So tell me, did your final implants lay lower on your chest than your TE's?  And did you have any problem with them shifting to your armpits (I have like a 1-1/2 inch gap between my TE's...much too far apart than what normal breasts should be) and if you did, did the final implants end up closer together?

    I'm interested in how your nipple recon turns out, given what I had read.  Not that I'm willing to have that done, but want to know how yours turn out when all is said and done.

    Don't get worried about the swelling, please.  I'm still swollen under the right underarm and my last surgery in that area was back in October - 6 months ago!  I was told early on (at my first post-op visit w/BS after BMX) that the swelling can take a very long time to resolve...mastectomies are major surgery and does a real job on our bodies and it can take up to a year for the body to regulate itself.  So please don't have any thoughts that take you to dark places.  Keep an eye on it and if it does not resolve in a couple months, they'll probably do an US to take a looksy.  

    I'm glad to hear that you didn't have a whole lot to say about your implants and are satisfied with the outcome - that makes me feel better that someone else has already entered into this phase nearly as blind as I seem to be on the whole final implant issue and they are happy with the results.

    Take care!

  • babs6287
    babs6287 Member Posts: 2,021
    edited April 2014

    KBee-everything out of what we think is ordinary takes our minds to that dark place!!!  Human Nature!!!  Stay positive-hoping for just overworked lymph nodes!!!!!

    Babs

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2014

    Thanks Babs.  I know you've had a long road as far as these surgeries.  How are you doing?

  • babs6287
    babs6287 Member Posts: 2,021
    edited May 2014

    Karen I'm doing fine.  I need to plan my next FG and then hope for the best-maybe the middle of May????  We'll see!!

    Keep me posted on how you're doing!

    Babs

  • KBeee
    KBeee Member Posts: 5,109
    edited May 2014

    Babs, glad to hear you are doing well.

    Lisa, how are you doing?  Any news?  I have found that the permanent implants do sit lower, and are much more comfortable than the TEs. I was alarmed at first because I thought they were huge, but he assured me it was swelling, and he was right.  I had nipple reconstruction and fat grafting done at the same time.  My R nipple looks great.  My L one has been a problem child.  I went in today because it busted apart last week.  I finally had to take a picture and send it to the nurse because she didn't seem to get it.  That got their attention!  I have been on high dose antibiotic sicne then, and I had 3 stitches put in it today.  

    Wrenn, I know that chemo did a number on you; I hope you are healing.

    PS told me that he "thinks" the lumps are fat necrosis, but that since he can't know 100%, he thought it was a good idea to see BS (who I already had scheduled an appointment with as a routine follow-up).  BS also said that it is "probably" fat necrosis, but that it is in the area of the cancer, which means he is not going to wait on it for too long.  If it is still there in 3 weeks, I am to call him back for further tests.  He called it "concerning" but not "alarming".  I hate the waiting game.  I hate cancer.

  • poodle_mum
    poodle_mum Member Posts: 83
    edited May 2014

    I've been reading everyone's updates here.  It seems for some of us, our journey is not over.  They found two lumps on my left side.  They couldn't tell by the ultra sound whether it was something serious or still due to the inflammation as I've gone through so much with that side.  In any case I see my BS on the 27th and then we'll go from there. If it means more surgery, so be it - I try to keep it at the back of my mind but as the time gets closer, I'm starting to get more nervous.  Ironically I started everything May 28th last year and now May 27th, I come full circle to finding out what my near future looks like.

    Thinking of you all, always.

  • wrenn
    wrenn Member Posts: 2,707
    edited May 2014

    geez Kbeee it is never ending. I don't know how you manage to stay so calm. Sustained stress like that really does a number on people.  I think i said it here before but my onc recommends psychiatrists for most post treatment breast cancer patients because of the struggles. I really hope you can have it all resolved soon. I am sorry this is happening to you.

    I am ok, recently developed hypothyroidism so am hoping treating that will solve the nerve pain, slow hair growth and fatigue.  Am considering antidepressants after fighting against them for so long.  In general, and compared to most here though i am doing well. I am feeling lucky.

    Take care and please keep us up to date.

    Hope everyone else is doing ok considering.

  • KBeee
    KBeee Member Posts: 5,109
    edited May 2014

    Wrenn, Thanks for your kind thoughts.  I don't always hold it together so well!  I think I slept 3 hours Monday night after I got the news...if I was lucky...probably not that long.  I spent much of Tuesday in tears because after learning on Monday that BS is likely going to biopsy the lumps in a few weeks, I had an EMG and appointment with an orthopedic on Tuesday because I've developed carpal tunnel after chemo.  EMG showed not only carpal tunnel, but also ulnar nerve entrapment, and because of a scar on my hand, I can not have the procedure endoscopically.  She is at least goign to do both procedures at the same time, but depending how it goes, the recover will range from 2 weeks to 3-6 months.  It depends if she has to repostition the nerve...which she won't know until she gets in there.  So I went from being done...just periodic check-ups remaining...to now facing at least 2 surgeries in the upcoming months.  It makes me feel so defeated.  I feel like someone keeps moving the finish line.  Monday and Tuesday were rough.  Luckily, I worked Wednesday through yesterday and was wonderfully distracted and supported by my coworkers.  I do have a couple projects  at work I am working on, so I am hoping that the time will pass quickly in the next couple weeks so I can get some answers.  I hope the hypothyroidism treatments help to resolve some of the other issues.  Those hormones can wreck havoc when they are off.

    Poodlemum, That is right about when I'll be seeing mine about my lumps.  I have to call him on the 26th if they're not gone.  It seems to never end, does it???  I hope all results show good news for you.

  • wrenn
    wrenn Member Posts: 2,707
    edited May 2014

    I'm going to remember that "moving the finish line". It is so true. Maybe we have to forget about "getting back to normal" and accept that it is a different world.

    You really are resilient though so you have that base. I hope the hand surgery won't interfere with your work. I know you love it. It must be so hard for you to wait to know what the outcome is going to be for all of this. It just really seems cruel to me that the universe hands it out and hands it out when you have tried so hard to be upbeat.

    I do believe in the end you will be ok and will be stronger than ever. You really are an inspiration. I remember your attitude when I feel sorry for myself. Thank you. Take care of yourself.

    Poodlemom, you have had a rough year. I really hope the outcome of your situation is good and that you can have a break from this. take care.

  • babs6287
    babs6287 Member Posts: 2,021
    edited May 2014

    Hi All

    I tell people that BC is the "gift" that keeps on giving.  Isn't that the truth!!!  I'm so sorry so many of us have had issues and detours on the road to health.  But having each other makes it sooo much better.  Friends, families, etc really have no idea what we are going through as much as they try.  Karen and Poodle Mum try to stay calm until the end of the month-I know it won't be easy but we're here for you.

    I'm having my second fat grafting on May 30 th-maybe this will be the 1 time I don't get an infection!  I hope so because 5 days later I'm going down to Florida to visit my Dad and I want him to see me looking well.  He's 92 years old and I try not to worry him, which is another thing that we do-protect those that we love from seeing what is really going on at times.

    Please be well and keep us posted on what happens!

    Babs

  • babs6287
    babs6287 Member Posts: 2,021
    edited May 2014

    PS called today-he had to move up my fat grafting-it's this coming Thursday, 5/22.  Fingers crossed I don't get an infection!!!!

    Babs

  • KBeee
    KBeee Member Posts: 5,109
    edited May 2014

    Hope all goes well with the fat grafting surgery!  Infection-free vibes coming your way!

  • coffeelatte
    coffeelatte Member Posts: 209
    edited May 2014

    I am so glad I found my August 2013 surgery ladies. I love you girls. I am so humbled by your courage. We are a tough bunch.  I love the Pap smear story, I laughed so hard and can relate so well.

    Lisa, I have looked for you often on this board because I had wondered how you were doing. I was able to follow Wren but I could not find you.  I am so glad you have finally felt well enough to come back.  Your posts are so very interesting and I have learned so much from you. You kept me sane last year when we were going through our surgeries and post-op.  I always looked for your posts as soon as I logged on to this board; they always gave me a good feeling for the day. I am so sorry to hear you have had to go through all of the lung cancer issues. I guess you have had a wonderful cleaning out of cancer and will certainly have a good long life ahead of you so you may recover from all of this stress. Big hugs to you and all of the August ladies!

  • babs6287
    babs6287 Member Posts: 2,021
    edited May 2014

    Karen-thanks so much!!!!

    Babs

  • KBeee
    KBeee Member Posts: 5,109
    edited May 2014

    Babs, I hope all goes well today.  Keep us posted!

    Lili, Any news???

    I had a fine needle biopsy yesterday on the lumps which appeared after the fat grafting.  They have not gone away after a month, so hopefully this will definitively let us know what they are.  I am hoping for results tomorrow.  For now, it's the waiting game...which I love...or maybe NOT!!!

  • wrenn
    wrenn Member Posts: 2,707
    edited May 2014

    Fingers crossed here KBeee. Going to be a long day. 

  • babs6287
    babs6287 Member Posts: 2,021
    edited May 2014

    just left the hospital  all went well. Dr said I'm out of far now. Hoping not to get cellulitis now. Taking lots of antjbiotics to hopefully prevent that

    Karen. I m waiting with u. Keep me posted. Hugs. 

    Babs

  • Jo6202
    Jo6202 Member Posts: 372
    edited May 2014

    KBee, hoping for good news for you. I'm not posting much these days but still like to know what is going on with the August group. 

    Good luck to you too Babs. 

  • KBeee
    KBeee Member Posts: 5,109
    edited May 2014

    Babs,mHoping those antibiotics do their job so you avoid complications.  

    Thanks for the good wishes everyone.  I will post my results when I get them today.  Hoping for a call between noon and 3.

  • KBeee
    KBeee Member Posts: 5,109
    edited May 2014

    I finally called since they had not called me. Rotten nurse who is so mean had left for the day, so I talked with a nicer nurse, though not one who knew anything about me. Pathology said benign, with no abnormalities noted. There were a lot of lymphocytes. She did not know what they meant other than maybe inflammation. It was not fat necrosis, not a fluid-filled cyst, not a fatty cyst, not a lymph node, so I do not know what it is. I do know what it isn't - cancer. Perhaps just inflammation. There are several lumps and he just sampled one, but I am confident they are all the same. I see him in a month and can ask more; I also asked the nurse to send me the results so that I can dissect them further myself. I wish I had a specific answer as to what the lump is, but I am relieved about what it isn't!

  • wrenn
    wrenn Member Posts: 2,707
    edited May 2014

    Whew, good news K. I too wish we could get definitive answers to these things. I hope you won't worry too much in the mean time. 

  • babs6287
    babs6287 Member Posts: 2,021
    edited May 2014

    Great news Karen -NO cancer!!!!!!

    Love hearing that!

    Babs

  • poodle_mum
    poodle_mum Member Posts: 83
    edited May 2014

    Good news KBee, at least you know what it's not, that should give you a lot of relief.

    Keep me in your prayers guys, I go on Tuesday to find out what my future holds.

  • babs6287
    babs6287 Member Posts: 2,021
    edited May 2014

    poodle mom

    Sending positive vibes your way. We're all here for you !!!!!!

    Babs

  • KBeee
    KBeee Member Posts: 5,109
    edited May 2014

    Poodlemum, Let us know how it goes.  Thinking thoughts of good news for you.

  • Pam358
    Pam358 Member Posts: 294
    edited May 2014

    Babs - glad to hear the hospital went well and I hope it continues on a positive path.

    Karen - yayyyyy for no cancer!

    Poodle_mum - wishing only the best for you on Tuesday! Prayers coming your way!

  • Jo6202
    Jo6202 Member Posts: 372
    edited May 2014

    KBeee - great news! 

    Poodle Mum - good wishes for you on Tuesday. Prayers being said for you.

  • poodle_mum
    poodle_mum Member Posts: 83
    edited May 2014

    Surgery is scheduled June 20th.  I walked into the office and she had the surgical envelope sitting ready on the table.

    Ladies, I'm having a really hard time with this one right now.  My biggest "goal" last year was keeping my nipples.  Now, I'm going flat with  no nipples, no reconstruction.  I also have to have genetic testing done later because she's concerned about ovarian cancer due to breast cancer going through both sides of my family.

    I'm trying to wrap my head around the no nipples issue.  Please, for those of you who have lost yours - I need help to deal with this.

  • Pam358
    Pam358 Member Posts: 294
    edited May 2014

    Poodle_Mum - so sorry to hear you are having a difficult time.  I don't have any advice as my surgery was different, but I'm wishing you nothing but the best.

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