Introducing myself...just diagnosed with IDC
Hi everyone,
Just wanted to add my name to the list of newly diagnosed. I found out on April 15 that a mass which professionals were certain was "nothing" was indeed "something."
Age 48, Stage 1, around 1.2 cm, ER+/PR+, HER2-
My biggest worry is that the cancer is Grade 2 & 3.
. I have seen BS, Rad. Oncologist, and Medical Oncologist so far, and it seems like the prognosis gets worse as I go along. I'm starting to feel like I will definitely need chemo - which terrifies me. I have my MRI scheduled for Monday, April 28th, and just had BRCA test, so after those results come in I guess I will know better what I'm facing for treatment. Mostly I'm feeling very angry. I take really good care of myself, eat great, exercise, don't drink, don't smoke, no family history - never thought it would happen to me, blah, blah.
I'm looking forward to the support of this board and I am encouraged by other's stories.
Thanks for reading,
Kelly
Comments
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I have just finished a year of treatment and surgery for IDC. My stats are below. Pm and i am happy to answers any questions
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kpmacmill- Welcome to a wonderful place to great info and support and yet so sorry that you have found yourself here. You will find the BCO is a great place to find current information and support. I know how you feel about your diagnosis despite your efforts to maintain a healthy life style. That healthy lifestyle will help you tremendously as you go through treatment. I know you are probably a bundle of conflicting emotions ( angry, scared, questioning everything). It is a part of the emotional roller coaster ride. Some days, you may feel good about things and other days, not so good. I know you are in the fact gathering process where it seems like a hurry up and wait situation. Patience became my friend after I was diagnosed; hopefully it will become yours. Once your treatment plan has been determined, you will know what direction you are heading in. Put your seat belt on and hang on tight..... you are on an interesting ride with others who will support and help you through. Just remember you are not alone and that you never will be. These discussion threads can serve as a place for you to vent, say some things that you may not find easy to say in person and most of all, comfort and support. There are many here who have travelled before you so you won't feel so alone. Sending you many reassuring HUGS and positive calming and healing thoughts and energy.
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kpmcmill,
Glad you found the discussion board so quickly. Do you know if you will have the Oncotype DX test? It can help determine if you will benefit from chemo. Chemo is no fun but its doable. Hair loss really sucks but its temporary. Good luck to you. You will meet some amazing women here who are knowledgeable and encouraging.
You are probably still in shock of being diagnosed with cancer but as time goes by you will acclimate to your 'new normal'. Its cliché but I can't think of a better way to describe life after diagnosis. Stay in touch.
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Hi Kelly
Sorry your here but this is the right place for you to be. This is the hardest time, the waiting. I know it may not seem like it but it will get better, clearer and you will be able to do this. Its okay to be angry, its a emotional roller coaster, let it all out. Your healthy lifestyle will serve you well. I was scared of chemo too and I was surprised I didn't need to do it so don't get too far ahead of yourself. Rest, enjoy your family and friends and keep busy the time will pass and you will have a plan soon.
((hugs))
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You can find a lot of information and resources here, including all these abbreviations, plus you can search out anything! I'm a Stage 1, grade 3 and based on the Oncotype test score there was no benefit to have chemo or radiation so I'm starting on anti-hormone therapy. I had a left mastectomy and a right reduction with tissue expanders at the same time. Just had the TEs taken out and implants put in. On the road to healing.
I have no history of cancer in my family, I don't smoke and my friends tell me I need to drink! So, embrace that part of your good health because it will help you as you go through surgery and treatments and healing. Being mad at first is part of this whole thing. Just don't spend too much time there.
Oh yes, there are lots of new drugs that can help with chemo side effects. The cold caps have been successful for some women in saving their hair. My doctor just finished chemo and she made it through without losing any. Just google the cold caps and read up on them.
Keep the faith! Lots of websites, lots of resources and you can get through this. Much hugs...
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Hi Kelly, welcome to the club!
the final diagnosis/staging will come only after surgery and unfortunately, it often differs from the initial one. I also had a small tumor (less than 1 cm) and MRI showed no lymph nodes involvement, so I was told I would most likely not need chemo or radiation. pathology report from surgery however showed macro metastasis in 7/11 lymph nodes. So here I am almost a year later completing my radiation treatment after a six month long chemo.
I would recommend to take it one step at a time and focus on selecting the right type of surgery for you and the right surgeon. That is very important. Good luck!
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Kelly
During the diagnostic phase, it does feel like things are getting "worse" as you gather more information--but you are close to the end of that-- BRCA, MRI and maybe an oncotype test. Then you will have all the info you need to make a surgical decision, then a treatment decision. I was 48 when I was DX---same thing-healthy, no family history---I was totally shocked. And frankly, pissed off..But I had to get over that to get the treatment train rolling. Once I had my lumpectomy, we knew the true size of the tumor (they thought it was 1.2 but it was over 2 cm) and I had my oncotype results-- the plan fell into place. On the issue of chemo, this is a decision you get to make. Docs will make a recommendation, but you don't have to agree with them. Make sure to ask "what would you tell me to do it I was your sister/wife?"
Chemo is no party, but if it is recommended and you agree to it, you can get through it and there are alot of people on these boards with great tips. It is not the case for everyone, but I was able to keep working and generally keep up with my kids (12 and 7 at the time)....Everyone reacts differently. No point in worrying about it now--- this part of the process is one step at a time.
Please come back often and let us help you.
hugs
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Hi,
Sorry to hear about your diagnosis! It's hard to find a way of rationalize this diagnosis. All of us have the cancer cell in our bodies and for some of the "lucky" ones these cells activate.
I was diagnosed about a month ago, told that chemo and most probably radiation will have to be part of my treatment, because of my age. On top of that there is a high chance that I might lose my fertility. It was a lot of info to take in but this forum has provided so much more info which has made dealing with this disease a lot easier.
Whatever course of treatment the doctors decide for you, rest assured that someone of these boards will help you get through. Your healthy lifestyle will be a great asset to you. Keep strong and have faith that this disease has nothing on you!!!
Hugs!!!
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