March 2014 Surgery

Options
1545557596075

Comments

  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2014

    ucf mom - when I first exchanged from TE to implants my PS told me to massage them to avoid capsular contracture.  The instructions were to push as hard as I could, at the clock hands 12, 3, 6 and 9, in the opposite directions.  So this means at the 6 o'clock position I am pushing up, at 12 I am pushing down and at 3 and 6 sideways, respectively. So, he tells me one of the best ways to remember to do this is to do it at red lights when you are driving - needless to say, I got some weird looks, but did it anyway, lol!

    football - hang in, chemo is a bitch, but you will get through it!

  • vlnmama
    vlnmama Member Posts: 98
    edited May 2014

    Footballnut, I love your smile in your picture too! You ARE a trooper and will make it through chemo. Hope the SE won't be too hard on you. Are you allowed to take ginger for nausea? I have dealt with chronic nausea (most of the time mild, but at times quite severe) and have recently started taking ginger tincture and it's really helping me a lot. Most of the time I only need to put one drop in a spoonful of water and it makes me feel a lot better really quickly. You should clear it with your docs first though, to make sure it's ok. (((hugs)))

  • stfne
    stfne Member Posts: 70
    edited May 2014

    frostecat- are you really pushing your stretches so much that it hurts that bad? Im not sure how hard to push things. I do not have full ROM yet. My PS didn't want me to stretch at all until after 6 weeks. There is no way I can put my arms up over my head while lying flat on the floor.

    Ucfmom I'm with you on feeling them. I seem to be checking on them all of the time. 

    SpecialK i can just picture the looks you got. I'm going to try NOT to get those looks at work tomorrow. 

  • vlnmama
    vlnmama Member Posts: 98
    edited May 2014

    Footballnut, 

    One more tip for nausea, wear those seabands. They put pressure on a particular acupressure point in your wrist and also help with nausea. They have never been enough on their own for me, but they do help make meds and herbs work better against nausea.

    They sell them at drug stores.

  • EverForward
    EverForward Member Posts: 242
    edited May 2014

    Here's a nice article from a breast cancer survivor talking about her post-surgery recovery and body image. I thought many of us would find it helpful. 

    http://www.today.com/style/hoda-post-cancer-body-image-you-live-your-life-you-2D79598436

  • LovebeingNana
    LovebeingNana Member Posts: 134
    edited May 2014

    Everforward thanks for sharing that. Wow. SO good. 

  • Kitty62
    Kitty62 Member Posts: 102
    edited May 2014

    Footballnut, you are adorable! Hang in there.

  • Footballnut
    Footballnut Member Posts: 742
    edited May 2014

    hi all!  Feeling better today!  After throwing up twice yesterday and crying and moaning I had a good sleep and think that the meds are working and that I'm learning about the warning signs

    My DH was awesome!

    Now I'm waiting for the nurse to come and give me my shot of neulasta!!  Woo hoo!!

  • ucfmom
    ucfmom Member Posts: 127
    edited May 2014

    I had a follow up with my doctor today for the UTI I thought I had two weeks ago just before my nipplectomy.  (I don't think that's a real word, but it sounds better than saying I had to get my nipple whacked off.)  Her nurse called me last week and said there was blood in my urine and she wanted me to come in for a follow up.  I finished the antibiotic last Friday. There was still blood in my urine today (I can't see it now but could for about two days in the beginning and I haven't had any more pain since about 24 hours after I started on the Cipro), but less blood than there was two weeks ago.  She said there was no infection and no bacteria just blood and we need to find out why.  I have to call and schedule a CT scan, and will have to see a urologist if they find anything.  We're leaving for Key West tomorrow, so I'll call in the morning and try to schedule it about two weeks out.  The only thing I don't get is if I don't have have a UTI why the pain stopped after I started taking the Cipro.  I also still need to schedule a colonoscopy.  I was going to do that right after I got my mammo out of the way in February but we know how that turned out.  Oh well, one thing at a time.  CT first then colonoscopy.  Just when I thought I was going to have less medical appointments!  I guess this is the year for it, good thing I hit my out of pocket max.  

    Footballnut, so glad you're feeling better! 

    SpecialK, that is too funny!  I have gummy bears, so I don't think I'm supposed to massage them, otherwise I would so be doing that.  lol

  • Frostecat
    Frostecat Member Posts: 447
    edited May 2014

    Footballnut - first down!   

    Stfne - My PS said to start stretching after my drain came out and I did.  Getting little better but definitely not full ROM.

    Met with my MO today, he just reiterated what the BS said, but went over everything in great detail which I appreciated. 

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited May 2014

    UCF, well that's a mystery isn't it? They will get to the bottom of it soon enough. I had my long-delayed colonoscopy last Friday. It was delayed for the same reason as you had. BC pushes everything else out of the way.

    You're right about not massaging anatomicals. Also no massage on textured implants either. I think the massage is another one of those things that PS disagree about. I have gummies now but started off with rounds. My PS never said a word about massage with the rounds and they weren't the textured kind. (sigh) Wish these people would agree on something.

  • linda505
    linda505 Member Posts: 847
    edited May 2014

    Blood in urine - I have suffered with that for years and I mean 30+ years - If I have an infection it is visible - if I don't it is microscopic but still there.  Most of my docs know that and leave it alone and don't push for answers - but my ENDO was concerned and sent me to a Urologist.  I had a CT and some other test a few years ago and they finally settled on the fact that I have a very thin layer of skin in my bladder and small blood vessels close to the edge of that skin that just leak slightly.  The doc I saw for that was a horrible person - before the test - when I had my consult - she told me every possible really bad thing it could be - I was a mess when I had the tests but luckily saw her partner to get the results who was great and was sorry about the stress I had been through prior to the test and told me that it really wasn't an unusual thing. ughhh  - hope the same answers for you UCFMOM

  • iwannaseeyoubebrave
    iwannaseeyoubebrave Member Posts: 226
    edited May 2014

    Sooooo, I finally went to the pharmacy today to fill my Tamaxofin script.  I was surprised that they are COMPLETELY out at Walgreens in our area.  Anyone else having any trouble getting theirs filled?

    On a positive note, I took my first step back in the gym last night.  I hit the ellipitcal machine for 30 minutes.  It felt good to get my sweat on.  My goodness, my ribs were hurting though later on!  I didn't even use my arms, just lower body.  It's a beautiful sunny day in KC.  Wishing everyone well.  Smile

  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2014

    iwanna - there is a Tamoxifen shortage, based on a shortage of the active ingredient, or so they say.

    Well it looks like my March surgery, which spawned an April surgery, is now spawning a May surgery - May 9th, to remove my implant.  It will be out for a few months, then I will get a new TE (again - my 3rd), expand, and then exchange (again - my 3rd) for an implant.  So, at least two more surgeries will follow the one next week.  Sigh...

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited May 2014

    iwannaseeyoubebrave

     It does feel good to be back at the gym huh? I have limited myself, started back on the tread 3 weeks post BMX. I have done a few machines but wanted the ok from my BS before doing any of the arm/chest machines. He told me I could go ahead & do whatever ones I want. I cannot do the elliptical or incumbent bike yet, chemo turned my legs to wet noodles & I need to build up some strength on the tread first. (being 60 doesn't help LOL)

    Hope you get your RX!

  • Frostecat
    Frostecat Member Posts: 447
    edited May 2014

    Iwanna - just picked up my script from Walgreens a couple of hours ago.  I think I will wait and start it tomorrow, we have a party to go tonight and I just wouldn't want anything weird to happen.  My MO said if you accidentally skip taking it a day or two here or there it is not a problem, he sad jokingly it's not like a birth control pill. (I'm in Michigan)

    SpecalK - My goodness, how incredibly overwhelming  ((((hugs))))

  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2014

    frostecat - thanks!  I am not really overwhelmed, just feeling like deja vu.  I lost my left expander early in the game for seven months, during chemo.  So this should be a shorter version of that experience, this will be TE #3, and implant #3, so I have some perspective based on previous experience.  It is just a bit bizarre to be in this position, so long after my original exchange, when this should have been an easy repair.  The doc and I never saw this coming, but we will deal!

  • Frostecat
    Frostecat Member Posts: 447
    edited May 2014

    Special you are - love your attitude!

  • Juliecc
    Juliecc Member Posts: 4,868
    edited May 2014

    Wow, SpecialK.  Is it still the left side?  I'm sorry about all you've gone through!

  • scary
    scary Member Posts: 213
    edited May 2014

    SpecialK, I hope you will be feeling better soon.  You are a guru who we look to for advice, lol.  Hugs and prayers for quick healing.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2014

    Julie - yes, the non-cancer side. The cancer side is perfect.

    Scary - thank you, I appreciate it!

  • mnmbeck
    mnmbeck Member Posts: 313
    edited May 2014

    SpecialK....that just sucks!  I'm sorry to hear you are having to go through all of this AGAIN!  Prayers and hugs and love to you.  Stay close....we'll carry you through!

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited May 2014

    I've posted this before, but Special K, it deserves repeating. You know, I've only experienced a fraction of what you have and if I knew then, what I know now, I don't think I would have done reconstruction. Do you ever feel that way?

    image

  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2014

    Sandra - nope! I was flat on one side for 7 months, hated it. I respect those who choose no recon, and understand why they make that choice, but I know that it is not right for me. Also, déjà moo sums this up, lol!

    All - I want you ladies to know how much I appreciate your support!  I also want you to know that I will be just fine!

  • vlnmama
    vlnmama Member Posts: 98
    edited May 2014

    SpecialK,

    You really are strong, and you will be ok! And we'll be here to support you!

    You know, I am actually very relieved to read that you don't have any regrets about reconstruction! It's amazing how I have come to feel close to all of you ladies here, and think of each of you often. After reading all the hurdles you have faced related to reconstruction, I was afraid that you would/could be having regrets; but somehow was afraid to mention it. Not sure if that's because I made the decision to not have reconstruction, and am also really happy with my decision. I don't know. But in any case, it's really good to hear that you're still feeling good about your decision to have reconstruction. We are indeed all very different, and can't possibly all need the same!

    Big (((hugs))) to you!

  • Footballnut
    Footballnut Member Posts: 742
    edited May 2014

    Hi All!  Here's to a sunny Sunday and feeling good!  I've been trying to stay active and just keep busy!  Can't believe that my surgery was March 17th - almost no fluid left!  Hurray!  I don't even miss my  boob!!  I love my La Vie En Rose bras and think that I look much more balanced now.  My range of motion is pretty good - still have some tightness every now and then but the burning is a distant memory - thankfully!  Yup, round 1 of chemo over - May 21 is round 2.  I am hopeful that my SEs do not change from what they are now.  I'm afraid to think about that as I don't want to curse myself!  lol!!!!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2014

    vlnmama - never be afraid to bring something up - it will serve as info to someone who reads this thread in the future. Plus, you can't possibly offend me or upset me because I know you would be asking out of concern and support. I certainly have the option of going bi-laterally flat at this surgery on Fri and walking away from recon but I'm not ready to do that.

  • Sailon
    Sailon Member Posts: 55
    edited May 2014

    Special K -- My heart goes out to you.   The perspective you and other March surgery sisters provide to all is simply amazing  remarkable and invaluable.  May 9th is already getting my full attention and good vibes for you -- you deserve for this to be the LAST removal and TE placement -- with only one more EXCHANGE.  You have patience and perseverance of a saint.  Blessings and good good energy and positive juice for you times 100! 

  • linda505
    linda505 Member Posts: 847
    edited May 2014

    Hey March sisters - hope everyone is doing well - I see some of you in the other threads but wanted to drop in on those that I don't.  I am in day 6 past first chemo - feeling pretty good - worst and longest side effect so far has been constipation and that finally stopped last night.  Other than tired, achy and a little tingly feet and hands for a few days - not bad at all.  Lets hope this continues.  

    SpecialK you know you are in my thoughts and prayers - you will get this done and it will be good.

    Hope all those that needed nothing but the surgery are moving on and enjoying life and recoverying well.  

  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2014

    sailon - thank you for your kind words!

    linda - excellent!  Glad things are under control!  I found tx #2 and #3 to be easier than #1.  Hoping the same for you.

Categories