DIEP 2014

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  • Janet_M
    Janet_M Member Posts: 1,068
    edited May 2014

    Ridley - Thank you!

    Teacher - It would indeed be awckard to talk about nipples in front of a class room of 17 yrd olds. Couldn't even begin to imagine what they'd be talking about in the schoolyard. 

    Lemon - So great to hear from you. Hope that the pain is a thing of the past. 

    I'm thinking of all this week's girls today.

    Meg2 - My brain hurt too over the decision making. There were so many options and I was so scared. So, that's why I ended up at a hospital psychiatrist - she she cold help coach me through the process and save my sanity. 

    If I had to go back and choose between a month of decision making - or a month of surgery/recovery, I'd pick the latter anyday. 

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited May 2014

    Curlylocks, so good to hear from you. I'm so glad you are done with chemo and I hope your symptomlessness re: your kidneys continues. I have often thought of you and said a prayer. No wonder you are tired! You didn't really get a chance to recover completely after your DIEP experience when the new assault happened. I hope you have turned a corner and can start to just rest and recover. No radiation since you already had it, right?

    Dyvgrl, you are sleeping now while the magic happens. You are well on your way to putting cancer behind you but you'll need to be patient and gentle with yourself first. Remember, healing from DIEP is a marathon, not a sprint.

    Yay, Teacher, for getting a date!

    Naiviv, good to hear your excitement and that time is flying by. 

  • AnnBR
    AnnBR Member Posts: 853
    edited May 2014

    lemon, welcome to the other side!

    So sorry, I have not taken the time to read through all the posts so I am forgetting where some of us are at with our journey. My PET scan showed two areas that the oncologist wants to further test, so tomorrow I am having a bone biopsy and on Monday, a stomach scope. I was switched from Tamoxifen to Letrozole. Best case scenario - the cancer is contained in the node and I will need rads. Worse case, it has spread and I will be diagnosed as stage 4. I have been in the Rochester area for 10 days and am returning home for the weekend as I desperately need a change of scenery. We live about 3.5 hours away. Hopefully I will know results on Tuesday. I guess the node was in the middle of my chest (behind a vein) and would not have been discovered had I not had reconstructive surgery. I am trying to remain positive. Thank you ladies for allowing me to share. It helps!

    Ann

  • thinkpink4ever
    thinkpink4ever Member Posts: 205
    edited May 2014

    Praying for you, AnnBR!  I can only imagine how you're feeling right now, and I hope the change of scenary this weekend helps. 

    I don't see my breast surgeon again until Tuesday, and I guess I'll get the results of my MRI.  But, now I've gotten myself all upset about some shoulder pain that I've been experiencing in my right shoulder blade.  My mind keeps focusing on the negative and that it's possibly mets to the shoulder.  Why am I thinking this?  Jeeze....I'm so ready to have this surgery and starting healing and get back to normal.  What an emotional rollercoaster I'm on....

    One love,

    tp4ever

  • Zenful
    Zenful Member Posts: 599
    edited May 2014

    AnnBR, thanks for the update. I'm sorry you have to go through this, but what a double blessing your reconstruction was!  I am keeping you in my prayers. Please keep us posted. 

  • J1971
    J1971 Member Posts: 18
    edited May 2014

    I had my "good side" taken after other side removed nearly 15 months ago. 9 weeks out. No regrets. I didn't want to worry for the next 50 years. After review with my MO- no more tamoxifen, mammograms, or MRI. 

  • nihahi
    nihahi Member Posts: 3,841
    edited May 2014

    goldie.....heard on the "Moving On" thread that you made it home today. Hang in there, take the pain meds, and just deal with things one day at a time. Sending hugs.

    "waving" to everyone too.....sending positive vibes to everyone.

  • JerseyMomOf3
    JerseyMomOf3 Member Posts: 96
    edited May 2014

    Ann BR- sending you all good thoughts, peace, and strength while you wait for results. Best wishes to you. 

  • iowagirl1
    iowagirl1 Member Posts: 130
    edited May 2014

    Ann,  I am sorry.  I will keep you in my prayers. Hope you can relax and enjoy your home and family this weekend.  Hugs.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited May 2014

    Hi All,

    I am going to be  brief....lol.  I know,  I know, does she even know how to be brief?  4 very miserable days, but I am home.  The tummy part is the worst for me.  I think the PS was surprised at how tight he had to pull me. he as much said so.  He came in the next morning after surgery and redid the dressing on tummy himself to have a good look at it.  He also over estimated how big he could make my breasts, but I am not going to get to upset till I have a good look at them. Right now I have to baby this tummy.  The incision area burns like fire right now, but it is time for a pain pill.  Had my sleepy bladder issue again after anesthesia, but it resolved fairly quickly. 

    I don't know which drug, or what combination of drugs did it, but I was hallucinating at one point.  It was very strange.  My room had fake wood floors and the fake wood grain started to move around like thousands of worms, then a kitten ran out from under the bed playing with a little toy.  I guess Wilbur was definitely with me!!!!!!

    I took my first shower just now, and I am ready for a nap.  I hope all is well with everybody else.

  • brendarj
    brendarj Member Posts: 72
    edited May 2014

    You know I was sitting here feeling sorry for myself and slightly depressed because I haven't heard anything from my PS even after sending an email requesting a status update, then as I was reading the posts for the last couple of days especially AnnBR and Curlies  I realized what the hell do I have to complain about. I am more or less healthy, cancer free and have a fantastic support system in my family and friends including new friends on this thread and this surgery will happen when it happens but it IS going to happen.

    So thank you friends for your support and sharing of knowledge and experiences. Special prayers to Ann and Curly

  • LiLi-RI
    LiLi-RI Member Posts: 291
    edited May 2014

    Hi Ladies - 

    I am brand--new to this discussion board. I have already undergone lumpectomy, re-excision, and radiation on right breast last summer and fall for IDC and Mixed Lobular. At my annual diagnostic - they detected hyperplasia in my left breast with the beginnings of Lobular.

    So I have decided with my BS to opt for BMX with DIEP.

    I met with PS on Tuesday - and I am now scheduled for the procedure on June 17, 2014. 

    I am single, 52 yrs old - and live alone. I do have a great support system, but I have used up a lot of support in the last year. It sucks.

    I also self-employed and trying wind-down in 6 weeks will be very stressful.

    I am scared, but positive of my decision.

    Lisa

  • MartyJ
    MartyJ Member Posts: 1,859
    edited May 2014

    Goldie - remarkably coherent post!  the percocet did the hallucination thing to me.  sort of happened when I was in a light sleep.  not fun.  Take it easy as possible for the next 6 weeks and you will be ready to stretch that tummy.  Just remember patience!!!

    Lisa - you are in the right place for good online support.  I am sure your support system will step back in for this surgery.  You can do it!

  • jmb5
    jmb5 Member Posts: 532
    edited May 2014


    Ann - Sending a big hug out to you! Hang in there!

    Glad to hear this week's surgery girls are doing okay. Thinking about all of you every day and remembering those difficult first weeks. I am exactly 15 weeks out today and feeling really well. Looking forward to getting stage 2 done in less than 3 weeks. When you feel lousy, remember that the time really does go by quickly, and all of a sudden, you'll be feeling better and better, and you'll look back at how far you've come and realize how amazing you (and your surgeons) are!

  • Janet_M
    Janet_M Member Posts: 1,068
    edited May 2014

    Goldie - Welcome home! And congratulations on being clean!

    You're very wise not to get upset. Try to take things step by step without judging - it's a long process. The way you look and feel today is not the way you will look and feel tomorrow. 

  • MsW2012
    MsW2012 Member Posts: 226
    edited May 2014

    Hello ladies. I haven't posted in a while. My recovery from chemo (TCH Sept. 2012-Sept. 2013) is finally rolling along nicely! The radiation (March-April 2013) left my little girl pretty tough and unsightly, and the revision surgery (Oct. 2013) was not successful - I look and feel worse now than before. I just met with a new surgeon who specializes in breast recon, which the first one didn't. The first had said I was not a candidate for DIEP but this one says heck yeah.

    I am afraid to hope. On the one hand I know not to hope for perfection, on the other hand I wonder how much better could it be? This new doc says she can do "much better," but I can't go on trust alone anymore. The first ps really let me down. Two things: One, he removed part of my areola and nipple to paste onto the implant side, without ever discussing that possibility with me; two, he said, honest to Pete, "I guarantee you will love the result." Phooey! How can a ps say something like that? I believed him. So now I have a very lumpy sister with a rag-doll-looking nipple, I feel terribly pessimistic.

    Can someone give me some pros and cons from this type of recon surgery? For example, do you still have tight, sensitive skin?

    Thanks ladies.

  • k79miller
    k79miller Member Posts: 101
    edited May 2014

    LiLi...Welcome to the board.  I'm 52 also & self-employed.  I have a great support system too.  I had to travel 8 hrs for my surgery.  My Mom went with me & helped me thru the first couple of weeks.  It wasn't easy taking the time off of work but it was something that I knew I had to do.  I was able to start back to work at 4 wks out.  I'm 7 wks out now & feel great.  I know it's scary just thinking about having to take a lot of time off when you're self employed but you can do it.  I bet that support system jumps at the chance to help you in any way that they can.

    Goldie...welcome to the other side!

    MsW...I can understand your feelings toward both your old & your new PS but I think that you have to have trust in your new PS.  Do they specialize in the DIEP?  My first PS (did the expanders only) didn't even mention DIEP so when I found out about it while doing some research on the internet I was thrilled with what I was reading.  When I talked to my new PS & found out I was a candidate I was thrilled.  At the same time, I was scared to death that something would happen & for some reason I wouldn't be able to have it done.  My luck held out & I'm now 7 wks out & don't regret my decision to have it done at all.  Even though I had to travel for 8 hrs it was still one of the best decisions that I've ever made.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited May 2014

    Msw, it always hard to change docs.  I did.  I left my first PS who botched up my original surgery with implants  I just had my diep this past Monday, and I can't really speak to how I feel about the outcome yet.  I can say "ouch" on the tummy part of the surgery. 

    Okay guys, I have a couple of questions. First, where your new foobs itchy all the time?  The pain in my tummy incision is a burning sensation, normal?  I went home with one drain on the abdominal incision, and the output is almost nil.  I am finding it weird that I have hardly any output.  My appetite is nil, which I expected, so when I do eat something I am making sure it was something worthwhile.  I backed off the pain meds, wrong move!!!  Back on them again. 

    Any word on Georgie?  I heard from Lemon. But, nothing from Georgie that I know of.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2014

    ((((Hugs, Goldie)))).....been a long time coming :) welcome to the flap side. It gets better. You sound really good. Take it easy!

  • Zenful
    Zenful Member Posts: 599
    edited May 2014

    Goldie, it's good to hear from you. I didn't have that kind of pain with mine. I know we are all different, but that combined with the lack of drain output might be worth a call to your PS. Mine was uncomfortable, but not painful. Do you know if maybe they involved the abdominal muscles in some way, or is it the incision itself that is painful?

  • MsW2012
    MsW2012 Member Posts: 226
    edited May 2014

    Thanks Goldie and k79. The more I see about it on the Internet the more excited I get. It sure looks a lot more natural than the implants. Yes, Dr. Karen Horton specializes in DIEP/SIEA flap surgery. She says it's a five- to seven-day stay in the hospital to monitor the grafted artery! We'll see how much my insurance will cover. It is hard to get past a bad experience with one surgeon but there are great ones out there. My MO says all of this one's patients that she has seen have been very pleased with their results. That says a lot.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited May 2014

    Goldie, hope your recovery is safe and uneventful! I know you know to be patient with yourself and not to overdo. Your date has finally come and gone! Control the pain and be proactive against constipation!

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited May 2014

    Thanks for the input on the tummy.  It is pulled so tight I cannot stand up even if I tried.  That kind of freaks me out.  I hope to see my PS early next week. 

    I knew there would be discomfort, but this is a big surprise.

  • Ashira
    Ashira Member Posts: 161
    edited May 2014

    Welcome Lisa;

    You've come to the right place for support. I too am single , and am three weeks out from phase 1. It has been a miracle the way that friends, new and old, have made themselves available for support. You can definitely do this. 

  • MsW2012
    MsW2012 Member Posts: 226
    edited May 2014

    Thanks cindybthen. Prayers are always appreciated. I will be praying for all here too.

    Goldie4040: In the hand-out they already gave me, it says the tightness in the tummy area can last for a couple of months and that it's okay. It says not to try to stretch it, that it will stretch out naturally on its own. Of course I can't speak from experience yet, that's just what my post-op hand-out says. I hope it gets more comfortable for you soon. It would drive me crazy too, not being able to stand up straight.

  • lahela
    lahela Member Posts: 515
    edited May 2014

    Goldie, it is so good to hear from you. You know from my complaining on the 2013 thread that it took me 12 weeks before I was anywhere near upright. Some of us are just pulled tighter than others so we just need to be patient. Let your DH wait on you hand and foot  ;)

    GeorgieGirl, hope you're doing well!

    Ann, thinking of you.

    Lisa and MsW, wishing you both all the best.

  • rose111
    rose111 Member Posts: 34
    edited May 2014

    I am relatively new to its post and am wondering if any one else has had scheduling issues?  I was scheduled in late April for my  r mx with immediate DIEP on 06/23.  Recd  a call from PS on 5/7 that they had a cancellation and wanted to move me to 5/12.

    Next day called to say that it would probably be 5/20.   Next day called to confirm 5/20.  Yesterday called to say PS would not do DIEP on 5/20, new date might be 6/27, I would hear more next week.

    I know I am a little over-emotional these days, but is this normal?   This is certainly not the most serious concern on this post, I am trying to keep it in perspective, but I am feeling very  apprehensive .

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2014

    Good morning, flappers!

    Rose - some of the women here have seen a share of scheduling issues, yours seem to be at the extreme end of it. So sorry. That must be so frustrating. And I am sure it only adds to the apprehension. The unknown always produces apprehension, your feelings are understandable and I think what most of us would be feeling. 

    Did they explain what the issue is? If you work can you tell them you need a solid date for planning purpose with your employer? Just a thought.

    Hugs, honey, it WILL get scheduled and it sounds like it will be fairly soon.

  • MartyJ
    MartyJ Member Posts: 1,859
    edited May 2014

    Goldie - you are getting "the lecture" from everyone this morning!  Please do not push yourself. You are days from this surgery and there is absolutely no need to be an over achiever.  You don't have to be the first to stand up straight.  Do not let these thoughts even wander around in your brain.  Time, please give yourself time so that you will have the outstanding result you deserve.  Things will change every day!

  • Janet_M
    Janet_M Member Posts: 1,068
    edited May 2014

    rose111 - It's sort of normal.  At one point, while I was waiting for a date, they said they'd had a cancellation and could I come  in eight days. I said no. Then I waited for a new date, which would have been three months later, but then they called to say that they were moving it up three weeks ahead of time. 

    I agree with Bailey. You might feel better if you tell them how important it is to have a solid date. And then find out why they keep moving things around. Ask a few questions - it will ease your apprehension if you have some facts and are aware of the process. 

    I was told that scheduling is very tight. Your two surgeons, and an OR for 8-12 hours. I was told right of the bat that my dates would never be 100% solid - because emergencies do arise. There was no extreme urgency to my surgery  - because I'd gone through chemo, surgery, rads, and I had a larger window of time. Easy for them to say - it was my life that was being put on hold.

    I feel for you - the anticipation of surgery and recovery is very frustrating.  My advise would be to pick up the phone on Monday, and check in with your PS. Be a squeaky (& informed) wheel.

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