How long after diagnosis did you have surgery?
I was diagnosed with IDC stage 1-2 on March 12 and still have no surgery date. I am having trouble flinging a decent surgeon through my HMO and they have been giving me the run around with denials and appeals processes and I am starting to freak out that it's been so long and I still haven't started any treatment. All I can think about is there is cancer in my body and nobody is doing anything about it. Is this common to wait this long?
Comments
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Yes, it is - I had imaging done on Sept. 9, biopsy on Sept. 22, results on Sept. 27, but did not have surgery until November 1. Coordination of insurance and multiple physicians causes a bit of a delay for many patients. Try to remember that it took time for the cancerous mass to become apparent, and a delay of a few weeks will likely not change anything. I know you are worried, and I understand that you want it OUT, right now, but this is pretty standard.
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Hi
delays are common---what feels like urgent to us is actually routine for those in the medical profession. And K is right-- a few more weeks won't matter too much....
I was dx on 10/29, lumpectomy on 11/25 but my treatment did not start until 1/16... so there is always a delay somewhere.....
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I know it is so hard to wait. I had asked my oncologist (who I really trust) if I should be worried about how long it was taking and he said it would not affect the outcome. Once you get a date for surgery you will feel better. I hope they all get that together soon and you have a date!
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I became my own advocate and I found a breast cancer treatment center, by-passed my physician and got a doctor on call at my clinic, brought her my papers about clinic and the surgeons and asked her to phone them please. Same day, I got a call from the breast cancer center (Friday). On Wed. got to see them. The following Monday had surgery. The squeaky wheel you know. I was upset being bumped around between local doc and local surgeon. It may have helped that I had had a nervous breakdown first go with breast cancer, I don't know.....but I got it done. Worth a try.
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Hi Katrina,
I had a two week wait between mammogram and biopsy. I had the biopsy results the next day and a lumpectomy a week later. It went very quickly, most likely because I was treated at a small local hospital.
Wishing you all the best,
Bren
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my BS told me she usually likes to operate within a month after DX.
I was DX on 11/15 and had the surgery on 12/19
Mammo on 11/1 and biopsy on 11/10
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I live in small town but mine went fast. Mammo on Friday, 12/6, then biopsy 12/9, results on 12/11, met with a surgeon out here for opinion on 12/11, called and got appointment later in day on 12/11 in St. Louis with another surgeon, went with St. Louis doc and had mastectomy 12/15. I don't know if I would recommend going that fast for everyone, but it worked for me to have my daughter home during the day over Christmas break and I just wanted to get it over with. My cancer was slow growing, they think I had it for at least a year. Long story but had a lump for 25 years, always told it was a cyst, then whammo! So knowing it was there so long, I think that's why I freaked and went through with it all so quick. So, since I had mine for quite a while, a month or so for you won't be a big deal. You'll be fine, remember that.
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I had an abnormal mammo in mid-Dec, couldn't schedule a bx til mid/end of Jan, and didn't have my bmx til March 21! It seemed like an eternity but the holidays in Dec made scheduling the bx difficult and then the bx found DCIS so no one seemed in too much of a hurry. It gave me a chance to get BRCA tested and turned out I am positive so that changed my surgery plans from unilateral to bilateral. I know it's different for IDC but none of my doctors (I met with two different BS before I found someone I liked) seemed concerned with the delay. I do agree with the person who said the squeaky wheel gets the grease though -- it's worth advocating for yourself but I think the main issue with waiting is psychological. Everyone told me waiting was the worst part and it was true! Good luck to you!
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Katrina - how many Surgeons have you actually seen? SoCal has MANY 'decent' breast surgeons.
From your other thread, all you asked for was "nipple sparing" surgeon. "Nipple sparing" is not always possible.
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I had my BMX 2 weeks after receiving my diagnosis. I don't think anywhere from a few weeks to maybe 2 months is unusual. My girlfriend received her diagnosis yet waited 6 weeks as she had a two week vacation planned and was not going to miss it!Except in very rare circumstances immediate surgery is not necessary.
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Katrina, I can't think of a circumstance where surgery should be rushed. If your cancer is so agressive, large or growing quickly, then typically you would be recommended to have neoadjevant chemotherapy to shrink/stop the tumor. Otherwise it does take time to get appointments, select your surgeon and decide about your treatment options. Feel fortunate if you are being given options as many women aren't. I was diagnosed 12/4 and had surgery on 2/18 and yes, it felt like everything was in slow motion.
All that said, you are the best advocate for your health. If someone or some organization is making you wait, make sure that you stay in constant contact with them, following up, letting them know that you are flexible, and that you are willing to be inconvenienced, if needed. And escalate the issue when you are not getting regular updates or call backs.
Good luck, MsP
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My mammo was February 11th, 10 days later (paperwork mix-up), news on February 26th, didn't use the surgeons recommended went to a multidisciplinary (MD Anderson). Dropped my information off March 1st, met Dr. on March 6th, surgery on March 12th. If you can, find a multidisciplinary center everything is under one roof and it is an amazing approach and so much burden is removed. Perfect example today I had a follow-up and my next step is radiation. I already have implants (prior to dx) and was concerned about what I was reading about them. More often than not there are complications with radiation. I told my surgeon I wanted an appointment with the plastic surgeon. Well after my surgical check-up the plastic surgeon came to my exam room and we had an appointment right then and there.
It is hard, but as many often say, for us it is an emotional emergency to get surgery and get treatment moving, but often not an emergency. Time frames become more important with chemo and radiation.
Good luck! -
DocBabs - There are different forms of BC! The different types have different appropiate protocol and time lines for TX. Also how advanced at DX. Surgery is often not the first line of TX. Neoadjuvant chemo is becoming more common with some types though it has been 'standard' for years with IBC. 'Months'are not an option for some - days/weeks are vitally important for some - for some, months apparently aren't.
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