DIEP 2014

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  • tlbradyful
    tlbradyful Member Posts: 134
    edited April 2014

    jmb - I, too, live on the coast with 100% humidity and 90+ degrees. I have decided to be ok with giving up a second summer to make future summers better. It's very hard, but I will be so very happy next summer. Dr. Massey gave me the option of compression and I am wearing it about half of the time. I can certainly tell when I haven't had it on for a while because my ab and hips get heavy. I am sure from the fluid buildup. I will be wearing it as much as possible from now on. I don't think it's an option for stage 2 due to lipo. 

    Katski - I am very sorry for your communication problems. It is difficult enough when you feel like your doctor is right there with you, but to feel alone is awful. I hope that situation resolves. A change may need to be made. I left my original PS when I found out about Dr. Massey and have never looked back. The constant contact with her and her staff encourages me. My first PS has never called. You need to do what has to be done to get through this. Just make sure you are in competent hands.

  • TBerg
    TBerg Member Posts: 27
    edited April 2014

    Thanks Marty and JMB for your insights. I am having the incision lowered, lipo and far grafting to try to fill some divits in the upper areas...my left breast and my underarm. My PS said I would be off a week, and in the girdle you described for 6 weeks. She said I could get a spankx from Nordstrom for my nephews wedding. I guess I'll have to be on my pain meds....

  • Donna2012
    Donna2012 Member Posts: 201
    edited April 2014

    had my stage 2 today.  It was under general anesthesia & took 1 hour.  My ps constructed a nipple, lipo'd a very small amount on outside of reconstructed breast & took out a small amount of scar tissue - in the incision line on the side of the breast.  

    I have on a bandage, so I will not be able to see it for 48 hours.   The nipple does not hurt at all, since I have no feeling there.  The outside of the breast hurts a little - nothing bad.  I had no nausea w/ the anesthesia since I had asked for the patch behind my ear again.  

    Nothing was done to my belly and natural breast, so all in all it was pretty easy.  Glad to be done another step!  I am calling vinnie tomorrow to schedule my tattoo for sept/oct!  

  • lemon68
    lemon68 Member Posts: 684
    edited April 2014

    Donna, congratulations on having Stage 2 over and done. Sounds like it went well, I am sure you will be happy once you get to see with the bandage off. I would be trying to peek!

    Goldie- I am sorry to hear about your son, I would be feeling the same. Its so hard to see them no matter the age in pain. Mine are teenagers and its just scary to grow up in these times. I am sure your son is comforted just by being at home and close to you. The days are flying by, just over a week for us, please try to gets some rest. ((hugs))

    Kat-Ski, I am sorry to hear you are having healing issues, it is terrible they are not responding to you timely. I hope you get some answers soon.

    KooKoo- How is your dad? Hope you are both doing better. Your lucky to live in LA so close to NOLA. I have a best friend who lives in Reserve, she kept telling me to come there for my surgery. I have the Cleveland Clinic here and so far they are wonderful so I didn't do it but at some point I will come for fun.

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited April 2014

    Goldie-I don't often post....but just wanted you to know I am thinking of you....and PLEASE listen to Cherrie....she has given you excellent advice.   Sending you (((Hugs))).

  • jmb5
    jmb5 Member Posts: 532
    edited April 2014

    Thanks for the encouragement, ladies. I don't know why stage 2 is bothering me so much. I guess because stage 1 was such an ordeal, and I just want to be back to "normal" and enjoy my summer. I spoke to my PS's PA yesterday. She said they recommend 4 weeks in compression (mine will be from below the breasts to the knees), and she said to wear it as much as I can. I guess my all day at our pond in a bathing suit days will be limited. I figured I could be in the sun a little, and sit in the shade with compression the rest of the time, enjoying being with my girls and enjoying the summer days. She also cautioned me about keeping the incision areas from the lipo out of the sun. (Or wear a high SPF sunscreen, which I always do.) I never thought about the incisions. Wondering how big they are.

    Donna, how did your stage 2 go yesterday?

    Kat-ski, hoping those wounds heal up quickly. Hugs!

  • Teacher64
    Teacher64 Member Posts: 840
    edited April 2014

    Goldie, sorry your son is going through this difficulty. Cindy was right about mama bears. We always want our "cubs" to be ok. It's good he has you now.

    Donna, so glad you stage 2 went well. Hope it is all you want it to be.

    Katski, since so many have loved the same center, there must be someone you could call there about the lack of support you have received.

    Iowagirl and Fujimama, hope you are doing well.

    Yesterday I had lunch with a friend I hadn't seen since all this began. She complimented my hair color, flat belly, and then we laughed that my PS hadn't made me any taller. If only!

  • Donna2012
    Donna2012 Member Posts: 201
    edited April 2014

    jmb5 - if you look a few posts up, I shared my experience with stage 2.

  • nihahi
    nihahi Member Posts: 3,841
    edited April 2014

    goldie.....hugs, girl....so sorry to read the news about your son. No matter how "adult" they are, our kids are always our "kids", and we just want them healthy and happy. fyi....child's life falling apart and into your lap (aka your home) happened to me too, about 2 weeks before surgery....by the time it was my Stage 1 time, I couldn't wait to get to the hospital and get a bit of rest and distance from the whole scene at home! hugs again, though, goldie...marital grief is never easy on any family.

    kat-ski....I agree with teacher....why don't you contact your doc/centre and tell them what is "not"happening. It might sort things out quicker than sitting and wishing they would call you. 

    jmb...I get the reluctance about further surgery....happens to many of us. Our minds are still fresh on the first round, but try to remember, each stage is different, and rarely are the other stages as intense in both surgery or recovery as the first one. It is amazing how much better the flap often looks with surgical tweaking too. I'm sure there are different versions, like everything else connected with flap recon, but the bit of lipo I recently had to do some fat grafting.....left an incision maybe an 1/8 of an inch, if not smaller....truly nothing to stress about. 

  • Kat-ski
    Kat-ski Member Posts: 212
    edited April 2014

    Good Afternoon!  It is one of those fatigue days where I just can't move.  I hate this when it happens.  I am getting my hair colored today and that is one appt. I need for healing.  I go to bed at 11pm with 20 m of ambiem and all I do is toss and turn.  I am just tired feeling this way for 2.5 years but I know I have good days like last Sunday.

    We will probably take the car up to Ludington or Traverse City tomorrow for a joy ride!! Well, off, to the hairdresser("only she knows"!  Love to each and everyone of you. Kat

  • Debwarrior
    Debwarrior Member Posts: 72
    edited April 2014

    For those of you still healing or about to have surgery and looking to up your protein intake, here are some easy protein snacks that helped to get me through.  Any kind of soup with frozen edamame added to it (they are high protein and healthy), hummus and crackers, hard boiled eggs, cheese sticks, yogurt and berries, almond butter on an apple or crackers, peanut butter.  I know that I felt better if I ate every couple of hours the first couple of weeks.

    I had my stage I February 13 and am feeling good. Stage 2 is scheduled for July. Still making the adjustment from large breasted to small breasted woman but padded bras and maybe some fat grafting will help that.   

    Spent a week at commonweal cancer retreat in bolinas, ca on the north coast. It was an amazingly wonderful experience. First week away from the family by myself in 17 years!   It was a week of wonderful food, wonderful company, sharing experiences, and overall healing in a non medical way.   It was helpful in my process of accepting the new me, which I really needed.

    Best to everyone here.

    Deb

  • JerseyMomOf3
    JerseyMomOf3 Member Posts: 96
    edited April 2014

    Hi all you terrific gals,

    I visited my PS yesterday. I brought my list of 22 questions and he said he looks forward to the next 20 when I see him next, LOL. He really puts me at ease with his expertise, confidence, and humanity.

    Thanks to all your good feedback ladies, I am going to get a recliner, and maybe a wedge pillow too.

    I would love to hear from anyone who also had their diastasis repaired during the DIEP. I have had twins plus another child and my stomach really took a beating especially from carrying my twins to term. I asked my PS if he could take a look at that separation and repair it - he said he would be happy to but cautioned me that would cause more pain during recovery. I am willing to go for it after putting up with this issue for over 15 years, since i was too chicken to have surgery until now. Has anyone had it done? 

    PS thanks for the great protein suggestions Debwarrior!

    Hugs to all, 

    JerseyMom

  • nihahi
    nihahi Member Posts: 3,841
    edited April 2014

    Jerseymom....I suggest you send a pm to sbelizabeth. She is a mother of full term twins too, and I'm sure she'd be happy to answer any questions specific to that. There may be others on the thread too, but I just don't recall who they may be.

  • JerseyMomOf3
    JerseyMomOf3 Member Posts: 96
    edited April 2014

    Thanks nihahi, will do.

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited April 2014

    Jersey Mom-I didn't have twins, but carried 3 out of four babies at over 8.5 pounds, and one closer to 10......mine wasn't repaired during stage 1.....but when PS did Stage 2, he cleaned up the suture line, and by that time we realized that it should have been done.  I got an authentic tummy tuck at that point.  I don't recall ever being super sore from it, but then, I try to forget all the unpleasantness of life!  

  • JerseyMomOf3
    JerseyMomOf3 Member Posts: 96
    edited April 2014

    Thanks Moviemaniac, are you saying he opened you back up and repaired yor diastasis in stage 2?! Wow. I like your philosophy of forgetting the unpleasantness of life! I am hoping the good pain Meds will help me look back on the surgery and not remember too much pain, too!

    So do you feel like your abs feel secure and your back is better supported now? Do you have any issues with crunches, etc?

  • GeorgieGirlKC
    GeorgieGirlKC Member Posts: 132
    edited April 2014

    Lahela, thanks for the protein post! :) JMB5/Teacher64 and everyone who posted on what to bring and how to get ready, your posts were very helpful! Kat-ski, I agree the support here is tremendous and it is comforting to think about a day that doesn't include thoughts of surgery, cancer, treatment..

  • Sunone
    Sunone Member Posts: 151
    edited April 2014

    Hi Everyone,

    I have been MIA for the past couple of weeks, just did not feel like getting online. I've been trying to catch up on everything that has been posted.

    I had my BMX and DIEP 2 weeks ago yesterday. All went well. It was a long day, but since I was sleeping though it, it was ok : ). The hardest part for me was the first couple of days directly after surgery. My PS does not allow any liquids for about 48 hours, and no food for another 24 after that. I was sooooo thirsty after waking from surgery Friday night. They did have these large lemony swabs that I could use, but not the same at all. I was checked every 1/2 an hour with the dopler. Sometime on Sunday I was allowed to have ice chips, they tasted like heaven! By that evening I was on liquid diet, even the jello cups seemed like ambrosia. I was concerned about naseau, so started by eating crackers, when that went well I moved on to a regular diet, no problems. I was out of bed the day after surgery, just to move to a chair to sit for a while. The next day my catheter came out, so I was out of bed to walk to the bathroom, sit in a chair for a while. The 3rd and 4th day I did some hall walks. My PS had initially told me I could probably go home day 5, and by the morning of day 5 I was so ready to get out of the hospital and get home.

    They removed 2 of my drains on the day I left, so I went home with 4 drains. We had about a 3 hour drive home, thanks to all of your postings, I had brought some soft pillows to cushion me on the way home. About an hour away from home we got off the freeway and my husband ran in and got me a latte and we cruised along the coast for a while, it was a beautiful, sunny, warm day. It felt so great to be out of the hospital and enjoying the sunshine! I had taken one pain pill for the ride home, as a just in case.

    My issue has been sleeping. I love to sleep on my side or stomach, so this back sleeping is not comfortable and I seemed to sleep in spurts. Luckily toward the end of last year we had bought a new couch that has dual, electronic recliners, that was wonderful for comfort and sleeping, along with lots of squishy pillows. I tired of being in the recliner so much, and got a 7" wedge from Bed, Bath & Beyond and slept in the bed for a few nights using the wedge and pillows, it was ok, but still not comfortable. Couch sleeping seems to be the best for me the past couple of nights, and last night I was finally was able to sleep a bit on my side, best night of sleep since my surgery.

  • GeorgieGirlKC
    GeorgieGirlKC Member Posts: 132
    edited April 2014

    Annajo, LOL!! Kim, I will check Brookstone, thanks! Kat-ski, what a beautiful picture! Is this a place you've been recently? I hope that you are doing better with each day. It is worrisome that you are not getting good communications from your P.S. office. I hope you are able to get what you need to have complete healing and piece of mind going forward. It is a big leap of faith to do this surgery for many of us and when we have to travel out of town, we count especially on the good follow up of our providers. Praying that things get better! 

  • Sunone
    Sunone Member Posts: 151
    edited April 2014

    hmm, I couldn't type any more above, sorry this is so long!

    I came home in an abdominal binder (Velcro closing from hips to just under breasts) and a soft, front closing surgical bra. Both the binder and the bra have abdominal surgical pads between them and my incisions. I initially took some pain meds the first few days home, but usually only needed them if I was doing something like bathing, or washing my hair in the sink. Most of my pain is in my back after moving around and not standing fully straight. Now I am only taking Tylenol when needed. I went in for a recheck this past Thursday and had all but one drain pulled. Hopefully that last drain is coming out this week. My stomach hasn't been painful, just some discomfort and that stretched feeling. I know this is a work in progress, my new breasts aren't perfect, but are looking pretty good for this point in time. Although the first couple of days seemed kind of rough, I had known what to expect and am happy with the Diep decision. Thank you all for the information shared on here, it really helped me know what to expect and to get through those first days knowing it was going to get so much better.



  • GeorgieGirlKC
    GeorgieGirlKC Member Posts: 132
    edited April 2014

    Donna2012, glad to hear your surgery went well! Goldie, will keep your son and family in my prayers. That is a tough situation. Never easy to watch the ones you love suffer a loss. Debwarrior your retreat sounds awesome! Some time away sounds very appealing! Sunone it is good to hear from you!! Fujimomma,  liefie, Iowagirl, you gals doing ok? Good luck to everyone having surgery next week. Goldie, Lemon, our day is getting closer! I've started my "items to pack" in the extra bedroom. Starting to feel pretty real! You all have been the best support, so glad I found this forum! :) 

  • Teacher64
    Teacher64 Member Posts: 840
    edited April 2014

    Sunone, I remember thinking those ice chips were a gourmet meal. I'm almost six weeks and still can't sleep on my side. I've had to be a back sleeper since December and it is still not comfortable. 

    Today I played outside because I wanted to plant a bit of color. I had thought I'd be able to just play in the dirt but my husband ended up digging the wholes for the plants. I felt like such a wimp because I could not do something I've always done easily. I will again though.

  • k79miller
    k79miller Member Posts: 101
    edited April 2014

    I ate ice chips during chemo when they were pushing the red devil & said that I could never eat another ice chip in my life.  Luckily my PS put me on a clear liquid diet the first day so thankfully I didn't have to endure them again.  I thought I was going to starve on those clear liquids though.  I started sleeping on my side a few nights ago.  The first couple of nights I hugged a pillow all night.  Last night I decided to try it without hugging the pillow.  I decided that I don't need the pillow but I'm still not sleeping good.  I wake up every few hrs & can't seem to sleep past 6: or 6:30. 

    katski...Have you tried emailing the nurse at PRMA.  I know that's probably not what you want to do but if nothing else you might email her & ask her to call you.  Any time I've called or emailed I've had great response from them.

    Goldie, Lemon & Georgie...your day will be here before you know it.  Try to relax & think happy thoughts these last few days.  Luckily, I didn't ever get too nervous.  I think because I was just looking forward to having my soft, warm girls back again.  Like everyone else they're not perfect but they're a heckuva lot better than the TE's.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited April 2014

    Hi Guys

    Thank you for encouraging words.  It means a lot that you are all here to listen.  Nihani, knowing you had a similar situation and were able to get through the surgery makes me feel better.  I am worried the stress is going to upset my healing.  But, I too just want to get away at this point.

    There was a lot of reading to catch up on.  Everybody sounds pretty good.  Nothing major, which is good. 

    I am trying to keep my protein intake up, but stress puts me off my feed.  Thank goodness for those Premier Protein Shakes from Costco. I have one of those a day, and I know I got at least 30 grams of protein on top of whatever else I manage to eat.  We got a new grill.  This thing is making cooking meat, chicken and fish so easy. It is a wood pellet burning grill, and you plug it in to start it. Very cool.  No fear of blowing myself up, or waiting for coals to get hot. This thing is like having a second oven.  It smokes, grills and it is an oven.  Tonight we make a pizza on it. It was really good!!!!!  So, my hubby is going to be making me lots of protein on it after my surgery. 

    Again, thank you for all the positive words and encouragement.  This to shall pass. 

  • nihahi
    nihahi Member Posts: 3,841
    edited April 2014

    Sunone.....sounds like a textbook summation of immediate and early post flap recovery. You sound right on track, and I'm betting you'll keep progressing just fine.

    Goldie...I soooooo get "where you are". Hang in there. You will be cared for in the hospital, and trust me....you will have a couple days at least, where whatever is happening at home is "off your radar"!!! When you get home, you will have non-debatable reasons to disappear into your "retreat area" and rest, for both physical and emotional reasons. I'm sure your family will understand, and helping you might just help your son redirect his thoughts off his own issues for awhile. You'll both get through the tough stuff, to better days.

  • Teacher64
    Teacher64 Member Posts: 840
    edited April 2014

    I've noticed since wearing the binder only at night for the past 10 days, my tummy is more puffy. To be expected?

  • BlueFox
    BlueFox Member Posts: 99
    edited April 2014

    I am just over 3 weeks out.  Does the DIEP reconstruction get softer with time?  Mine is still rather firm (not hard) - but not noticeably softer than when I had the implant.  I was hoping my DIEP would be softer - more like a natural breast?

    Also the profile is a bit flat in front - it is sort of round but with a flat area.  Does that change with time or can the surgeon improve aspect that at a later stage?

  • k79miller
    k79miller Member Posts: 101
    edited April 2014

    cindy...I'll be 6 wks out next Thurs & haven't experienced any of that yet.  The middle of last week I had a few pains deeper inside my stomach but luckily that's gone away.  Are you wearing kind of binder or girdle?

    Teacher...I haven't noticed that.  Since the surgery I've had days where my stomach just feels more bloated but it doesn't seem to have changed.  I'm not wearing any thing at night now.

    Bluefox...mine have been soft from the beginning but the paperwork I got said that it could be firm at 1st but would soften up with time.

  • nihahi
    nihahi Member Posts: 3,841
    edited April 2014

    Didn't experience the "spasm" thing, so won't speculate. I am interested in what your PS has as an explanation though.

    teacher....yes....to  be expected. My PS didn't have me in a binder, but allowed me to wear "generic" compression if it made me more comfortable. I wore something because it helped my back, for about 6 weeks, then tapered off, by wearing it only at night, at his recommendation His theory is, the binder forces fluid away from your trunk, artificially. The longer it's used, the longer your body then takes to readjust to the work of dealing with things the normal way, in a "new setup". His advice was to do a lot, and I mean A LOT of massage during the day, be normally active, and be patient. He said wearing it at night, would help things resolve from the daytime swelling, and give me and my body a chance to rest from the "retraining". I think I used it for about 2 weeks at night only. Things seemed to resolve pretty well for me using that protocol. I know other PS's likely have different opinions...that's just how things go. Best advice is to discuss it with your own doc and see what he says. fyi....I think it took 3 or 4 months until I no longer had swelling issues. By time movie and I met to go hiking in Montana at 4 months out....I wasn't swelling.

    bluefox....3 weeks.....you need patience, grasshopper. My flap took 6 months for the swelling, shape from the initial surgery to resolve. You have much more healing to do, internally, than you realize. I thought everything had settled at 3 months....my PS said, nope, still needs time...when I went back at 6 months, there was clearly a difference, for the better.

  • Janet_M
    Janet_M Member Posts: 1,068
    edited April 2014

    Goldie - It's almost the one week countdown! I know it's the scary part of the ride - but you're also so much closer to the rest, recovery, & relief that happens the second you wake up. That's the great part. Maybe you can look at that day as something to look forward to, and forget about the pesky surgery you must go through to get there. 

    I'm very sorry to hear of your son's divorce. Life sure is complicated sometimes - and you probably want to punch her in the head for all the pain she's causing you family. But I like what Nihahi said about your son having somewhere to redirect his energy, and hopefully you will benefit. Your recovery is what's important right now. 

    I was listening to Dr Laura on the radio last week and a mother phoned in with the same situation. Her son was getting divorced and she was angry at his wife, and didn't know what to do with her anger. Dr. Laura said to channel the hatred for the ex-wife into love for her son. I thought that was pretty solid advice, even though it  falls distinctly into the 'easier said than done' category. For now  - you are the center of the universe. And your strength and peace of mind are the most important things. 

    Sunone - You said that you're please with your 'girls' and that they are a work in progress. That's such an important thing to remember. For anybody wrestling with disappointment - getting the finished product is a bit of a marathon. I was happy almost immediately with my size, and having a little cleavage, but then it was months of shape shifting, that is still not quite finished. 

    Teacher - Good Lord! How could you be on this thread and say that you feel like a wimp for not doing something that used to come easily. You've been through cancer and DIEP, and you sound very upbeat. I think we're all Wonder Women, and Wonder Woman doesn't play in the dirt. 

    By the way - for anyone making a list for the hospital. The two things I couldn't live without were lip balm, and a hairband. I didn't want to wash my hair, but it felt so could just to use a thick stretchy hairband to push it out of my face. 

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