Calling all TNs

Options
18208218238258261198

Comments

  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited April 2014

    cat, I also took ambien or Benadryl. Your sleep is so important!

  • CatWhispurrer
    CatWhispurrer Member Posts: 263
    edited April 2014

    Thanks for the suggestions.  I'll ask my MO this week for his advise.   I already take a Trazadone for sleep (it is technically an antidepressant but used more often for sleep help).  It works most nights except on steroid night Loopy     Maybe I should just get up and work on a painting, then I would actually get something done.

    Happy Easter everyone!   It is a beautiful, sunny day here in GA.

  • MaryFox
    MaryFox Member Posts: 121
    edited April 2014

    My MO prescribed Ativan to help me sleep after steroids. It's an anti-anxiety drug. I took it only on steroid days and it got me to sleep even when I felt very jumpy.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited April 2014

    I remember Karen (OBXK) having Ativan and she found it helpful (she used to make me laugh when she'd put "along with a nice Merlot").

      

  • Titan
    Titan Member Posts: 2,956
    edited April 2014

    Hey..you've got to do what it takes to get a few good hours of sleep...I think it is one of the most important things when it comes to healing..and gaining strength.....and if a nice merlot and an ativan does the trick..so be it...

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited April 2014

    Hi  ladies I hope you are having a great Easter and your weather is kind to you.

    The old feller - mmmm.  Well yesterday was a doozie.  When we came to view this house last September I noticed  a beautiful tree, not too large in the garden, with a bushy top and a bare trunk.  It had the most lovely red tips on the branches all over it but was out of shape.  The previous owner said it was a lovely smallish tree but it took a long time to grow.  Yesterday the old feller was home from the café so he asked me what I wanted done in the garden.  I said I would like that bushy tree to be rounded all over.  It wasn't so bad that it would take much to do.  I said I was going to get one of the girls at works husband to do it as he is a landscaper.  "Don't be silly woman, I can do that" said the old feller.  So with his shears in hand I left him to it.  About an hour later in he comes. I said how did it go and he mumbled something about having a rest.  When I went out to look I was struck dumb,  absolutely speechless.  Now most of you know that it is almost an improbability for me to be speechless (and for so long!!).  It is now one foot across at the widest part and about six feet long. It looks like an almost finished icecream on top of an icecream stick.  When I could finally talk I asked him what went wrong. He said I was clipping away and as I went around each side there was more and more sticking out so I chopped them all off.  We have always gone for a maintenance free garden because there was always so many other things to do but this time I was looking forward to putting in roses and spring bulbs. This story brings me to the conclusion that although he is a marvellous cook he is a shit gardener.  Moral of the story If you want any gardening done ladies please get in a landscaper or do it yourself. .                            

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited April 2014

    Tomorrow is my last "effin" chemo. Nervous. I think I'm going to cry and do a happy dance at the same time. I just hope we did enough to kill the beast. I feel like I've almost completed a marathon, the first 23 miles maybe and only 3left (rads). I can do this! Nothing will get me now! 

    Have my questions for my mo. Want treatment summary (all drugs, dosages), want port out! Will ask about metformin, follow up mri's and mammos, survivorship programs, vit d. Hmm will think of more before tomorrow.

    Will take my Ativan and try to sleep...yea right!

  • bak94
    bak94 Member Posts: 1,846
    edited April 2014

    Congrats Lisa on your last chemo tomorrow! Yes, end of treatment can bring up lots of anxiety, but it does get better. So smart of you to ask for a summary of your treatment, great to have.

    My baby ducks have grown so much and are so cute. I swear they listen to me better than the dogs, until I try to get them into their duck house at night. One night my husband and I were chasing them around, he kicked his flip flops off so he could run faster and my flip flop went flying and one of the ducks tripped over it. I was laughing so hard I thought I was going to pee my pants! I had to sit down:) Lets just hope the neighbors were not watching:)

    My good friend is in beauty school and asked if I would be willing to come in for a haircut for her first test. I did it and she did a great job, just took awhile. As I was sitting there looking in the mirror for so long I realized my face has gotten so fat! I haven't gained weight, but got to thinking and realized it is probably from the steroid shots I have been having for my back. I never looked into the side effects of the shots and my doc didn't tell me. I have had my limit of 3 shots for the year,  so hopefully the pain does not come back this time and I can lose some of this steroid puffiness. I remember when I took steroids with the chemo the same thing happened. Even though I have not gained weight with the steroids, I do need to lose lots of weight. I must, I must!

    Cocker, inspired and all of you ladies-love ya! Glad you are all here and posting!

    Oh, simple (and others that are doing rads), the fatigue was terrible for me. I had to take naps also, it is a great time to take it easy:) 


  • bak94
    bak94 Member Posts: 1,846
    edited April 2014

    Oh, Cocker-I agree with you about the landscaper! We are going to have a detached garage built in the summer/fall. My husband keeps threatening to do it himself! Problem is he will never ask anyone for help. I had to help him install a huge window because he wouldn't let me call anyone for help. We are the house where projects go to die! He just does not have enough time to do them, and I don't have the energy or skill. I always want to have someone come out and help with the yard, at least help with some winter clean up but he says no because it is too expensive. He just about had a cow a few years back when I had some guys pave our dirt driveway when he was at work. Best thing I ever did! Our driveway was always a muddy mess in the winter, and it is a pretty long driveway. Oh, and back to the garage, if we are able to do it, I am fighting hard for a contracter!

  • TifJ
    TifJ Member Posts: 1,568
    edited April 2014

    Bak- are your husband and mine possibly related?! He will NEVER hire anyone to do anything in or around the house, nor will he ask for help. I will say, the projects get done, but I'm not always happy with the result! He gripes about his Mom always hiring someone to do work for her because she doesn't want to bother any of her 3 sons. He doesn't see that he is just like her and, Lord help me, if I ever bring up that similarity he would go crazy on me!!

  • BanR
    BanR Member Posts: 289
    edited April 2014

    tifJ: Lol!! The scene is more or less the same at my place too

    Bak and cocker: This is a problem with men..they hate taking help or asking for directions. Evolution has given them this trait!

  • simplelife4real
    simplelife4real Member Posts: 563
    edited April 2014

    Lisa, congrats on finishing chemo today!  It's a wierd feeling walking out that last time.  It's a major milestone to be done with that.

    Bak, thanks for the confirmation that I'm not the only one that needed extra rest during rads.  Now that I've decided to come home a lie down for an hour or two after each zapping, things seem to be going easier.  Today is #15 of 33.

    Cat, I used trazadone and ativan both to help try to get some sleep the night after an infusion.  At least I was able to sleep for a few hours with that.

    I had a really nice weekend with lots of social activities.  It's so nice to be able to be getting out more after months of chemo and recovering from surgery.  It makes me really appreciate everything we do.

  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited April 2014

    Lisa, congrats on finishing chemo!  I was really ill by the end, so if your like me wait to celebrate when you're feeling better. The next week when I would have been going to a chemo appt. I went out to lunch and a movie.

    Bak94, my runner duck trips over everything! I guess because she's so tall she doesn't see the ground right in front of her. I've even seen her step on chickens that are in her way when she's moving fast. It is a riot!

  • JAN69
    JAN69 Member Posts: 947
    edited April 2014

    A joke for today..

    Bob:  Where did you get that watch?

    Joe:  I won it in a race.

    Bob:  How many were in the race?

    Joe:  Just three, me, the owner of the watch, and the cop.

    Happy Monday everyone.  May the sun shine warmly on your face.  Jan

  • ALHusband
    ALHusband Member Posts: 344
    edited April 2014

    Ladies, those of you who are the praying type, I would ask if you would take a minute and say a prayer for my wife. She has her first post diagnosis and treatment PET scan today. She was diagnosed 4/8/13. No symptoms now...just routine scan. Please help me pray for no surprises. Thanks.

  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited April 2014

    ALHusband - Prayers for calm and faith for you and your wife as you wait for results, and prayers for a very unremarkable scan.

    Lisa - Congrats on final chemo day! Celebrate big.

    Syl and Lisa - Love the updated photos!

  • JAN69
    JAN69 Member Posts: 947
    edited April 2014

    ALH - prayers and love

  • ALHusband
    ALHusband Member Posts: 344
    edited April 2014

    Cocker I resent your abolishing all of us husbands to the grubber. I'm sure that tree looked fabulous and you just couldn't appreciate "modern abstract art". I'll bet EVERYONE's trees are round. Why would you want to be like everyone else? Dare to be different! March to your own drummer. One year, in my younger days, my mom bugged my brothers and me incessantly to set up the artificial Christmas tree. After she resorted to an angry rant and threatened us, we did it, while she went out shopping. Well, when she came home we had intentionally set it up with the short branches on the bottom working up to the long branches at the top. A completely upside down Christmas tree. And we fully decorated it with lights, ornaments and garland. It was a thing of beauty! Until she came home and exploded.

  • Allydp
    Allydp Member Posts: 520
    edited April 2014

    BanR - thanks so much for the radiation information. It's very helpful.

    Meadow - thanks so much for the nice compliment on my profile pic! 

    Cat - I use Benadryl and Ativan combined to help me sleep. I hope you find something that works for you and are able to get some good, restorative rest soon.

    Bak - your baby ducks sound adorable! You should post a pic. I'm sure we'd all have a good smile and "awww" session. :)

    Lisa - congrats on finishing chemo! Hope you have big plans to celebrate! 

    ALHusband - sending you and your wife prayers for a clear scan. You had me laughing at your Christmas tree story.  

    After finishing the AC portion of chemo, I start Taxol/Carbo Tuesday. I'm a little nervous for the change up, but grateful to be plugging along without a hitch so far. I also have a vaginal US and CT this week. I have a blood filled cyst on my ovary that they're monitoring, but also some symptoms of ovarian cancer, which makes me so nervous. My onc isn't at all worried and thinks my symptoms are from the cyst…but geez. Having the BRCA2 gene and these symptoms is turning me into a worry wart. I'll be glad to get another clear scan under my belt that's for sure. 

    Hugs and hope everyone's having a good day. :)

  • slv58
    slv58 Member Posts: 1,216
    edited April 2014

    ALHusband, saying a prayer wrapped in a hug. 

    For those who are having trouble sleeping, my MO suggested melatonin and said to use it for a couple weeks before I decide if it works or not. I found going months with very interrupted sleep patterns because of all this that taking  it did help a lot. Now I only take it if I wake up in the middle of the night unusually awake. She said the sublingual type doesn't have to go through your liver. 

    Also thinking of broccoli and smoothies, I also put in bok  choy!  Wow fragmented thinking today. Ahhh chemo? Age? Whatever, it's warm out today and I can't wait for summer! 

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited April 2014

    Lisa congrats on your last chemo, yay.  I'm sure chemo has done it's job well and your right "nothing will get you now". Glad you are sorted with all your questions, I don't think your doc will know what's hit him lol.

    BAK can just see you with the beautiful baby ducks. (Is your neighbours house up for sale yet lol).  You are so lucky to have chicks and ducks in your yard and now your driveway is looking good it must be like paradise.  The old feller won't ask for help either  except from me. He'll say " get on the other end of this will you, want to move it over there".  I indicate I can't carry heavy things because lymphoedema has made one arm twice the size of the other and all I get is "It's not heavy".  Cause not, it's a wonder my arms not six times the size of the other one.  I love that saying  " he just about had a cow".  Must remember that.

    TIFJ I reckon all husbands are related to each other, well maybe not AL Husband cause he's into Christmas trees.

    Simple almost half way through rads.  Good on you girl.  Glad you felt well enough to get out and enjoy yourself.

    Jan love the joke. May you too have sunshine to help you through your  day topped off  with a sprinkling of laughter

    AL Husband LMAO at the picture in my mind of your Christmas tree adorned in all it's beauty,  upside down. I would have left it like that as a "one off".  Well you've lost your bet chum cause not everyone's  tree's are round, mine's not.  The worst part of the whole affair is that it's a slow growing tree so could be like that for a while. By the way what's a grubber lol. 

    Sending many many prayers to you and your wife for a completely "unremarkable" scan with no surprises.  Take her out afterwards for some expensive retail therapy.  Isn't that what good husbands do?    

    I have a short Easter holiday this week with 10 days off. The old feller has just rung me to say its 7.30am.  Well done mate, thanks a bunch. Nothing like just the thought of a lie in.    

    Ally wishing you luck with the Taxol, ultrasound and CT next week.  I'm sure everything will turn out to be ok for you.  Sending prayers and a big hug.      

  • lilyrose53
    lilyrose53 Member Posts: 216
    edited April 2014

    Hello all,

    I just realized I shouldn't just say 'ladies'. Didn't think of the menfolk!  

    ALHusband- wishing and praying for a totally unremarkable scan!

    Cocker- story about your old feller cracks me up!  He sounds like my old boy.

    Lisa- congrats on finishing up chemo!  

    Simple- sounds like you have figured out a good way to get thru rads.

    Clarrn, Holly, and the rest- you all look beautiful with short hair!

    Here's hoping for a good week for all.

    Hugs,  lilyrose

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited April 2014

    Linda (LRM) and Titan. I see our stats are the same. TN, grade 3, 0 nodes and "only" lumpectomy AND  you are both 5 yrs out!i just finished chemo today and will start rads in 3-4 wks. Consult with RO 4/30. How has the past 5 yrs been for you? And scares. And additional biopsies or fna needed? I have "lumpy" breasts and have had numerous benign fna and biopsies until this one. Of course now fearful of more bad ones. Mo and BS said lx was totally appropriate for me but I question it frequently but they still stand by their initial rec, there is no indication for mx. I really don't want mx, more surgery that may be unnecessary and I have to believe in my decision and trust my docs and "think positive" (ugh I hate when someone else says that) 

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited April 2014

    Looking around my garden this morning with tears in my eyes lol  remembering the tree,  it reminded me of last summer.  I brought this beautiful rose bush called Tess (they named it after my dog called Tessa, I'm sure of it).  Well some of the roses had finished and I asked the old feller to dead head a few of the roses on the top whilst I was at work. Well, he pruned it to an inch of its life (it was summer for God sake, who prunes in the summer).  That same week he decided to take Tessa for an earlier than usual clip as it was hot.  When she came back she was almost bare so I consoled myself that at least she matched the rose bush.   I suppose when it is my time to go at least I'll go with a smile on me face.      

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited April 2014

    inspired-my mo said she will look into metformin, she hadn't used it before. She looked up trials and there aren't any in area. Although still could prescribe. She will read the articles and we will discuss next follow up visit which us in 4 weeks. When did you start taking? After chemo or after all treatment was done? I will see RO for consult 4/30 and hopefully start soon after. Port is coming out 5/12! Yea I hate this thing. It's sensitive and the bumps are very prominent and it rubs on some bras and tank tops and I feel like an alien bring in my chest. It worked great the whole time. It did its job well, now it's time to go!

  • TifJ
    TifJ Member Posts: 1,568
    edited April 2014

    Cocker- thank goodness our house is pretty new so our trees aren't big enough to trim yet!!

  • LRM216
    LRM216 Member Posts: 2,115
    edited April 2014

    Lisa:

    Congrats on the last chemo!  I remember that feeling so well- could hardly believe I had made it to the end of chemo - it was quite rough for me.  In answer to your question about the last 5 years, they have been great, other than my two knee surgeries from torn miniscus' in each, lol!  Nothing cancer related at all.  Of course, it has gotten much easier the more time I have under my belt, but I don't think I will ever be carefree enough to not worry about it coming back.  It's not overwhelming though, as it used to be, but I think the fear of recurrence comes with the nasty diagnose.  Once I finished all treatment, after reading about the nurses study that was done in Norway or Sweden about triple negs taking baby aspirin and seeing no recurrence over seven years (that's how long the study was),I began and still take 81 mgs. every day, along with my Vit D3 (which was a freaking 5 at diagnose - you'd think I lived underground), and I keep it in the low to mid 60's.  Other than that, I really have taken nothing else other than a try at curcumin, but it upset my stomach a bit more than I liked so I stopped it.  I am thankful for every new day that I have, and can remember only too well thinking I would never get to 5 years, but I did, and you will too!  I wish you nothing but the best, always.

    Linda

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited April 2014

    Linda-thank you for your response back. That was perfect! Just what I needed to hear on my last day of chemo and with all my underlying fears. I will have to read this over and over again. {{{hugs}}}

    Lisa

  • Mompv
    Mompv Member Posts: 110
    edited April 2014

    Hi everyone! I was just told today my cancer is triple neg. I am having surgery 5/5 with chemo 2 weeks after. I am scared. I made the mistake of looking online at prognosis for this. 

    I am angry too. 

    Just want to cry and scream! 

  • Jianchi
    Jianchi Member Posts: 352
    edited April 2014

    My radiation started last Thursday (I started it a bit later as my genetic result took quite a while to come back).  Today I had a routine check up with my BS, and she found a tiny cyst in my opposite breast.  she ordered a ultrasound for me, and told me she is not worried but as my medical history, she wants to have it check out.  I am so panic!

Categories