Treating estrogen responsive cancer naturally

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  • Ladybird-dancer
    Ladybird-dancer Member Posts: 167
    edited April 2014

    Dear Flavia Rose

    I'm very sorry to hear of what happened to you.  Thank you for writing.  I can only repeat what I've said all along that a Thermogram and Ultra-sound are, for me, the way forward.  They measure and show different things.  Also that if you are at all interested I strongly recommend you get yourself a copy of The Promise from rosa@medscans.co.uk  A dvd all about the efficacy of all three types of monitoring led by senior medics in the UK  - the pictures I have taken are sent to USA for the report/interpretation, so thermograms are available in the States much more easily than over here in the UK.

    One of the Docs on this dvd says that if you have a mammogram every year it will give you cancer, as you so wisely surmised.  It does seem to me that from some of the stories I have seen on this website, that in the States, you do seem to go overboard in surgery and invasive procedures.  If that is the socially acceptable way to go, then I can see how diff it must be to buck the trend.  It's not that different here to be honest.

    According to the dvd a woman can have DCIS, which is wrongly treated as if it were full blown cancer which it is not, for years without it affecting her health.  It's not really cancer, it's calcification.  This may be hard for many of you to take as so many of you have had surgery on account of this, but these are the facts.

    If you think I'm talking baloney I can tell you that my BS who is very high up in the eschelons of power in the BS world made the point, after I gave him a copy of the dvd which he found "compelling", that of course the radiographers don't want to lose their jobs!

    If you have half a mind to buck the system then eyes need to be opened and the surprises and cover ups that appear can be very shocking indeed - the results are what we poor women have to put up with.

    The idea of gross mutilation and the biblical idea of "if thine eye offend thee, pluck it out" does not sound like 20th never mind 21st century medicine to me, which is why I have not had surgery of any kind.  My diagnosis was 3 years ago and I am still fit and well.

    If you're dreading another mammogram, don't have it!  Crikey, you've had more than 30 of them and look where they got you?  Have an ultrasound, and an MRI with a non-radioactive dye and thermograms and you will be fine - in my opinion.  I am not a Dr myself, but I have read lots and these are my choices that I put down here.  Try the dvd, I implore you, and then make up your mind yourself.

    Best wishes to everyone  

  • Momine
    Momine Member Posts: 7,859
    edited April 2014

    Ladybird, all the more power to you, but I have to say that I in no way feel "grossly mutilated," although I have had a BMX.

  • Ladybird-dancer
    Ladybird-dancer Member Posts: 167
    edited April 2014

    Dear Momine

    I am so pleased to hear this.  Yes, there are many +ve stories of women who have survived surgery - clearly you are one of them.  I hope you're doing well on the Femara - I ended up with debilitating side effects which even my (ex) consultant hadn't even heard of and he was top man at the hospital he was at.

    Stage 3B sounds a bit serious I have to say and for you, you have made the right decision.  I've met women who have no sensation from their collar bone downwards and are happy about it.  There are so many stories, I've had real bad luck with my first consultant and the AIs and I am once bitten, twice shy. 

    We must follow our own path, which is why exchanging views on this absolutely fantastic website is so very helpful. I may well end up with surgery, but not just yet I hope; not until I have actually made up my mind what end result I could live with. 

    BTW your avatar - is that the right word??? - your picture.  Is it Dutch 16th century?  It's very interesting and so small that I can't really see the detail.  Could you let me know what it is?  Presumably puddings on a plate made to look like breasts - interesting choice ;-)

    Best wishes

  • pipers_dream
    pipers_dream Member Posts: 618
    edited April 2014

    Momine I have read that too about the liver/gallbladder flush but a great many people swear by them and my doc is having me do them.  I can't see as there is much difference for me but he'd had me on several cleanses already and I've been feeling great.  The most unpleasant part for me was drinking the olive oil.  It's good on a salad but not so good for drinking straight up.  

  • gemini4
    gemini4 Member Posts: 532
    edited April 2014

    Just want to chime in about ultrasound ... My lobular tumor was barely detected in both mammo and ultrasound.  The MRI was the only scan where it showed up clearly. Some have the opposite result. It's too bad there doesn't seem to be one definitive imaging test that will detect all the different types of breast cancer tumors within varying types of breast tissue. 

  • Momine
    Momine Member Posts: 7,859
    edited April 2014

    Piper, if your doc is having you do that, I really think you need to question the doc's judgment. All it does is force your intestinal system to make soap.

    Ladybird, stage 2 is plenty serious too. I confess that I have never heard of any doctor being fine with skipping surgery in an early stage (stages 1-3) cancer. The avatar is a detail of a painting by Zurbaran (Spanish Baroque). The painting is of St. Agatha: http://en.wikipedia.org/wiki/Agatha_of_Sicily

  • Ladybird-dancer
    Ladybird-dancer Member Posts: 167
    edited April 2014

    Thanks Momine.

    I'm not skipping surgery as such, just prevaricating.  As long as it doesn't grow, then he's happy to leave me as I am.  No lymph nodes involved, no vascularity in the tumour itself, so basically, it's dormant.

    I'll look up the picture :-)

  • Ladybird-dancer
    Ladybird-dancer Member Posts: 167
    edited April 2014

    Momine

    Just looked up Zurbaran etc.  As I had feared, but was trying to be polite!  A contempory of Velazquez - he's pretty amazing too!  Poor Agatha was only 15 yrs old - and only lasted for another 5 years - maybe that's why the medical world reckons it a success if we all live 5 yrs beyond surgery!?  Sorry for the cynicism, but the barbarism then is beyond belief.  I just have to try to get it out of my head that that's what's still going on!

    Best wishes.

  • pipers_dream
    pipers_dream Member Posts: 618
    edited April 2014

    Momine, I don't mind when we respectfully disagree, but I don't think we should be criticizing one another's medical care, no matter what we think, b/c a good percentage of anyone's healing is their belief in their doctor and their medical care overall and I feel that I'm getting good care, if the way I feel is any evidence at all.  Even if you're totally right and I'm totally wrong, I still don't think it's a good idea and  I don't know what I think of this cleanse yet, but as I said, a great many people swear by it and have for a good many years--it's not just a fad.  

  • Akevia
    Akevia Member Posts: 209
    edited April 2014

    This is for ladybird-dancer

    I couldn't send the private message.

    Trust me i do is research and tamoxifen is good for estrogen positive cancer which I have 80% and 65% progesterone. Tamoxifen is given to pre menopause women and the other drug is for post menopause women. The doc told me all the info and I also told him a little as well. I'm a respiratory therapist and in the health field so I know about most diseases because I deal with them daily. Since I now have one I have looked into everything. He tell me what he think is best and I let him know what is okay with me just as you have with surgery the same thing. Every breast cancer is bad and they are treating us all the same. It's trail and error!!  

  • Ladybird-dancer
    Ladybird-dancer Member Posts: 167
    edited April 2014

    Two comments:

    1)     Chacun a son gout.........................Each to his own

    2)     Don't forget the placebo efffect.

    If standing naked in Trafalgar Square with my knickers on my head would get rid of this cancer - I'l be off there right now!

    We're all different, as is our flipping cancer.  If it works for you, then.....................it works Smile

  • gemini4
    gemini4 Member Posts: 532
    edited April 2014

    BosomBlues, my breast center upgraded to the 3D mammo machine the year I got my diagnostic screening after I felt the lump that turned out to be ILC. It showed only architectural distortion. But it raised a flag with the radiologist, who then ordered an MRI. The eight prior mammo's (not 3D) were "normal."  The 3D technology does seem to be better at detecting, and I don't know the difference in radiation exposure. 

    Momine, I had no idea about your avatar. I always thought those were pears on the platter. I did not know about St. Agatha's plight. So much savagery in the name of god!   

  • Momine
    Momine Member Posts: 7,859
    edited April 2014

    Ladybird, Agatha did not have breast cancer.

    Piper, I meant no offense, truly. What I posted is simple factual information. My impression was that medicos get questioned and criticized plenty around here. Again my apologies.

  • Ladybird-dancer
    Ladybird-dancer Member Posts: 167
    edited April 2014

    Dear Momine - I realise she didn't have BC!  I was merely extraopolating.  It was just men and religion.

  • Ladybird-dancer
    Ladybird-dancer Member Posts: 167
    edited April 2014

    Extrapolating is what I meant to write - damn these spell checkers.  Ha!

  • pipers_dream
    pipers_dream Member Posts: 618
    edited April 2014

    We're good Momine.  

  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited April 2014

    Momine, your choice of avatar is just brilliant.  It has lots of characteristics of an icon, inviting meditation on our breast/body/feminity/humanity issues.  Thank you for explaining it.

    The placebo effect is very real, and makes me think of Lourdes and similar shrines.  So many go there with real expectation of cure, but the result is typically more a psycho/spiritual healing rather than a physical effect.  I happen to be a big fan of that kind of wholistic healing, with or without (hopefuly with!) a bodily healing.  As some of you have noted, I consider stress reduction to be a significant factor in our health.  Acceptance and perspective are difficult to reach, but can have a huge effect on how someone with a major health problem addresses life, friends, family.

    Ladybird-Dancer, dormant is certainly where we want any and all of our nasty little cancer cells to be.  While I'm the queen of prevarication, I'm in awe of your comfort.  Me?  I'd be there with calipers, measuring my tumor every other day.   Well, I see you're three years out--maybe by now I'd have dropped down to weekly!

  • Ladybird-dancer
    Ladybird-dancer Member Posts: 167
    edited April 2014

    Dear Brookside

    Love your sense of humour ;-)  

    It's the ultra sound that tells me it's dormant - i.e. no vascularity and my thermogram pattern has radically changed for the good just recently too.  I do, however have permanent underlying anxiety - oh yes, I am human!!!  I had a crappy consultant for two and a half years but have now got someone who, dare I say it????...........actually cares!!!!  He knows I've been through the mill with appalling threats from my previous hospital, my new guy is simply lovely and sees me every month - so, every month I get a bit wound up until he does an U/S and proves that all is heading in the right direction, but so far so good.

    I know a few women who have had no orthodox treatment at all and are well even tho' they have tumours, so it fills me with hope.  In comparison with them I'm being completely orthodox!  Horses for courses etc. 

    Best wishes 

  • Lojo
    Lojo Member Posts: 303
    edited April 2014

    Hi Ladybird,

    This is simply out of curiosity, and I mean no offense. Did you have a lymph node biopsy? If not, how do you know if it is or isn't in your lymph nodes?

    How is the tamoxifen treating you? I'm about to start up again with it.

  • Ladybird-dancer
    Ladybird-dancer Member Posts: 167
    edited April 2014

    Hi Lojo

    No offence taken :-)

    My consultant can see on the US and it also shows up on an MRI that I am lucky enough to have clear lymph nodes.

    Having been terrified of taking the Tamoxifen, it actually suits me quite well - certainly better than the AIs which were just appalling.  Initially I was losing my balance - apparently normal (!) that eased and has gone away.  I think I may get the odd hot flush, but so insignificant I'm still not entirely sure if that's what's happening or not.  I am post-menopause anyway, but you are young, so I don't know if that changes things for you.

    HTH

  • Momine
    Momine Member Posts: 7,859
    edited April 2014

    Ladybird, I do not mean to be a downer, but I had ILC and on U/S, MRI and CT, my nodes were clean. On the pathology report, however, they were not. 

    May I ask why you chose hormonal therapy over surgery?

  • Ladybird-dancer
    Ladybird-dancer Member Posts: 167
    edited April 2014

    Simple - I don't want my breast cut off!  They were the choices I was given at the time, one or the other.

    I can only listen to my consultant and take advice from him re: my lymph nodes, but I hear you.  I'll ask his opinion when I next see him.

    Best wishes.

  • Ladybird-dancer
    Ladybird-dancer Member Posts: 167
    edited April 2014

    Also, Momine, don't forget that we all have cancer cells throughout our bodies, even apparently "healthy" people..........maybe that's what you had?

  • Ladybird-dancer
    Ladybird-dancer Member Posts: 167
    edited April 2014

    Also you were stage 2B.........i.e. lymph nodes affected with a tumour of 5cms

  • Lily55
    Lily55 Member Posts: 3,534
    edited April 2014

    I wish I had taken hormonal therapy before surgery even though it was never mentioned as an option, but in retrospect this is what I would have done - I am still so not ok with being one breasted, I hate it and never feel normal

  • Akevia
    Akevia Member Posts: 209
    edited April 2014

    Lily55,

     You didn't have reconstruction? If not why not?

  • Momine
    Momine Member Posts: 7,859
    edited April 2014

    Ladybird, ok, I see. No, I did not have a few cancer cells. I had 7 lymph nodes full of cancer.

  • Kathie100
    Kathie100 Member Posts: 108
    edited April 2014

    Hello any fellow DIM users. My question is 'Has your hot flashes reduced while on DIM?'. Ive noticed my night sweats and hot flashes are a lot (I mean a lot) less since I've been taking it. My DIM has I3C in it also. Ive had my Ovaries removed and trying to watch what I eat, I also drink herbal teas to clean the liver, colon and kidneys twice a day. I still haven't lost the extra weight or increased my energy levels but it means alot to reduce the hot flashes and night sweats. I also take fish oil to help reduce them also. I'd like to hear from others what benefits they see from it.


  • Ladybird-dancer
    Ladybird-dancer Member Posts: 167
    edited April 2014

    Dear Lily

    So sorry you feel so bad about things at the moment.  No wonder you feel bad.  Have a look at the forum I started: "How do you choose which reconstruction to have?"  There is a lot of info on there.  I am looking at Fat Grafting or Implants at the moment.  I have shied away from massive scars all over the body possibly leading to numbness throughout.

    Have a look at my forum and see if that helps you, and get back to me.

    Best wishes.

  • Kathie100
    Kathie100 Member Posts: 108
    edited April 2014

    Oh yea I posted a couple days ago about doing a cleanse, well I've nixed that idea for now. My Fathers cancer is back and its one Dr after another Dr and I just need to focus on him now with all the strength I can muster. I'm sure there is another topic out there for those of us that haven't even reached a year yet in diagnosis that has a loved one fighting another type of cancer. If you know it please share. Thanks for being here. 😇


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