Radiation Markings

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I'm curious, today I went for simulation and in my head thought I would get tattoo's.  I go to MD Anderson (AZ) and they don't do them, just like for surgery they do a seed not the wire which I was happy about.  I'm happy, but I have Sharpie Pen all over and it will be there for the next 8 weeks.  It is covered with the waterproof hospital tape.  Right now it looks like  a map, but not all the ink is covered.  Definitely not discreet.  I am not complaining as it will be gone when I'm done and I appreciate that.

Do most of you get tattoo's?

And my treatment is 33 days, 1 trial run, 5 weeks of full breast and 7 days of boosts. 

Comments

  • encyclias
    encyclias Member Posts: 302
    edited April 2014

    I got Magic Marker too last year for rads.  My RO is part of the MD Anderson cancer center here is Pensacola, FL.  Remember that movie, "The Illustrated Man ......."

    Best wishes for fast and uneventful rads.

    Carol

  • justachapter
    justachapter Member Posts: 158
    edited April 2014

    Thank you for your reply encyclias.  Maybe it is an MD Anderson thing.  I see so much about tattoos, that I was shocked by the large sharping markings on my body.  Yes, I am the illustrated woman :).

    And thank you for the wishes, ready to get this next step going.

  • faerywings
    faerywings Member Posts: 173
    edited April 2014

    I got tattoos, stickers and sharpies the day of my sim.  They took the stickers off last week, and yesterday I got  sharpied up again. Not as many lines all over as the first time, but more blue target markings. Good luck to you!

  • Okie9000
    Okie9000 Member Posts: 13
    edited April 2014

    I have 4 very tiny (pencil point) blue freckles (tattoos). One on each side, mid way, one on mid sternum and one in the upper rad zone margin. They are so small, I am not sure how they see them to line up the laser guides, but they can. Occasionally, they will enhance with sharpie, but rare. Glad I don't have to keep the lines like you do! EEK! 

  • Kicks
    Kicks Member Posts: 4,131
    edited April 2014

    I had 4 tiny blue tat dots. 

  • MsPharoah
    MsPharoah Member Posts: 1,034
    edited April 2014

    Hi, I had everything...tattoos, stckers, sharpie marks, the whole nine yards.  I'm not sure why I needed all of that and had I known better, I would have asked them to explain why the tattoos were absolutely necessary.  My understanding is that many docs don't use tattoos anymore.

    MsP

  • justachapter
    justachapter Member Posts: 158
    edited April 2014

    Thanks Ladies!

    I have 9 markings, when I go next week I want to have a better understanding of each one (just for my own benefit).  I was told in a way, they don't do the tattoos as it is one less permanent reminder and marking on your body.  But, if I wear the clothes I normally do in summer, you can see a few of my sharpie marks, and I've decided I don't care, it is my badge of courage! 

  • Kicks
    Kicks Member Posts: 4,131
    edited April 2014

    None of my tats show wearing a (for lack of a better word) 'standard' bra.  In the 4+ yrs 2 of the tats have disappeared, 1 is fading and 1 still looks the same.

    I had a UMX so that's obvious a lot more that 4 'blue freckles'.  But we each 'see' things differently.



  • Moderators
    Moderators Member Posts: 25,912
    edited April 2014

    For anyone reading this who hasn't been through a simulation, the article The Radiation Planning Session (Simulation) from the main Breastcancer.org site goes through the process, and the reasons why markers or tattoos are preferred by some facilities. 

    momto3boysaz, love the approach to your badge of courage!

    • The Mods

  • justachapter
    justachapter Member Posts: 158
    edited April 2014

    Thanks Mods.

    My markings are not pencil tip or freckle size.  They are literally lines or X's and the lines are on average at least an inch long and there are 9 total.  They have been covered by special clear tape that they said should stay the duration.  It sounds as though encyclias were the same, maybe an MD Anderson approach.

    Does everyone who had lumpectomy get full breast and chest wall or is it dependent on where it was?  Mine was at the 3:00 position and radiation is breast and chest wall with boosts at the end.

  • Avoirgold
    Avoirgold Member Posts: 2
    edited April 2014

    I'm in Columbia, MD and have marker with stickers. I feel like a little kid's drawing board or sticker book. I don't want to count them all, but I think I beat 9. I tend to wear V-neck shirts, and I get so upset when I go to get dressed because I can't wear any of my favorites without stickers showing.  

    At least I only have 28 treatments and no boosts. I had UMX. So, the marker/sticker approach isn't just MD Anderson.

  • justachapter
    justachapter Member Posts: 158
    edited April 2014

    So sorry Avoirgold.  I actually have 10 missed the one on my side :)  I hate them, but have decided I'm not going to hide them, if someone asks what they are for I will tell them.  Haha, it will make them think twice about asking about something like that again:).  I live in AZ, I run and I tan very easily so I've decided I'm going to wear the clothes I always wear and not worry.  You've already started, how are you doing?  I do my trial next Wednesday and start on Thursday.

  • crabbiepattie
    crabbiepattie Member Posts: 108
    edited April 2014

    I'm allergic to adhesives on tape, so tattoos were the only practical option for me.  My dot tattoos are large and black and ugly.  I'm having them removed.

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited April 2014

    My rads center does tattoos.  I said NO, give me the markers.  They marked me with four small crosses inside a small circle.  No tape.  They gave me a marker to darken any of the marks that might fade when I showered over the weekend.  It was never a problem.   I began rads in Aug.  Maybe I avoided plunging v-necks for a couple weeks, but I really don't remember any of my marks being visible. I did ruin one old bra that got my green Sharpie marks all over it, but I loved not having any permanent marks.

    Later, I had some unrelated rads and got three tatts.  Personally, I can't stand those three little black "freckles," and they will meet a laser one of these days.

  • MsPharoah
    MsPharoah Member Posts: 1,034
    edited April 2014

    Hello ladies, I only cried twice during my breast cancer treatment last year...surgery, chemo, rads.    First,  when I was tattooed and when the radiology tech asked me on my last day of rads what I was going to do to celebrate.  For some reason, the tattooing seemed like such a violation...a permanent mark that was so much worse than my lumpectomy scar.  And as far as what I was going to do to celebrate????  I told her that I was never, ever going to celebrate anything cancer related...ever!

    Tattooing should stop...it is unnecessary IMHO only.

    MsP

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited April 2014

    MsPharoah, It's not just you and I that have a little tattoo neurosis going on.  Some patients don't mind them, but those that don't like them, REALLY don't like them.   You know, they kind of gave me the stink-eye when I rejected the tatts.  Then, I got told that "if you ever have to get radiation again, the tatts will identify the area that had rads already."   I had to ask, "Is that not in my chart?"  So, apparently, some rads centers not only like doing the tatts, they REALLY like them...enough to come up with silly reasons to try and get them on a person.

    I think that whatever center you wind up at, they will have their preference that they like to use and would rejoice that everyone was compliant and bent to that preference;  but I think we can see from just the few replies on here already that people feel differently about the markings and it is good allow a patient a choice in the matter.

  • encyclias
    encyclias Member Posts: 302
    edited April 2014

    When I first went to see my RO, I said I wanted kitty shapes for my tats.  After he finished laughing, he said he hated to disappoint me but they don't do tattoos anymore, it's the age of the computer and all the data will be stored in computer records for the future.  He actually used the term "old-fashioned" for the tats.  But I am sure each RO has his/her own reason to use or not use them.

    Carol

  • cider8
    cider8 Member Posts: 832
    edited April 2014

    I wish I would have argued against the tattoos my first time around, but I had little fight left.  Second time was at MDA and I was markered and taped like crazy.  One of my tattoos was removed with the UMX but see the one on my sternum.  I keep pondering a tiny tattoo to transform it, or an even tinier tattoo to make it look like a heart shaped brown freckle.

    My tattoos were not helpful to my second RO; he still needed the records from my first rad treatment!

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited April 2014

    This thread made me go back and take a look at my three black tattoos.  One looked a little faded to grey, but the other two were still ugly black freckles.  

    I've read several threads like this one and there is always a percentage that say theirs fade and you can barely see them anymore, if at all.  It made me wonder if those people are getting henna tattoos?  I am not knowledgeable on all tattoo media, but I have heard henna tattoos referred to as "temporary tatts."  If this is the case, why don't all the rads centers use that?  Wouldn't that be the best of both worlds?  Permanent enough to last some weeks, then disappear?

  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited April 2014

    The rad center I went to did tats. But I said NO, and they were very respectful. Sharpies and stickers for the whole time, everything worked out fine! Very pleased that I had a voice in this.

  • justachapter
    justachapter Member Posts: 158
    edited April 2014

    Thank you for all the responses here.  I am thankful I am all "markered and taped up like crazy" as cider8 stated MDA does.  We do have lasting reminders and don't need additional ones if it can be avoided. 

    It does seem like each center as their own way, and am so thankful I am part of a cutting edge disciplinary center.

    I hope everyone has a wonderful weekend with family.

  • crabbiepattie
    crabbiepattie Member Posts: 108
    edited April 2014

    Heck, elimar, I wish I'd asked if there was an alternative to tatts or tape!  Chuckling about kittie tattoos, encyclias...   I did ask if I could have the tatts removed and the answer was "of course".

    A wonderful tattoo removal shop in Denver, Ink-B-Gone, removes radiation locator tattoos at no charge.  I've had two removal sessions and might need one more.

  • faerywings
    faerywings Member Posts: 173
    edited April 2014

    Hmmmm, I have been wanted to get a new "real" tattoo for quite some time. I wonder if there is a place that would remove the little ones or cover them up with a design?  Of course, where I want my new tattoo is to connect the two I have on my ankle, not my boob, but maybe they wouldn't care? hahah!!!

    I am glad that most places will give you the option for markers or tattoos.  I keep getting re-markered since my tattoos are really so small but it  sounds like not all of you were that lucky. :(

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