Husband More Frightened Than I Am

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My husband is really having a hard time with my cancer diagnosis (DCIS State 0).  He gets totally wiped out after every appointment and I'm not sure how much longer he can go on like this.  I've been tempted to shield him from information, but I know that's wrong as he has a right to now.  I'm just not sure what to do to help him.

Kathy

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited April 2014

    Kathy - So sorry your family is going through this. There is a book called "Breast Cancer Husband" that I've seen recommended on these threads. Also, perhaps a talk with a local survivor about how good (I know it is all relative) a diagnosis of DCIS is. I know I definitely have tumor envy in that I would have been thrilled with DCIS vs IDC. There are support groups for the spouses too. The Stephen Ministers at our church also minister to loved ones when it is needed.  If your husband wants to "talk" to another BC husband, PM me and I'll give you my husband's email. He was a rock and did all the research for me when I was diagnosed while I fell apart. I know my DH would love to help. Gentle hug.

  • MilesToGo1953
    MilesToGo1953 Member Posts: 14
    edited April 2014

    Thank you!  I'll take with husband and see if he wants to talk with someone else.  I think he'll be resistive, but I also think it would be good for him!

  • NatsFan
    NatsFan Member Posts: 3,745
    edited April 2014

    Miles - do you have a treatment game plan yet, with surgery dates, etc.?  The worst part for my dh was the time between dx and my first surgery.  Men tend to be "do-ers" and the waiting around and seemingly not doing anything to stop the cancer is nerve wracking to them.  My guess is that once you get a plan and start "doing" things, like surgery or other treatment, your dh will feel better.  Meanwhile, my suggestion would be not to shield him unless you feel it could seriously affect him mentally, like send him into a depression or other serious mental illness. 

    One thing that someone passed along to my dh and me right after my dx was the mantra:  "Don't go there until you get there."  Meaning deal with what you have to deal with now, but don't let your mind wander too far down the line with "what ifs".  My dh and I used that a lot, especially in those early days.  When one of us would start getting too wound up about something that might happen the future, the other could say, "Don't go there until you get there."  We still use that mantra today when we're facing various issues. It helps us focus on the issue at hand, and keeps our minds from wandering too far down the line. 

  • Ariom
    Ariom Member Posts: 6,197
    edited April 2014

    Hi MilesToGo!

    I am another one who was Dx with DCIS.  My Surgeon actually told me that it is the "preferable Dx to have!" At that time, I really didn't understand what that meant. Even after hearing that, my Husband and I had to read a lot of information to truly understand what DCIS is.

    Knowledge is power and although DCIS is not a life threatening Cancer, in itself, it is still very scary to be dx with. Until you understand it, your nerves can take over.  

    As humans, we don't do fear of the unknown very well and when given a Dx of something we are not familiar with, we go to the dark side. Natsfan puts it very succinctly.."Don't go there till you get there!"

    Take a look at the DCIS information that is available on this site which has been put together by Beesie, one of our members. I printed it out and gave it to friends and family so they were aware of what was going on with me. 

    I wish you both all the very best, please let us know how you get on!

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