DIEP 2014
Comments
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AnnBR, sending hugs to you.
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Sending all the best wishes in the world to the Cinco ladies and to Ann! {{{{{{{{{{hugs}}}}}}}}}}
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Ann - I love the 'healing remarkable well' part. Keep it up! Don't let the other bump in the road throw you off your game - sounds like you've got a very caring, fast acting team. I know that waiting for results is a challenge - I'm sending calm energy your way.
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AnnBR Sending gentle hugs and prayers. I think Ridley said it best and I will be thinking of you and hoping for only good Karma -
Ann I had an app yesterday (monday) wiith Dr. Lemaine. My appt was at 11 and I left at 1. Perhaps we crossed paths. Hope your news is good.
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A bra suggestion - I sort of think of the period between DIEP and the end as puberty - our boobs are changing, lots. My doc is a no underwire kind of girl. For the first few months following surgery, I wore a light stretchy Bali that reminded me of a trainer. After Stage 2, I met a very interesting athletic bra. This one does not compress you in any way. It is very well engineered and really holds you gently, but firmly in place. It makes the girls look good in athletic wear and dress clothes, plus treating them very gently. It is #5521 by Anita Active.
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AnnBR - I am so sorry you have hit this bump in the road. Praying for peace and healing as you wait for results and a treatment plan.
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MartyJ and Cindy, thank you for sharing your bra treasures!Teacher, I don't know if you have a Nordstrom's near you, but that's another option you could consider in your search. I had a very good experience there when I went to be fitted for my surgical cami, and then again for my prosthesis and bras after my surgery. The store has among their sales staff women who are not only well versed with the specialty items, they are also experts with insurance paperwork, and are the most compassionate women I've ever met in a bra fitting room. I was terrified when I went in for my first appointment, as I had not yet had my mastectomy, and that surgery scared the heck out of me. I think I cried most of the way through that entire appointment! Good thing they had a full box of tissues in the fitting room. The woman who fitted me couldn't have been any sweeter. She was SO kind and caring. As soon as she came into the fitting room and introduced herself, I knew I was in safe hands.
Just my two cents.
Tina
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Thanks for all the bra advice. My shopping experience was the first time in this process that I felt like screaming. I'd had my moments before but never in a public place. Now I feel armed with advice and know of several places to shop. It's the seemingly little things that sneak back in with a pinch and remind me of my new normal.
Cindy's, loved the photo.
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teacher- I went bra shopping also! Right after my appt with PS. No more appts until fall! No more ugly post-surgical bras!
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One more bra find -- Playtex -- 18-Hour Seamless Smoothing Bra #4049
My challenges were finding one where the cups are shallow enough (e.g. don't have the same projection that I used to), but with thick enough fabric that my "crop circles" were not showing through. Also, I don't need any padding, as I'm big enough already.
This one works great for me, and it is only $18 on Amazon. Size wise, it is true to fit for me so ordering online was not a problem and gives me more support and a better shape than the really soft bras.
Cinco girls -- thinking of you -- hoping you are all resting peacefully.
Ann -- hoping the tests all went OK -- fingers still crossed for the best possible results tomorrow.
Ridley
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Hello my new friends,
I was just diagnosed with BC on Thursday for the second time - it may be a local recurrence in my right breast. I've already had radiation to that breast, so I will be having a mastectomy. Most likely, I will opt for a bilateral with reconstruction, and I'm seriously hoping I'm a candidate for the DIEP. I'm 53 yo, and was diagnosed 13 years ago at age 40 - had lumpectomy and sentinel node biopsy, and radiation in 2001. No chemo. The first time around, the major players on my team were my mother and my husband. Both of them are gone now - I lost my 74 yo mother ( a 29 year BC survivor) to Stage IV lung cancer in 2010; As for my husband, he's still alive - just "gone", x'ed out of my life, goodbye! Lol
I see a PS on Monday, and I'm scared to death about this surgery. Just scared to death. Cancer has been all in, through, and about my life, but I will not allow it to consume me or devastate me. God's got this!
I think that the experiences of others will definitely be helpful to me as I prepare for this second battle. Looking forward to getting to know all of you and supporting you through your journey! God bless you all...
One Love,
tp4ever
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thinkpink4ever - Welcome. I'm your age and had bilateral DIEP as well. At first the idea of the surgery is overwhelming, but the more your learn the easier it is to absorb, and the more sense it makes. Also, it a process.When it was first explained to me my knees almost buckled, but when I look back to last summer, it was absolutely not the scariest things I've ever gone through, and it's absolutely manageable. When you break it down into it's little pieces, it becomes easier to do. Most importantly, you'll have a bunch of seasoned warriors to support you - and offer their wisdom, knowledge, experience. You won't be alone.
Whenever I freaked out about something, and I wrote to the ladies on BCO, they always said something to calm me down. Once you see you PS you'll probably feel calmer. I always left my PS's office with a lower blood pressure than when I went in ( I would have been even calmer if I didn't have such a crush on him)
I'm very sorry for your re-diagnosis by the way. Nobody should have to go through it once, let alone twice. And my sympathies for the loss of your mom. (And as for the ex - good riddance I suspect? )
One of the ladies on the thread calls this ordeal a 'rodeo'. I like that. It sounds less intimidating than 'battle' or 'journey' in my books. Plus it makes me feel like a cowgirl. No matter what you call it - you'll have lots of help along the way.
Janet
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thinkpink-I'm sorry to hear about your mother but keep thinking those positive thoughts. I think you are wise to consider the BMX. No need in taking any chances with it coming back again.
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Hi TP4Ever -- sorry you were diagnosed with a recurrence (and losing your Mom to cancer) -- you will get through this though.You found the right thread too. Take some time to read this and even the DIEP 2013 if you like. Reading the 2013 thread helped me feel totally prepared for the surgery -- still scared and anxious -- but prepared at the same time. I felt like I knew what I should expect, knew what the possible complications could be, but also knew (in my head if not in my heart) that all of the complications would not happen to me.
Are you going to The Center for Restorative Breast Surgery in New Orleans (assuming you are from Louisiana based on your signature). If so, there is another thread under NOLA if you search. They have an excellent reputation for DIEP surgery.
Anyhow, I have to run as I'm in a busy period at work, but wanted to welcome you and say ask any questions that you have. Lots of peeps on here who have been through the surgery just recently or months ago to answer your questions.
Take care,
Ridley
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thinkpink, once I said my choice of DIEP out loud, I didn't regret it one iota. So sorry about your mother but realize we are here for you. Keep us posited. Prayers to you.
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ThinkPink - how blessed you are that you live where much of this flap surgery was developed (at LSU). I am sure you have quite a few wonderfully qualified surgeons to chose from. Think it through carefully, don't jump with the first pretty face (er plastic surgeon). You can do this!
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tp4ever...so sorry to hear your news, hugs to you from Washington state. I am 51, and had a single mx last November and found that it wasn't nearly as bad as my mind had imagined. There have been many advances in treatments and surgeries in the past 13 years, I was in the hospital for just 29 hours from entering and leaving. There was very little pain (for me) and the recovery was slow but steady. I am doing a DIEP later in the year and am following the journeys here so I can be well prepared. You will find good support here and plenty of advice. From one single girl to the other this can be done without a spouse or SO, I had plenty of help from close friends and family and it is very doable. Once you visit the PS and get all the details you will find some peace of mind to get you through the rest of the treatment. I am with you I made the choice early on to not let BC steal from me. It may have taken up residence in my body for a time but it can't take my joy, my sense of humor or love of life. We'll do this together.
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Ann - we are all with you! If you feel weak, lean on us. We are strong for you.
tp4 - Welcome to a very supportive group. Gather your information and go into this armed with a plan; no rushing.
Bras - I just purchased the Soma vanishing back no underwire. It helps because my stage 1 boobs are not the same size yet (thanks radiation). It has enough shape to cover the difference until my freshen up. The sales people are wonderful in every Soma I have visited. We have a Soma outlet and the sales people there are very will trained as well.
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Happy Tuesday everyone! I missed a couple of days and have so much to catch up on.
Today I got all my drains out. I feel like a new girl...One little sadness is that my boobs are now shrinking (16 days out). My
boobs are soooooo small -- I think I am gonna end up in a training bra.(the PS promises she will revise me to "fluff" me up and lower the scar if I want).
Ann, congrats on feeling well so fast. I am sorry to hear about your surprising path report. My fingers are crossed for you on all the next steps.
jmb, I'd share my pix with you when I get my binder off in a couple of weeks. My scar looks a bit high too, but more concerning is one little fat lump on the left side (not a dog ear because it is close to the middle of my scar). Ugh. PS says is normal and we can massage or suck out the fat in the 2nd surgery. I am eager to look more normal -- though not really looking forward to a second "procedure". Has anyone here had their second or final "procedure"?
ThinkPink, my fingers are crossed for you. DIEP surgery was something I jumped to fairly quickly (just 3 weeks after diagnosis) and everyone I've spoken to about it said it was a great surgical choice. They called it "doing the Angelina". Ha! My friends who have had BC and doctor friends I know all recommended the double mx and DIEP and I am glad I did it. I hope you and all the ladies with surgeries for the rest of the year will have a good experience.
Warmest wishes to all of you.
-GG
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Ann and ThinkPink- we are here for you! We are circling the wagons and holding you tight.
Marty- thanks for the info on that bra. I doubt I will ever go back to an underwire. My doc really doesn't like them. I still haven't found the bra that I love, except those "trainer" ones. So comfy.
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thinkpink - this is the best site. You get a lot of support, love and info. I check in a least once a day. It is the one thing that keeps me from scurrying around in circles -
Wishing healing thoughts to all that are having surgery this week!! ((((((((((hugs))))))))))))
These two "hamburger buns" are now turning into "pancakes"!! I am so disappointed and I know Stage 1 is all about creating "mounds" then to fix later. But good grief getting flatter and my bra size has gone from a 40 to a 46!! I have an appointment with a lymphedema Nurse Practitioner to see if that is a problem. This is just one of those days that I just don't know where I am heading!! sigh I just hate it that I have come here to complain as I don't want to scare anyone from doing this surgery as all doctors see things differently. I am going to make a consult date with the woman doctor here to see if she understands where I want this to go. I know I have to have patience and you all are.
On a side note but important: My older sister is having a complete hysterectomy tomorrow and she weighs 400 lbs. so you can just imagine all of the health issues she has due to the weight. I will be at the hospital with her husband and plan to take lots of reading materials. It is suppose to be two hours in surgery. She is worried as she should be but I have told her to trust and just show up and let the doctors do their magic. The doctors told her she has to have this surgery or she will have Endometrial cancer as she has precancerous cells now. Please give her good thoughts or prayers. She is a Jehovah Witness so just trusting Western medicine is a huge step for her.
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GG - I had my final stage, 2 weeks ago. I am now done, except for tattooing. I had stage 1 in jan and stage 2 exactly 3 mos later. I am very pleased with everything - I look better than I thought I would. At the time, going thru everything - it seemed like it was a long wait for this procedure & it would never end. Looking back now, the past 1 1/2 years have gone by very quickly.
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Thinking about Ann and Thinkpink. Hope things go well.
Question: from above my breasts to the ab incision I have a burning sensation like a bad sunburn. It is not red though. Is this nerves regenerating. I can't even have a drainage tube or a sheet touching it. Anybody else have this? If so what helps?
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Donna - that is good to know. Congrats on your journey!! I am looking forward to the final surgical stage.
jmb -just took a look at my new belly button and YIKES it is like 2" higher than where I thought my belly button goes. Can this be fixed in the second stage? Husband says it looks normal...I am hoping this is because it will "settle". Sigh. Anyone else with this potential concern?
- GG -
another bra recommendation montelle wireless. On sale at freshpair.com. I went from a 40d to a 38b so quite a bit smaller. This is good for those who are unhappy at how much smaller they are as it is padded and has molded cups and out of the 4 different bras I have bought it's the only one that I think looks good after the diep. It helps my hamburger buns have some shape.
More importantly, Ann and Thinkpink I'm sending my support. I am at the tail end of dealing with a local recurrence 17 years after my first, second round of chemo and double diep. I feel very hopeful about the future and go back to work tomorrow! Whatever you need to do, it can be done, and you will succeed, but I'm sorry you have to deal with it. This is an amazing group of women who have been through it all and will help you too. Hang in there and ask for help and support to get you through.
Goldie and Lemon, thinking of you and hoping you are doing well.
Best, Deb
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iowagirl, that is how many people describe nerve regeneration. My OT said that touching the area with different textures, if possible while looking in the mirror, will help. It helps your brain realize that normal things shouldn't hurt. It should get better but there are drugs that will help if not- gabapentin is used a lot. It will probably get better before you need it, mine did. GL!
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yup....your OT is spot on. You can also tap the areas, starting in normal sensation zones, and move towards the hypersensitive spots. Once your PS gives the ok, you can also massage the areas which helps the circulation as well as scar control along with helping to desensitize. The more you "avoid" touching those spots....the longer it may take to return to normal.
thinking of the cinco gals....and the newbies....sending hugs to all.
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iowagirl - had the same issue. I would just rub my abdomen lightly not using any lotion or anything of that nature. About the time I thought I couldn't take any more, it started getting better. I still have some of those sensations at times, but nothing like it was. BTW, I'm taking Gabapentin for neuropathy in my feet, and I still had problems with the nerve hypersensitivity.
It's so nice to be able to come here and have someone understand what I am feeling! Trying to explain the way my abdomen felt when just a shirt would touch it was so hard for me. I just gave up! So glad you all are here.
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