Starting Chemo in December 2013

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  • Jodi040812
    Jodi040812 Member Posts: 383
    edited April 2014

    thanks ladies!  Didn't mean to worry you -Just venting:). I will check out this sites!

    #3 AC is done!  SE-  I am so so sleepy.

     I have been asleep all day or falling asleep and j

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited April 2014

    these are such good ideas for Jodi. That's what these boards are for. Helping each other. I would help you out Jodi if I knew how. Maybe someone needs to tell your story to Ellen. She loves these stories and provides amazing financial help. Would one of your friends write to Ellen? 

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited April 2014

    maybe Lisa-

    SE question for AC- hiccups!  It's been 30 minutes.  So either I hiccup or can't keep my eyes open so sleepy all day!  

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited April 2014

    I get hiccups all the time,every time I eat I get them and then randomly during the day I will do it 2-3 times .  I looked up some information and both decadron and taxol can cause them. I think mine are from Taxol since they have been bad ever since I have been on it . Hope they settle down, do you have any ativan to take, that may help

    B

  • kjfromca
    kjfromca Member Posts: 283
    edited April 2014

    Holli - Congrats on your last chemo.  Please tell your daughters that they did a wonderful job on your poster.  I hope that you are able to find a counseling program for the kids.

    Jodi - You look great in your wig.  I was thinking ACS as well for lodging help.

    Lisa & Michelle - Thanks for sharing your stories.  It is so hard for me to put my emotions to words.  Both of your stories were moving.  

    Barbara - Re blood tests.  I had a CBC yesterday because I had my port removed.  My WBC is 2.5, Iow.  No one said a thing to me and I have an email into my MO's office.  My RO has never mentioned sending me for blood tests, I will bring this to his attention.  Annoyed.  

    Kim

  • jackieak
    jackieak Member Posts: 169
    edited April 2014

    great last chemo sign! So creative.  I feel like I have run 10 miles, my thighs and arms are so heavy tonight....Benedryl wearing off, going to try an ambien tonight so I'm not up all night sweating from steroids.

    I can now say ONLY ONE MORE!

  • chicopeach57
    chicopeach57 Member Posts: 166
    edited April 2014

    image

    image

    Put a fork in me, I am done!  

    So many emotions now. My daughter in Houston just told me she is going bar hopping tomorrow to help me celebrate, what a sacrifice from her, I am so humbled! :)

  • RHGSR
    RHGSR Member Posts: 774
    edited April 2014

    yea chicopeach!! Love your sign and your sweet daughter!! Tell her to drink one for me too!

    Wow... I have steroid energy today. But I am so irritated and emotional. Crying off and on all day. Sending my older 2 children off with a friend for the day so they don't have to be around my emotional roller coaster. Trying to explain to them that it's the medicine and not me. 

    Saw someone post about the site "go fund me".  Just was notified that someone at my sisters work made a site for me. Did not know that was in the works. Will let y'all know how it works out. 

    Holli

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited April 2014

    holli- this is the site i use for fundraising.  It works without issue:  https://www.youcaring.com/CheerforJodi

    One more for me too!!!  Whoo hooo!!  Yesterday I slept almost all day and was so out of it.  Not sure what that was about.

    Congrats to all who have finished. I can't wait!!  I am gonna ring that bell and do my Michael Jackson "Beat It" dance!   

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited April 2014

    Congrats Chico! Happy Dance for you!SillyHeart

    What a great picture. Yes, our DD's love us, don't they? And, what a sacrifice yours is making by having to go bar hopping. LOL.  Too funny! I'm sure she is a wonderful support to you, as mine has been to me.

    Holli, I hope your emotions don't get the best of you. Seems like the steroids do that sometimes. UGH!

    Hope you're feeling better too, Jackie.

    Have a nice week-end, ladies.

     

     

     


     

  • oranje_mama
    oranje_mama Member Posts: 260
    edited April 2014

    yay Holli and Chico - you are done!  

    I will not lie, I found the 3 weeks PFC really hard.  But today I am officially starting my 4th week PFC and I finally feel emotionally better (still tired as a dog). You will feel better emotionally too, just don't beat on yourself if it takes a while.  

    Our girls are going through so much.  I was talking yesterday at the dinner table about cold caps and how you essentially freeze your head.  My younger DD Olivia (who is 6) twists her head into a weird position and then asked if you freeze your head while in that position, are you stuck like that forever?  I love her, she's provided so many laughs through this.  On a less funny note, my older DD Hannah (9) asked me yesterday whether breast cancer is a kind of cancer that you usually end up dying from.  She had obviously been talking with classmates at school  There is a boy in her class whose mom is a 5-yr BC survivor.  My daughter told me that she has another classmate, a girl, whose mother died of liver cancer when she was just 2.  The girl has 3 older brothers (no stepmom).  I hate this disease!  I don't remember having any personal experience of cancer when I was 9 years old!

    I saw BS & MO yesterday, got my MRI results, and scheduled surgery for May 8.  It's not going to be the PCR (pathologic complete recovery) that I was hoping for, but both docs are really pleased and positive about the results.  The mass is tiny now, but still about 1.5cm of calcifications that need to be removed too.  I'm going back for ANOTHER mammo next week on my left (supposedly "good") breast.  MRI didn't show any change, and I normally would have a 6 month follow up mammo on the left in June.  BS understood that I'd rather get it over with pre-surgery, so she wrote me the order yesterday so that I can get it a month early. 

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited April 2014

    Chico. Great sing, big hugs for completing the "trial by fire"

    Holli, emotional rollar coaster from the steroids, relief and fear of finishing chemo. Hope you bounce back quickly. 

    Oranje- forgot of you said you are having lumpectomy of MX?  Either way may 8 is only 2 weeks away.  Any RT afterwards?

    Don,t know how you gals do it with young children.  Hard enough when they are grown up dealing with all this.  My boys, age 27 and 31, live so faraway but they call every day or so. Love to do FaceTime with them. 

    Walked yesterday over a mile on my steroid boost from chemo earlier in the day. Today I was exhausted after working half day but made myself walk a mile again.  Just hoping that on Sunday I will be able to do the mile at Bark for Life. That is usually my lowest day post chemo.  6 more days!!!!!

    Barbara  

  • J4DC
    J4DC Member Posts: 80
    edited April 2014

    Chico and holli,  congratulations!!!! I am so happy for you! Great pictures, chico. 

    Holli,  I am sorry about the emotional roller coaster. It's a lot going on at the same time for you. Hope you are feeling better after some rest. Take care!

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited April 2014

    ugh!  I hate the first few days after AC!  Stomach hurts, then feel like I need a Pepcid.  DH has the girls in the front, but I really need something for the heartburn.  Not getting up though.  I guess I'll text him!    Did anyone get so sleepy after the third AC?  I have been so sleepy.

  • chicopeach57
    chicopeach57 Member Posts: 166
    edited April 2014

    I had bad indigestion and reflux with AC, went on omperazole and have stayed on it as per MO's advice, it does work. Take one everyday, Target had a great sale on them. If I accidentally miss a day I know it.

  • DJJ
    DJJ Member Posts: 229
    edited April 2014

    Happy+YIPPIE Chico and Holli!!! So happy your done.

    Ornje_mama, I didn't have a PCR and had a good cry over it.  My MO was ecstatic about the results.  She said the way it responded is a huge deal and that the shrunken little tumor even had scarring.  I don't know what scarring is but apparently it's a good thing. I've had very little pain from the procedure.  I just took Tylenol.

    I went to restart chemo today but because my neuropathy hasn't improved enough yet my MO said "I know you're going to be upset, but you know you can't have chemo?" My response "ummmmm, not so upset".  I asked what it meant to my survival without doing the last four and she assured me that my chances are 95% survival without the last four.  That what miniscule percentage that they would add isn't worth the risk to my feet.  I'm so relieved.  I had the hardest time this week facing chemo after I had starting to feel good and now I don't have to!!I Now I can continue to heal and get stronger and get more hair.  My eyelashes are coming in!!

    I have an appointment to meet with my RO next week,  Hopefully I can start rads in the next two weeks. 

    Please forgive any misspellings and I apologive if non of this makes sense but my Zolpidem is kicking in!

  • RobinLK
    RobinLK Member Posts: 840
    edited April 2014

    Great news DJJ! 

    I had Prilosec for the heartburn for #3 and #4 of my A/C. 

    Currently on house arrest. WBC low, had my Herceptin yesterday, knew the count was down. My MO is on vacation, the MO looking over my counts did not like them. Had the chemo nurse call. So...temperature taking, avoid cuts and bruises, no crowds, no one sick over, etc..... Think we all know the drill. Argh....

  • Mikesgirl17
    Mikesgirl17 Member Posts: 260
    edited April 2014

    Hi girls.  Congrats to those of you who are done with chemo!  Woo Hoo!  That was the best feeling. For those of you who are still gong through it, you'll be done soon and will feel the same joy.  I was on a high for about 2 weeks after chemo ended.  I don't know what is going on with me now.  This week has been awful.  I feel like I'm full of rage.  My last chemo was March 17.  I've completed 3 weeks of rads with 9 sessions left.  It hasn't been bad.  I don't know what is going on emotionally.  Anyone else feel this way?  I think it might be my hormones.  I haven't had my period since January, but my hot flashes are going away and being replaced with anger.  It started with my mother in law last week.  She had just come home from Florida and the first words to me where "Did you get fried?"  (I had just gotten back from rads.)  Who says that to someone who just had rads.  She made another hurtful comment and I lost it.  Needless to say, it has been a long time coming, but I sent her a letter and told her I her no longer wanted a relationship with her.  This might sound harsh to all of you, but she has done terrible things through out the years and I just don't have time to waste on people who make me miserable.  She is the only one who made me feel worse about my recurrence.  She told me chemo and rads were no big deal.  (She had a lumpectomy and chemo with rads 15 years ago.  The chemo, mind you, where you don't lose hair. She constantly compares herself to what I am going through and it makes me want to scream.)  Sorry for the rant.  Now that I look at the rage I've been feeling, it's probably because of her.

  • jackieak
    jackieak Member Posts: 169
    edited April 2014

    mikesgirl, very insensitive, especially from someone who should know better.  I can make fun of myself, but totally agree if someone else were to, I'd lose it.  This is an emotional roller coaster, long after the beating up of our bodies is done.  I think you have done the right thing if she has always been this way.  You are right, take the negative people out of your life, we didn't bring this on ourselves and certainly don't need to have negativity around us.

    Congrats to last chemo gals!!  Can't wait for mine on Thursday!  I think all the SE for me have waited till the end of this, because I'm pretty miserable....pisses me off, I had a fit after dinner last night in the car, had a major hot flash, the wig got thrown off my head, luckily my window wasn't open!  My family wasn't sure whether to laugh or cry, i told them, ok you can laugh now.  I look in the mirror and don't recognize me at all...my goal for the rest of the year, be that hot cougar woman once again!

  • kjfromca
    kjfromca Member Posts: 283
    edited April 2014

    Having issues with my laptop keyboard..  Congratulations to all you ladies who just finished chemo.  I have been reading your posts and was just thinking that we have all come a long way since December, actually since our diagnoses.  We still have a long way to go, but we will keep pushing forward.

    My legs hurt every flippin day.... frustrating. 

    DJJ - I am glad to hear that you are finished with chemo and that you don't need those extra rounds.  I hope your new job is going well and please post how the Avon walk goes.

    Mikesgirl - I had a crazy week last week and was thinking that maybe it is estrogen rearing it's ugly head.  I had a migraine, wanted either to cry, or found that I was really angry.  Still no period.  Having to go to rads is tiring.... it's one more assault on our bodies.  None of this is a freakin picnic.  Re your MIL, no telling what's going through that brain of hers.  I think that it is good that you wrote her a letter and told her how you feel about how she treats you.  Now the ball is in her court.  Let her figure out how to fix your relationship if it means something to her.   Sending a hug your way.

    Off to the Scottish Games today.... wig or no wig... hum?

    Kim

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited April 2014

    Holli and Chico-you and Amy robach finished chemo on the same day. There's a video she made during her last chemo. I dont know how it share it here but if you google it I'm sure you can find it. I know there has been some controversy about her treatment (some calling it sugar coated chemo, which seemed true) here on the boards as she didn't lose her hair, she continued to look great, even wearing heels on the morning show and going to Sochi to cover the Olympics during treatment but her message on the video was good. Same as we all feel, except she had a team helping her throughout her treatment. I do wonder what chemo she was having though. 

    Hope all are well. I'm feeling pretty well, 5 days post last chemo. Heavy legs and achy but still excited to be done!!

  • missy6758703
    missy6758703 Member Posts: 218
    edited April 2014

    Hello everybody! I should be getting ready for one of the funnest weeks ever, going to Punta Cana and staying at the Hard Rock Resort till Friday, but i'm a nervous wreck about going.....I will be one week out from my last chemo on Monday.  I know everything will be ok....i have a sleeve that I got fitted for,and  a glove thing....that part is good. I just worry what if i was to get sick and i'm out of the country.  I had my MO write me out a script yesterday for some steroids.....we all know about my butt problems and the hemmorhoid surgery i had to have and everything, well the only time my butt feels good is when i have the steroids after chemo, so i put two and two together and feel there must be some sort of correlation between that so i sort of begged for the steroids.  She gave me 4mgs of Dex for the week......already today i feel better.  

    The reason i am going is it is an incentive trip for work......i managed to still make tops in sales for the year and its the top 25 in our company going.  I really don't want to miss it.  We had to pick a song that sort of "says who we are" for when we go up to pick up our award....The song I chose is "I Made It Through The Rain" by Barry Manilow! Its the song i would sing each week when i finished up with chemo.....sort of fitting i guess that i would have it and do feel like i have made it through! Maybe i'll be able to post a video of it when i get home for you all to see! 

    I am worried about everything....the sun, the food, the drinks, the water.............OMG stop it Michelle!!!!!!! ughhhhhhhhhhh.  I am taking my aunt who has been with me through every single appt. and procedure, she is also an RN so I just need to let things go and relax......ugh ugh ugh.  

    I wish you all a wonderful week.....I have some neuropathy all of a sudden in the tips of my fingers and the bottoms of my feet are numb.  Now I'm stressing over what shoes to wear for the awards dinner.....pretty sure i need to rule out heels if i can't feel my damn feet.  I can just see me falling on my face!!! haha! Grace has never been my strong suit, i can only imagine how i would be with heels and no feeling! yikes! Ok.....gotta stop stressing.  Off to the store to buy flat shoes! 

    Michelle

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited April 2014

    Michelle. you deserve to have a wonderful time. I sure the anxiety will melt away once you get there. Have a couple of pina coladas for all of us.

    Just remember how cold the winter was and warm it will be in Mexico. What a nice thing to bring your Aunt along.

    Barbara

  • MaDee53
    MaDee53 Member Posts: 30
    edited April 2014

    Hi, I was diagnosed with DCIS, high grade on 3/11/2014, in Covington,La. I came to Ca, Stanford breast cancer center for surgery, to be with my daughter and grandchildren , I am now 53 years old.  I had a partial mastectomy ,on the right breast, reconstruction with implants ,also reconstruction on the left, to make the symmetrical.  The final pathological report upgraded the breast cancer to stage 1, T1, due to micro-invasive foci less than 1mm, found in the tissu, IDC invasive carcinoma tumor size 2mm (0.2cm) Her 2 positive, not responsive to hormones, senital lymph node, negative for cancer cells,  although tumor is very tiny, because of her2 positive status, no response to hormone therapy, my Dr, have recommended chemotherapy Taxol, targeted therapy is Heceptin, followed by radiation.  I don't have a problem with this, just wanted to know how the chemotherapy is in Louisiana , due to I am comtiplating returning to Louisiana to complete chemo,Heceptin  and radiation treatment , what do you think, should I stay or should I go? 

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited April 2014

    Michelle, safe travels! Pls post some pics when you get back! Congrats on your award:). Hopefully, you can forget about BC while you're gone and get some R&R in!

    MaDee, welcome. I am not from LA, but I know of two ladies with BC that have come to TX for treatment. Good luck with your treatment and decisions. You could start a new thread here that asks for Louisiana patients opinions, if you want.

    Those of you who are having leg pain, etc., hang in there. It took me 4-6 wks PFC before I got my energy and stamina back. It will return!


     

  • RHGSR
    RHGSR Member Posts: 774
    edited April 2014

    I watched the Amy video. I still feel like she presented a much more sugary side of it all. Just my opinion. I wonder what chemo she was getting too. 

  • oranje_mama
    oranje_mama Member Posts: 260
    edited April 2014

    Holli, I agree with you about the Amy video.  One thing I did like though - the idea of popping a bottle of champagne when "chemo day" comes and you don't need to go because you're done.  Yesterday was my birthday, and just so happened to be chemo day (+1).  My celebratory Mambo Taxi margarita tasted just awesome and I finally felt really "done" with chemo.  

    Missy, try not to worry.  You've got your aunt RN/angel with you :).  Hope you have a great time!

    DJJ, you're done!  and you have every reason to trust your MO/BS.  If they say it's a great result, it's a great result!

    Someone asked what kind of surgery I am having (sorry, too lazy to scroll up and see who!) - I'm having a lumpectomy and sentinel node biopsy.  I'm getting a left mammo in case there is something to get biopsied on that side.  I am not worrying about it, really.  I'm pretty sure it's nothing.

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited April 2014

    Holli- agree! 

    MaDee- I'm in Monroe.  Traveling to Houston for treatment.  I know Mary Bird Breast Center in BR is suppose to be good.  Just think about MDA.  You are really close to one of the best places.  Even if you go there get their treatment plan and bring it back home.  I know down south LA has better options than northeast.  I had no option up here!  

  • lesliecusana
    lesliecusana Member Posts: 97
    edited April 2014

    MaDee! Glad to see another tiny IDC getting treatment! I soon will start taxol & heceptin! 

  • DJJ
    DJJ Member Posts: 229
    edited April 2014

    Mikegirl, Totally insensitive.  I'm sorry this is the last thing you need.  You have every right to let her know how you feel. 

    Michelle, Wow top sales while going through this.  You're amazing.  You deserve the trip.  Enjoy, use sunscreen and relax.  You have your RN with you :-)

    Oranje_mama, I was told that I'm due for a right breast mammo!  I was a little surprised and didn't even realize that my right wasn't mammo and sonogram when I found the lump in my left since I was in such a WTF haze.  Makes me a little nervous.  Sigh....I'm going to be boob paranoid.

    Kim, I'll let you know how the Avon speech goes.  I'm nervous.

    Five weeks out from my last chemo.  I hadn't paid any attention to the hair coming in because I thought I'd just lose it again when I finished my chemos and didn't want to get upset. Now that I get to keep it I took the hand mirror and looked at the back of my head and wow, it's really coming in and I shaved it two weeks after I finished chemo.  I can't wait to not coordinate scarves with outfits. 

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