Bottle 'o Tamoxifen

Bounce - just wanted to say you made me laugh with your plans to annihilate various cars.  I may have one you can add to your list, it you get on a roll.

So far for me, tamox has been the worst part of treatment.  Hair loss (drives me crazy finding hair everywhere), night sweats, sleeping very lightly and fatigue are wearing on me.  I'm hoping these level out soon.  Not sure I can do years of this.

Bounce, thank you so much for the giggle !!  Was much needed and appreciated.  I too have a few cars for you should you run out

you usually start 3-4 weeks after chemo 

Donnabelle - Funny you should mention peeing your pants and it not being a Tamoxifen SE...

I wanted to ask if anyone has noticed changes in that department.

I pee more often and when I have to go - I have to go.  No waiting around.

Anyone else?

Bounce - same here.  I thought it was just me .. can barely get in the house and I have to go and not in 5 minutes - now!!  Guess maybe it can be a Tamox SE.  Yippers. 

I agree with everyone there on the side effect of having to pee and pee now!!  I was wondering what was wrong with me..

Bounce thank you for the laughs. I will add my ex boss who eliminated my job when I was on a medical leave of absence for a month after I hurt myself by going back to soon, she also said I was faking the side effects of radiation- hmmmm  good faker I ended up in the hosp..  So have fun with her cars- LOL

Oh yes, summergal, cannot take Tamoxifen & Benadryl............it's a no-no.   It isn't just Benadryl it is anything that has diphenhydramine in it....be careful and read labels or go to Drugs com.

uds, I take Tami at night however I have noticed night sweats while sleeping and warm flashes at times during the day. I too would like to know which time of day is better

Thank you NormaJean and Corky.  I didn't know these things!  Gee whiz.  When I was first diagnosed I was like a medical student with learning "everything there is to know about breast cancer!!!"  But I admit I've fallen off the wagon as far as research has gone in the past few months.  I'm soooo glad there are all these forums to ask questions!

Welcome Franny! You have great numbers, as did I, but as my MO reminded me it's all statistics, and not necessarily a personal prognosis. I would say, in answer to your question about whether it is worth it, that it all depends on what your body's reaction to the Tamoxifen is. If you sail through with few SEs, why not do it. Time will tell for you... Best of luck!

summergal, you're welcome!  One of the best things about this website is that we are here for each other.  It's a beautiful thing.

great article. I take d3 daily. I'm deficient and have been prior to BC diagnosis. 

uds, I felt some right away. The first day my stomach was a little upset, but that did not last long. the hot flashes started next. Then over time some of the pain in my joints flared and my hands got really bad. But I am feeling better now. So it comes and goes. It was suggested to me to write how I felt down, but I never did. 

Now I am having some mild achiness in my lower back and some cramping in my uterus area. It feels like I might be getting a period, but I haven't had one of those in years. Anyone have that happening? 

Uds, in less than a week. 

My MO gave OK to go to only 10 mg. but that was only to ease into Tamox. I take 20 mgs twice a week and have to work back up to 20 mg every day. I take it at night, the daytime dosage interfered with my brain at work-not good. 

Awoke in a puddle of Tamox night sweats at 3am, and wanted to share with you ladies a solution. The Chillow, as seen on TV....trust me, worth checking out. 

Went down to fridge, removed Chillow, placed in pillowcase over my pillow and have now cooled off considerably. Back to zzzzzzzzzz

Thanks ladies for your responses & encouragement to at least give the tamoxifen a try. Took my 1st pill last night at bedtime. Will let you know how it goes! Hope everyone has a nice weekend. Finally sunny & warm here near Pittsburgh!