Lymphedema Treatment Act Update.

littlesista30
littlesista30 Member Posts: 18
edited June 2014 in Lymphedema

Subject: Lymphedema Lobby Days

The Lymphedema Advocacy Group invites you to join us in Washington DC, September 7th-9th, for our 2014 Lymphedema Lobby Days!

This is a unique opportunity to help raise awareness, educate Congress about lymphedema, and increase support for the Lymphedema Treatment Act.

An orientation reception will be held on Sunday evening, Sept. 7th. Monday and Tuesday, Sept. 8th and 9th, will be full days on the Hill. We encourage you to participate in both days if possible. A hotel group rate is available for Sept 7th-10th.

Complete information is available on the Lobby Days page of our website - http://lymphedematreatmentact.org/join-us-in-dc-2011-lymphedema-lobby-days/

No experience is required, and we hope to see many of you there!

The Lymphedema Advocacy Group

www.LymphedemaTreatmentAct.org


· Share on FacebookShare on Twitter

Comments

  • vlnrph
    vlnrph Member Posts: 1,632
    edited April 2014

    Looks like the timing on this is designed to correspond with the end of the National Lymphedema Network's conference at the Washington Marriott. Hope people attending that can extend their stay a couple days and work on this for us!

    · Share on FacebookShare on Twitter
  • purple32
    purple32 Member Posts: 3,188
    edited April 2014

    Not sure if the links from my email will work, but here goes :

    Our cosponsor count now stands at 28. Click here to see if your Rep's name is on the list yet. To help us gain more cosponsors, please consider becoming part of your state’s team.


    We hope you can to join us for Lymphedema Lobby Days, Sept 7th-9th. More than half of the rooms held in our group block are already gone, so sign up soon. Complete information, as well as links to register and book your room, are available on the Lobby Days page of our website.


    If you are unable to come to DC yourself, but want to support our Lobby Days,
    please consider making a donation!


    Your much-needed contribution will help us to provide attendees with all of the materials they need, print critically important leave-behind information for every congressional office, conduct a staff briefing to supplement our individual office meetings, and host an orientation reception on arrival night, to prepare and train our patient advocates for the days ahead on the Hill.

    You can make a secure donation by credit/debit card via PayPal, or by mailing a check to:
    The Lymphedema Advocacy Group, PO Box 1682, Carrboro, NC 27510.

    Individuals, small businesses, clinics and non-profits donating $250 or more will have the option of being listed as a supporter of our 2014 Lobby Days on the corresponding page of our website.

    In closing, I am deeply honored to have recently been awarded the Wendy Chaite Leadership Award by the Lymphatic Education and Research Network (LE&RN). You can read the press release here. My heartfelt thanks to LE&RN and to all those who nominated me!

    Heather Ferguson
    Founder and Executive Director
    Lymphedema Advocacy Group
    www.LymphedemaTreatmentAct.org

    · Share on FacebookShare on Twitter
  • purple32
    purple32 Member Posts: 3,188
    edited May 2014

    NEW ADVOCACY HANDBOOK for LE TX ACT  (May 2014)

    http://lymphedematreatmentact.org/advocacy-handboo...

    · Share on FacebookShare on Twitter
  • purple32
    purple32 Member Posts: 3,188
    edited May 2014

    I'd just like to make you aware and say thank you to Josh Levin ( from LYMPHEDIVAS) for  making a trip to Washington mid-May , 2014 to try and see Congressman R.  Neal RE: the LE TX Act.

    Josh had a  great meeting with one of his aides and is very hopeful that the Congressman may come to Spfld. where some of us can gather and try to show our support for the Act.

    Kudos to Josh!

    · Share on FacebookShare on Twitter

Categories