LCIS Denial?

If the surgeon is recommending the breast come off and an MRI says "suspicious for ILC" I would opt for the cautious route. As invasive a surgery as a mastectomy is, it could save your life if ILC is present. ILC is very sneaky from what I have read and so with that said, I would opt for the surgery. 9cm is a big area so that is why the mastectomy over the lumpectomy has to be the way I suspect. Best to you whatever you decide to do.

I have been going through this myself somewhat recently.  I had an abnormal mammo which got me to a biopsy which showed LCIS.  Surgeon wanted clear margins so I had a lumpectomy of the area which showed ADH and pleomorphic LCIS.  The frustrating thing is there is so little information on this subject.  I saw an oncologist after just the diagnosis of LCIS and he gave me the option to decide how I would like to proceed but once the report came back pleomorphic he felt that my best choice would be bilateral mastectomy.  Having gone through the mammo and extra images and then biopsy, MRI, and lumpectomy my tolerance was at an all time low.  I felt that I was either waiting to have a procedure or waiting to get the results.  I wanted off the roller coaster!  My BMX was March 12th and I am happy with my choice.  I have been back to work for two weeks and doing great!  The path report came back that I had LCIS on the other side also, which had gone completely undiagnosed to that point.  I feel blessed to have the opportunity to make this decision and not have to have chemo or radiation.  I am in complete awe of these women that must have further treatment.  They are so strong.  I did what I was comfortable with and felt was the best choice for me and putting this risk behind me!

Hi Emma

I had a biopsy and it showed I had LCIS, then lumpectomy and tucked deep within a 2mm area of ILC. I am having a BMX, its almost 6 months later. I wouldn't have considered it at diagnosis but now I know its right for me. Its just too dang sneaky. Go get your 2nd opinion and keep reading, education is your best defense. Your in the right place. My oncologist said it grows slow.. I don't think you need to rush into anything your not sure about.

all the best to you.. I know its so hard ((HUGS))

Does anyone have any information on LCIS with necrosis?

Hi Emmma , i am new to this discussion board. I agree with the others there is not a whole lot of solid reccomendations or research regarding treating Lcis. You can ask three different Drs and get tree different opinions :  (  I am post bilateral prophlactic nipple and skin sparing mx i had in feb. I made this decision after four different opinions were weighed carefully. i have a three family members , two who died of breast ca. I am brca neg. but still chose to do surgdry cause i had pleomorphic lcis. after pathology came back it showed 6cm area removed of pleomorphic lcis on left breast but also still had positive margins and nipple involvement in left breast and extension of plcis to antetior supetior margin. it was reccomened by my oncologist that since i had greater than 5cm area radiation may be needed. ( devastated i never even considered this. i thought i was already being extreme).  after talking with radiation md and my general it was decided that i would go back to clear my margins and take nipples. i am now a little over a week post op and i just got pathology report. my surgeon said it was good news but as i read it besides nipples area with plcis not even taken out!!!! my point is even though i thought dking madtectomy would give me the piece of mind i needed i feel like i am still in same boat. if anyone else has had this experience please let md know??