March 2014 Surgery

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2014

    football - IV probably in your neck, or possibly your port, if neither arm is accessible.  You will have continued heart evaluation throughout the time you are on Herceptin - should be quarterly to monitor your ejection fraction.  Make sure to point out your reflux issues to your oncologist, they will need to pre-med you as chemo has a tendency to aggravate it - and all other soft tissue.  On the subject of not doing chemo/Herceptin for a node positive Her2+ mass?  Your prognosis would be quite poor, so keep that in mind - by undergoing this regimen you are saving your own life.  I am a node positive Her2+ survivor - it has been 3 1/2 years since I finished chemo, 3 since I finished Herceptin, so count me among the survivors you know.

  • Footballnut
    Footballnut Member Posts: 742
    edited April 2014

    Sailon - I have also reconnected with "long lost" friends since the cancer diagnosis.  I've heard from people from high school and summer camp that I have not spoken with for more than 30+ years!!!!  I also find that now, people can make time to see me where before this, it was always - yeh we'll hook up sometime!!!!

    Linda/SpecialK - I saw your pic - you guys looked great!  Hopefully we can get a pic of the three of us at a not too distant football game in December when the Saints come marching in!!!!!!  That is one of the goals that I am working towards!!!!!!!

  • lynnlyre
    lynnlyre Member Posts: 15
    edited April 2014

    Positive update - Onco type score of 7!  I can finally breath again and figure out my summer plans. 

    Still having issues with fluid build up and I am uncomfortable no matter what I wear or don't wear.   So now all I need to get back to work is figuring out how to deal with a single breast until the fluid drains so I can get a prosthesis.  

    Thank God for helping me and thanks to all here for being there.   

  • Warrior50
    Warrior50 Member Posts: 94
    edited April 2014

    it will be 4 weeks since my surgery on Monday and I still have the drain from the lymph nodes.  The other 2 were removed 10 days after surgery.  It was still 42ml today and they won't remove it until it has been 30 ml for 2 days.

    Did anyone else have their drain in this long?  Do you know what I could be doing wrong?

  • Lakegirl1
    Lakegirl1 Member Posts: 316
    edited April 2014

    Well, it was back to work for me this week. I just went back Thursday and Friday.  Cleaned out the email and caught up on my projects.  

    I see MO on April 30 to figure out the rest of the plan.   Here's to hoping for no chemo....

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited April 2014

    Lynne, what wonderful news. I can almost hear your sigh of relief. Smile

    Warrior50, I have heard of other women who've gone a month with drains. You aren't alone. My friend Moonflwr from several other BCO threads had a problem with excessive fluid and it turned out to be a damaged lymph node. The doc stitched it up and the drainage stopped.

    Lake, take it easy at work and let us know how it goes.

  • Lakegirl1
    Lakegirl1 Member Posts: 316
    edited April 2014

    I am definitely a little more sore and tired than I had been living the life of leisure! LOL...note the sarcasm!  I have to watch it...the kids think since I am going to work, I can do all the things I could before surgery.  That is pretty far from the truth. Also, if I do end up with chemo, I still won't be able to do some things, maybe less. 

    We took the kids to the drive in last night...I'm a little sore from sitting in the back of the van with them, but it was fun!!!   Popcorn, cotton candy, funnel cake and Green River always make things seem better!!!

  • LovebeingNana
    LovebeingNana Member Posts: 134
    edited April 2014

    Lakegirl1 your post helped me so much. I am back to work this week too. Today I worked 4 hours, then took my walk and then I rested this afternoon for a while. Well then I got a wild hair & thought I would make some soup…I really haven't cooked a whole lot since surgery. Now I am so sore!! I have a lot of upper back muscle pain since the surgery and it is so much worse now that I am active. I also have some cording under the left TE so that is really sore. Don't ask me why it didn't occur to me that the more active I get the more sore I'll get…..I was just thinking since I am almost 7 weeks out I should be a lot better. It takes time…..I am so impatient. 

  • Lakegirl1
    Lakegirl1 Member Posts: 316
    edited April 2014

    Impatient shouldn't be my middle name...it should be my first!!!   I just keep thinking with the muscle soreness...the more you move a little the better off you are.  Keeping those muscles going is a good thing, but also a very fine line with too much of a good thing.   

    I get fills again tomorrow.  PS told me to start looking at myself in clothes to see what size I wanted to be.  What, does he think I walk around there naked???   I really haven't done any disguising ...no one has said a thing!!!   I think we are getting close.  I just keep reminding him...no stripper boobs and they must stick out farther than my tummy!!!   Wait...maybe stripper boobs wouldn't be so bad...it would definitely keep people wondering!!!  LOL!!!  I just know, no more 38 DDD!!!!!!

  • LovebeingNana
    LovebeingNana Member Posts: 134
    edited April 2014

    Hahaha - yeah start wearing some clothes would ya?? I am going slower on the fills right now because of chemo…I will get another fill next Monday 3 days before my next chemo. I am with you! No more 38 DDD for me either. My question for him is can you really tell how far you will "stick out" with these expanders? They are shaped so strange. But I agree it is mandatory that my boobs are bigger than my stomach. LOL Although my stomach is disappearing a little with the chemo. :(

  • Lakegirl1
    Lakegirl1 Member Posts: 316
    edited April 2014

    They are filling pretty fast because PS won't do fills while I am getting chemo. Also, with the history of Staph, they don't want to jeopardize the TE again. 

    I too want to get rid of some stomach, but I can think of much better ways to accomplish that...I do love me some T25, but that is on the back burner, no planks or push-ups!  

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited April 2014

    Love, go to Breast Implant Sizing 101. At the end of the permanent post at the top are links to different manufacturers' brochures. They will tell you EXACTLY how wide your implants will be, how they will be shaped, how much they will weight, and how far they will stick out (project.) Unless you are slim with no belly, chances are your implants will not project as much as your stomach. Convert all the manufactures numbers to inches. (There are several free conversion websites.) I have the largest Allergan 410 gummy bear available in the U.S. (740cc Style FF) but they only project two and a half inches.) Depending on your ribcage, the implants may not actually project that far because without the hard back of a TE, implants conform to the shape of your ribcage and sink in a bit.

    You CAN'T tell how big you will be with implants by comparing them to your TE's. The implants will be close to half the size of the TE's, even though they have the same number of cc's.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2014

    One rule of thumb that my PS told me was that for projection from smallest implant to largest is 2cm - so the largest one will only project a maximum of 2cm than the smallest.  Gummy bear (anatomical) even less because of the teardrop shape, which tends to mimic a more natural sloping breast shape.  My original implants were 50cc different (a long story, but had to do with symmetry, chest anomaly and all the surgery on the left side - it had the slightly smaller one) but looked the same.  After this last surgery on 4/2 they are now different by 150cc. I can definitely tell the left is smaller, but someone looking at me probably could not.  It is actually more comfortable than the right.  Depending on what decision is made next week, when I am allowed to have another implant on the left I wont go with more than this one, and will swap the right one out for a smaller one as well.

  • Juliecc
    Juliecc Member Posts: 4,868
    edited April 2014

    The whole expander vs implant thing is so complicated.  I see my PS Thursday for another fill.  I think I'll like my TEs at 450cc.   Do they stuff a higher cc implant in there, like a 500cc, so it will look about the same?  My PS said the same thing....tell me when you like the size with the expanders and that the implants will look smaller than the expanders.  I've looked at a lot of pictures on the picture forum.  I like the silicone rounds, somewhere between 425cc-500cc, I think. Deborah, the implant expert, just had surgery and has been off the boards the past few days.  My tissue expanders are 13cm and the corresponding width for Allergan style 20 is 500cc.  I hope I wouldn't look huge with that.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2014

    Julie - If you put a larger implant than you have been expanded to it may be uncomfortable.  Generally they put the same size, or a bit smaller, and it will look smaller than the TE because of the projection issue.  If you have been expanded to 450 and like that look, you will have to expand beyond that and put a larger implant in to achieve that same basic look.  I am fairly petite - 5'2", right now 124 lbs., and had a 600cc on the left and 650cc on the right, smooth, round and high profile, and look like a full C.

  • Juliecc
    Juliecc Member Posts: 4,868
    edited April 2014

    Thanks, SpecialK.  So it sounds like I go past what I like and look extra bodacious for 3 months. :-)  I think I'm aiming for more of a B+ or C- although I know with implants, that really equates to a C or D bra.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2014

    Julie - correct, and yes, bodacious is the key!  It is a short term problem, lol!

  • mnmbeck
    mnmbeck Member Posts: 313
    edited April 2014

    Juliecc.....I kept reading here that the implants would look much smaller than the TE's, and when I asked my PS about it, he disagreed. He said they "sit" differently on the chest, but they are about the same size.  I didn't know who to believe!  But then I realized that many PS's actually put the same size implant in as the TE, or even smaller (they 'overfill').  IF yours does this, then yes...the implant WILL seem smaller.  My PS explained to me that in order to fill the space left by the TE and get the same size/look as the TE, the implant has to be bigger.  Not all PS's do this, though....so you have to find out how yours decides.

     I had my TE's filled to 550.  My implants are 650.  I have to honestly say that he was right...the implants really do look about the same size as the TE's, but they 'sit' differently....not so freakishly bizarre looking...just softer.  I am even able to wear all of the bras I wore before surgery, and they fill out exactly the same.  Now, I ALWAYS wore 'reducing' bras, or sports bras before surgery.  (important to note, as these don't have quite as full a cup as a regular bra).  MOST women here say they cannot wear a regular bra, as their new implants are too wide.  But, this wasn't true for me.  Again, I suppose this has a lot to do with the width of the TE and implant.  I remember whippetmom commenting that my TE's seemed narrow for my frame.  I wonder if maybe this is why I can still wear bras?  I have no idea....I am learning all about this day by day.

    I just wanted to tune in about why the discrepancy in what people are reporting.  The final outcome very much depends on how the PS decides on TE size vs. implant size.  Ask yours.  And good luck!!

  • Juliecc
    Juliecc Member Posts: 4,868
    edited April 2014

    Thanks, Special K and mnbeck.  I'll ask what her strategy is on Thursday :-)

  • linda505
    linda505 Member Posts: 847
    edited April 2014

    Hey all,

    Finally got my first fill after my healing issues.  He put in 75 cc and it was very comfortable.  He said I have soft and very elastic skin and he is very pleased with that and I am too.  He said that he would like to do 100 cc next time - will be three weeks - but will make that decision with me at that appointment. I am using coconut oil and bio oil to keep my skin soft - he recommended both of those - told me to alternate them as they both have different agents that allow the skin to stretch easier.   Tomorrow is my first scheduled chemo - nervous.

  • LovebeingNana
    LovebeingNana Member Posts: 134
    edited April 2014

    Thank you Sandra, SpecialK, & mnmbeck! Great information! So glad especially to hear the shape will be improved with the implants…right now it's a little scary haha. I will talk to my PS now too and feel a bit more educated so thanks!

    Linda I will be thinking of you for tomorrow…..I am 11 days past my first one. 

  • KLJ
    KLJ Member Posts: 284
    edited April 2014

    Linda505, Why can't PS's all have the same answers. I asked about lotions or oils and was told they really don't make a difference. Whatever!!! I'm going with what your doctor suggested. Getting the coconut oil and bio oil tomorrow. And I'm going to tell him about it too! Geez, how could he think lotions or oils wouldn't help. He's lucky I like him in every other aspect :)


  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2014

    klj - good old cocoa butter is also a choice - I used Palmers.  I used it when pregnant to avoid stretch marks, and used it for the same reason with the TE, lol!  And to make my skin feel softer and more pliable, of course!

  • Lakegirl1
    Lakegirl1 Member Posts: 316
    edited April 2014

    I saw the PS today. Got another 80cc's.  I think that puts me up at the 540 ish range. PS says he likes to fill fast before scar tissue has a chance to form around the TE. That way you are only stretching muscle and tissue, not scar tissue too.  I seem to be tolerating the larger fills fairly well, so..onward and upward!!!  

  • ucfmom
    ucfmom Member Posts: 127
    edited April 2014

    My PS told me to use Palmers cocoa butter.  I also have some coconut oil a friend gave me. That's what she used and had about three quarters of a bottle left over. I think I will try that as well and maybe alternate between the two.

    I'm on day 5 wearing the super tight sports bra to help with fluid buildup. It's driving me crazy but I can do this, I have 5 more days to go!

  • Frostecat
    Frostecat Member Posts: 447
    edited April 2014

    Well I thought I was heading back to work Thursday, called my PS office for a release (my work will not let me return without one), thinking nothing of it, and the nurse called me back and basically said "not so fast".  She said that they have to see me again before they can release me and the Dr. is out of town right now, and my next appointment is scheduled for next Friday, the 9th.  She said unless you "HAVE" to go back, I'm not releasing you.  My surgery was 5 weeks ago today, and she said well it's usually about six weeks, so you are right on schedule.  She said a lot of women go back too early, and once they start moving again, the fluid starts building up again and they have a seroma, and they want to try and prevent that.  I also have an MO appointment that just got scheduled for Thursday, so I guess something is telling me not yet. 

    I'm kind of bummed, I was looking forward to getting back to a somewhat "normal" life.  It's kinda tough sitting around and seeing all of the things that I need to do, like get down on my hands and knees and scrub the floor, scrub the baths, wash the windows. cut the grass on the rider (oh god, that would send me right back to the hospital) that I can't do, it is a bit frustrating, but I guess it's Dr.'s orders.  I really love my job, and don't want to  put it in jeopardy either.  And so I wait.

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited April 2014

    KLJ,

    The plastic surgeon I go to is the restoration surgeon for the famous Brooke Army Medical Center Burn Unit. He personally does all the intricate plastic surgery for soldiers horribly burned in the war. His patients are given either Fruit of the Earth brand Vitamin E Skin Care Cream or Eucerin. He says it is essential to keep the scared tissue supple and to promote optimal healing. 

    Don't know where your PS got his information that creams and oils don't help, but I dare say his opinion is one other PS would disagree with. All of us who've seen results from using all those "unnecessary" products would disagree as well.  

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited April 2014

    Frostcat, I had LMX with ALND on 3/14, I went back to work on 4/14, so 4 weeks plus a few days. I only work 4 days a week but I was tired that first week back. I'm ok now, but doing rads and still kind of tired. Take your time, you will be back in the swing of things before you know it!!!

  • Kitty62
    Kitty62 Member Posts: 102
    edited April 2014

    Frostcat, my surg was 3/24...just before you. There is no way I could go back to work yet. They told me 6 to 8 weeks. I see my PS for my first fill and will ask, but he will probably leave it up to me. The way I feel now I'd say 8 weeks, but I'll play it by ear. The weather is going to be in the high 70's this week. I. too am dying to do all the things I used to. I love gardening and being outside. I did sit in the sun a bit and that helped my mood. Mood has been a bit low now that I'm not on purely survival mode anymore. The reality of all this is finally hitting me. Not liking this. I used to like pink. LOL

  • KellyGreen
    KellyGreen Member Posts: 23
    edited April 2014

    First fill today - only 47cc's to balance out the 103cc's I had in each (300cc TEs) - I feel a little wimpy with such a scant amount compared to some of you guys! Pleasantly surprised that it was relatively painless and I'm comfortable now. My little brother went with me in case I needed a ride home - he looked positively sick when I told him what I was having done today lol!  My PS recommended the Palmers cocoa butter. Of course I just bought vitamin E oil but she says more of her patients have skin problems with that. Sigh, all these surgeons need to get together and form a consensus! 

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