Mastectomy aftercare

SpTeach
SpTeach Member Posts: 7

My wife just recently underwent a bilateral mastectomy with reconstruction. I empty her drains and measure the fluids I also wake her every 4 hours for pain meds and 2 hrs later for another medication.  She still has alot of pain, I know it's only been 2 days but I feel helpless.  What else can I do to help her?

Doug

Comments

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited May 2014

    Hi SpTeach:

    I first want to say I'm sorry for your wife and bless you for being there for her! 

    My husband helped me tremendously by emptying drains, getting me meds, food when I felt up to it, doing bed baths since my plastic surgeon did not want me to shower until my drains were out, washing my hair (which is very long since I could not shower and do it myself, managed the household (laundry, dogs, etc.  Our kids are grown).  Helping me to get out of bed to the bathroom was even a chore and getting me to my many doctor appointments!

    Just even BEING there is a comfort, even when she is asleep from the meds.  More than you will know right now.  Keeping her company so she does not feel isolated and get depressed.  I believe laughter is good medicine and if she knows you love her no matter what, that goes a long way toward recovery!Smile

  • SpTeach
    SpTeach Member Posts: 7
    edited May 2014

    Thank You.  I appreciate the kind words.  I was blessed to be able to attend all of her appointments and all 16 rounds of chemo.  If I may ask how long does the initial pain last?  She hurts so much....I hate seeing her in so much pain and having no ability to take it away.  I think it might help if I could give her a ballpark figure of when it might ease up?

    Thank You and God Bless

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited May 2014

    Doug - thank you for being one of the good guys. Not every husband "gets it' or is even able to help.

    My DH was my rock... attended every single appointment with me. After BMX he brought me home to my "nest"... the corner of the bedroom where he had set up a hospital bed for me. Sooo much easier for me to maneuver in and out of bed, and get to the bathroom by myself.

    Even though I was capable of doing it myself, he took care of all my drain management. (All those years as a volunteer medic on the fire department paid off!)

    I think the hardest part for him was watching me be in so much pain... that even  I hadn't anticipated. The BMX was a piece of cake, I think, but the Tissue Expanders were hell. I cried every day for a month. I begged him to take me back to the hospital to have them removed, or else I would do it myself. 

    I finally learned (from this forum) that I needed to take ALL my meds exactly as prescribed... no skipping. I learned that a body that is in pain is stressed, and a body that is stressed does not heal.

    So that's what I did. Took Norco and Valium around the clock. DH was awesome at bringing me all my meds, setting his clock for my 4 a.m. doses and bringing me a few crackers or applesauce to eat with them.

    When I finally could, I took lots of warm showers, and had DH massage my back muscles. During recon, muscles and nerves are cut, and they can cause lots of pain.

    He was my chef, my valet, my chauffeur, my hairdresser, my nurse, my cheerleader, and my rock. The best thing he ever did for me was to just sit on the edge of the bed when I was crying and pat my leg, telling me "This will get better." "We're in this together." "We're a team."

    Two days? Yes, she's probably in a lot of pain. Many women here don't feel pain as much, and find that they are active and relatively well within a week. That didn't happen to me.

    But my DH just took over my schedule, encouraging me to do the little things for myself, asking if I'd like to go for a walk, and letting me rest and nap when I needed to.

    Within a month, I was fully independent and out of pain. I know that sounds like a long time, but it took as long as it took. DH remarked "You were independent a lot sooner than I thought you would be!"

    So just keep doing what you're doing. And remind your dear wife that "This too, shall pass."

    God bless you for all that you do. Wishing your wife a speedy recovery.

  • wandawoman
    wandawoman Member Posts: 25
    edited May 2014

    Doug,

       I did many of the same things blessings2011 did for pain management. It was probably about a week after my tissue expanders were placed before I started to feel human again. I could not believe how much pain I was having. The bilateral mastectomy was a breeze, so the pain from the expanders really caught me off guard. Even after that first week I was still constantly uncomfortable. I found that a heating pad to my back really helped with muscle spasms. Once the drains are out and she can take a warm shower, that will help also. In addition to the pain medicine, if she has an antianxiety medication, this will help too. Hoping for relief for your wife and comfort for you.

  • SpTeach
    SpTeach Member Posts: 7
    edited May 2014

    Thank You.  I appreciate it.  I think the expanders are the worst part.  It's hard to say where the pain comes from.  Have a blessed day!

  • yoboo
    yoboo Member Posts: 1
    edited May 2014

    hey man,   I'm doing the same procedures as you are. It's now been two days for my wife,  left side reconstruction.  Same as you,  I do not like seeing her go through the pain. 

    How are you doing now? 

  • eric95us
    eric95us Member Posts: 2,845
    edited May 2014

    When my wife had her TEs placed, the doctor gave my wife some muscle relaxer medications as well as the pain medications.  

    She said could tell when it as time to take another dose of muscle relaxers....even with the pain meds.

  • sarahjane7374
    sarahjane7374 Member Posts: 669
    edited May 2014

    After my surgery, I was in quite a bit of pain for I'd say about a week.  The pain, for me, was chest muscles not incisions.  I mean think about the procedure - lots of cutting and stretching happening there.  I was ok as long as I didn't move.  Transitioning from lying down to sitting up, dressing, opening my rx bottles were all difficult at first.

    My Flexeril (muscle relaxer) and ibuprofen were my best friends.  I found them together to be way more effective than narcotics, and without the nasty side effect of constipation.

    As for help, just having someone around to do things so I didn't have to was great.  Someone to take care of the kids, feed the dog, make coffee, clean up, etc.  Other than that, I kind of preferred to be left alone to rest and recover.  My mom made meals for us for a couple weeks and it was great not to have to cook for a while.

    It got better for me pretty quickly once I had my drains pulled on day 6 post-surgery.  I don't know if it was partly psychological or what, but it's hard to feel like you're on the mend when you have tubes hanging out of your torso.  My PS told me if I sat around and did nothing, it would take longer to heal.  So I did walks around the block at night while I had my drains, and the day I got them removed I walked 5 miles. 

    Everyone is different and some bounce back faster than others.  I didn't have the added challenges of chemo and rads, so I know I am lucky in that respect.  My sister, who had a bilateral mastectomy, reconstruction, plus chemo and radiation, had a much more difficult recovery.

  • SpTeach
    SpTeach Member Posts: 7
    edited May 2014

    Thank You.  I do change her drains, measure and record the amounts.  I am keeping up on house work as much as possible.  I am also working full time.  Her sister is here right now to watch her while I'm gone.  I appreciate your help.

    Doug

  • TechLady
    TechLady Member Posts: 39
    edited May 2014

    Hugs to you and your wife, SpTeach!  I second what everyone said - your support is helping in just the way she needs. 

    I do also stress the need for a muscle relaxer!!  This was not originally part of my med list in the hospital. They kept upping my pain meds and it made NO difference. Finally a very smart PS intern suggested Valium. FINALLY, some relief. I even had them up it at one point and it made a world of difference. And, don't be shy about taking to her PS. He/she may be have some suggestions.

    Also - I cried a lot in the first couple weeks. My DH's hugs and comfort kept me going in a way I still can't quite voice.

    Blessings to you both!! It will get better.

  • DiveCat
    DiveCat Member Posts: 968
    edited May 2014

    I was one of the fortunate ones in that, though it took a full day in hospital to get my pain and nausea under control, I felt more discomfort than pain after that and went off narcotics entirely within 3 days. Now I just take some Robax with ibuprofen 2-3x a day as needed. I found more relief from the Robax than the Percocet! I am sorry your wife is having a difficult time with pain. You may want to contact your wife's surgeon and tell her pain is still not under control and see if another prescription might be better...many women find more relief with muscle relaxers and not all people get the same relief from some narcotics as others do (I for example found T3s to have little effect on me except to make me incredibly nauseous). Pain control is soooo important to healing and mental state. It is also important because she needs to get up and walking at least short bouts, to improve healing through increased blood flow (and reduce risk of blood clots and lengthier and painful constipation). I really credit walking to my healing (I have done 5-6 miles daily since Day 3, even with drains in). Of course, your wife has also had the added difficulties of a cancer dx and chemo so her recovery may be a bit slower, which is absolutely fine and her recovery is HER recovery. but it is important that she gets the pain under enough control that she can at least do walks around house a few times a day...a little longer each day.

    I was able to handle (and wanted to handle) my own drains and medications, but where my husband was wonderful was in helping me sponge bathe, washing, drying and brushing my hair, get dressed, fluffing my pillows, going for walks with me, making me tea, bringing me water and food, handling housework (especially all the laundry as I needed clean PJs and towels all the time!), running errands, and just being very supportive. All he did was continue to be my best friend, and really that was key.

  • eric95us
    eric95us Member Posts: 2,845
    edited May 2014

    My wife also had what I called a pain ball.  It looked like a very large softball in a sling with tubes coming out of it that went into the incisions.  It continuously administered small amounts of local anesthetic.

    Your time, love, patience and understanding will be the most important of all....and it sounds like you have that covered....

  • aviva5675
    aviva5675 Member Posts: 1,353
    edited May 2014

    you are getting great advice and I second it all. The one thing I would add is please be patient with her emotions.  For a number of weeks between my dx and the following few months, including the bmx and afterwards my emotions were all over the place. I cried easily for little reason. I understand that my levels of everything were at a low point and I had been thru so much in a few weeks. My husband was very good but I think it was hard for him to understand that part, especially with me being pretty stoic about stuff for most of our relationship. He snapped at me one time when I started to well up, and it was upsetting to hear. So hang in there! She is lucky to have such a caring guy.

  • ziggypop
    ziggypop Member Posts: 1,071
    edited May 2014

    You guys are great to care so much & take the steps to figure out what you can do. Unfortunately, for the first really bad days, there's not much you can do other than what you're already doing. It takes time for a lot of us just to recover from the anesthesia and sleep and rest are what we need. Do make sure that if your wife is on narcotics, that she's taking a daily stool softener. The other thing that I found to be important was to have a few options of things to drink (with bendy straws or in a sippy cup) close at hand. The ladies have already offered great advice for a little further on & usually within a week or so things start getting a lot better & then it will be you job to make sure that you wife doesn't do too much - you can easily get a seroma or tear stitches by overdoing too soon. 

    Just remember, this is going to be a marathon for you and for your wife. A lot of people think that things will go right back to normal after treatment ends - but that doesn't seem to be as often the case as one might expect. You're doing great.  

  • SpTeach
    SpTeach Member Posts: 7
    edited May 2014

    Doing okay.  Working and getting up every two hours to check on her, give her her meds and so on.  Tired but making it.

    Doug

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