Charleston Bound, part 2
Comments
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Brca, congratulations! If all goes well, I hope to be there in July for stage 2. What is your date?
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Montrial,
Hope you are recovering well from your surgery last week. Take care!
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Ashira,
How are your surgery preparations going? Did you go anywhere for Spring Break with your daughter?
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Hi Pink,
Thanks so much for asking! I am just emerging from the chemo fog and trying to spend a bit of quality time with my daughter prior to surgery. I bought a wedge pillow today, did some grocery shopping for my trip and went in search of a large button down shirt. Other than that, what else do you suggest?
I read that some women began with laxatives for a few weeks prior to surgery. Do you have an opinion on that? I really should reread my packet from PS. I guess that I'm in a bit of denial :-(
How are things with you?
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Ashira,
Did you mean to say few DAYS before surgery on Miralax?
. That's all that is necessary before surgery and you will continue after because the pain meds will stop you up big time. Dr Kline had it on my Rx list that he prescribed and mailed to me a few weeks before surgery so I got it paid in full as an Rx by my insurance co and it came in single serving packets.
East Cooper hospital will provide you with two soft camis with pockets for drains. Are you thinking large button down shirt with leggings? I wore loose button front sundresses too.
Dont forget the extension cord for your iPhone so it can plug in charging and able to reach your bed. Can you skype with your daughter while you are gone?
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Thanks Pink,
Yes, I guess I was thinking button down with leggings. I suppose dresses would be better, but am concerned that drains will show underneath. I know it varies, but about how long do they stay in?
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Ashira - leggings really won't work so well. There are som loose floaty Giligan O'Malley at target in the sleep wear section that are really great, I got pants and a jacket and put a top underneath. Worked well with drains and swollen body. Could pull it together enough to look pretty cool around town. Yummy soft cotton. Tank dresses are also good.
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Really? What about the drains? Don't those show underneath a tank dress? How long can I expect they may stay in?
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Well, not a tight tank dress. Drains vary widely per user. Breast drains usually come out before ab or hips. My ab drains were in for 20 days. Some hip gals have had them much longer. Loose is the key to hiding them as well as possible. And, flying is always fun - even with a doctor's letter just expect some inspection. Some people get offended, but you never really know what could be hidden in the drain bulbs. I was scanned and I think I had to show them the drains one time then have my hands swabbed. Just don't overthink the whole thing. A loose blouse (not necessarily sized larger) works well with yoga pants or the GO'M from Target.
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I'm happy to report that I'll be driving. I can't imagine dealing with airport security around drain content :-( Thank goodness for small favors!
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Ashira,
I have the Target soft flowwy black pj pants that MartyJ suggested and they work great especially for Stage 1. I wore leggings later for fat grafting surgeries as i wasnt in compression more than a week and no drains. I wear a lot of black to hide either swelling breasts, bod, and drains. Check out those Gilligan & Malley pants at Target.
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I am in need of help from you ladies. Having run into an administrative nightmare, I am double thinking the whole thing and questioning whether I have chosen the right place to go. I am scheduled for two weeks from now and hadn't gotten any pre-op instructions, so I decided to check in with the office staff to ensure all is well. As it turns out, they cancelled my surgery-- stages 1 and 2. Nobody could figure out why, until someone shared that a woman called about someone with a similar name to mine saying that she died on the operating table. They thought it was me, so cancelled my surgery. Now that they know I'm alive, they've put me back on the schedule, but told me that if I keep the same date, I need to use a different BS than Doc Baron, in order to stay at East Cooper. Otherwise I need to move to Roper, but can keep Baron. Do any of you have a recommendation for a BS? A few other names were mentioned, but they're just names to me.
It was my understanding that East Cooper is state of the art and that it is considerably preferable to Roper for stage 1 Do you agree? Am I better off moving hospitals, changing docs, or scrapping the whole-thing altogether?
Could this be a sign? Yes, I'm superstitious and really confused and quite frightened. Just when I thought things were coming together, I don't know what the right thing is to do.
Any words if wisdom would be appreciated.
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Ashira - Roper is state of the art as well. I have had 3 stage 2 at Roper and know the hospital well. I also know quite a bit about East Cooper. Both are excellent and the care you receive is outstanding. Surgery at Roper usually happens in the Heart & Vascular Tower OR. It is a warm, welcoming place with top notch staff. I have a feeling you would spend your days inpatient on 3HVT. They are the nurses that generally take care of Dr. Massey's patients and are all wonderful. I couldn't have asked for better care.
I also know Paul Baron personally. He is a wonderful surgeon, but there are others in Charleston who are excellent. I would need to know the names suggested to help you. I do understand your concerns. Remember, in this instance, the microsurgeon is more important than the breast surgeon. The BS only role is to remove the breast tissue and to do it in accordance with the PS wishes to ensure that incision placement is best for reconstruction.
I am amazed that they had the same date available for you. Go for it. Do not hesitate to ask any questions. I do think someone on the staff should have been more careful in canceling the surgery - there is usually a 2 step method of identification involving both your name and date of birth. I can not believe the other person had the same DOB. I would ask to speak to Dr. K for some "reassurance" too. He can answer questions about the BS. This is way too big to let go of.
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Ashira, Marty has given you excellent advice. I wouldn't be too concerned about switching hospitals and Marty has personal experience and given it a thumbs up. Agreed, it is your micro surgeon that matters most. Do not give up, refocus and think positive. Have you listened to the" Meditation for a successful surgery" cd's? They were of great help to me, before and after. Please let Dr K know of your concern regarding how this was handled, a little unsettling but an unfortunate clerical error. You can do this, use these next two weeks to mentally and physically prepare, before you know it you will be on the other side. Wishing you well.
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Oh, I almost forgot, for those that are interested I posted my final pics on the picture forum.
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Thank you Marty. I am waiting to hear back from doctor kline to discuss things. I will share names with you as soon as I have them from the office. I fear that getting anyone at this late date may prove difficult. Can you recommend some names?
As for the hospital, what is the reason that Dr. Massey doesn't do stage 1 there? Dr. Kline was very specific when singing the accolades of EC over Roper for stage 1. It is my understanding that he does over 90% of his surgeries at EC, so it's my guess that the nursing staff there would be considerably more adept with post op care. Do you disagree?
If the role of the BS is minimal, maybe it's better to keep the hospital and change the doc? What would you do Marty?
I am now asking myself if I've done enough. Lumpectomies behind me (radiation not an option)chemo complete. If it weren't for my little girl, I would call it quits for sure.
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Cascader, so you would keep the doc and change the hospital!
Congratulations on being complete! I will check out your picks if I can figure out how to get there.
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I had my Stage 1 at Roper with Dr Massey as well as both Stage 2's. I LOVED the staff at Roper and the care I received there. I may have been one of her last stage 1's there. I believe her decision to not do stage 1's there had a lot to do with finding assisting micro surgeons who were willing to take the same insurances she did. I loved her enough, I would go anywhere to have her as my surgeon. Dr. Baron was also my BS. Had a preop appt with him and really liked him.
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Marty,
Do you know of a surgeon named Megan Carter?
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Ashira - there are actually 10 doctors in Charleston that do DIEP and other flap procedures. Some of this is all about marketing and how they approach their practices. Dr. Massey rarely does Stage 1 in Charleston any more, she prefers to do it in NOLA. When she does a flap in Charleston it is usually a uni since they prefer to have 2 microsurgeons for a bi - it minimizes the time on the table for the patient and provides the doc with assistance when needed. When she does operate in Charleston, she uses Roper though she could use East Cooper. All about preference. I think that since Dr. K mostly operates at EC he is more comfortable with the nurses there. I have learned that the specialist surgeons often build a specially trained workforce within a specific hospital to create their own center of excellence. My husband's neurosurgeon has privileges at 3 of the Roper-St Francis Hospitals, but only operates at 1 - St. Francis - West Ashley. His office is in the same building on the campus as Dr. Baron's office, but Paul operates at several hospitals.
I think that if you are happy with Dr. K, go with his recommendation. He operates with several breast surgeons - though he prefers Baron, he can not only work with him as Dr. B sets his own schedule. I think you will be happy at either hospital, but would go with Dr. K's preference.
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Don't know Dr. Carter - perhaps she is new. We are growing so quickly here. I tried to google her, but no luck.
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Jacee is so right about Dr. Massey - it is mostly an insurance issue. She would really prefer to do all of her surgery in Charleston.
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It seems I got the name wrong. Megan Baker was the surgeon. Also Jennifer Fiorini. Have you heard of either if them?
Dr. Kline has been wonderful. After a full day in surgery he has been speaking and emailing me. Very open, upfront and apologetic. Feeling MUCH better after speaking with him.
Because EC really is the preferable option for me, we're looking for a time and docs that can work there. In this moment it looks like I'll be having surgery a week early, next Thursday :-0 Not much more time to prepare. On the bright side, that makes me just a wee bit close to the finish line, right?
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Ashira,
Really very sorry this happened to you. Very bazarre! I know Dr Kline genuine in his apologies. So there was no way Dr Baron could reschedule the patient that took your surgery time? He really is the best in Charleston.
Im definitely all for East Cooper. So easy to get in and out of being smaller, newer, and not downtown. When I called Roper I was told no guarantee on private room but that could have changed.
Peace and blessings! It will all be good.
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Thanks Pinkie. Really is strange and scary. At first when I heard the story, I thought that someone in my life decided that they didn't want me to go through with it, so pulled a prank. Problem was, I couldn't figure out who would care enough to cause such trouble! When I learned of more details, I was relieved but felt like I was living in the twig blight zone. Dr kline has brought me back down to earth and dr baron is working to change his schedule. If that won't work, looks like it may be Jennifer Fiorini. Pretty name anyway:-)
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This post is for you ladies that have had implants, and had them removed to do a DIEP, GAP or PAP flap.
I had to have my implants removed on 2/13/14 after 4 infections. I never thought that the implants were uncomfortable while they were in, but now that they are out, I can't believe how good I feel!
I'm considering giving reconstruction one last try. Both my PS and my ID Dr. agree that I should not have implants again...they feel that my body did not like having the foreign objects in it. The best tissue donor site...based on CT scan...is the back of my thighs. So I'm considering a PAP flap.
So, my question is: How different does a tissue transfer breast feel vs. an implant? Meaning how will it feel inside of my body. Can anyone explain it?
Tami
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Ashira - sooner is better - less time to overthink.
Pinkheart - Roper only has private rooms, except in the very oldest section and that isn't used for flap patients. The area that is used for flap patients is as new as East Cooper.
Tamiami - Natural! That is how it feels. Like my own breast. I had implants for 28 years. They were very firm and always perky (a plus), but over time they got wonky in their placement. My DIEP breasts are warm, soft, bouncy. They do not feel like anything has been added. They are there and I rarely think about them. A big plus is that I lost the freezing cold feeling as the silicone was always many degrees lower than my body temp. Even in a Carolina winter, I was really cold - the implants were cold and sitting on my chest wall. I am so glad I made the change!!!
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Marty~ THANK YOU!!! That is what I was hoping that I would hear! I want my breasts to feel like my own body! I'm actually liking how my body feels with no breasts...just not how it looks
Tami
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Tamiami,
I had implant failure and severe complications, too, and it is sooooo nice to be rid of those cold water balloons!
The PAP flap is a new surgery that Dr. Robert Allen pioneered. Dr. Kline and Craigie in Charleston (who still practice with Dr. Allen occasionally) do the PAP flap procedure in addition to DIEP, SGAP, etc. Dr. Kline was my microsurgeon.
Here is a link to Dr. Allen's paper on the PAP procedure: Very interesting, and patient's results pictures are beautiful.
http://www.diepflap.com/pdfs/profunda_artery_perforator_pap_flap_for_breast_reconstruction.pdf
Best wishes with your natural breast reconstruction surgery!
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Thanks Pink Heart!
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