angry and scared thread closed
Comments
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Ok well thank you to the few who offered support and help well i was angry and scared.. there were not many but i appreciate
i dont appreciate the mods closing the angry and scared thrad... because it was a personal one in a sense...trying to understand and find balance..
i would have understood closing the other threads... bco past present futur, or vbull thrad... those are not personal...
I am horrified to have witnessed that when a member is angry and scared... the fellowship here gangs on on them and attacks the individual rather then helping them to understand..
oh dont get me wrong some did , like i said...
I know i'm not always right... i have 0 issues with constructive critism... in fact i crave it most times, helps me grow and learn.
In the next week I will be talking at 2 big money fundraisers for the Cedars breast clinic at the royal vic hospital and also at the laubch for montreals dragon boat fundraiser for cansupport.... in my speech i discuss BCO, and the importance of these kinds of communities. It saddens me that i must re write it now...
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I think it is past time that you let this go, thus the locking, and that last statement comes across as extremely passive aggressive.
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Melissa ... looking for the LIKE button.
Celine ... it really is long past the time to let this go. You have started at least 5 threads on this issue in the last few days. You've had tons of responses to your questions. I really hope you don't slam BCO in your upcoming speeches. Or if you must, at least balance it with the facts ... that BCO has literally saved the lives and sanity of many and that countless numbers of us have made lifelong friends extending into our real lives, not just on-line.
I wish you well, but hope you can let this issue rest now.
Bren
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Make sure you include your attacks on stage iv forums in your speech.
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I understand what Celine is trying to do. I think the discussion hopefully gives each member pause to think about how we respond to our comments to each other even if no changes are made. Breast Cancer does not discriminate. The ONLY rooms, and there are more than one type, should be respectful and supportive to ALL members as this site as a whole claims to be.
If everyone here understood all the posts and comments and rooms this came up from, you might feel differently.
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I actually don't appreciate when you post this stuff that you say is not intended to stir drama - but rather to 'stick up 'for other members. I don't need you to stick for me or be my voice and you don't represent my voice. Every post I read from you has some challenge to either stage iv members or the mods or to the rules etc. Its tiresome..and frankly it comes across as very self centered and attention seekingIt appears as if you don't like this community. Maybe this community isn't for everyone. Just because it doesn't fit you , doesn't mean its bad. If it no longer meets your needs , then please stop stirring the pot and be in a community where you feel 'safe'
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Ditto Melissa
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Stop, Celine. Just.stop. The mods locked the thread because you were upsetting people and attacking Stage IV women. You said your piece. People heard you. Now stop stamping your feet and screaming. If there is impetus for change, there will be change - but you can't force change by continuing to harangue people who aren't interested in what you have to say.
I find it disturbing that you storm onto BCO and start telling people what is wrong about the forums and demanding that they be restructured YOUR way. Would you go to an AA meeting and demand they run it differently because you think it should be changed? Would you go to a brain cancer group and tell them how to run their meetings because you don't like how they do it and you think you know better? Would you demand to be allowed to join a prostate cancer group because you don't want to be discriminated against because you are a woman - even though you will never have prostate cancer?
Just because things aren't run the way you think they should be run doesn't mean that they are run wrongly. You are not in charge here. You are creating unnecessary drama and stress for people who are already stressed quite enough. You are not helping. And I repeat - you.are.not.in.charge.here.
Make your suggestions and leave it alone. People will contact the mods and give their opinions. You are far more likely to effect change that way rather than continuing to create threads and complain about being treated badly when you are having tantrums and upsetting people.
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I have only scratched the surface on all this....
Celine, we all want/need support, unconditional acceptance when we are fighting for our lives. I do not have the time, or want to get involved in this BUT do something that gives you constructive, productive feelings. The last people I would want to offend, hurt, annoy, are the wonderful stage 4 ladies that post on BCO.
They are an admirable group, that do not deserve any more negative drama.
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Thank you, retiredLibby.
In the words of Elsa from Frozen, "Let it go!" You have made yourself clear,Celine.
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"In my speech I discuss BCO...it saddens me that I must rewrite it now"
Wow - vindictive much? You only have yourself to blame for the push-back you are receiving and threads being closed. I think you need to get over yourself or go away.
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The question was asked about someone facing death from AIDS or something else posting on a stage 4 thread.That is not appropriate. There are many women here who are facing other diseases along with their breast cancer. There is even a comorbidity topic. I face daily struggles with another condition and it will probably kill me. Does the fact that I know what it is to look death in the face means I know what Stage 4 is like? No. I am not on chemo for life. I had the luxury of stopping AIs when the pain became too severe. My stage 4 friends do not. Do I cuss? Rarely, but I would be doing it more often if I knew that cancer was killing me, every day and all treatment was doing was buying me time. Would I lecture stage 4 women on how they are to face life or post quotes that tell them how to behave. No. I only hope that when my time comes I can face the inevitable with as much grace as my stage 4 friends do. Even those who cuss like sailors or think AR could do better things with her time.
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One word "wow". Why would you hurt a cause with (IMHO) unwarranted negative publicity? This site saved my sanity through the initial diagnosis and progression to stage IV. Did I lurk on sIV threads prior to progression? Yes because I wanted to understand when to contact the onc with symptoms. Did I cry when one of the sIV women left her loved ones for another place? You bet I did. I respected the privacy of women whose "end" including mine is a very different outcome than the media portrays. Too bad the energy of this lively discussions aren't presented by Amy r. This is the real life of bc. People of earlier stages lurking for education the health care field does want to advertise or fear of progression forever or the reality of progression and knowledge of those consequences. I wish you well with your speeches and hope you communicate the real issues communicated on these threads; fear progression opinions and the lack of clear communication to the public on the true reality of breast cancer for ALL stages
I wish you the best
Maureen
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wonderful suggestion, kayb. I'm not being glib either.
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That is a good idea, kayb. Facebook has a feature for secret groups and someone could do just that.
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Members, We think it is best to close this thread once and for all. It feels as though it is time to re-direct energies to the fabulous support, information and compassion that you all offer one another on these boards. Thanks for your understanding. The Mods
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