Got the call this morning

bethq
bethq Member Posts: 311
edited June 2014 in Just Diagnosed

DCIS "moderate"...will have to search that one. MRI tomorrow. Meet with my Dr Friday when she will have final patho report and then "tumor board" on Tuesday. What concerns me is that yesterday I noticed I have two little lymph nodes on my collar bone on the same side that area enlarged. Could this be from the biopsy?

Can't decide if I should tell my adult children??? One is far away and she will totally freak out (her dad had skin cancer and now every time she has anything she thinks she has cancer). One in college and one getting ready to travel out of the country. I don't want them to worry. Is it reasonable not to tell them?

Thanks for any insight.

Comments

  • Coolhart
    Coolhart Member Posts: 21
    edited April 2014

    Hi Bethq..welcome..sorry you are here..but this is a great place for information and support. In my opinion, eventually you will need to tell you children, my suggestion is to wait until you have all the facts..you will know more on Friday and have a plan. DCIS is non invasive which is the best case scenario. Hang in there..it will all come together...

  • edwards750
    edwards750 Member Posts: 3,761
    edited April 2014

    Agree with Coolhart - wait until you know everything. No sense alarming them. My sister in law had DCIS - IMO if you have to have BC better to have DCIS. My sister in law said her Oncologist, which turned out to be the same as mine, said she was lucky. Good luck. Keep us posted. Diane

  • SallyS70
    SallyS70 Member Posts: 947
    edited April 2014

    bethq, I am thinking of you.  I too struggle with when and how much to tell my kids.  

  • bluepearl
    bluepearl Member Posts: 961
    edited April 2014

    Yes, biopsy can affect nodes.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited April 2014

    beth - I'm guessing that moderate means grade 2. You can find out about tumor grading on the main pages of BCO. I don't tell my 29 and 24 y o  children much until I have all the facts. Also the timing could be detrimental to things like final exams. I know this is all a shock to you. The ladies here can be a great support. If you haven't already check out the DCIS thread and the surgery thread for the month you'll be having surgery. The women there are going through the same thing you are at the same time. I found it very helpful. Sorry you have to be here but glad you found us. 

  • bethq
    bethq Member Posts: 311
    edited April 2014

    Thanks Bluepearl....I have to admit when I found them last night I went into panic mode. Farmerlucy that's a great idea, thanks. Yes my daughter's 21st bday is on the 9th and she also has her finals around that time so I don't want to screw that up for her. Farmerlucy I was looking at your info and wondering if you were happy with the reconstruction with implants. As I said right this second I am just wanting them gone...

    Thanks everyone.

  • TRex
    TRex Member Posts: 3
    edited April 2014

    Hi Bethq.  I recently went through treatment for DCIS.  The surgery did leave a dent and scar but not enough to make me want reconstruction or anything.  The radiation was tolerable.  Just do exactly what they tell you to do, if that's your course of treatment.  Use the aloe and the lotion and the cotton t-shirts.  Don't stray from taking good care of yourself.  I've looked up pictures of women's whose skin had bad reactions.  yikes!  I was very, very fortunate, all the way around.  I waited until my daughter took her finals. It was after the biopsy but before the surgery. There really isn't a good time to tell your family. Best of luck to you!

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited April 2014

    Hi Beth - I am happy with my reconstruction. I was on the fence about doing it but in the end my daughter and husband persuaded me to do it. I think they look as good as the original set,  but since they put the implants behind the pec muscles they don't feel the same but it is OK.   I think I'd be fine with no recon, too. Whippetmom is our resident expert on implant sizing so if you decide to go that route be sure to check her thread. The main thing is getting the cancer out. There is a good book out there called The Breast Reconstruction Guidebook that was quite useful to me. 

    If you ever need anyone to talk to I have been there and would be happy to help in anyway I can.

  • songlady
    songlady Member Posts: 12
    edited April 2014

    Hi, Farmerlucy, I too was recently diagnosed and am considering bmx with reconstruction--implants.  With all that I have read, I think I would prefer immediate reconstruction, rather than delayed.  What was your experience?  I'll very much appreciate any "lessons learned" that you care to share..

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited April 2014

    Hi songlady - Sorry for the terrible news. :(  I don't know much about the one step method. I think you need to go about the same size or smaller to do it. There is a thread about it called "one step direct to implant anyone?" or something like that. I have heard that often times women still want a revision to fix this and that. I had some pocket work done at the exchange, (which was four months after my last fill) but decided on 3-d nipple tattoos instead of nips. In hindsight I realize that I may have been able to use that third surgery for one more tiny revision. Mine look really good but the left is a tad lower than the right. Oh well. 

    I did follow my PS rules to the letter, and she is a stickler!

    Divecat on the April Surgery Sisters thread just had one step recon done, so it may help to follow her posts. She is very knowledgeable and I know would be willing to answer any questions you have. 

    Any way I can help please let me know. I am past the scared to death stage, so I can handle anything you want to throw at me!

  • songlady
    songlady Member Posts: 12
    edited April 2014

    farmerlucy, Thanks so much for your help.  It is a blessing to be able to discuss with you and others in these forums.  There are so many helpful people, and what I've learned has been so encouraging.  I pray for your continued successes.


  • pipers_dream
    pipers_dream Member Posts: 618
    edited May 2014

    Bethq, I'd suggest that if you're not ready to tell your children yet, that you keep the news close from other friends and relatives for the time being also.  I was going to wait to tell my college age daughters but I had told my aunt and the news started to leak so fast that I had to hurry up and tell them.  You may wonder why I told my aunt what with knowing she's like that?  She is the only relative I have left  besides my brother and kids and she has had BC twice.  Then my best friend knew and her daughter is best friends with my daughter.  Well my point is that you want to be the one to tell them--you certainly don't want them hearing it from the grapevine.  Good luck to you--you do have time so don't make a decision too quickly.  

  • bethq
    bethq Member Posts: 311
    edited May 2014

    Yes, Pipersdream, I already screwed that one up! I told my BF and told her she could tell people at work....well that sure mushroomed. I've sent private messages to everyone on FB to ask to please not post anything on FB yet, and am considering shutting my account down until we talk. I can tell my one daughter next week after finals but my one out of state is the really emotional one and I won't see her until June, when we fly down (hopeful I still can!!). I really hate to tell her over the phone but I may have to. Urgg really stressing over this. Then there are my parents....just don't want to put this burden on anyone. Problem is my husband is sometimes working until late, I am home trying to study and of course totally distracted now. My mind wanders and I go to a very dark place sometimes and just want someone to talk to but I haven't told anyone so I am out of luck!

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited May 2014

    beth (hug) - I loathed telling my dad  - in actuality it was ok. He was eighty at the time and said "I have seen a lot of things in my eighty years."  I don't know how you can study. I still have trouble concentrating on things like reading a book after over two years. Your family is probably stronger than you think, This is all about you. Vent, cry, collapse - all are permitted and are probably quite healthy and may in the long run aid in your emotional recovery. I tried to be strong too, even to the point of separating myself from the fam and going out to the farm to spend the night because I didn't think the family needed to witness my meltdowns. That was a mistake. My Stephen Minister who is a cancer social worker in real life and with whom I met an hour a week, said I'd be doing myself and my family a disservice if I didn't show them my authentic self. Again - this is all about you. Enlist the help of those closest to you. They will be upset of course, but you'll be amazed how they too can grow from this. They'll get perspective on your recovery a lot quicker than you, so let them be your rock. This is your time. (repeat hug)

  • bethq
    bethq Member Posts: 311
    edited May 2014

    Yep, studying is proving to be impossible. My advisor suggested an academic hiatus but said it was up to me. I am having an terrible time concentrating and have gotten behind this week. Have chapters to read and papers to write. Not sure how this will all go down after surgery, yikes! Wondering if I should just stop now and come back when I am recovering but I feel like that would be quitting and I might let my husband down. I have only a year to go.

  • bethq
    bethq Member Posts: 311
    edited May 2014

    Yep, studying is proving to be impossible. My advisor suggested an academic hiatus but said it was up to me. I am having an terrible time concentrating and have gotten behind this week. Have chapters to read and papers to write. Not sure how this will all go down after surgery, yikes! Wondering if I should just stop now and come back when I am recovering but I feel like that would be quitting and I might let my husband down. I have only a year to go.

    Quite honestly I can't concentrate on anything. I am making stupid mistakes. I ordered two crabcakes to be sent from a local place here in Maryland to my daughter in Louisiana and with shipping it was 80 dollars. Well I arrived home the other day to find the box with the cakes on MY doorstep!! I sent them to myself!!

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited May 2014

    LOL - Hope you enjoy those crab cakes.SillyHeart

    I had to strategically pay bills for us and a couple companies we manage on days when I was a little "saner". Otherwise I would mess things up. My confidence in me being able to take care of things really took a hit in the early days. One day I lost my CC and had a complete meltdown. DH husband walked me through all the places I'd been and we found it.  This crap can really shake us to the core. 

  • bethq
    bethq Member Posts: 311
    edited May 2014

    So if you opt for a lumpectomy, can you still receive implants? Even with radiation? This I am not clear on. I know the options for me are mastectomy/Tamoxifen or lumpectomy/radiation/Tamoxifen....but I was not clear on what kind of reconstruction can take place with lumpectomy and what effects radiation would have on it. My breasts are super small A's and droopy. I do see the plastic surgeon Wednesday.

    I found out today it is DCIS grade 2-3 with comedonecrosis which concerns me...but only 1.5 mm. Surgeon says it is not urgent to do this week and that I have time to decide. Would like to get genetic testing results too.....aunt died age 38 from BC....but thinking results might take a while and I won't have it done til next week.

    Thank  you!

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